Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 My son (2 1/2 yrs, dx with very mild PDD - but our SLP and myself think apraxia instead or also) does this! He doesn't sing, but he certainly talks. Sometimes he just goes on and on, especially if he is looking through a book with something that he is really interested in like numbers. I feel like he is going to burst sometimes! This is actually something that is fairly recent and I'm hoping that it is a good sign and that some words will come out soon. He is completely non- verbal except for babbling words like mama and some letter sounds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 My son doesn't drop his jaw consistently. His SLP says it is part of the apraxia - controlling his jaw. His short a and o sounds especially are impacted because that requires a dropped jaw. He does move and open his lips, but his teeth are closed a lot when he speaks which only adds to his unintelligibility. Miche At 02:09 PM 5/16/2006, you wrote: >My daughter is 28 months and most likely has apraxia (our pediatrician, >speech therapist, and I think so), but we are awaiting an appointment >with the Ped Developmental Neurolgist. > >My daughter tries to speak, but very often with her mouth closed. She >perfectly imitates the tone, syllables, and emphasis of each word or >phrase. She can " sing " songs like this -- she has the tune and you can >hear that she is trying to make sounds for the words, but she does not >open her mouth, so it sounds like humming. Does anyone else have a >child that does this? Our speech therapist says she is stumped by it. > >I am looking for any suggestions. >Suzanne > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 , My son talked with a clenched jaw. The SLP used an expander to increase the muscles in his jaw and oral motor exercises to direct his tongue to different areas of his mouth. She used the Apraxia for Kids workbook and Kaufman Kit 1 & 2 with lots of oral motor therapy tools (starburst, chewy candys, peanut butter on the roof of his mouth, etc). Have you started supplementing with ProEfa or Coromega? The essential fatty acids have seemed to increase speech in many children on this board which has allowed the correction of articulation and language to be corrected once more expressive speech has been spoken. Time to Sing cd has slowed down the tempo of many nursery rhyme songs (Wheels on the Bus, Twinkle Twinkle, etc) and allowed my son to keep up. Babbling is a good sign b/c most apraxic children have never babbled or cooed. All the best, Joanne [ ] Re: " speaking " with mouth closed? My son (2 1/2 yrs, dx with very mild PDD - but our SLP and myself think apraxia instead or also) does this! He doesn't sing, but he certainly talks. Sometimes he just goes on and on, especially if he is looking through a book with something that he is really interested in like numbers. I feel like he is going to burst sometimes! This is actually something that is fairly recent and I'm hoping that it is a good sign and that some words will come out soon. He is completely non- verbal except for babbling words like mama and some letter sounds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Dear Suzanne, My severe oral and verbal 4year old son used to do this a lot when he was first diagnosed at 2 1/2 years old. He used to make sounds/words through clenched teeth. He doesn't do it anymore because now he has better control of his jaw, but I remember his EI speech therapist being so frustrated because she couldn't figure out why he did this. Anyway good luck, but I believe with lot's of speech therapy you will soon see her make sounds and words with her mouth open just like my son does now! Dana Nj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 I am awaiting ProEFA and the Time to Sing CD. I hope they come tomorrow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 I am awaiting ProEFA and the Time to Sing CD. I hope they come tomorrow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 , We are also using ProEFA - still experimenting with the doseage, but we have seen some improvement. I also purchased the Time to Sing CD -- she likes to listen to it in the car. I will sing some of the songs to her and leave off the last word of the line, and she will try to say the " missing word " . Let me know how these work for you. Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Suzanne, My son who is 20 months does the exact same thing! Our speech therapist says that she has seen it in one other child that she has treated that ended up having apraxia. We don't have an official diagnosis yet but our SLP seems to be leaning this way. We are waiting a little longer becuase he just had tubes put in his ears and his tongue clipped (tongue tied) a little over a week ago so hopefully this will help some. We also just started the proefa last saturday. I am hopeful that it will help. I wasn't sure on the dose, either,but from the research I did it looks like 1 tab per day is a good starting point. He does have some real words though not many and he does make a lot of sounds with his mouth closed. He also uses the syllable 'ga' for almost everything although he does mix it up with different intonations and speeds and sometimes its a statement and others a question. He is a great communicator using nonverbal, just not many words yet. We are making progress, though, and that is what I am focusing on. The fact that he finally calls me " mom " (not mommy or mama,just mom) is enough to get me through for a while. Let me know how you son is doing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Wow, mom at 20 mos--that's fantastic! When you say he is a great communicator nonverbally, do you mean that he signs, gestures or mimes? or does he make his needs known in a more literal way? I'm trying to gauge my son's efforts to communicate. > > Suzanne, > > My son who is 20 months does the exact same thing! Our speech > therapist says that she has seen it in one other child that she has > treated that ended up having apraxia. We don't have an official > diagnosis yet but our SLP seems to be leaning this way. We are > waiting a little longer becuase he just had tubes put in his ears > and his tongue clipped (tongue tied) a little over a week ago so > hopefully this will help some. We also just started the proefa last > saturday. I am hopeful that it will help. I wasn't sure on the > dose, either,but from the research I did it looks like 1 tab per day > is a good starting point. He does have some real words though not > many and he does make a lot of sounds with his mouth closed. He > also uses the syllable 'ga' for almost everything although he does > mix it up with different intonations and speeds and sometimes its a > statement and others a question. He is a great communicator using > nonverbal, just not many words yet. We are making progress, though, > and that is what I am focusing on. The fact that he finally calls > me " mom " (not mommy or mama,just mom) is enough to get me through > for a while. Let me know how you son is doing. > Quote Link to comment Share on other sites More sharing options...
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