504 soundfield maintenance recommendations?

[Guest guest]

Hi. I am new to this group. I have 3 year old identical twins with

recently diagnosed hearing loss due to enlarged vestibular aqueducts.

Because their loss was recent (but will probably progress), they are

still speaking well enough to not qualify for special education. So,

I was told that they will not have IEP's because that is a special ed.

thing, but they will have 504 plans because they will need a

soundfield fm system put in their preschool, will need preferential

seating, one will need a boot on her hearing aid, etc.

The first 504 meeting is coming up in less than 2 weeks. I've been

wondering what kinds of things I should have written into the

contract. For example, what happens if the system breaks, how long is

reasonable to wait until it is fixed? Also, what sort of maintenance

schedule should the system be put on? Are these things that come up

at 504 meetings? Anything else I may need to be prepared for?

Thank you,

Cathy

[Guest guest]

Welcome Cathy, Have your kids been evaluated for special ed and determined not

to qualify? I ask because " evaluations " are a part of the 504 plan as well.

Sometimes the audiological info is considered the " evaluation " which is great if

it helps your cause! What type of preschool will they attend - public or

private? YOu can basically put anything in a 504 plan that will give your

kiddos access to the curriculum. It is a good idea to put some time frames on

equipment since some of us have dealt with months of faulty equipment. It is

important to get the type of equipment specified particularly rather than

vaguely. ANd equally important is training for teachers and other staff, not

just how to operate the equipment though that is important, but also how to work

with kids with hearing loss and hearing aids and to understand the consequences

of hearing loss and hearing aids etc. Here is a great article on kids with

minimal hearing loss by the guru of listening, Carol Flexer. I give it to my

child's teachers each year (she's 14) and write on there that her hearing loss

is of a much greater magnitude even with her hearing aids, but the article

helps teachers to understand what goes on with the hearing loss. You can find

it online at http://www.totalhearing.net/child_faq_management.htm

I would also want something in there about monitoring their language, listening

and speaking skills if their baseline is known. I'd want a baseline if I didn't

have one.

Good luck! in GA

-----Original Message-----

>

[Guest guest]

Cathy,

In addition to the hearing component of LVAS, you probably need to

prepare the school for the " physical " component. That is the issuses

relating to not getting hit on the head in sports or generally and not

allowing your children to participate in physical activities that will

cause pressure to build up around their ears. You should probably talk

with your ENT about this. Different ones have different takes on this,

but pediatricians usually don't know much about this. You can also read

about it on the Yahoo LVAS sit run by Neil Beauman.

I was ambivalent about notifying my son's school about this situation

(he has LVAS and is now finishing 10thgrade), but after an unfortunate

incident with another student, I realized I was doing him a disservice.

504 soundfield maintenance recommendations?

Hi. I am new to this group. I have 3 year old identical twins with

recently diagnosed hearing loss due to enlarged vestibular aqueducts.

Because their loss was recent (but will probably progress), they are

still speaking well enough to not qualify for special education. So,

I was told that they will not have IEP's because that is a special ed.

thing, but they will have 504 plans because they will need a

soundfield fm system put in their preschool, will need preferential

seating, one will need a boot on her hearing aid, etc.

The first 504 meeting is coming up in less than 2 weeks. I've been

wondering what kinds of things I should have written into the

contract. For example, what happens if the system breaks, how long is

reasonable to wait until it is fixed? Also, what sort of maintenance

schedule should the system be put on? Are these things that come up

at 504 meetings? Anything else I may need to be prepared for?

Thank you,

Cathy

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