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In a message dated 5/10/2006 8:26:59 P.M. Eastern Daylight Time,

chester2001@... writes:

Barbara,

Do you live in MA? I'm not sure if it's to our advantage to have it doen

there if we're out of state. I'm going to visit there next Thursday for the

day. Can't wait!

We're in NY and one of our list-mates who lives close to me had her daughter

evaluated at . I believe a representative also came to some of

their IEP meetings. For an IEE it doesn't matter if the expert is from out of

town or out of state, only that they know their stuff and their recommendation

is on point.

Jill

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Hi again Trish, been thinking about Bobby's scores. If you get a chance and

want to know about how these scores work, read this:

http://www.wrightslaw.com/advoc/articles/tests_measurements.html#anchor829789

If you ever took statistics, this will bring it all back to you! These

education scores are a whole different ballgame with gobs of jargon. But this

article is terrific and it's how I learned about this education stuff.

Basically, the Battelle scores are very low, very. And they have dropped

precipitously in one year. The - 2.33 is probably the Standard deviation.

Basically says he is now in the very bottom of the bell curve (below the 2nd

percentile), while last year he was in the " average " range of the bell curve.

However, the scores on the testing by the speech teacher don't jive with the

Battelle. They show him being 1 SD below the mean in receptive language (what

he understands) and going from almost 1 SD below the mean last year to right

smack dab at the mean (actually 4 points above it!) or average this year for

expressive language (what he can say). Generally kids understand a whole lot

more than they can say so while you might have an occasional discrepancy between

receptive and expressive scores, it is not realistic to think a child would be

significantly delayed in what they understand but right at average at what they

say. And if you were right close to the lower cutoff for average last year (87,

cut off is 85) you would have had to make great strides or massive improvements

in a years time to score 104. So one test shows him dropping precipitous ly,

one shows him staying the same and one shows him improving dramatically. And

there is considerable scatter on the CELF. A lot of that is to be expected,

the complete sentence score for instance would be low because all the little

words in English (like is, at, the, a, etc) are the hardest words to hear, so

lots of kids with hearing loss don't hear them and so leave them out of their

spoken language. I'm wondering why they just gave you what look to be the raw

scores on the CELF and didn't convert this to Standard Scores with Standard

deviations or at least give you an overall percentile rank.

If you are following me here, great, IF NOT, I'm just confirming what you

already know, that you really do need a good eval by folks who know hearing

loss. Because this doesn't make sense. So I wouldn't pay it any mind other

than if your school will use this data to recommend him for a summer program.

They might. It's worth a try because of the drastic drop in the Battelle.

Here iS MY BIG EPIPHANY!! Your do not need the CEE to get summer services. The

big thing they look at to determine if they need to provide summer services

(ESY) is regression. ANd what the Battelle shows is really really bad

regression. So you don't need to prove regression with a CEE, they have

already proven it themselves! If you can use their own testing to prove

regression, they can't argue with that - it's their own testing. You might not

even need a PPT to do this based on what said. If what you want right away

is summer services, they can't argue with their own testing so this is your

best ammo. If I understand what you have been saying, you want the CEE right

away because that will get him summer services. But the key to summer services

is proving regression and you can't get any better than what their Battelle

shows. You will still want to get the CEE, but you can wait until after he's

already in the summer program. It would take some of the urgency out of the

equation. I hope this helps. I know the kind of turmoil you are in because I

felt the same way 10 years ago. I don't want to get you all riled up for no

reason. in GA

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,

Boy what a help you are! Now here's the problem. Yes, he already qualifies for

summer services. But the summer services they want him to have is summer school

with the public school system here, which again I will say obviously doesn't

know hearing impairment. So instead of getting intensive help for his cognitive

issues, from a teacher of the HOH, their plans for this summer are that they are

going to put him in with other spec ed kids, of all kids of levels, autism,

seizures, etc, and give him that infamous " resource " help. So my point is to

start NOW to make up what he has apparently missed for 5 years, to get the

CORRECT services that a hearing impaired child needs, but the school system

doesn't have a clue as to what those services should be. The contracted ed.

Audiologist is silent on the issue. So the only thing I can think of is getting

that CEE ASAP so I have some ammo to back why I want a teacher of the Deaf and

HOH to work with im, or to go to Soundbridge to get the intensive help he needs.

As far as I can tell, if they don't get someone who knows what they are doing,

their summer services are no more than a glorified baby sitting service. No?

Trish

.

Here iS MY BIG EPIPHANY!! Your do not need the CEE to get summer services.

The big thing they look at to determine if they need to provide summer services

(ESY) is regression. ANd what the Battelle shows is really really bad

regression. So you don't need to prove regression with a CEE, they have

already proven it themselves! If you can use their own testing to prove

regression, they can't argue with that - it's their own testing. You might not

even need a PPT to do this based on what said. If what you want right away

is summer services, they can't argue with their own testing so this is your

best ammo. If I understand what you have been saying, you want the CEE right

away because that will get him summer services. But the key to summer services

is proving regression and you can't get any better than what their Battelle

shows. You will still want to get the CEE, but you can wait until aft! er he's

already in the summer program. It would take some of the urgency out of the

equation. I hope this helps. I know the kind of turmoil you are in because I

felt the same way 10 years ago. I don't want to get you all riled up for no

reason. in GA

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In a message dated 5/11/2006 12:45:42 P.M. Eastern Daylight Time,

bkmackellar@... writes:

Isn't there a e affiliated school in Manhattan?

Bonnie

The one I know of in NYC is the Lexington School. I don't know if they are

affiliated with e or not, I never would have thought to ask. Our family's

experience is with the Lexington school as a helpful resource. But I never

asked anyone from there to attend any of our meetings. At the time I had never

even heard of e.

I referred to my friend's experience with because we are both in NY

and e is in MA. Yet their people came to her meetings and performed the

IEE for her daughter. Her NY school district accepted e's evals and

e's people were the experts of record on the IEP for that child's needs.

My point was that as parents, our resources aren't limited to what's

available locally or even limited to places within our home state. We can get

the

help and resources from wherever we choose to go. Of course, it's always easier

if there is someplace close to home. It's the alphabet soup after the

doctors' names and the prestige of the institution (like e or Lexington or

Columbia Presbyterian Hospital) that carries such weight in these meetings.

Our IEP team had a hard time arguing that their Little-House-on-the-Prairie

audiologist's evaluation had even a fraction of the weight that a full work up

from Columbia had. The local doctor herself said that she didn't have the

equipment they did and so she couldn't do some of the testing. Even the local

hospital's people deferred to our Columbia docs. For us, traveling into NYC

was/is a pain, but the weight of that institution's reputation was well worth

the travel. Not to mention that the care Ian receives is the best and his

doctors are marvelous. We made our choice not based on the hospital's

reputation, but the doctors'.

Best -- Jill

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In a message dated 5/11/2006 1:16:55 P.M. Eastern Daylight Time,

Barbara.T.Mellert@... writes:

Yes, there is...

Is it Lexington? I'm going to go look at their web pages now to see if i can

figure it out. My puzzle for my lunch break.

grin -- Jill

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In a message dated 5/11/2006 2:21:37 P.M. Eastern Daylight Time,

pcknott@... writes:

but lets' hear it for a dad!!

As I read through your/'s post, I just keep saying to myself -- man I

love this list! I had the urge several times just to send out a round of

applause for you/him but thought that might be silly.

But I'll gladly join the cheer --- YAHOO!!

This is such a great place ... Jill

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In a message dated 5/11/2006 3:02:15 P.M. Eastern Daylight Time,

Barbara.T.Mellert@... writes:

I don't think so? Here's the URL:

_http://www.clarkeschool.org/content/e_NYC/about.php_

(http://www.clarkeschool.org/content/e_NYC/about.php)

The Lexington School's URL refuses to talk to my computer right now, but

here's the address:

30th Avenue 75th Street

Heights, NY 11370

Queens County

Phone:

It's not the same place but it's been reviewed all over the place as an

excellent school . And I found an evaluation of it in VSPED as a private school

approved to receive state funds for placement of D/HOH kids. There child to

teacher ratios in its classes range from 5:1 to 12:1

Wouldn't that be nice?

Jill

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This is absolutely true (about the regression). We requested and got summer

services for Elias. All that had to be done was for his therapists to write

" regression statements " which they all did happily. Elias disappears for 2

weeks at a time for medical reasons (cancer treatment and scans) so the

therapists all wrote that he tends to regress after treatment. There was no

argument at all from the school district.

Bonnie

>

>

> Here iS MY BIG EPIPHANY!! Your do not need the CEE to get summer

> services. The big thing they look at to determine if they need to provide

> summer services (ESY) is regression. ANd what the Battelle shows is really

> really bad regression. So you don't need to prove regression with a CEE,

> they have already proven it themselves! If you can use their own testing to

> prove regression, they can't argue with that - it's their own testing. You

> might not even need a PPT to do this based on what said. If what you

> want right away is summer services, they can't argue with their own testing

> so this is your best ammo. If I understand what you have been saying, you

> want the CEE right away because that will get him summer services. But the

> key to summer services is proving regression and you can't get any better

> than what their Battelle shows. You will still want to get the CEE, but you

> can wait until after he's already in the summer program. It would take some

> of the urgency out of the equation. I hope this helps. I know the kind of

> turmoil you are in because I felt the same way 10 years ago. I don't want

> to get you all riled up for no reason. in GA

>

>

>

>

>

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Isn't there a e affiliated school in Manhattan?

Bonnie

>

>

>

>

>

> We're in NY and one of our list-mates who lives close to me had her

> daughter

> evaluated at . I believe a representative also came to some of

>

> their IEP meetings. For an IEE it doesn't matter if the expert is from out

> of

> town or out of state, only that they know their stuff and their

> recommendation

> is on point.

>

> Jill

>

>

>

>

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Yes, there is...

Bonnie MacKellar wrote:

> Isn't there a e affiliated school in Manhattan?

>

> Bonnie

>

>

>

>>

>>

>>

>> We're in NY and one of our list-mates who lives close to me had her

>> daughter

>> evaluated at . I believe a representative also came to some of

>>

>> their IEP meetings. For an IEE it doesn't matter if the expert is from out

>> of

>> town or out of state, only that they know their stuff and their

>> recommendation

>> is on point.

>>

>> Jill

>>

>>

>>

>>

>>

>

>

>

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Trish, the argument for the services you want would be = this regression

happened with the school's full time efforts, obviously more of the same would

simply lead to further regression. Summer services in districts are usually

less intense than school year services. However, he would be getting the kind

of services he really needs in order to learn to listen, learn language and work

toward literacy in a program specifically designed to do just that WITH A HARD

OF HEARING child. Their program may be designed to do that, but NOT for

hearing impaired kids who have different issues. Hope it helps.

Re: : IEP help. Please

>

>This is absolutely true (about the regression). We requested and got summer

>services for Elias. All that had to be done was for his therapists to write

> " regression statements " which they all did happily. Elias disappears for 2

>weeks at a time for medical reasons (cancer treatment and scans) so the

>therapists all wrote that he tends to regress after treatment. There was no

>argument at all from the school district.

>

>Bonnie

>

>

>>

>>

>> Here iS MY BIG EPIPHANY!! Your do not need the CEE to get summer

>> services. The big thing they look at to determine if they need to provide

>> summer services (ESY) is regression. ANd what the Battelle shows is really

>> really bad regression. So you don't need to prove regression with a CEE,

>> they have already proven it themselves! If you can use their own testing to

>> prove regression, they can't argue with that - it's their own testing. You

>> might not even need a PPT to do this based on what said. If what you

>> want right away is summer services, they can't argue with their own testing

>> so this is your best ammo. If I understand what you have been saying, you

>> want the CEE right away because that will get him summer services. But the

>> key to summer services is proving regression and you can't get any better

>> than what their Battelle shows. You will still want to get the CEE, but you

>> can wait until after he's already in the summer program. It would take some

>> of the urgency out of the equation. I hope this helps. I know the kind of

>> turmoil you are in because I felt the same way 10 years ago. I don't want

>> to get you all riled up for no reason. in GA

>>

>>

>>

>>

>>

>

>

>

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I love the concept - the diagnostic placement. You are sure good at what you do

! And I'm so thankful you are so accessible to those on the list. I know

it's going to be mother's day this week, but lets' hear it for a dad!!

in GA

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I don't think so? Here's the URL:

http://www.clarkeschool.org/content/e_NYC/about.php

JillcWood@... wrote:

>

> In a message dated 5/11/2006 1:16:55 P.M. Eastern Daylight Time,

> Barbara.T.Mellert@... writes:

>

> Yes, there is...

>

>

>

>

> Is it Lexington? I'm going to go look at their web pages now to see if i can

> figure it out. My puzzle for my lunch break.

>

> grin -- Jill

>

>

> [

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Trish, another big distinction to make is that what they are calling cognitive

issues are really hearing related. Much of cognitive or IQ testing is verbally

based or the test is given verbally. So a child whose language development is

falling further and further behind their peers will have decreasing cognitive

scores. I think the Battelle is not specifically divided into verbal and

non-verbal, it is more of a composite. Not 100% on that. Using a WISC which is

a true IQ test given by a PhD, the IQ is separated into verbal and non verbal.

FOr a hearing impaired kid, the non-verbal is usually considered closer to their

true IQ while the verbal IQ does not measure their verbal IQ, it really measures

what they have been TAUGHT. So decreasing cognitive scores are seen when

hearing impaired kids are not getting the proper education and services and the

kids are falling further and further behind. This is a well known fact for

people who know hearing loss, NOT a well known fact with garden variety PhD's.

And especially not for garden variety district people. Which is one of the huge

reasons that you need the people with the correct expertise to evaluate Bobby

and recommend what type of education he truly needs. Which brings you to the

summer services specific to deaf/HOH kids. Which brings you to 's idea

about the summer program as a diagnostic placement. I just LOVED 's

suggestion about the diagnostic placement. ANd there are lots of selling points

he brought out about that.

From the districts point of view, do you think they think he lost IQ during his

last hospitalization? And there is always one of Carol Flexer's favorite

arguments (which comes from AA originally). " If you keep doing the same thing,

you can't expect different results. " Of course her version is a bit more earthy

- she says its the definition of insanity. But districts don't like being

accused of insanity. in GA

Re: : IEP help. Please

>

>,

>

>Boy what a help you are! Now here's the problem. Yes, he already qualifies

for summer services. But the summer services they want him to have is summer

school with the public school system here, which again I will say obviously

doesn't know hearing impairment. So instead of getting intensive help for his

cognitive issues, from a teacher of the HOH, their plans for this summer are

that they are going to put him in with other spec ed kids, of all kids of

levels, autism, seizures, etc, and give him that infamous " resource " help. So

my point is to start NOW to make up what he has apparently missed for 5 years,

to get the CORRECT services that a hearing impaired child needs, but the school

system doesn't have a clue as to what those services should be. The contracted

ed. Audiologist is silent on the issue. So the only thing I can think of is

getting that CEE ASAP so I have some ammo to back why I want a teacher of the

Deaf and HOH to work with im, or to go to Soundbridge to get the intensive help

he needs. As far as I can tell, if they don't get someone who knows what they

are doing, their summer services are no more than a glorified baby sitting

service. No?

>

>Trish

> .

>

> Here iS MY BIG EPIPHANY!! Your do not need the CEE to get summer services.

The big thing they look at to determine if they need to provide summer services

(ESY) is regression. ANd what the Battelle shows is really really bad

regression. So you don't need to prove regression with a CEE, they have

already proven it themselves! If you can use their own testing to prove

regression, they can't argue with that - it's their own testing. You might not

even need a PPT to do this based on what said. If what you want right away

is summer services, they can't argue with their own testing so this is your

best ammo. If I understand what you have been saying, you want the CEE right

away because that will get him summer services. But the key to summer services

is proving regression and you can't get any better than what their Battelle

shows. You will still want to get the CEE, but you can wait until aft! er he's

already in the summer program. It would take some of the urgency out of the

equation. I hope this helps. I know the kind of turmoil you are in because I

felt the same way 10 years ago. I don't want to get you all riled up for no

reason. in GA

>

>

>

>

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Trish,

We go to e from RI. I believe that much of their evaluation work

is done with non-MA kids. Also, In many ways, a good audiologist is as

important as a good doctor (if not moreso) for kids with HL. My son

goes to Boston Children's Hospital for his audiology although his

hearing aid provider is in RI. We switched to there from Boston Eye and

Ear because the audiology was more parent and kid friendly. The

audiologist sends the results to the hearing aid provider who we need

to have nearby because my son has a progressive loss and needs frequent

adjustment.

I know that Newington Children's Hospital in CT does good work. My

nephew is seen there for a non hearing related issue. Have you checked

out their audiology? It may be a better fit for you than Yale, if it's

not too far from where you live.

Re: : IEP help. Please

Barbara,

Do you live in MA? I'm not sure if it's to our advantage to have it

doen there

if we're out of state. I'm going to visit there next Thursday for the

day.

Can't wait!

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