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Angel,

Hadley is just a few months older than , and I've been going

through similar things with her preschool. What has helped us all the

most is to have her therapist (a cert AVT) do classroom observations

followed by a meeting with the teacher. We only do 4 a year, so it's

not intrusive, but everyone has commented how maintaining the

parent-therapist-teacher relationship has really helped us all to

understand Hadley's successes and challenges in the classroom. And,

best of all, I don't have to explain " it " to them any longer!!

Having said this, give yourself a chance to listen and enjoy the

progress has made. Sometimes, it's easy for us to cross off an

achievement on the list, then move on to the next challenge without

stopping to celebrate the victories. I've really tried to work on that

this year, and I think it's actually helped me to better advocate for

Hadley.

Kerry

Re: Digest Number 3024

Hello,

I am looking for advice from people who are being told their

profoundly deaf children with cochlear implants are doing so well, you

don't need to worry anymore. I am constantly trying to keep a balanced

perspective and thrilled with the progress has made. She turned

4 in December and has a language delay of one year, receptively and

expressively. She gets along well in her preschool class, but I still

see significant needs and know that with each year new hurdles are going

to come our way. My next concern is with her pre-reading and reading

skills. I am excited that she knows many of her letters, but I still

see many areas she needs to work on in her language skills. The truth

of the matter is - I want so badly to not worry that I am starting to

believe the " educational professionals " and am losing my edge for

explaining her needs. I just don't think they get " it. " Hearing loss

is more complicated than being able to understand what the child is

saying. She is really good at fooling people into thinking she

understands everything that is being said. Any advice?

Feeling a little down,

Angel Gasior

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Hi Angel - I think that there are ages when there are challenges our

kids haven't faced before, no matter how well they are doing currently.

Of course there's the jump to " real " school. I found moving to third

grade to big another big step, particularly in the reading realm. Both

my boys were and are strong readers - they were way ahead of their class

but it evens out as they get older. And I found that by third grade,

they're not being taught to read any longer but using reading as a tool

to learn (I've heard it said that instead of learning to read, they're

reading to learn). It's a really different focus and for both guys,

felt like a big step for them. It's pretty hard to predict that you

don't have to worry anymore when your child is only 4...

Kerry made a really good point about enjoying her progress and her

milestones as she moves along. I think it's easy to get caught up in

how other kids are doing as compared to your child - it's important to

focus on your child and celebrate their good works. Every kid - whether

they can hear or not - moves along at their pace. I know for me, I try

to keep that perspective.

Take care

Barbara

> Re: Digest Number 3024

>

>

>

> Hello,

>

> I am looking for advice from people who are being told their

> profoundly deaf children with cochlear implants are doing so well, you

> don't need to worry anymore. I am constantly trying to keep a balanced

> perspective and thrilled with the progress has made. She turned

> 4 in December and has a language delay of one year, receptively and

> expressively. She gets along well in her preschool class, but I still

> see significant needs and know that with each year new hurdles are going

> to come our way. My next concern is with her pre-reading and reading

> skills. I am excited that she knows many of her letters, but I still

> see many areas she needs to work on in her language skills. The truth

> of the matter is - I want so badly to not worry that I am starting to

> believe the " educational professionals " and am losing my edge for

> explaining her needs. I just don't think they get " it. " Hearing loss

> is more complicated than being able to understand what the child is

> saying. She is really good at fooling people into thinking she

> understands everything that is being said. Any advice?

>

> Feeling a little down,

> Angel Gasior

>

>

>

>

> All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

>

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<

understands everything that is being said. Any advice?>>

If you are concerned about that certain trait, I would ask her school to watch

for it. Have them ask her what she just heard every once in a while. That will

help them see whether she is " fooling " them, and it will also help her realize

that people expect her to listen. If there are specific academic skills that

you want her to work on but can't get a school to do because they don't think

they are age appropriate, then what I have always done is teach it myself. I

ask teachers how they would suggest doing it so I have an idea, then I forge

ahead. If you can ask a TOD for some techniques, even better.

Rhonda Savage

Mom to Audrey, 9, hearing; and Neal, 6 1/2, CII at 2.9 years

" Hard does not mean impossible. "

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