Re: Besides Apraxia

[Guest guest]

Hi Eileen. My son hasn't been officially diagnosed with anything yet,

but we strongly suspect apraxia. His OT says he has some sensory

processing problems (which I agree with) and his SLP suspects he has

PDD (don't think I agree with this). I'm starting to think he has

global dyspraxia based on discriptions I've read on this group. He has

some eating issues, though that's been improving, but no sleep issues

(knock wood). He doesn't have hypotonia, but his OT says he's on the

low tone end of normal. We've improved that though.

>

> What does your child have? Does anything else go " hand-in-hand " with

> Apraxia?

>

> Seizures? Sleeping problems? Sensory Integration Disorder?

>

> We know he has APraxia, he is still getting tested for Austism, and

> also he goes for an EEG on Thursday as well as a MRI brain scan.

>

[Guest guest]

Hi,

I guess I am not sure if the symptoms go hand-in-hand, but our son has had

sleeping problems his whole life and very rarely sleeps through the night

without waking up. He is four and is also apraxic. He is also having a 24 hr.

EEG done to test for seizures. He is being evaluated by a team of specialists to

try and better determine what might help his behavior. Don't know if that helps

much, but it sounds like we are both in the same boat!

Jill

Eileen <eileenwolter@...> wrote:

What does your child have? Does anything else go " hand-in-hand " with

Apraxia?

Seizures? Sleeping problems? Sensory Integration Disorder?

We know he has APraxia, he is still getting tested for Austism, and

also he goes for an EEG on Thursday as well as a MRI brain scan.

[Guest guest]

My son also has hypotonia, club foot, lazy eye, drooling, and sensory

integration problems. He is also very emotionally sensitive. He is 7

and hasn't had a full medical eval since he was 3. We are about to

have that done again next week.

>

> What does your child have? Does anything else go " hand-in-hand " with

> Apraxia?

>

> Seizures? Sleeping problems? Sensory Integration Disorder?

>

> We know he has APraxia, he is still getting tested for Austism, and

> also he goes for an EEG on Thursday as well as a MRI brain scan.

>

[Guest guest]

My son had huge sleep disorders- and went to ent- he was tested for sleep apnea

and at age4 had sugery T/a- and it resolved.

From: Jill Shapiro <preemie_mom2002@...>

Date: Wed May 31 12:38:33 CDT 2006

Subject: Re: [ ] Besides Apraxia

Hi,

  

  I guess I am not sure if the symptoms go hand-in-hand, but our son has had

sleeping problems his whole life and very rarely sleeps through the night

without waking up. He is four and is also apraxic. He is also having a 24 hr.

EEG done to test for seizures. He is being evaluated by a team of specialists to

try and better determine what might help his behavior. Don't know if that helps

much, but it sounds like we are both in the same boat!

  

  Jill

Eileen <eileenwolter@...> wrote:

  What does your child have? Does anything else go " hand-in-hand " with

Apraxia?

Seizures? Sleeping problems? Sensory Integration Disorder?

We know he has APraxia, he is still getting tested for Austism, and

also he goes for an EEG on Thursday as well as a MRI brain scan.

[Guest guest]

My son has sleep issues dx'd as " idiopathic hypersomnolence. " Basically,

his doctor is not sure why he is so tired, even after 11+ hours of sleep per

night. He will wake and feel good, then is tired again after an hour or so. If

he gets less than 11 hours for 2 or more consecutive nights, he develops

cold symptoms, asthma flares up, etc. Becoming a big problem now that he is 9,

and sports practices last later.

Sleep study revealed part of the mystery in that his REM sleep is 14%

instead of 20%. However, his doctor doesn't seem to think the 6% difference is

enough to warrant the fact he is " tired all the time. " I'm not sure what to do

to help him. Currently we're trying melatonin and vitamin B6 with milk to try

to achieve deeper sleep. It is helping some, but is not the magic bullet.

(Also ProEFA earlier in the day.)

Rose

In a message dated 5/31/2006 4:06:11 P.M. Eastern Daylight Time,

saphire75@... writes:

>

> What does your child have? Does anything else go " hand-in-hand " with

> Apraxia?

>

> Seizures? Sleeping problems? Sensory Integration Disorder?

>

> We know he has APraxia, he is still getting tested for Austism, and

> also he goes for an EEG on Thursday as well as a MRI brain scan.

[Guest guest]

My son has intermittent strabisimus (wandering eye)....

>From: " " <saphire75@...>

>Reply-

>

>Subject: [ ] Re: Besides Apraxia

>Date: Wed, 31 May 2006 19:25:23 -0000

>

>My son also has hypotonia, club foot, lazy eye, drooling, and sensory

>integration problems. He is also very emotionally sensitive. He is 7

>and hasn't had a full medical eval since he was 3. We are about to

>have that done again next week.

>

> >

> > What does your child have? Does anything else go " hand-in-hand " with

> > Apraxia?

> >

> > Seizures? Sleeping problems? Sensory Integration Disorder?

> >

> > We know he has APraxia, he is still getting tested for Austism, and

> > also he goes for an EEG on Thursday as well as a MRI brain scan.

> >

>

>

>

>

>

>

[Guest guest]

Apraxia can co exist with anything. A broken arm, a cold... anything. (or

nothing)

But in general in this group which you will verify if you join a local

support group the typical child with apraxia presents in toddler years

as " just a late talker " and most of the other (undiagnosed) stuff is

explained away by those that surround the child. Hypotonia... " he

looks like a little cherub doesn't he?! " Sensory Integration

Dysfunction DSI " She can be a bit fussy at times " Motor planning

issues in the body " He may not be able to climb stairs well, but you

should see him on the monkey bars! " Oral apraxia " She's such a

serious baby! "

Below is some information about 'apraxia'

http://www.cherab.org/information/aginmdapraxia.html

and here are the more frequent things that may co exist with apraxia.

Some children may have all, some may just have one. No absolute

however when it comes to apraxia other than it's a motor planning

disorder!

http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html

=====

[Guest guest]

Did they check thyroid function?

>From: RMilto@...

>Reply-

>

>Subject: Re: [ ] Re: Besides Apraxia

>Date: Wed, 31 May 2006 20:49:40 EDT

>

>

>

>My son has sleep issues dx'd as " idiopathic hypersomnolence. " Basically,

>his doctor is not sure why he is so tired, even after 11+ hours of sleep

>per

>night. He will wake and feel good, then is tired again after an hour or

>so. If

>he gets less than 11 hours for 2 or more consecutive nights, he develops

>cold symptoms, asthma flares up, etc. Becoming a big problem now that he

>is 9,

>and sports practices last later.

>

>Sleep study revealed part of the mystery in that his REM sleep is 14%

>instead of 20%. However, his doctor doesn't seem to think the 6% difference

>is

>enough to warrant the fact he is " tired all the time. " I'm not sure what

>to do

>to help him. Currently we're trying melatonin and vitamin B6 with milk to

>try

>to achieve deeper sleep. It is helping some, but is not the magic bullet.

>(Also ProEFA earlier in the day.)

>

>Rose

[Guest guest]

Does he have apnea as well? That can be a major issue even if you sleep

the full night you aren't resting. I'm sure the sleep study looked for

that, however.

Miche

At 06:49 PM 5/31/2006, you wrote:

>

>

>My son has sleep issues dx'd as " idiopathic hypersomnolence. " Basically,

>his doctor is not sure why he is so tired, even after 11+ hours of sleep per

>night. He will wake and feel good, then is tired again after an hour or

>so. If

>he gets less than 11 hours for 2 or more consecutive nights, he develops

>cold symptoms, asthma flares up, etc. Becoming a big problem now that he

>is 9,

>and sports practices last later.

>

>Sleep study revealed part of the mystery in that his REM sleep is 14%

>instead of 20%. However, his doctor doesn't seem to think the 6%

>difference is

>enough to warrant the fact he is " tired all the time. " I'm not sure

>what to do

>to help him. Currently we're trying melatonin and vitamin B6 with milk to

>try

>to achieve deeper sleep. It is helping some, but is not the magic bullet.

>(Also ProEFA earlier in the day.)

>

>Rose

[Guest guest]

I'm not sure. Thyroid was not specifically mentioned, so I'm assuming not.

What is the thyroid's role in sleep? We go back to the sleep dr in July, so

I'll definitely ask.

Ferritin and iron, along with a CBC were performed, and all within normal.

Only 4 episodes of apnea during sleep study, so dr is not concerned with

that. Tonsillectomy at age 4, and adenoids were cauterized. ENT didn't think

they

needed removed at the time, but recent MRI showed they have grown... not

huge, and likely not causing his sleep problem.

Other ideas?

Thanks!

In a message dated 5/31/2006 9:44:22 P.M. Eastern Daylight Time,

jonaprilpow@... writes:

Did they check thyroid function?

>From: RMilto@...

>Reply-

>

>Subject: Re: [ ] Re: Besides Apraxia

>Date: Wed, 31 May 2006 20:49:40 EDT

>

>

>

>My son has sleep issues dx'd as " idiopathic hypersomnolence. " Basically,

>his doctor is not sure why he is so tired, even after 11+ hours of sleep

>per

>night. He will wake and feel good, then is tired again after an hour or

>so. If

>he gets less than 11 hours for 2 or more consecutive nights, he develops

>cold symptoms, asthma flares up, etc. Becoming a big problem now that he

>is 9,

>and sports practices last later.

>

>Sleep study revealed part of the mystery in that his REM sleep is 14%

>instead of 20%. However, his doctor doesn't seem to think the 6% difference

>is

>enough to warrant the fact he is " tired all the time. " I'm not sure what

>to do

>to help him. Currently we're trying melatonin and vitamin B6 with milk to

>try

>to achieve deeper sleep. It is helping some, but is not the magic bullet.

>(Also ProEFA earlier in the day.)

>

>Rose

[Guest guest]

Wow my son sounds the complete opposite...he is almost 3, and goes to

bed at midnight on a GOOD night, up at 7-8ish, NO NAPS....AND wakes

up 3-4 times a night on a good night, lol.

Sadly we are all use to it *crazy*

> >

> > What does your child have? Does anything else go " hand-in-hand "

with

> > Apraxia?

> >

> > Seizures? Sleeping problems? Sensory Integration Disorder?

> >

> > We know he has APraxia, he is still getting tested for Austism,

and

> > also he goes for an EEG on Thursday as well as a MRI brain scan.

>

>

>

>

>

>

>

[Guest guest]

Thyroid can make you very very very VERY sleepy and tired. Look up symptoms

of hypothyroid. I am currently hypothyroid and I tell you I could sleep

all day if it weren't for the kids. I go to bed at 11, wake at 8am and

barely can get up. Then I want a nap in the afternoon. The fatigue is

unbearable.

April

>From: RMilto@...

>Reply-

>

>Subject: Re: [ ] Re: Besides Apraxia

>Date: Thu, 1 Jun 2006 22:16:36 EDT

>

>

>

>I'm not sure. Thyroid was not specifically mentioned, so I'm assuming not.

>What is the thyroid's role in sleep? We go back to the sleep dr in July,

>so

>I'll definitely ask.

>

>Ferritin and iron, along with a CBC were performed, and all within normal.

>Only 4 episodes of apnea during sleep study, so dr is not concerned with

>that. Tonsillectomy at age 4, and adenoids were cauterized. ENT didn't

>think they

>needed removed at the time, but recent MRI showed they have grown... not

>huge, and likely not causing his sleep problem.

>

>Other ideas?

>

>Thanks!

>

>In a message dated 5/31/2006 9:44:22 P.M. Eastern Daylight Time,

>jonaprilpow@... writes:

>

>Did they check thyroid function?

>

>

> >From: RMilto@...

> >Reply-

> >

> >Subject: Re: [ ] Re: Besides Apraxia

> >Date: Wed, 31 May 2006 20:49:40 EDT

> >

> >

> >

> >My son has sleep issues dx'd as " idiopathic hypersomnolence. "

>Basically,

> >his doctor is not sure why he is so tired, even after 11+ hours of

>sleep

> >per

> >night. He will wake and feel good, then is tired again after an hour or

> >so. If

> >he gets less than 11 hours for 2 or more consecutive nights, he

>develops

> >cold symptoms, asthma flares up, etc. Becoming a big problem now that

>he

> >is 9,

> >and sports practices last later.

> >

> >Sleep study revealed part of the mystery in that his REM sleep is 14%

> >instead of 20%. However, his doctor doesn't seem to think the 6%

>difference

> >is

> >enough to warrant the fact he is " tired all the time. " I'm not sure

>what

> >to do

> >to help him. Currently we're trying melatonin and vitamin B6 with milk

>to

> >try

> >to achieve deeper sleep. It is helping some, but is not the magic

>bullet.

> >(Also ProEFA earlier in the day.)

> >

> >Rose

>

>

>

>

>

>

>

>

[Guest guest]

Our son is very similar. He goes to be by 10pm and is up between 6 and 7am. He

sometimes takes a nap, but still doesn't go to bed any earlier. His behavior

gets much worse at night. Biting, hiting, pinching, etc. He had his adenoids and

tonsils removed almost two years ago and we thought that might help, but it

didn't. Good luck to you.

Jill

Eileen <eileenwolter@...> wrote:

Wow my son sounds the complete opposite...he is almost 3, and goes to

bed at midnight on a GOOD night, up at 7-8ish, NO NAPS....AND wakes

up 3-4 times a night on a good night, lol.

Sadly we are all use to it *crazy*

>

>

>

> My son has sleep issues dx'd as " idiopathic hypersomnolence. "

Basically,

> his doctor is not sure why he is so tired, even after 11+ hours of

sleep per

> night. He will wake and feel good, then is tired again after an

hour or so. If

> he gets less than 11 hours for 2 or more consecutive nights, he

develops

> cold symptoms, asthma flares up, etc. Becoming a big problem now

that he is 9,

> and sports practices last later.

>

> Sleep study revealed part of the mystery in that his REM sleep is

14%

> instead of 20%. However, his doctor doesn't seem to think the 6%

difference is

> enough to warrant the fact he is " tired all the time. " I'm not

sure what to do

> to help him. Currently we're trying melatonin and vitamin B6 with

milk to try

> to achieve deeper sleep. It is helping some, but is not the magic

bullet.

> (Also ProEFA earlier in the day.)

>

> Rose

[Guest guest]

what type of surgery??? My son does not sleep much and never has but he does

not seem to stop breathing. EH is having his tonsils out in a few weeks and

they will check to see if the adnoids cmae back but I still want to see what you

had done.

Thanks!!!

Jill

<cpslphorse@...> wrote:

My son had huge sleep disorders- and went to ent- he was tested for sleep

apnea and at age4 had sugery T/a- and it resolved.

From: Jill Shapiro <preemie_mom2002@...>

Date: Wed May 31 12:38:33 CDT 2006

Subject: Re: [ ] Besides Apraxia

Hi,

I guess I am not sure if the symptoms go hand-in-hand, but our son has had

sleeping problems his whole life and very rarely sleeps through the night

without waking up. He is four and is also apraxic. He is also having a 24 hr.

EEG done to test for seizures. He is being evaluated by a team of specialists to

try and better determine what might help his behavior. Don't know if that helps

much, but it sounds like we are both in the same boat!

Jill

Eileen <eileenwolter@...> wrote:

What does your child have? Does anything else go " hand-in-hand " with

Apraxia?

Seizures? Sleeping problems? Sensory Integration Disorder?

We know he has APraxia, he is still getting tested for Austism, and

also he goes for an EEG on Thursday as well as a MRI brain scan.

[Guest guest]

My 34 month old daughter has had a sleep problem since she wa 17 months old.

Rarely sleeps through night with out waking for 3 hours then passing out again

or if she does sleep thru night then only for 6 hours. Peds told us behavioral

and then after 18 months of this another Ped told us to drug her with benadryl

for one month and then ween her off once she is sleeping thru night. I took it

upon myself to get a sleep study, mri brain scan and ct scan. Sleep study

states mild sleep apnea-again mom is right. What is anybody out there doing to

help our children. Please help.

---- Eileen <eileenwolter@...> wrote:

[Guest guest]

Have you tried melatonin, my son has seizures, and if he does not get a good

nights sleep, it can blow the whole next day. Melatonin helps to regulate

the sleep cycle. You can start with 1mg for a few days, and work your way up

to 3 or 4 mgs. My son takes 6mgs, because after a few years it can become

ineffective. I also heard through the grapevine, that valerian root also

helps, but I have never tried it personally. I definitely wouldnt have went the

benadryl route though !! Good Luck, I hope it works. If it does,

Puritanspride.com has a buy 2 get 3 free going on right now. Thats where I

usually order

mine from.

Michele

[Guest guest]

My dd has a Seizure Disorder as well as Apraxia.

Eileen <eileenwolter@...> wrote: What does your child have?

Does anything else go " hand-in-hand " with

Apraxia?

Seizures? Sleeping problems? Sensory Integration Disorder?

We know he has APraxia, he is still getting tested for Austism, and

also he goes for an EEG on Thursday as well as a MRI brain scan.

[Guest guest]

There's a famous sleep doctor--Weisbluth, I think his name is. I

have his book (or had it before Katrina) and he recommends exposing

babies to bright light--preferably natural light--first thing in the

morning to " set their clocks. " I don't remember the details but it

had to do with stimulating their production of melatonin. I did this

with mine when trying to get him on a sleep schedule and I think it

helped. Nowadays, having him on a very predictable routine and

sticking to our schedule definitely helps for us. Just an FYI.

>

> Have you tried melatonin, my son has seizures, and if he does not

get a good

> nights sleep, it can blow the whole next day. Melatonin helps to

regulate

> the sleep cycle. You can start with 1mg for a few days, and work

your way up

> to 3 or 4 mgs. My son takes 6mgs, because after a few years it

can become

> ineffective. I also heard through the grapevine, that valerian

root also

> helps, but I have never tried it personally. I definitely wouldnt

have went the

> benadryl route though !! Good Luck, I hope it works. If it does,

> Puritanspride.com has a buy 2 get 3 free going on right now. Thats

where I usually order

> mine from.

>

> Michele

>

>

>

[Guest guest]

hi eileen- josh has apraxia, sid and mild hypotonia- speech is 80%

intelligible after 2 years of ot and st- diet very limited- gags on food - never

babbled- only likes certain foods- couldnt eat baby food and gagged on

everything- im

still giving any meds injectable as he will not take them by mouth- read the

ladies home journal may issue if you can get your hands on it- i think its

called the language of love- about apraxia- it emphasizes how this is a

dissability- time magazine has a may issue about autism if you are interested

and they

talk about stanley greenspan who studied infant development for 15 years, his

method called dir (developmental, individual- difference, relationship based)

has as its premise the idea that the exchange of emotional signals, initially

between mother and infant form the basis for learning in childhood- its in the

may 15 issue- charlotte henry

[Guest guest]

I can't remember who posted about working memory, but if you enjoy a nice

technical article, here is an open-access paper about the brain and working

memory.

http://www.pnas.org/cgi/reprint/103/24/9315

Click in the box on the right to choose the form you want to see it in.

[Guest guest]

See here is the thing... When I start to analyze the boys as much as i have been

i'm going nuts...Their names ae Tanner and Noah and while I don't see any of the

red flags... except i'm not sure I have ever seen them chase my gaze they do

point out interesting things, the pretend to mix in a bowl and pretned to eat

from the empty bowl. The feed their teddy bears.... When they point at

something they love, such as a big truck the let out with a string of babble.

If i say throw this diaper away the do, but can't even say mommy. Neither of

them have even a single word that is recogonizable and I feel like I will lose

my mind in the next 4 months.

Kotter <rebecca709kotter@...> wrote: I can't remember

who posted about working memory, but if you enjoy a nice

technical article, here is an open-access paper about the brain and working

memory.

http://www.pnas.org/cgi/reprint/103/24/9315

Click in the box on the right to choose the form you want to see it in.

__________________________________________________