Results of dr. visits

[Guest guest]

Since I developed the pain in my vulvar region, I have been going to

various doctors to find the source.

I have seen an endocrinologist - (High testosterone, high DHEAs

develoepd from adrenal glands, possibly Congenital adrenal

hyperplasia)

Associated symptoms - anxiety, hirsute

I have seen several ob-gyns - first diagnosed with yeast infections,

put on Metrogel and various other creams, unsucessfully

Referred to Dr. Ledger, who diagnosed me with vulvar vestibulitis and

prescribed Estrace, worked for a time, but then developed scary

migraines (dim vision, unable to spell or read for up to 30 minutes).

Not taking that again!

Saw a ob-gyn cancer specialist, who ACTUALLY examined the vulvar

skin, and saw white patches, so sent it for a biopsy. I have some

form of Lichen, and she is seeing the exact type.

This develops in young girls and older women, and you treat it with

topical steroid ointment. I haven't heard that people have had too

much success with this, but I'm willing to try it. The idea of this

scares me (narrowing of vagina opening, constant itchiness, changes

in the look of the whole area). I am upset about this but it could be

worse. CLobetasol is the prescription.

I haven't noticed any heightening of symptoms except when I drink

beer or red wine, or eat tomato sauce.

I have to urinate far more frequently now, probably just because i'm

aware of down there a lot.

I am somewhat relieved that I have something substantial that I can

actually tell my boyfriend I have, since it's been 5 years of really

no diagnosis and I think he somewhat thought that it was in my head.

Well this has been my story, I haven't tried any diet changes because

it seems almost silly since I'm sure it's due to hormones. I miss my

old body and my old sex life tremendously and would give anything to

have it back.