/I really need some friends right now

[Guest guest]

,

How do you have the time to write to everyone!

I have to say I teared up at the end of your post. Yes, I am mad at my husband.

I called him after this PPT, and I was all choked up and I asked hm why he

didn't say anything at the PPT. He said it was pointless. I said he could have

at least agreed with me, backed me up somehow, that without him it was 3 aginast

one and I got mowed over, and he hung up on me. When he got home tonight, I

walked right over to him and said, " How many times do I have to get discounted

today? How many people have to take a stab at me? " He made some lame excuse

about how he was sorry, but he just was hanging up on the whole thing, sick of

it all, like I am not? I'm not finished with him yet, but I was very hurt and I

certainly didn't need that.

Anyway, I have been in touch with and he will be a big help someday, I can

see that, but I have to play along with the politics first. I have no money to

send Bobby to e, but I don't know how I can do any less for him. You know,

the thing I really felt when I left that PPT was that I had let Bobby down. I

didn't say " no, I don't agree " enough times. I let them get the best of me. I

couldn't follow their language, and I was in a horrible position with no power.

But I had kissed Bobby goodbye before I went in there and told him I'd work hard

for him, and I felt like I didn't even have a chance to do that.

Oh gosh, here I go crying again. Sometimes having a special neds child really

stinks.

Anyway, thanks for writing.

Trish

Re: Hi...I really need some friends right now

Well Trish, you did just get hit by a truck AND you are entitled to an

evaluation by law. Their evaluations are in conflict - one shows dramatic

decompensation, the other doesn't. You can ask for an independent eval and

they will have to pay for it unless they file Due Process to prove you don't

need the eval and that their evaluations are appropriate. (This is rare but it

happened to us - we won , but oh how many tears went into the keyboard!!) The

IEE is explained well at this website (these are just a few of the references on

wrightslaw)

http://www.wrightslaw.com/nltr/05/nl.0518.htm (see page 8 of the pamphlet

about independent educational eval)

http://www.wrightslaw.com/info/test.iee.steedman.htm

http://www.wrightslaw.com/info/test.iee.mayerson.htm

[Guest guest]

You're in my thoughts and prayers, Trish. I hope things get better for you

soon. I can relate to the husband thing. Mine is a wonderful man, but he

would have acted the very same way. I think I have it pegged: he doesn't

feel like the expert in that situation so he stays quiet. He is a master at

what he does career wise, but he stays pretty quiet about other things, esp.

if emotions are involved. I want to feel heard, and I want to feel

supported . . . so I feel abandoned when I don't get feedback. We had a

looooooooooooooong talk about this not too long ago, staying up until about

3 in the morning . . . best time we've had in a long time IN MY OPINION.

LOL. I'm a talker, a wonderer, a researcher, a questioner . . . he's not.

Female/male? First born/middle child? Product of his upbringing/product of

mine? Jon/Robin? I dunno', but it can really hurt sometimes, I know.

I didn't mean this to be a marriage counseling session, sorry, but I relate

to a lot of what you said. Jon doesn't add much when I talk about Syd's

hearing loss and its implications. What's talking about it to death going

to solve, right? What is worry going to accomplish, right?

Arrrrrrrrrrrrrrrrrrgh . . .

Hang in there,

Robin

>

> ,

>

> How do you have the time to write to everyone!

>

> I have to say I teared up at the end of your post. Yes, I am mad at my

> husband. I called him after this PPT, and I was all choked up and I asked

> hm why he didn't say anything at the PPT. He said it was pointless. I said

> he could have at least agreed with me, backed me up somehow, that without

> him it was 3 aginast one and I got mowed over, and he hung up on me. When

> he got home tonight, I walked right over to him and said, " How many times do

> I have to get discounted today? How many people have to take a stab at

> me? " He made some lame excuse about how he was sorry, but he just was

> hanging up on the whole thing, sick of it all, like I am not? I'm not

> finished with him yet, but I was very hurt and I certainly didn't need that.

>

> Anyway, I have been in touch with and he will be a big help someday,

> I can see that, but I have to play along with the politics first. I have no

> money to send Bobby to e, but I don't know how I can do any less for

> him. You know, the thing I really felt when I left that PPT was that I had

> let Bobby down. I didn't say " no, I don't agree " enough times. I let them

> get the best of me. I couldn't follow their language, and I was in a

> horrible position with no power. But I had kissed Bobby goodbye before I

> went in there and told him I'd work hard for him, and I felt like I didn't

> even have a chance to do that.

>

> Oh gosh, here I go crying again. Sometimes having a special neds child

> really stinks.

> Anyway, thanks for writing.

>

> Trish

> Re: Hi...I really need some friends right now

>

>

> Well Trish, you did just get hit by a truck AND you are entitled to an

> evaluation by law. Their evaluations are in conflict - one shows dramatic

> decompensation, the other doesn't. You can ask for an independent eval

> and they will have to pay for it unless they file Due Process to prove you

> don't need the eval and that their evaluations are appropriate. (This is

> rare but it happened to us - we won , but oh how many tears went into the

> keyboard!!) The IEE is explained well at this website (these are just a few

> of the references on wrightslaw)

> http://www.wrightslaw.com/nltr/05/nl.0518.htm (see page 8 of the

> pamphlet about independent educational eval)

> http://www.wrightslaw.com/info/test.iee.steedman.htm

> http://www.wrightslaw.com/info/test.iee.mayerson.htm

>

>

>

>

[Guest guest]

Something I have thought about over night. Maybe you haven't said the magic

words " Independent Educational Evaluation. " I didn't think of this at first but

at this point it sounds like that is what you want. An independent educational

evaluation that they pay for and they have to use! Because you are right, if

you just get one done by yourself, they will " consider " it, and promptly lay it

right underneath their stack of papers and will totally ignore it as a matter of

reality. Would Soundbridge do an eval as part of their 2 or 3 sessions?? Do

they do full evaluations or just the listening/language/speech side of thngs?

I'd make sure though that they (your school district) won't file Due Process

against you before you ask for an IEE. Our lawyer, who does nothing but

disability law, said ours was the only time he had ever seen a district actually

do this but its not fun to be in Due Process when you didn't decide that's where

you really need/want to be.

I said the words " Magic Words " because this is how the classroom acoustics issue

got going with the feds. For several years, advocacy groups sent in official

statements, affidavits etc urging the federal govt to do something about

classroom acoustics. Then a mom in Marietta GA (Widget) wrote them a letter in

which she used some " magic words " that propelled the federal government to

action. Don't remember right off what words those were, but that was what set

the ball rolling. Kind of like when a criminal being interrogated by police

asks for a lawyer - throws things into a totally different direction.

Hope this makes sense. (who should be at the gym right now!)

/I really need some friends right now

>

>,

>

>How do you have the time to write to everyone!

>

>I have to say I teared up at the end of your post. Yes, I am mad at my

husband. I called him after this PPT, and I was all choked up and I asked hm

why he didn't say anything at the PPT. He said it was pointless. I said he

could have at least agreed with me, backed me up somehow, that without him it

was 3 aginast one and I got mowed over, and he hung up on me. When he got home

tonight, I walked right over to him and said, " How many times do I have to get

discounted today? How many people have to take a stab at me? " He made some

lame excuse about how he was sorry, but he just was hanging up on the whole

thing, sick of it all, like I am not? I'm not finished with him yet, but I was

very hurt and I certainly didn't need that.

>

>Anyway, I have been in touch with and he will be a big help someday, I can

see that, but I have to play along with the politics first. I have no money to

send Bobby to e, but I don't know how I can do any less for him. You know,

the thing I really felt when I left that PPT was that I had let Bobby down. I

didn't say " no, I don't agree " enough times. I let them get the best of me. I

couldn't follow their language, and I was in a horrible position with no power.

But I had kissed Bobby goodbye before I went in there and told him I'd work hard

for him, and I felt like I didn't even have a chance to do that.

>

>Oh gosh, here I go crying again. Sometimes having a special neds child really

stinks.

>Anyway, thanks for writing.

>

>Trish

> Re: Hi...I really need some friends right now

>

>

> Well Trish, you did just get hit by a truck AND you are entitled to an

evaluation by law. Their evaluations are in conflict - one shows dramatic

decompensation, the other doesn't. You can ask for an independent eval and

they will have to pay for it unless they file Due Process to prove you don't

need the eval and that their evaluations are appropriate. (This is rare but it

happened to us - we won , but oh how many tears went into the keyboard!!) The

IEE is explained well at this website (these are just a few of the references on

wrightslaw)

> http://www.wrightslaw.com/nltr/05/nl.0518.htm (see page 8 of the pamphlet

about independent educational eval)

> http://www.wrightslaw.com/info/test.iee.steedman.htm

> http://www.wrightslaw.com/info/test.iee.mayerson.htm

>

>

>

>