...EPA AND VITAMIN E QUESTION..

September 28, 2006

Hi ,

First and foremost, thank you once again, for investing so much of

your valuable time to this site...It has been an amazing road for my

family so far....starting with a non verbal child to one that now

speaks in 3-4 and sometimes 5 word sentences...I credit her gains to

wonderful therapists, and most of all this site, and your sharing

your knowledge and experience...

Just a quick question. Jackie is now on:

2 Omega 3,6,9 (not juniors) +

1 EPA 2X PER DAY

Plus 400 Vitamine E 1x per day

I recently ran out of EPA...shes been off EPA for a few days now, I

see no regression, but am unsure if I should add it back in...what do

you think?

What I have seen so far from the E:

MORE CLARITY!!! FINALLY!!!

SHE CAN NOW PUT " F " AND " S " AND " SH " SOUND IN FRONT OF WORDS WHICH

SHE COULD NOT DO BEFORE...

We certainaly have a long way to go...I am considering having a blood

work up done after reading one of the posts about carnitine. She is

also mild low tone. What are your suggestions?

And once again, THANK YOU, THANK YOU, THANK YOU!!!

TRISH

September 29, 2006

My take on all this is that vitamin E is at the center of these

neuro deficiencies...at least for some of our kids. Omega 3 works

(and works well) because of the deficiency that is caused by vit E.

One you replenish your E and omega stores, theoretically our kids

may not need so much omega. At some point I am going to cut back on

the amount of omega 3 we are giving ph to see if he can now do

well on a lower dose. I suspect he will, but he has regressed every

time we have taken him off omega. I hate to mess with what's working

though...so haven't done this yet. I still wonder whether it was the

vit E in the EPA that made the " big leap " for him when we added EPA.

If you are not seeing any regression, and you are only giving 400 IU

vit E once a day, consider going up to 400 IU twice a day, rather

than adding back the EPA. Also consider adding a gamma supplement (I

use Gamma 300 - from Jarrow, but there are many brands that are

fine). YOu will likely see another big surge if you saw something

at 400 IU. We saw HUGE improvements with a doubling of the dose at

that level, and what convinced me I had to post our story, because

there was no way the changes were just by chance. In the period of

just a few days, ph was making more progress than we had hoped

for by the time he hit kindergarden...2 years from now! And we

didn't see impact on tone until I went to the higher dose. This is a

safe dose, but as high as anyone should go until we have more

information. But as long as the dose is < 1 gram (which is about

1500 IU) it is safe per experts in the vit E field. Still there is

really no info out there on kids, so I don't think people should

push it past 400 IU alpha twice a day, plus a gamma supplement

(don't worry about the extra 100-200 IU alpha in the gamma when

calculating).

So alpha tocophorol 400 IU twice a day (lunch probably better than

dinner because at least ph gets a huge energy burst about an

hour post supplements).

1 gamma supplement a day (200-300mg a day...400mg is probably fine

too) Anytime...can give it with the alpha, but more will probably be

obsorbed if given at a different time.

These should be given just after some " fat containing " food. Not on

an empty stomach, or it won't get absorbed. So giving it just after

a glass of milk (or soy milk)...or a piece of chocolate, a meal or

something with a high fat content - for best absorption.

But giving the 2 400 IU capsules is fine. And with this

supplementation you will induce a gamma deficiency (and gamma it

seems has important anti-inflammatory effects).

An on the side observation. ph has gotten his 2nd cold for the

season. Typically he would get ill over the course of a week and

develop ear infections (this was in our pre-omega times), but even

on omegas - these little colds would cause asthma problems. He had 2

days of mild cold symptoms, no asthma issues, and is already better.

Same with my daughter...whose asthma is moderate - first time she

had a cold without needing prednisone, with vitamin E. I suspect

there will be other benefits of vitamin E supplement that we will

only hear about years from now. I do know that NIH is studying it as

an asthma therapy. Very interesting. An excellent side effect, if

you ask me! For the first time in our house, a cold is " just a cold " .

-

> Hi ,

> First and foremost, thank you once again, for investing so much of

> your valuable time to this site...It has been an amazing road for

my

> family so far....starting with a non verbal child to one that now

> speaks in 3-4 and sometimes 5 word sentences...I credit her gains

to

> wonderful therapists, and most of all this site, and your sharing

> your knowledge and experience...

> Just a quick question. Jackie is now on:

> 2 Omega 3,6,9 (not juniors) +

> 1 EPA 2X PER DAY

> Plus 400 Vitamine E 1x per day

>

> I recently ran out of EPA...shes been off EPA for a few days now,

I

> see no regression, but am unsure if I should add it back in...what

do

> you think?

>

> What I have seen so far from the E:

> MORE CLARITY!!! FINALLY!!!

> SHE CAN NOW PUT " F " AND " S " AND " SH " SOUND IN FRONT OF WORDS WHICH

> SHE COULD NOT DO BEFORE...

> We certainaly have a long way to go...I am considering having a

blood

> work up done after reading one of the posts about carnitine. She

is

> also mild low tone. What are your suggestions?

> And once again, THANK YOU, THANK YOU, THANK YOU!!!

>

> TRISH

>

October 7, 2006

With added vitamin E, our kids may not regress the way they did off

omegas without vit E supplements. In the next few weeks I am going

to see if I can lower ph's omega 3 dose...knowing he regressed

each time in the past. But I hate to mess with a good thing.

YOu will likely see even more improvement on 400 IU vit E twice a

day. I would probably restart the EPA for now and see how far the

surge can go. There will be plenty of time down the road to try to

lower the dose, but for now you are seeing amazing gains. Enjoy it

and help maximize it.

The more posts I see with families identifying apraxic kids with low

carnitine, the more I think all the kids with low tone should be

tested. -