Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 To all those UK parents with children who were featured on the Tonight show. My mother and all her side of the family live in England and watched the show. Since they are not over here in the States to see what it is we go through day to day planning meals and trying to get the food in Stella it was such an eye opener for them. All my old friends from school when I lived over there watched the show too!!! I hope my daughter gets seizure control like you've achieved with yours. we are only 1 month into the diet and still fine tuning everything. If we could get the drop seizures under control that would be wonderful, Though no seizures today so far, (I'm crossing my fingers and toes) We go to Europe many times during the year and I would love to meet other families. We should be heading to England late July/Early August. Most of my family lives up north, Lancashire, but we have a flat in London we stay in too. Congratulations... it's families like yours who get Epilepsy known and hopefully remove the stereotype, and educate the public our children are just as precious and innocent, I think a little more special with all they endure don't you. -- -mom to stella, 5years old, started keto diet May 10th 2004 still waiting to be seizure free. Also on Lamictal, diazapem and Diamox. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 Hi , You can also find out more information and get in contact with families in the UK through matthewsfriends.org - I set up this website as a place for parents/families of children using/wanting to use the ketogenic diet to gather more information and support for one another. , and Nicola did a wonderful job last night on the programme. Hopefully we can all help change the situation for our children and provide parents with a choice and a better hope for the future. I wish you all the best and if s Friends can support you in any way then just let us know, but you have made an excellent start by being on this group - the information on here is brilliant. This group have certainly helped me. Kind Regards, Emma Founder/Chief Executive - s Friends Parent Representative - KetoPAG Mum to - ketokid since July 2002 - doing better than ever and med free. Getting my boy back! > To all those UK parents with children who were featured on the Tonight show. > My mother and all her side of the family live in England and watched the > show. Since they are not over here in the States to see what it is we go > through day to day planning meals and trying to get the food in Stella it > was such an eye opener for them. All my old friends from school when I > lived over there watched the show too!!! I hope my daughter gets seizure > control like you've achieved with yours. we are only 1 month into the diet > and still fine tuning everything. If we could get the drop seizures under > control that would be wonderful, Though no seizures today so far, (I'm > crossing my fingers and toes) > We go to Europe many times during the year and I would love to meet other > families. We should be heading to England late July/Early August. Most of > my family lives up north, Lancashire, but we have a flat in London we stay > in too. > Congratulations... it's families like yours who get Epilepsy known and > hopefully remove the stereotype, and educate the public our children are > just as precious and innocent, I think a little more special with all they > endure don't you. > > -- > -mom to stella, 5years old, started keto diet May 10th 2004 still > waiting to be seizure free. Also on Lamictal, diazapem and Diamox. > > > > > > Quote Link to comment Share on other sites More sharing options...
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