Could you help me with the diet??

June 29, 2004

I'll try to follow your advices, thanks.

Doctors didn't tell me a lot a bout the diet , I don't how many gramms of

proteins my son has to take...

I was looking at the meal plan , the american one and I understand nothing

because I don't have all the informations...

Could somebody help me to recalculate eveything for the diet for my son?

Thanks

Carolyn

Re: Hello!a new member from France!!!

>

> He sounds plain toxic to me Carolyn.

> Both phenobarb and clonazepam (the latter being part of the

benzodiazepine

> family) are drugs noted as usually needing to be decreased when

starting

> the diet. Ketosis, especially at a high 5:1 ratio will possibly be

> strengthening the med effects. Toxicity can induce or aggravate

seizures,

> and sadly this is sometimes why Drs pull kiddies off the diet saying

it

> 'hadn't worked'. Any good that might be done seizure wise can be

masked by

> the seizure inducing med effects when too many drugs are on board.

> What are his ketones registering at, and why was he put on a 5:1

ratio?

> What dosage does 30 drops of clonazepam equate to in milligrams? Was

this

> increased in hospital? And how old is he?

>

> ----- Original Message -----

>

> Hello and all members

>

> Thank you for your advice,I'll try to order the supplement

Carn-A-Ware

> ...

>

> We 're back home and the first night back, seizures again all the

night

> and even this afternoon, I'm completely sad and disappointed!

>

> I don't know that to do if I go back to hospital ,it will be the

same

> after a few days, This time we stayed over there nearly 3 weeks and

> nothing new!

>

> aël is now under topiramate 50 mg, phenobarbital 100 mg

and

> clonazepam 30 drops

>

> And it's worse, I wander if he hasn't got very bad drugs'

> effects....He's continually in fits!!!

>

> Please, give us some advices, he's on K diet 5 : 1

>

> Carolyn

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

June 29, 2004

Hi Carolyn

I cant help you with the diet since we are not on the diet yet but I

am just shocked with your doctors attitude.You definately need to

read J.Freeman's book,it will give you a good idea what you are

doing and you wiil be able to ask appropriate questions.I would seek

a second opinion somwhere else. Hopkins hospital is a good

idea .You can buy the book here

http://www.amazon.com/exec/obidos/tg/detail/-

/1888799390/qid=1088554897/sr=1-1/ref=sr_1_1/102-3306338-5596150?

v=glance&s=books or maybe you will be able to find it in France

Natasha & Joe

July 1, 2004

Natasha,

Hopefully this is the book I've ordered a week ago, I hope I'll receive it

quickly because I'm desesperated, my son has seizures non stop all night long