AFTER THE DEV. PED. VISIT

[Guest guest]

, Tina, Myra, , anybody!

Amber's evaluation sound just like Jade's went today. She did see

Dr. Chaullman and he did say he feels Jade is severly delayed in her

cognitive development. He went on to say he doesn't feel she has

Apraxia as a whole, maybe some parts of it, no Autism, a couple of

things he feels can fall within the spectrum disorders, but not

enough to say anything that has to do with Autism.

It felt like I was talked around a diagnosis and he wants to see her

again in 6 months. He did also give her a harsh cognitive score.

We drove almost two hours to get there, Jade was so cranky and tired

from not getting enough sleep and was very uncooperative. I do also

feel its not fair to judge her on one possible 30-40 minute

interaction with her, whereas her therapist work with her weekly and

can get her to do the things that he wanted her to do. It may take

some repeating and prompting and directing, but it will get done

eventually. The doctor asked Jade to do things once or twice and

when she wouldn't, he was writing away on his pad.

I did not even bother to make a fuss about the fish oils being Jade

has only been on them for a week and I did tell him that she takes

them and he said well it wouldn't hurt. He just pushed apraxia aside

repeatedly so I felt he wouldn't want to listen to any of my tales

of increased babbling in the last two weeks. I left feeling like I

wasn't sure if I should keep giving her the oils, but I have decided

that I am going to. To hell with him ! (sorry for venting)

What I do know is that I heard him say developmental delays and that

if she did not improve by the time she is three or four, he would

call that mental retardation. After I my heart started beating

again, I just started to feel like I want to know why my daughter

can't talk and you are not telling me why. He also stated that he

wants her tested for Fragile X, but I was told that is hereditary

and I know the hospital tests you for that when you are pregnant, so

I am leaning away from that. He also wants a test on chromosones and

blood work done. He said they still might be able to tell me what is

wrong after all of that.

Can anyone tell me in an apraxic child, do you feel that the childs

other abilities are more at age level?

For instance, Jade doesn't follow commands, like go and bring me

your shoes, go and get your cup and your shoes. He said that if her

cognitive skills were at a 30 month old level and the speech was

delayed, he would feel comfortable saying that it was apraxia.

I asked him if her making mouth movements with no sound coming out

comes from something other than apraxia, he says well that can be

part of apraxia, but there is a deeper issue.

The same as Amber, he was very harsh in his cognitive scoring.

He said her speech was at an 8 month old level and her cognitive was

at ten month old level. He said that 10 month olds should be able to

get things when asked. I think that is a bit early to expect that,

but hey what do I know?

I am anxious to see what he is going to write in his report since he

says she has nothing basically.

What I am going to do is try and have the evaluation done again in

New York before Jade's insurance runs out and see if that person

says the same that he does. It doesn't help to hear therapist say

that she is at a 2 year old level and for him to say she is barely

at a one year old level. I am completely and utterly confused.

So can anyone tell me if there apraxic children always function

normally cognitively and fall way below in their speech?