Hormone rant

[Guest guest]

Hi Ladies,

I just needed to thank you for all of your recent hormone info and to

vent. I went to my endocrinologist on Tuesday to talk about some

problems that I think are hormone-related only to have her shut me

down completely - without bloodwork or any tests, and all of your info

has given me the motivation to keep looking for answers. A little

background - I have PCOS and vestibulodynia. I went on the pill at 19

for the PCOS (before I had or knew I had VVS) and was on it for 5 1/2

years. In the meantime I developed VVS and it was thanks to some

ladies on these groups that I decided to stop taking the pill to see

if I improved. I did improve (about 90-95%) and went into remission

for about 6 months until I got pregnant. (I am forever grateful for

that remission or my beautiful little boy might not be here.)

Pregnancy definitely made my pain much worse and it has never gone

away. (My son is 18 months now.) Add in that my PT and I are 99.9%

sure I have PN, which really kicked in about 9 months ago from carting

around a toddler (and I have SI joint dysfunction and had a lumbar

fusion at L5-S1 almost 4 years ago). Back to the hormones though - I

have noticed since having my son, that I am mean and miserable a few

days before my period with severe pain in my low back, perineum and

whole pelvic floor the day before and first day. I also notice that

my SI joints are more likely to pop out leading up to my period. My

PT has noticed these cyclical changes too. I am currently reading Dr.

Vliet's book at the suggestion of someone on here and it suddenly

makes so much sense to me! I am not saying this is the solution to

all of my V problems, but I think it would help some of the symptoms.

The problem is that I can't seem to find a Dr to listen and do the

testing. The endo told me that I just needed antidepressants and

" perhaps I should see a psychiatrist to learn to accept my pain

issues " . Really? If this was all in my head I would have wished it

away eons ago! And if we just accepted our condition as a part of

life, we'd never find a cure. Ugh! At first I was pretty crushed,

because I really respected this Dr, but now as I am reading all of

this good info you ladies have posted this week, I am just mad and

determined to find some answers. This group has helped me so much

more than any Dr and I hope that I can be of help to someone else some

day when I am on the road to my recovery. Thanks for letting me vent!

Take care!