Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 The NVA is seeking US women diagnosed with either generalized vulvodynia or vulvar vestibulitis syndrome (aka vestibulodynia) to participate in a cost of illness survey, which asks questions about lost work hours and out-of-pocket expenses related to having vulvodynia. Participation requires only 3 hours of your time over the next 6 months. After completing the initial intake form, participants will receive a complimentary copy of NVA's self-help/educational guide, I Have Vulvodynia - What Do I Need to Know? After completing the 6- month survey, participants will receive a complimentary subscription to the NVA's printed newsletter, NVA News. (For additional information on the newsletter and to view a sample copy, visit: https://www.nva.org/order_newsletters.htm.) It is very important for the NVA to obtain this information in order toconvince members of Congress and the National Institutes of Health of the great need to increase funding of vulvodynia research. For additional information, or to participate, please visit http://www.nva.org/costsurvey or contact Crystal Dade at crystal@.... Quote Link to comment Share on other sites More sharing options...
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