Re: looking for any signs of hope...in NY

[Guest guest]

Hi,

I live in the Hudson Valley also, in Germantown.Sorry, I don't know of any

support groups. There is a developemental ped in Latham, just above Albany that

some parents and therapists rave about. ( I myself didn't think he was helpful

and stopped going to him) His name is Dr. Malone, and he had another Dr. that

worked with him, Dr. Bourke, and lots of people think she is wonderful too. I

don't know what part of the valley you are in, so this may be quite a trip for

you. Good Luck!

My daughter is 2.5 and recently diagnosed with verbal apraxia. She

has been receiving speech for the last year or so...she is classified

as close to severe because 80% of what she says is unintelligable. I

am desperately looking for a support group in my area..HUDSON VALLEY,

NY. I am also looking for a referal for a great developmental

pediatrician. I will do or try anything to help my daughter at this

point. Overall, she is a normally functioning, happy little girl.

Her friends are starting to have a hard time understanding her which i

assume will soon make playing very difficult. We started her on EFA

but i have not seen a difference yet.

If anyone has any suggestions, help or advice, please email me back.

Thank you so much (abellovin@...)

Amy

[Guest guest]

Thank you so much for responding back..Albany is about an hour from us. We are

in orange county. What county is Germantown in? Does your child have apraxia

and what age is he/she. I am trying to figure out what the future will be like

for my daughter, that is what is terrifying me the most at this point. What

did you not like about the doctor? If you have anymore helpful

information..please pass it on. Thank you!

Amy

Re: [ ] looking for any signs of hope...in NY

Hi,

I live in the Hudson Valley also, in Germantown.Sorry, I don't know of any

support groups. There is a developemental ped in Latham, just above Albany that

some parents and therapists rave about. ( I myself didn't think he was helpful

and stopped going to him) His name is Dr. Malone, and he had another Dr. that

worked with him, Dr. Bourke, and lots of people think she is wonderful too. I

don't know what part of the valley you are in, so this may be quite a trip for

you. Good Luck!

My daughter is 2.5 and recently diagnosed with verbal apraxia. She

has been receiving speech for the last year or so...she is classified

as close to severe because 80% of what she says is unintelligable. I

am desperately looking for a support group in my area..HUDSON VALLEY,

NY. I am also looking for a referal for a great developmental

pediatrician. I will do or try anything to help my daughter at this

point. Overall, she is a normally functioning, happy little girl.

Her friends are starting to have a hard time understanding her which i

assume will soon make playing very difficult. We started her on EFA

but i have not seen a difference yet.

If anyone has any suggestions, help or advice, please email me back.

Thank you so much (abellovin@...)

Amy

[Guest guest]

Hi,

We are in Columbia County, about 40 minutes south of Albany. My daughter has

apraxia, and also has Cerebral Palsy. She is 5 and uses a walker to get around

and has a Dynavox for speech. She has some words that I can understand, and uses

limited sign language because of her fine motor problems, so the Dynavox will

become her main communicator outside of the home. She just got it in November,

and she is learning to use it very quickly.

The reason I was not crazy about Dr. Malone, is that he refused to even

consider diagnosing her with CP, and didn't give us any useful advice other than

" keep up with the Early Intervention " . I decided that I didn't need to spend

time and $ for him to tell me that each time I went. (Her neurologist diagnosed

her two weeks later anyway) On the other hand, I know that he has a great

reputation amongst the therapists in our area and many parents think he is

wonderful. I think that is true of any doctor, some will love him and some not

so much. I don't have anything really negative to say about him, just that he

wasn't all that helpful to me. You may want to give him a try.

You are probobly close enough to NYC to find a good Doc there too. I would

think there must be quite a few to choose from there. Have you asked your

regular Pediatrician for a recommendation? Also, there are quite a few people

on this list from NJ, so maybe you'll get a recommendation from someone there.

Best of luck to you.

abellovin@... wrote:

Thank you so much for responding back..Albany is about an hour from us. We

are in orange county. What county is Germantown in? Does your child have

apraxia and what age is he/she. I am trying to figure out what the future will

be like for my daughter, that is what is terrifying me the most at this point.

What did you not like about the doctor? If you have anymore helpful

information..please pass it on. Thank you!

Amy

Re: [ ] looking for any signs of hope...in NY

Hi,

I live in the Hudson Valley also, in Germantown.Sorry, I don't know of any

support groups. There is a developemental ped in Latham, just above Albany that

some parents and therapists rave about. ( I myself didn't think he was helpful

and stopped going to him) His name is Dr. Malone, and he had another Dr. that

worked with him, Dr. Bourke, and lots of people think she is wonderful too. I

don't know what part of the valley you are in, so this may be quite a trip for

you. Good Luck!

My daughter is 2.5 and recently diagnosed with verbal apraxia. She

has been receiving speech for the last year or so...she is classified

as close to severe because 80% of what she says is unintelligable. I

am desperately looking for a support group in my area..HUDSON VALLEY,

NY. I am also looking for a referal for a great developmental

pediatrician. I will do or try anything to help my daughter at this

point. Overall, she is a normally functioning, happy little girl.

Her friends are starting to have a hard time understanding her which i

assume will soon make playing very difficult. We started her on EFA

but i have not seen a difference yet.

If anyone has any suggestions, help or advice, please email me back.

Thank you so much (abellovin@...)

Amy

[Guest guest]

HI I am in Albany NY. St Rose Colllege has been recommended to me by a ST

out of this area, also someone (a ST) within this area has said the woman

who evaluated (and I am hoping) will give my therapy is very highly

recommended- she is from St Rose..

Other than that I dont know! I am just starting all of this.

April

>From: abellovin@...

>Reply-

>

>Subject: Re: [ ] looking for any signs of hope...in NY

>Date: Sat, 29 Apr 2006 20:04:00 -0400

>

>Thank you so much for responding back..Albany is about an hour from us. We

>are in orange county. What county is Germantown in? Does your child have

>apraxia and what age is he/she. I am trying to figure out what the future

>will be like for my daughter, that is what is terrifying me the most at

>this point. What did you not like about the doctor? If you have anymore

>helpful information..please pass it on. Thank you!

>

>Amy

>

> Re: [ ] looking for any signs of hope...in NY

>

>

>Hi,

> I live in the Hudson Valley also, in Germantown.Sorry, I don't know of

>any

>support groups. There is a developemental ped in Latham, just above Albany

>that

>some parents and therapists rave about. ( I myself didn't think he was

>helpful

>and stopped going to him) His name is Dr. Malone, and he had another Dr.

>that

>worked with him, Dr. Bourke, and lots of people think she is wonderful too.

>I

>don't know what part of the valley you are in, so this may be quite a trip

>for

>you. Good Luck!

>

>

>

> My daughter is 2.5 and recently diagnosed with verbal apraxia. She

>has been receiving speech for the last year or so...she is classified

>as close to severe because 80% of what she says is unintelligable. I

>am desperately looking for a support group in my area..HUDSON VALLEY,

>NY. I am also looking for a referal for a great developmental

>pediatrician. I will do or try anything to help my daughter at this

>point. Overall, she is a normally functioning, happy little girl.

>Her friends are starting to have a hard time understanding her which i

>assume will soon make playing very difficult. We started her on EFA

>but i have not seen a difference yet.

>

>If anyone has any suggestions, help or advice, please email me back.

>Thank you so much (abellovin@...)

>

>Amy

>

[Guest guest]

We live in Pittsford, a suburb of Rochester, NY. We have a WONDERFUL

Developmental Pediatrician, Dr. Hyman, who practices out of the

Golisano Children's Hospital at Strong Memorial Hospital, a teaching

hospital affiliated with the University of Rochester Medical School.

Dr. Hyman is very well respected in her field and in huge demand.

I hope that helps.

Warm regards,

******************

(Rochester, NY)

Mom to , 2.11 years, Developmental Verbal Dyspraxia

& , 9 months

________________________________

From:

[mailto: ] On Behalf Of Stier

Sent: Saturday, April 29, 2006 10:03 PM

Subject: Re: [ ] looking for any signs of hope...in NY

Hi,

We are in Columbia County, about 40 minutes south of Albany. My

daughter has apraxia, and also has Cerebral Palsy. She is 5 and uses a

walker to get around and has a Dynavox for speech. She has some words

that I can understand, and uses limited sign language because of her

fine motor problems, so the Dynavox will become her main communicator

outside of the home. She just got it in November, and she is learning to

use it very quickly.

The reason I was not crazy about Dr. Malone, is that he refused to

even consider diagnosing her with CP, and didn't give us any useful

advice other than " keep up with the Early Intervention " . I decided that

I didn't need to spend time and $ for him to tell me that each time I

went. (Her neurologist diagnosed her two weeks later anyway) On the

other hand, I know that he has a great reputation amongst the therapists

in our area and many parents think he is wonderful. I think that is true

of any doctor, some will love him and some not so much. I don't have

anything really negative to say about him, just that he wasn't all that

helpful to me. You may want to give him a try.

You are probobly close enough to NYC to find a good Doc there too. I

would think there must be quite a few to choose from there. Have you

asked your regular Pediatrician for a recommendation? Also, there are

quite a few people on this list from NJ, so maybe you'll get a

recommendation from someone there. Best of luck to you.

abellovin@... wrote:

Thank you so much for responding back..Albany is about an hour from

us. We are in orange county. What county is Germantown in? Does your

child have apraxia and what age is he/she. I am trying to figure out

what the future will be like for my daughter, that is what is terrifying

me the most at this point. What did you not like about the doctor?

If you have anymore helpful information..please pass it on. Thank you!

Amy

Re: [ ] looking for any signs of hope...in NY

Hi,

I live in the Hudson Valley also, in Germantown.Sorry, I don't know

of any

support groups. There is a developemental ped in Latham, just above

Albany that

some parents and therapists rave about. ( I myself didn't think he was

helpful

and stopped going to him) His name is Dr. Malone, and he had another Dr.

that

worked with him, Dr. Bourke, and lots of people think she is wonderful

too. I

don't know what part of the valley you are in, so this may be quite a

trip for

you. Good Luck!

My daughter is 2.5 and recently diagnosed with verbal apraxia. She

has been receiving speech for the last year or so...she is classified

as close to severe because 80% of what she says is unintelligable. I

am desperately looking for a support group in my area..HUDSON VALLEY,

NY. I am also looking for a referal for a great developmental

pediatrician. I will do or try anything to help my daughter at this

point. Overall, she is a normally functioning, happy little girl.

Her friends are starting to have a hard time understanding her which i

assume will soon make playing very difficult. We started her on EFA

but i have not seen a difference yet.

If anyone has any suggestions, help or advice, please email me back.

Thank you so much (abellovin@...)

Amy

[Guest guest]

Thank you so much for that info..but i think Rochester is a little too far for

us. We are only about 1 1/2 hours north of NYC. I will continue on with my

search. What kind of speech therapy is your daughter receiving? My daughter is

transitioning now onto the preschool services. Good luck to you...

Amy

Re: [ ] looking for any signs of hope...in NY

Hi,

We are in Columbia County, about 40 minutes south of Albany. My

daughter has apraxia, and also has Cerebral Palsy. She is 5 and uses a

walker to get around and has a Dynavox for speech. She has some words

that I can understand, and uses limited sign language because of her

fine motor problems, so the Dynavox will become her main communicator

outside of the home. She just got it in November, and she is learning to

use it very quickly.

[Guest guest]

Thank you for that info..someone else recommended us to the Albany area as well.

We too are just beginning this whole process with apraxia, although my daughter

has been in early intervention since 6 months..she was just officially diagnosed

with apraxia. Good luck to you...

Amy

Re: [ ] looking for any signs of hope...in NY

HI I am in Albany NY. St Rose Colllege has been recommended to me by a ST

out of this area, also someone (a ST) within this area has said the woman

who evaluated (and I am hoping) will give my therapy is very highly

recommended- she is from St Rose..

Other than that I dont know! I am just starting all of this.

April

[Guest guest]

You are right, we are close enough to the city to find some good doctors there.

I tend to think that most of those doctors do not take a lot of insurances..but

i will continue my search. We saw a neurologist in New Paltz who we thought was

terrible. That's why we are moving on to find another doctor. I want someone

that can follow Hailey through the years and monitor her progress or other

areas she may end up struggling with as she enters school. I appreciate your

help and I wish you and your daughter the best of luck too!

Amy

Re: [ ] looking for any signs of hope...in NY

Hi,

We are in Columbia County, about 40 minutes south of Albany. My daughter has

apraxia, and also has Cerebral Palsy. She is 5 and uses a walker to get around

and has a Dynavox for speech. She has some words that I can understand, and uses

limited sign language because of her fine motor problems, so the Dynavox will

become her main communicator outside of the home. She just got it in November,

and she is learning to use it very quickly.

The reason I was not crazy about Dr. Malone, is that he refused to even

consider diagnosing her with CP, and didn't give us any useful advice other than

" keep up with the Early Intervention " . I decided that I didn't need to spend

time and $ for him to tell me that each time I went. (Her neurologist diagnosed

her two weeks later anyway) On the other hand, I know that he has a great

reputation amongst the therapists in our area and many parents think he is

wonderful. I think that is true of any doctor, some will love him and some not

so much. I don't have anything really negative to say about him, just that he

wasn't all that helpful to me. You may want to give him a try.

You are probobly close enough to NYC to find a good Doc there too. I would

think there must be quite a few to choose from there. Have you asked your

regular Pediatrician for a recommendation? Also, there are quite a few people

on this list from NJ, so maybe you'll get a recommendation from someone there.

Best of luck to you.

abellovin@... wrote:

Thank you so much for responding back..Albany is about an hour from us. We

are in orange county. What county is Germantown in? Does your child have

apraxia and what age is he/she. I am trying to figure out what the future will

be like for my daughter, that is what is terrifying me the most at this point.

What did you not like about the doctor? If you have anymore helpful

information..please pass it on. Thank you!

Amy

--

[Guest guest]

I live near Schenectady and we have been to Developmental Pediatrics for 2 of

our 4 children. My youngest will go there in June to be evaluated by Dr. Bourke.

Another good place in Albany is the Center for Disability Services. We have been

there twice for a AAC evaluation. They could probably help with your daughter's

care. They have a webpage: http://www.cfdsny.org/services8.html.

For parent support, you can try Parent to Parent of NYS. They have a website:

http://www.parenttoparentnys.org/ . They can match you with a parent of a child

with apraxia. I have done this, but I have only spoken to the parent once.

Hope this helps some.

---------------------------------

New Messenger with Voice. Call regular phones from your PC and save big.

[Guest guest]

Dr. Cecelia McCarton of the McCarton Center is a developmental pediatrician

in NYC and she is wonderful.

Her number is 212-996-9019. I have had 5 years of personal and 10 years of

professional experience with her. She is experienced in Apraxia and many

other disorders as well.

Kahn Ruoff, LMSW, MS Ed

Special Education Advocate &

Special Needs Family Therapist

(914) 478-3730

[ ] looking for any signs of hope...in NY

> My daughter is 2.5 and recently diagnosed with verbal apraxia. She

> has been receiving speech for the last year or so...she is classified

> as close to severe because 80% of what she says is unintelligable. I

> am desperately looking for a support group in my area..HUDSON VALLEY,

> NY. I am also looking for a referal for a great developmental

> pediatrician. I will do or try anything to help my daughter at this

> point. Overall, she is a normally functioning, happy little girl.

> Her friends are starting to have a hard time understanding her which i

> assume will soon make playing very difficult. We started her on EFA

> but i have not seen a difference yet.

>

> If anyone has any suggestions, help or advice, please email me back.

> Thank you so much (abellovin@...)

>

> Amy

>

>

>

>

>

>

>

>

[Guest guest]

NK YOU

__________________________________________________

[Guest guest]

HELLO: I NEED SOME ADVICE. MY GRANDSON JARED IS 3 AND

HAS BEEN DIAGNOSED WITH VERBAL APRAXIA. HE GOES TO A

SPECIAL SCHOOL 5 MORNINGS A WEEK FOR SPEECH. MY

QUESTION IS THIS: HE HAS A BABY SISTER, JENNA, WHO IS

15 MONTHS OLD. HOW MUCH SHOULD A 15 MONTH OLD BE

SAYING?? SHOULD WE BE WORRIED ABOUT HER AS WELL????

SHE ONLY SAYS ABOUT 4 WORDS... ANY ADVICE WILL BE

APPRECIATED. THANK YOU. BARBARA

--- Ruoff <jenruoff@...> wrote:

> Dr. Cecelia McCarton of the McCarton Center is a

> developmental pediatrician

> in NYC and she is wonderful.

> Her number is 212-996-9019. I have had 5 years of

> personal and 10 years of

> professional experience with her. She is

> experienced in Apraxia and many

> other disorders as well.

> Kahn Ruoff, LMSW, MS Ed

> Special Education Advocate &

> Special Needs Family Therapist

> (914) 478-3730

> [ ] looking for any signs

> of hope...in NY

>

>

> > My daughter is 2.5 and recently diagnosed with

> verbal apraxia. She

> > has been receiving speech for the last year or

> so...she is classified

> > as close to severe because 80% of what she says is

> unintelligable. I

> > am desperately looking for a support group in my

> area..HUDSON VALLEY,

> > NY. I am also looking for a referal for a great

> developmental

> > pediatrician. I will do or try anything to help

> my daughter at this

> > point. Overall, she is a normally functioning,

> happy little girl.

> > Her friends are starting to have a hard time

> understanding her which i

> > assume will soon make playing very difficult. We

> started her on EFA

> > but i have not seen a difference yet.

> >

> > If anyone has any suggestions, help or advice,

> please email me back.

> > Thank you so much (abellovin@...)

> >

> > Amy

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thank you so much..I came across her name in my search. Does she do

evaluations? I saw she has a school, but we are more looking for a doctor that

can follow and monitor Hailey's progress. Do you know if she takes insurance?

What area of special education do you work with? Thank you so much for the

information!

Amy

Re: [ ] looking for any signs of hope...in NY

Dr. Cecelia McCarton of the McCarton Center is a developmental pediatrician

in NYC and she is wonderful.

Her number is 212-996-9019. I have had 5 years of personal and 10 years of

professional experience with her. She is experienced in Apraxia and many

other disorders as well.

Kahn Ruoff, LMSW, MS Ed

Special Education Advocate &

Special Needs Family Therapist

(914) 478-3730

[ ] looking for any signs of hope...in NY

> My daughter is 2.5 and recently diagnosed with verbal apraxia. She

> has been receiving speech for the last year or so...she is classified

> as close to severe because 80% of what she says is unintelligable. I

> am desperately looking for a support group in my area..HUDSON VALLEY,

> NY. I am also looking for a referal for a great developmental

> pediatrician. I will do or try anything to help my daughter at this

> point. Overall, she is a normally functioning, happy little girl.

> Her friends are starting to have a hard time understanding her which i

> assume will soon make playing very difficult. We started her on EFA

> but i have not seen a difference yet.

>

> If anyone has any suggestions, help or advice, please email me back.

> Thank you so much (abellovin@...)

>

> Amy

>

>

>

>

>

>

>

>

[Guest guest]

________________________________

From:

[mailto: ] On Behalf Of

abellovin@...

Sent: Sunday, April 30, 2006 12:55 PM

Subject: Re: [ ] looking for any signs of hope...in NY

Thank you so much for that info..but i think Rochester is a little too

far for us. We are only about 1 1/2 hours north of NYC. I will

continue on with my search. What kind of speech therapy is your

daughter receiving? My daughter is transitioning now onto the preschool

services. Good luck to you...

Amy

Re: [ ] looking for any signs of hope...in NY

Hi,

We are in Columbia County, about 40 minutes south of Albany. My

daughter has apraxia, and also has Cerebral Palsy. She is 5 and uses a

walker to get around and has a Dynavox for speech. She has some words

that I can understand, and uses limited sign language because of her

fine motor problems, so the Dynavox will become her main communicator

outside of the home. She just got it in November, and she is learning to

use it very quickly.

[Guest guest]

I figured, but wanted to throw it out there anyway. :-)

________________________________

From:

[mailto: ] On Behalf Of

abellovin@...

Sent: Sunday, April 30, 2006 12:55 PM

Subject: Re: [ ] looking for any signs of hope...in NY

Thank you so much for that info..but i think Rochester is a little too

far for us. We are only about 1 1/2 hours north of NYC. I will

continue on with my search. What kind of speech therapy is your

daughter receiving? My daughter is transitioning now onto the preschool

services. Good luck to you...

Amy

Re: [ ] looking for any signs of hope...in NY

Hi,

We are in Columbia County, about 40 minutes south of Albany. My

daughter has apraxia, and also has Cerebral Palsy. She is 5 and uses a

walker to get around and has a Dynavox for speech. She has some words

that I can understand, and uses limited sign language because of her

fine motor problems, so the Dynavox will become her main communicator

outside of the home. She just got it in November, and she is learning to

use it very quickly.

[Guest guest]

Who diagnosed your daughter with Apraxia?

[ ] looking for any signs of hope...in NY

My daughter is 2.5 and recently diagnosed with verbal apraxia. She

has been receiving speech for the last year or so...she is classified

as close to severe because 80% of what she says is unintelligable. I

am desperately looking for a support group in my area..HUDSON VALLEY,

NY. I am also looking for a referal for a great developmental

pediatrician. I will do or try anything to help my daughter at this

point. Overall, she is a normally functioning, happy little girl.

Her friends are starting to have a hard time understanding her which i

assume will soon make playing very difficult. We started her on EFA

but i have not seen a difference yet.

If anyone has any suggestions, help or advice, please email me back.

Thank you so much (abellovin@...)

Amy

[Guest guest]

A nuerologist whom we were unhappy with, so we are looking for someone else..

[ ] looking for any signs of hope...in NY

My daughter is 2.5 and recently diagnosed with verbal apraxia. She

has been receiving speech for the last year or so...she is classified

as close to severe because 80% of what she says is unintelligable. I

am desperately looking for a support group in my area..HUDSON VALLEY,

NY. I am also looking for a referal for a great developmental

pediatrician. I will do or try anything to help my daughter at this

point. Overall, she is a normally functioning, happy little girl.

Her friends are starting to have a hard time understanding her which i

assume will soon make playing very difficult. We started her on EFA

but i have not seen a difference yet.

If anyone has any suggestions, help or advice, please email me back.

Thank you so much (abellovin@...)

Amy