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I think another reason for the confusion between carnosine and carnitine,

especially where seizures are involved, is that valproic acid (Depakote,

Depakene) used over the long time can deplete the body of Carnitine, so

bright neurologists will often prescribe carnitine supplements or carnitor to

offset the medication induced defienciency. So some patients might actually

have a need to supplement with Carnitine, as well as carnosine.

That was about as clear as mud, lol. I hope it made sense.

Liane (I probably need some carnosine to save my last working synapse)

Liane Gentry Skye

<A HREF= " http://talkingwithpictures.com/ " >Talking With Pictures</A>

" nonverbal " does not have to mean " unable to communicate "

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Has anyone on this list actually tried the Carnosine with their child? I

went to the health food store and the manager told me she was ordering this

product, but not because it was helping children with autism, but that it

was helping people lose weight. It had been featured in Women's World

magazine.

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This is interesting just check that they don't mean L Carnitine apparently this

is for weight loss and sounds the same. I was about to order some in NZ and I

just happened to say " now that is Carnosine not Carnitine " and luckily I did. I

really hope carnosine doesn't promote weight loss - we don't need that one!

Regards

Terri NZ

Re: Re: Carnosine

Has anyone on this list actually tried the Carnosine with their child? I

went to the health food store and the manager told me she was ordering this

product, but not because it was helping children with autism, but that it

was helping people lose weight. It had been featured in Women's World

magazine.

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Dear Terri,

Thanks for pointing that out to me. I wonder if the health food staff

person was also confused. I really wanted to try this product on my daughter

(carnosine) after reading the letter someone posted about how it is helping

children with autism.

Re: Re: Carnosine

>

>

> Has anyone on this list actually tried the Carnosine with their

child? I

> went to the health food store and the manager told me she was ordering

this

> product, but not because it was helping children with autism, but that

it

> was helping people lose weight. It had been featured in Women's World

> magazine.

>

>

>

>

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Dear CJ,

Did you purchase carnosine at the health food store? Is it in liquid

form or tablet form? How much did you know to give to your son? My daughter

is 13 and weighs about 99 lbs. Thanks in advance for any info you have

concerning this product.

Re: Re: Carnosine

>

>

> Has anyone on this list actually tried the Carnosine with their

child? I

> went to the health food store and the manager told me she was ordering

this

> product, but not because it was helping children with autism, but that

it

> was helping people lose weight. It had been featured in Women's World

> magazine.

>

>

>

>

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Hi:

My son takes carnosine. It stopped his EEG spikes in 3 days.

His speech has also improved, and obviously his attention/focus.

It does not cause weight loss; that is L-carnitine.

Have a nice weekend, Cj

Re: Re: Carnosine

Has anyone on this list actually tried the Carnosine with their child? I

went to the health food store and the manager told me she was ordering this

product, but not because it was helping children with autism, but that it

was helping people lose weight. It had been featured in Women's World

magazine.

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I have ordered mine from here.

Regards

TerriNZ

http://www.vitaminshoppe.com/browse/sku_listing.jhtml?DeptID=1 & OrigDeptID= & Lette\

r=C & BrandID= & BrandName= & ProdID=101064 & ProdName=Carnosine & BreadCrumbType=Product & \

BreadCrumbType_Product=NoCategory & CatName=Carnosine & source=bdlook

Re: Re: Carnosine

Dear CJ,

Did you purchase carnosine at the health food store? Is it in liquid

form or tablet form? How much did you know to give to your son? My daughter

is 13 and weighs about 99 lbs. Thanks in advance for any info you have

concerning this product.

Re: Re: Carnosine

>

>

> Has anyone on this list actually tried the Carnosine with their

child? I

> went to the health food store and the manager told me she was ordering

this

> product, but not because it was helping children with autism, but that

it

> was helping people lose weight. It had been featured in Women's World

> magazine.

>

>

>

>

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HI : I got the 1st bottle at the health food store. Now I buy it at

Puritan's Pride online.

www.puritan.com They are 500mg tabs

My son is 10 and 103 lbs.

He takes 1 in the morning and 1 at 3:30pm.

I started him with 1 in the am- then the next week added the 2nd. I knew about

how much to give him-as he weighs as much as a small adult, from researching it

on the web- and asking our nutritionist to make sure.

have a good evening,

Re: Re: Carnosine

>

>

> Has anyone on this list actually tried the Carnosine with their

child? I

> went to the health food store and the manager told me she was ordering

this

> product, but not because it was helping children with autism, but that

it

> was helping people lose weight. It had been featured in Women's World

> magazine.

>

>

>

>

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http://www.carn-aware.com/

This is the web site (not too much info) that I have read people using (its

expensive) some with good success, others not. Those who were sticking with

it were trying purchasing from iherb.com which apparently works out cheaper.

HTH

Mandi in UK

> I have ordered mine from here.

> Regards

> TerriNZ

>

> http://www.vitaminshoppe.com/browse/sku_listing.jhtml?DeptID=1 & OrigDeptID= &

> Letter=C & BrandID= & BrandName= & ProdID=101064 & ProdName=Carnosine &

> BreadCrumbType=Product & BreadCrumbType_Product=NoCategory & CatName=Carnosine &

> source=bdlook

> Re: Re: Carnosine

>

>

> Dear CJ,

> Did you purchase carnosine at the health food store? Is it in liquid

> form or tablet form? How much did you know to give to your son? My

> daughter

> is 13 and weighs about 99 lbs. Thanks in advance for any info you have

> concerning this product.

>

> Re: Re: Carnosine

> >

> >

> > Has anyone on this list actually tried the Carnosine with their

> child? I

> > went to the health food store and the manager told me she was

> ordering

> this

> > product, but not because it was helping children with autism, but

> that

> it

> > was helping people lose weight. It had been featured in Women's

> World

> > magazine.

> >

> >

>

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Thanks to all of you who have posted the carnosine info. I can't wait to try

it with my daughter. I think I may go right to the source and buy it from

the doctor who published the results of his study using carnosine. None of

my local health food stores seem to carry it.

----- Original Message -----

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  • 3 weeks later...

Dear Listmates,

Those of you who have started carnosine or carnoware with your children,

would you be willing to share how your child is doing on it? I am thinking

about trying it with my 13 year old daughter, but would love an update on

any progress you have noted so far. Thanks in advance for responding to my

request.

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My 4 1/2 year old daughter Jenna has been on Carn Aware for about 3 weeks.

Her big improvements came in motor skill areas and problem solving. She

just put on her socks and shoes one day after about 4 days on it. Also, she

understands games and circle time activities much better. At the pumpkin

patch last week w/ Jenna's school several parents told me she seemed much

more responsive and " there " . I do this her focus is better overall. She

takes 400mg a day after starting w/100mg and increasing over about a 1 week

period to the current dosage.

Valeri

Re: Carnosine

Dear Listmates,

Those of you who have started carnosine or carnoware with your children,

would you be willing to share how your child is doing on it? I am thinking

about trying it with my 13 year old daughter, but would love an update on

any progress you have noted so far. Thanks in advance for responding to my

request.

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Dear Valeri,

It is so great to hear how well you daughter is doing on this

supplement. I , too, think it's wise to start out on a small dose and

gradually increase the dosage over time. This will be the way I start out my

daughter.

Thanks again,

Re: Carnosine

>

>

> Dear Listmates,

> Those of you who have started carnosine or carnoware with your

children,

> would you be willing to share how your child is doing on it? I am thinking

> about trying it with my 13 year old daughter, but would love an update on

> any progress you have noted so far. Thanks in advance for responding to my

> request.

>

>

>

>

>

>

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We will be starting carnosine as soon as our order arrives in the

mail. Could anyone please tell me what is an appropriate dose of

carnosine for a 40lb 2.5 yr old boy?

Should it be given once or twice a day, and should it be given with

meals or away from meals?

Thanks in adsvance

Steve

> Dear Valeri,

> It is so great to hear how well you daughter is doing on this

> supplement. I , too, think it's wise to start out on a small dose

and

> gradually increase the dosage over time. This will be the way I

start out my

> daughter.

> Thanks again,

>

> Re: Carnosine

> >

> >

> > Dear Listmates,

> > Those of you who have started carnosine or carnoware with your

> children,

> > would you be willing to share how your child is doing on it? I am

thinking

> > about trying it with my 13 year old daughter, but would love an

update on

> > any progress you have noted so far. Thanks in advance for

responding to my

> > request.

> >

> >

> >

> >

> >

> >

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I'm no expert. From what I read you are to start w/ 100 mg a day and slowly

increase to 400 mg a day. Ideally it is given over the course of the day a

little at a time. We give it to Jenna (4 1/2 ASD) w/ her morning

supplements and then when she gets home from school at 2:15. I can't

remember well enough to space it out any more than that. In the study that

was done all the kids got 400 mg. If you increase too quickly it could

cause hyperactivity.

Valeri

Re: Carnosine

We will be starting carnosine as soon as our order arrives in the

mail. Could anyone please tell me what is an appropriate dose of

carnosine for a 40lb 2.5 yr old boy?

Should it be given once or twice a day, and should it be given with

meals or away from meals?

Thanks in adsvance

Steve

> Dear Valeri,

> It is so great to hear how well you daughter is doing on this

> supplement. I , too, think it's wise to start out on a small dose

and

> gradually increase the dosage over time. This will be the way I

start out my

> daughter.

> Thanks again,

>

> Re: Carnosine

> >

> >

> > Dear Listmates,

> > Those of you who have started carnosine or carnoware with your

> children,

> > would you be willing to share how your child is doing on it? I am

thinking

> > about trying it with my 13 year old daughter, but would love an

update on

> > any progress you have noted so far. Thanks in advance for

responding to my

> > request.

> >

> >

> >

> >

> >

> >

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  • 2 weeks later...

I'm really happy to hear how great your son is doing on Carn-aware. Even

though I cut back the dose for , I have seen an improvement in how much

better she is talking. I'm not ready to give up yet...just take it really

slow and make sure I give her the dosage in the am and hope it wears off by

the time she goes to bed.

Re: Carnosine

> > >

> > >

> > > Dear Listmates,

> > > Those of you who have started carnosine or carnoware with your

> > children,

> > > would you be willing to share how your child is doing on it? I am

> thinking

> > > about trying it with my 13 year old daughter, but would love an

> update

> on

> > > any progress you have noted so far. Thanks in advance for

> responding to

> my

> > > request.

> > >

>

>

> Dear ,

> Our son has been on Carn-Aware for about 3 mos.. We started out with

> 400mg (two caps) per day, and found that while there was improvement,

> ie.,

> fewer melt-downs, more " present " in school, cooperation, happy, more

> vocal

> - not with consistant specific words, but lots more " voice " ! Singing,

> and

> uh-huh's, etc., he was very hyper, and unable to settle for sleeping

> at night.

> We cut his dose back to 1 cap per day, and didn't loose any

> improvement,

> and his hyperactivity decreased. He recently was ill with flu

> symptoms, and

> refused food from Friday aftermoon untill Monday evening, and

> wouldn't

> sleep for almost 36 hrs, with only very SHORT (30min, max) naps every

> 6-8

> hrs or so, during this time. I can't tell you if Carn-Aware had

> anything to do

> with this at all. My feeling is that the flu caused it, as now that

> he's feeling

> better, he has gone back to his regular sleeping pattern.

>

> I think you're doing the right thing starting small & increasing

> slowly, I

> think you keep better control that way. As I said, my son is doing

> great

> now!

>

>

>

>

>

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Hi : We found our son does much better with 250mg (1/2 cap) in the morning

then the other 1/2 at 3:30 pm

Take care, D

Re: Carnosine

> > >

> > >

> > > Dear Listmates,

> > > Those of you who have started carnosine or carnoware with your

> > children,

> > > would you be willing to share how your child is doing on it? I am

> thinking

> > > about trying it with my 13 year old daughter, but would love an

> update

> on

> > > any progress you have noted so far. Thanks in advance for

> responding to

> my

> > > request.

> > >

>

>

> Dear ,

> Our son has been on Carn-Aware for about 3 mos.. We started out with

> 400mg (two caps) per day, and found that while there was improvement,

> ie.,

> fewer melt-downs, more " present " in school, cooperation, happy, more

> vocal

> - not with consistant specific words, but lots more " voice " ! Singing,

> and

> uh-huh's, etc., he was very hyper, and unable to settle for sleeping

> at night.

> We cut his dose back to 1 cap per day, and didn't loose any

> improvement,

> and his hyperactivity decreased. He recently was ill with flu

> symptoms, and

> refused food from Friday aftermoon untill Monday evening, and

> wouldn't

> sleep for almost 36 hrs, with only very SHORT (30min, max) naps every

> 6-8

> hrs or so, during this time. I can't tell you if Carn-Aware had

> anything to do

> with this at all. My feeling is that the flu caused it, as now that

> he's feeling

> better, he has gone back to his regular sleeping pattern.

>

> I think you're doing the right thing starting small & increasing

> slowly, I

> think you keep better control that way. As I said, my son is doing

> great

> now!

>

>

>

>

>

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> Just thought I would post a couple of notable happenings with Carnosine - I

introduced it about a month ago - I have two Autistics

> 9yrs and 5 yrs. 9yrs is very verbal and doing well anyway so its a bit hard

to judge but I can say he has settled down nicely seems calmer sleeping really

well etc. not that he was too bad before. But my 5 yr old non verbal - who

would pop out the very occasional no is actually repeating sounds nearly

everytime I try with him and we have had a few words - not consistent but

something is happening there. Also we have a coloured stacker with 5 red, 4

orange, 3 yellow tow green 1 blue - and I had tried and given up on the colour

matching - but last weekend he gave me his pecs picture for this toy and sat

down and consistently colour matched over and over really enjoying that he could

do this so I stepped in with " on " " on " etc everytime he put one on top and we

got a few " ons " out of him as well as the perfect matching.

>

> Also he is just so much more there in fact I am just not used to him bossing

me around - want want want directing me etc. and lots of cuddles and generally

in my face. Oh stamping his feet when I say no!

>

> Also we have a spa pool and I hid his pecs picture because this you just can't

do all the time - so he carried inside his little inflatable arm band and a

picture of the toilet! so yes he got a swim. He also did this for going

outside the other day he gave me his picture of his rideon car which is outside

and so I opened the door and he ran out - he just new I would open the door. So

you see something is happening and its really big!.

>

> My boys have terrible stomachs and cannot tolerate allot of supplements but

this does not hurt there stomachs at all.

>

> Regards

>

> Terri NZ

>

>

>

>

>

>

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Carnosine

Just thought I would post a couple of notable happenings with Carnosine - I

introduced it about a month ago - I have two Autistics

9yrs and 5 yrs. 9yrs is very verbal and doing well anyway so its a bit hard to

judge but I can say he has settled down nicely seems calmer sleeping really well

etc. not that he was too bad before. But my 5 yr old non verbal - who would pop

out the very occasional no is actually repeating sounds nearly everytime I try

with him and we have had a few words - not consistent but something is happening

there. Also we have a coloured stacker with 5 red, 4 orange, 3 yellow tow green

1 blue - and I had tried and given up on the colour matching - but last weekend

he gave me his pecs picture for this toy and sat down and consistently colour

matched over and over really enjoying that he could do this so I stepped in with

" on " " on " etc everytime he put one on top and we got a few " ons " out of him as

well as the perfect matching.

Also he is just so much more there in fact I am just not used to him bossing me

around - want want want directing me etc. and lots of cuddles and generally in

my face. Oh stamping his feet when I say no!

Also we have a spa pool and I hid his pecs picture because this you just can't

do all the time - so he carried inside his little inflatable arm band and a

picture of the toilet! so yes he got a swim. He also did this for going

outside the other day he gave me his picture of his rideon car which is outside

and so I opened the door and he ran out - he just new I would open the door. So

you see something is happening and its really big!.

My boys have terrible stomachs and cannot tolerate allot of supplements but this

does not hurt there stomachs at all.

Regards

Terri NZ

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Terri, that sounds awesome, glad to hear of your boys success!

Cheers

Carnosine

> Just thought I would post a couple of notable happenings with Carnosine -

I introduced it about a month ago - I have two Autistics

> 9yrs and 5 yrs. 9yrs is very verbal and doing well anyway so its a bit

hard to judge but I can say he has settled down nicely seems calmer sleeping

really well etc. not that he was too bad before. But my 5 yr old non

verbal - who would pop out the very occasional no is actually repeating

sounds nearly everytime I try with him and we have had a few words - not

consistent but something is happening there. Also we have a coloured

stacker with 5 red, 4 orange, 3 yellow tow green 1 blue - and I had tried

and given up on the colour matching - but last weekend he gave me his pecs

picture for this toy and sat down and consistently colour matched over and

over really enjoying that he could do this so I stepped in with " on " " on "

etc everytime he put one on top and we got a few " ons " out of him as well as

the perfect matching.

>

> Also he is just so much more there in fact I am just not used to him

bossing me around - want want want directing me etc. and lots of cuddles and

generally in my face. Oh stamping his feet when I say no!

>

> Also we have a spa pool and I hid his pecs picture because this you just

can't do all the time - so he carried inside his little inflatable arm band

and a picture of the toilet! so yes he got a swim. He also did this for

going outside the other day he gave me his picture of his rideon car which

is outside and so I opened the door and he ran out - he just new I would

open the door. So you see something is happening and its really big!.

>

> My boys have terrible stomachs and cannot tolerate allot of supplements

but this does not hurt there stomachs at all.

>

> Regards

>

> Terri NZ

>

>

>

>

>

>

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Hi Grandma Peg - there are a number of families in the Auckland area doing

lots of different things - our child has done really well with enzymes and

is being detoxed for heavy metals etc - if they want to contact us or other

families we would be more than happy to involve this family

Cheers H

Re: Carnosine

>

> > Just thought I would post a couple of notable happenings with

Carnosine - I introduced it about a month ago - I have two Autistics

> > 9yrs and 5 yrs. 9yrs is very verbal and doing well anyway so its a bit

hard to judge but I can say he has settled down nicely seems calmer sleeping

really well etc. not that he was too bad before. But my 5 yr old non

verbal - who would pop out the very occasional no is actually repeating

sounds nearly everytime I try with him and we have had a few words - not

consistent but something is happening there. Also we have a coloured

stacker with 5 red, 4 orange, 3 yellow tow green 1 blue - and I had tried

and given up on the colour matching - but last weekend he gave me his pecs

picture for this toy and sat down and consistently colour matched over and

over really enjoying that he could do this so I stepped in with " on " " on "

etc everytime he put one on top and we got a few " ons " out of him as well as

the perfect matching.

> >

> > Also he is just so much more there in fact I am just not used to him

bossing me around - want want want directing me etc. and lots of cuddles and

generally in my face. Oh stamping his feet when I say no!

> >

> > Also we have a spa pool and I hid his pecs picture because this you just

can't do all the time - so he carried inside his little inflatable arm band

and a picture of the toilet! so yes he got a swim. He also did this for

going outside the other day he gave me his picture of his rideon car which

is outside and so I opened the door and he ran out - he just new I would

open the door. So you see something is happening and its really big!.

> >

> > My boys have terrible stomachs and cannot tolerate allot of supplements

but this does not hurt there stomachs at all.

> >

> > Regards

> >

> > Terri NZ

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

removed],,,,,,,,,,,,,,,,,,,,,, REPLY...about several things...we're just

starting Carnosine with the grandosn, age 7 yrs. old, with his other

supplements. He has begun this year to respond to the speech teacher using

the PECS, and is showing a bit more alertness now, so, hope the carnosine

enhances this. Next, about NZ and other grandkids...we have 2 in NZ. were

living with Mum and Dad but they're splitting, still in NZ thoough. They

visited here, in the USA, when their youngest son was 14 months old. He was

a bit tempremental, said no words but gibberish, would hardly eat anything

and had been difficult food wise since he got off the prepared baby foods.

The nursery teacher had coaxed him into eating bananas with yougurt and

since McD's had come into NZ a couple of years before, he would sometims eat

the chicken nuggets, I think he always ate fries. His Mum is vegatarian but

he'd hardly touch a veg or fruit so when he ate bananas, they thought it

good, Here, he had a go at white grapes as well. I don't know what he ate

the whole 2 weeks they were here...probably some kind of cracker and milk -

sometimes. He was still popped onto the breast at bedtimes when he was hyper

and didn't want to go to sleep, not denigarting that, just as it refers to

his diet choices. Later, he lived on corn flakes, milk, bread crusts and

ketchup. McD's fries. occasionally chicken nuggets, and that form of

vegamite...don't recall the name of it in NZ at the moment. I think he began

to eat cheeses and peanut butter, anything dairy. He suffers headaches and

stomach cramps pain and is very thin. He's very bright, intellectually, but

he has a fogginess that you can see him struggling to overcome when he

studies. He's also, still hyper. I have seen one TV article from a Mum in NZ

talking about her hyper active boy, what he eats, dismissing the possiblity

of autism affectaion of any kind because he gained weight and was active. I

gather there's not much newsy going on about autism and-or special ed. in NZ

yet? My daughter in law teaches school, has a PhD in social sciences, her

Mum is a retired nurse, very alert on medical things - yet - in her early

60's, yet both refuse to even think there might be something wrong going on

with this child. Sort of like the Mum on TV, he's still growing, takes a

vitamin pill now and then, etc. Once, I told the GrandMum on the phone in a

holiday call, that I thought he still needed to be assessed, because of his

diet preferences, etc., and that he has headaches... and she said she didn't

think he did have headaches and that this whole diet 'thing' has been

overdone...she said, don't you agree? (about diets, and I absentmindedly

said oh yes, but was actually thinking in comparison to weigth loss diets.

Gee, she's a nurse and surely they have patients on heart or diabetes

diets...). Anyway, I was wondering if progress towards public knowledge of

these related disorders is being done now or is it as bad as it is here,

with denials, or just outright ignoring the whole idea..? Would you know of

any way I could convince the Mum and Grandmum to get an assessment of this

child even at this age? (he's now 11 years old), from NZ sources/resources?

I've visisted the NZ autism web site but this will do no good to send as

they wont accept such stuff on the home computer, Mum has one but it's off

at the time on account of the changing family situation. Don't think she'd

read article anyway. Dad, my son, didn't. He thought they were too dry and

had too much medical talk in them. So, looks as if postal service mail is

the only way now. So it seems they're all in denial, to me. They live around

Auckland. Wonder if there's a support group or Dr. around there familiar

with this ASD? Would like to get through to reach this family somehow.

Grandma Peg

>

>

>

>

>

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  • 1 year later...

From what my son's doctor told me about it...

she said that you will see gains at first since it

has an effect on the folate trap (?), but then you

see problems because it makes the person load

copper. She told me to stop once I started seeing

problems. Maybe stop for a while and then try again

at a later date.

[ ] carnosine

> My daughter seemed so much better. We started carnosine and saw

> initial good things but things have deteriorated espeacially eye

> contact. Is there a relationship between carnosine and bacteria? Is

> her gut messed up? Did the carnosine upset a intestinal balance or

> an animo acid/mineral balance? I want to back her voice tone and eye

> contact..

>

>

>

>

> =======================================================

>

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> From what my son's doctor told me about it...

> she said that you will see gains at first since it

> has an effect on the folate trap (?), but then you

> see problems because it makes the person load

> copper.

I had the increased copper problem with my kids and carnosine. I

used it with zinc and that solved the problem.

Dana

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http://store./iherb/carnosine.html

I already gave zinc and vitamin e so when I decided to give

carnosine a try I bought it seperatly. Yes the Carn-aware is very

expensive. If you look hard enough at the web page you can find

that the ingredients are 200mg Carnosine, plus small primer doses of

zinc and vitamin e. : ) Maddie

> Carnosine is very expensive-had anyone found it a good form for a

> reasonable price..We started with Chez's product but its to much..

>

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> Has anyone used carnosine with success? I'm currently chelating my 4

> year old but i thought if i add carnosine to help with receptive

> language and just better auditory processing or does it happen in time

> as mercury leaves the body?

For my kids, nothing really happened with chelation except they

started tolerating foods and supplements. When I added those things,

THEN the improvements started.

I used carnosine for several months. It did help receptive language,

behaviors, and a small portion of my #2 son's visual stims.

It did tend to increase copper, so I had to give it with a little zinc.

Dana

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