Low in Vit E, Oxalates, Miralax, constipation, and apraxia -- linked !!

[Guest guest]

A quick intro -- my 4 year old son was on Miralax for about 15 months.

Constipation since 2 months old - healthy diet including flax, prunes,

fruit fibers for years - but still constipated. After a prolapsed

rectum, he went on miralax. It worked -- and it was easy -- but I knew

it was not the solution. FINALLY I found out that magnesium and vitamin

C works. IT DOES. Over a week long period of time I upped his mag and

vit c and decreased the miralax - working up to 1000 mg each of

magnesium and vit c. I kept his calcium at 250-500mg -- a normal

dosage. (Now I know I should have used calcium citrate and upped it too

- but that info wasn't available. I didn't know about oxy-powder at the

time either).

Now -- 3 months later we are down to 300-500 mg of magnesium -- which is

a normal amount that we should all get! A little high for his 40 lb

body, but just fine. Other items added over the 3 months -- Omegas - 2

ProEFA and 2 EPAxtra, Vitamin E inc gamma d, digestive enzymes, and

other vitamins - I think we'll stick with Kirkman Thera Response. I had

given him probiotics for years - but just Jarrow and other HFS ones. I

think I should have used bigger guns -- if I had to do it over again --

I think I'd try VSL3.

Improvements in speech, mood, stooling morning and night, almost potty

trained, etc. (He is off the spectrum, expressive speech delayed - ST to

test for apraxia next week)

But -- at the DAN conference this weekend I heard Owens speak, and

I had an lightening moment! One of the signs of an oxalate dump is

sandy, black or white spec poop. OMG -- the first 2 weeks after getting

off Miralax his were so sandy (crystals) -- 10 wipes minumums! Now they

are fine. Then, when I introduce Vitamin E he had the specs again, but

not very many. He was also quite emotional. I looked up Vitamin E and

it is being tested in regards to oxalates: Vitamin E therapy prevents

hyperoxaluria-induced calcium oxalate ...

<http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & li\

st_uids=15963133 & dopt=Abstract> Hmm -- and one the symptoms of

high oxalates is a sensative penis. -- something I mentioned to 2

pediatric gastro enterologists.

So, I am definitely going to try the low oxalate diet forawhile on him

-- my guess is that Miralax left him with some issues.

Signed -- a mom who's learning all the time!

[Guest guest]

When you say " sandy " do you mean BM's the color of, say, khaki pants.

Maybe a smidge darker but not too much darker???? My daughter's have

turned this way over the past two weeks and its just weird.

Sorry for those TMI folks who are gagging. Just have to ask.

Kris

On Oct 8, 2006, at 11:05 AM, mommtlc wrote:

>

> A quick intro -- my 4 year old son was on Miralax for about 15 months.

> Constipation since 2 months old - healthy diet including flax, prunes,

> fruit fibers for years - but still constipated. After a prolapsed

> rectum, he went on miralax. It worked -- and it was easy -- but I knew

> it was not the solution. FINALLY I found out that magnesium and

> vitamin

> C works. IT DOES. Over a week long period of time I upped his mag and

> vit c and decreased the miralax - working up to 1000 mg each of

> magnesium and vit c. I kept his calcium at 250-500mg -- a normal

> dosage. (Now I know I should have used calcium citrate and upped it

> too

> - but that info wasn't available. I didn't know about oxy-powder at

> the

> time either).

> Now -- 3 months later we are down to 300-500 mg of magnesium -- which

> is

> a normal amount that we should all get! A little high for his 40 lb

> body, but just fine. Other items added over the 3 months -- Omegas - 2

> ProEFA and 2 EPAxtra, Vitamin E inc gamma d, digestive enzymes, and

> other vitamins - I think we'll stick with Kirkman Thera Response. I

> had

> given him probiotics for years - but just Jarrow and other HFS ones. I

> think I should have used bigger guns -- if I had to do it over again

> --

> I think I'd try VSL3.

> Improvements in speech, mood, stooling morning and night, almost potty

> trained, etc. (He is off the spectrum, expressive speech delayed - ST

> to

> test for apraxia next week)

> But -- at the DAN conference this weekend I heard Owens speak,

> and

> I had an lightening moment! One of the signs of an oxalate dump is

> sandy, black or white spec poop. OMG -- the first 2 weeks after

> getting

> off Miralax his were so sandy (crystals) -- 10 wipes minumums! Now

> they

> are fine. Then, when I introduce Vitamin E he had the specs again, but

> not very many. He was also quite emotional. I looked up Vitamin E and

> it is being tested in regards to oxalates: Vitamin E therapy prevents

> hyperoxaluria-induced calcium oxalate ...

>

> <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> cmd=Retrieve & db=PubMed & li\

> st_uids=15963133 & dopt=Abstract> Hmm -- and one the symptoms of

> high oxalates is a sensative penis. -- something I mentioned to 2

> pediatric gastro enterologists.

>

> So, I am definitely going to try the low oxalate diet forawhile on him

> -- my guess is that Miralax left him with some issues.

>

> Signed -- a mom who's learning all the time!

>

>

[Guest guest]

When you say " sandy " do you mean BM's the color of, say, khaki pants.

Maybe a smidge darker but not too much darker???? My daughter's have

turned this way over the past two weeks and its just weird.

Sorry for those TMI folks who are gagging. Just have to ask.

Kris

On Oct 8, 2006, at 11:05 AM, mommtlc wrote:

>

> A quick intro -- my 4 year old son was on Miralax for about 15 months.

> Constipation since 2 months old - healthy diet including flax, prunes,

> fruit fibers for years - but still constipated. After a prolapsed

> rectum, he went on miralax. It worked -- and it was easy -- but I knew

> it was not the solution. FINALLY I found out that magnesium and

> vitamin

> C works. IT DOES. Over a week long period of time I upped his mag and

> vit c and decreased the miralax - working up to 1000 mg each of

> magnesium and vit c. I kept his calcium at 250-500mg -- a normal

> dosage. (Now I know I should have used calcium citrate and upped it

> too

> - but that info wasn't available. I didn't know about oxy-powder at

> the

> time either).

> Now -- 3 months later we are down to 300-500 mg of magnesium -- which

> is

> a normal amount that we should all get! A little high for his 40 lb

> body, but just fine. Other items added over the 3 months -- Omegas - 2

> ProEFA and 2 EPAxtra, Vitamin E inc gamma d, digestive enzymes, and

> other vitamins - I think we'll stick with Kirkman Thera Response. I

> had

> given him probiotics for years - but just Jarrow and other HFS ones. I

> think I should have used bigger guns -- if I had to do it over again

> --

> I think I'd try VSL3.

> Improvements in speech, mood, stooling morning and night, almost potty

> trained, etc. (He is off the spectrum, expressive speech delayed - ST

> to

> test for apraxia next week)

> But -- at the DAN conference this weekend I heard Owens speak,

> and

> I had an lightening moment! One of the signs of an oxalate dump is

> sandy, black or white spec poop. OMG -- the first 2 weeks after

> getting

> off Miralax his were so sandy (crystals) -- 10 wipes minumums! Now

> they

> are fine. Then, when I introduce Vitamin E he had the specs again, but

> not very many. He was also quite emotional. I looked up Vitamin E and

> it is being tested in regards to oxalates: Vitamin E therapy prevents

> hyperoxaluria-induced calcium oxalate ...

>

> <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> cmd=Retrieve & db=PubMed & li\

> st_uids=15963133 & dopt=Abstract> Hmm -- and one the symptoms of

> high oxalates is a sensative penis. -- something I mentioned to 2

> pediatric gastro enterologists.

>

> So, I am definitely going to try the low oxalate diet forawhile on him

> -- my guess is that Miralax left him with some issues.

>

> Signed -- a mom who's learning all the time!

>

>

[Guest guest]

I meant sandy texture - think of going to the beach and getting lots

of sand in the diaper. Pale stools -- yellow or gray are

indications of any of these (and maybe more) - passing through the

system too quickly, fat malabsorption, liver (bile) imbalance, and

maybe even a dumping of metals.

>

> >

> > A quick intro -- my 4 year old son was on Miralax for about 15

months.

> > Constipation since 2 months old - healthy diet including flax,

prunes,

> > fruit fibers for years - but still constipated. After a

prolapsed

> > rectum, he went on miralax. It worked -- and it was easy -- but

I knew

> > it was not the solution. FINALLY I found out that magnesium

and

> > vitamin

> > C works. IT DOES. Over a week long period of time I upped his

mag and

> > vit c and decreased the miralax - working up to 1000 mg each of

> > magnesium and vit c. I kept his calcium at 250-500mg -- a normal

> > dosage. (Now I know I should have used calcium citrate and

upped it

> > too

> > - but that info wasn't available. I didn't know about oxy-

powder at

> > the

> > time either).

> > Now -- 3 months later we are down to 300-500 mg of magnesium --

which

> > is

> > a normal amount that we should all get! A little high for his

40 lb

> > body, but just fine. Other items added over the 3 months --

Omegas - 2

> > ProEFA and 2 EPAxtra, Vitamin E inc gamma d, digestive enzymes,

and

> > other vitamins - I think we'll stick with Kirkman Thera

Response. I

> > had

> > given him probiotics for years - but just Jarrow and other HFS

ones. I

> > think I should have used bigger guns -- if I had to do it over

again

> > --

> > I think I'd try VSL3.

> > Improvements in speech, mood, stooling morning and night,

almost potty

> > trained, etc. (He is off the spectrum, expressive speech

delayed - ST

> > to

> > test for apraxia next week)

> > But -- at the DAN conference this weekend I heard Owens

speak,

> > and

> > I had an lightening moment! One of the signs of an oxalate dump

is

> > sandy, black or white spec poop. OMG -- the first 2 weeks

after

> > getting

> > off Miralax his were so sandy (crystals) -- 10 wipes minumums!

Now

> > they

> > are fine. Then, when I introduce Vitamin E he had the specs

again, but

> > not very many. He was also quite emotional. I looked up Vitamin

E and

> > it is being tested in regards to oxalates: Vitamin E therapy

prevents

> > hyperoxaluria-induced calcium oxalate ...

> >

> > <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> > cmd=Retrieve & db=PubMed & li\

> > st_uids=15963133 & dopt=Abstract> Hmm -- and one the symptoms of

> > high oxalates is a sensative penis. -- something I mentioned to

2

> > pediatric gastro enterologists.

> >

> > So, I am definitely going to try the low oxalate diet forawhile

on him

> > -- my guess is that Miralax left him with some issues.

> >

> > Signed -- a mom who's learning all the time!

> >

> >

[Guest guest]

I meant sandy texture - think of going to the beach and getting lots

of sand in the diaper. Pale stools -- yellow or gray are

indications of any of these (and maybe more) - passing through the

system too quickly, fat malabsorption, liver (bile) imbalance, and

maybe even a dumping of metals.

>

> >

> > A quick intro -- my 4 year old son was on Miralax for about 15

months.

> > Constipation since 2 months old - healthy diet including flax,

prunes,

> > fruit fibers for years - but still constipated. After a

prolapsed

> > rectum, he went on miralax. It worked -- and it was easy -- but

I knew

> > it was not the solution. FINALLY I found out that magnesium

and

> > vitamin

> > C works. IT DOES. Over a week long period of time I upped his

mag and

> > vit c and decreased the miralax - working up to 1000 mg each of

> > magnesium and vit c. I kept his calcium at 250-500mg -- a normal

> > dosage. (Now I know I should have used calcium citrate and

upped it

> > too

> > - but that info wasn't available. I didn't know about oxy-

powder at

> > the

> > time either).

> > Now -- 3 months later we are down to 300-500 mg of magnesium --

which

> > is

> > a normal amount that we should all get! A little high for his

40 lb

> > body, but just fine. Other items added over the 3 months --

Omegas - 2

> > ProEFA and 2 EPAxtra, Vitamin E inc gamma d, digestive enzymes,

and

> > other vitamins - I think we'll stick with Kirkman Thera

Response. I

> > had

> > given him probiotics for years - but just Jarrow and other HFS

ones. I

> > think I should have used bigger guns -- if I had to do it over

again

> > --

> > I think I'd try VSL3.

> > Improvements in speech, mood, stooling morning and night,

almost potty

> > trained, etc. (He is off the spectrum, expressive speech

delayed - ST

> > to

> > test for apraxia next week)

> > But -- at the DAN conference this weekend I heard Owens

speak,

> > and

> > I had an lightening moment! One of the signs of an oxalate dump

is

> > sandy, black or white spec poop. OMG -- the first 2 weeks

after

> > getting

> > off Miralax his were so sandy (crystals) -- 10 wipes minumums!

Now

> > they

> > are fine. Then, when I introduce Vitamin E he had the specs

again, but

> > not very many. He was also quite emotional. I looked up Vitamin

E and

> > it is being tested in regards to oxalates: Vitamin E therapy

prevents

> > hyperoxaluria-induced calcium oxalate ...

> >

> > <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

> > cmd=Retrieve & db=PubMed & li\

> > st_uids=15963133 & dopt=Abstract> Hmm -- and one the symptoms of

> > high oxalates is a sensative penis. -- something I mentioned to

2

> > pediatric gastro enterologists.

> >

> > So, I am definitely going to try the low oxalate diet forawhile

on him

> > -- my guess is that Miralax left him with some issues.

> >

> > Signed -- a mom who's learning all the time!

> >

> >