Re: More emotional with Vitamin E?

[Guest guest]

I have noticed that Gavin is crying more, but more as a way to communicate.

Before, he would just let his brothers take whatever they wanted from him

and then go about his playing. Now he gets upset, and cries about it and

they end up giving it back because it does " bother " him where it didn't seem

to before.

Mandy Knapp

Creative Memories Unit Leader

(847) 245-4133

(224) 577-8304

www.mycmsite.com/mandyknapp

Your Life | Your Story | Your Way

[ ] More emotional with Vitamin E?

> Did anyone else notice their child was more emotional (crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

>

>

>

>

[Guest guest]

YES! My son never cried when I left him at preschool all last year. Now he

cries when I leave (he's been on Vit E for about 2.5 weeks) He also is more

emotional at home.

Curious to hear other responses. Is this a good thing or a bad thing?

e

mommtlc <oldworldtile@...> wrote:

Did anyone else notice their child was more emotional (crying easily)

when taking Vitamin E?

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

[Guest guest]

Hi

My son was not emotional, but he was very hyper, the first three days. I

almost stopped because I did not know if it was going to be ongoing. From the

fourth day, he was back to his normal self. I was a little worried.

As for seeing any sign on sensory improvements so far? No. But, boy oh boy,

he his talking like a chatter box. And repeating everything he's sister says.

the other nite, himself and his sister had a sleepover in our bedroom. And we

all said goodnite to each other, My husband and I heard him say good-night so

clearly, we thought it was his sister, and for a moment, I thought, that was his

voice, and we all looked at each other bewildered. THAT WAS NEHEMIAH!!!. It

was so clear like the day. So his words are coming out so clearly than it was

two weeks ago. It only takes one cue for him to repeat. And he is singing with

rythm. Wow.. He is!

Just thought I'ld share.

Jola

We are still expectant to see more changes.

mommtlc <oldworldtile@...> wrote:

Did anyone else notice their child was more emotional (crying easily)

when taking Vitamin E?

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

my son is also crying more....but not as a result of Vitamin E...he started

about 6-8 months ago as a way of getting his way. He somehow discovered

that through crying, he received sympathy, therefore, Dad and Grandma gave

him what he wanted....Before that, he used to throw things or would seem

indifferent....I just started giving him Vitamin E two weeks ago.

" Mandy Knapp "

<mknapp2000@...>

< >

Sent by: cc:

@yaho Subject: Re:

[ ] More emotional with Vitamin E?

ogroups.com

09/19/2006 12:19 PM

Please respond to

I have noticed that Gavin is crying more, but more as a way to communicate.

Before, he would just let his brothers take whatever they wanted from him

and then go about his playing. Now he gets upset, and cries about it and

they end up giving it back because it does " bother " him where it didn't

seem

to before.

Mandy Knapp

Creative Memories Unit Leader

(847) 245-4133

(224) 577-8304

www.mycmsite.com/mandyknapp

Your Life | Your Story | Your Way

[ ] More emotional with Vitamin E?

> Did anyone else notice their child was more emotional (crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My son has been on Vitamin E for 2 weeks. He has had 2 episodes that

he was pointedly emotional but I see them as attempts to communicate.

Since he also has sensory issues it's hard to determine whether he is

being emotional from the Vit E (400IU per day) or if he's being a

typical 3 yo (we never had terrible two's but rather terrible three's

in my family) or if it's a sensiry integration issue.

My son has also been attending OT twice a week for 30 minutes each

session for a month - maybe it's that? LOL!

That being said he doesn't seem to be being harmed by it. Again it

seems like he's trying extra hard to communicate and can't so he melts

down as a way of dealing with it.

>

> Did anyone else notice their child was more emotional (crying

easily) when taking Vitamin E?

[Guest guest]

> Did anyone else notice their child was more emotional

(crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls.

Great rates starting at 1¢/min.

>

>

[Guest guest]

> Did anyone else notice their child was more emotional

(crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>

[Guest guest]

I have noticed that Gavin is crying more, but more as a way to communicate.

Before, he would just let his brothers take whatever they wanted from him

and then go about his playing. Now he gets upset, and cries about it and

they end up giving it back because it does " bother " him where it didn't seem

to before.

Mandy Knapp

Creative Memories Unit Leader

(847) 245-4133

(224) 577-8304

www.mycmsite.com/mandyknapp

Your Life | Your Story | Your Way

[ ] More emotional with Vitamin E?

> Did anyone else notice their child was more emotional (crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

>

>

>

>

[Guest guest]

YES! My son never cried when I left him at preschool all last year. Now he

cries when I leave (he's been on Vit E for about 2.5 weeks) He also is more

emotional at home.

Curious to hear other responses. Is this a good thing or a bad thing?

e

mommtlc <oldworldtile@...> wrote:

Did anyone else notice their child was more emotional (crying easily)

when taking Vitamin E?

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

[Guest guest]

Us too. I couldn't decide if I was losing my mind (and patience), or if my son

really was

whining more. He's only been on the vit e for a week, but I think I am going to

stop and

see what happens.

-- In , KRISTINE OBRIEN <kpo_105@...> wrote:

>

> YES! My son never cried when I left him at preschool all last year. Now he

cries when I

leave (he's been on Vit E for about 2.5 weeks) He also is more emotional at

home.

>

> Curious to hear other responses. Is this a good thing or a bad thing?

>

> e

>

> mommtlc <oldworldtile@...> wrote:

> Did anyone else notice their child was more emotional (crying

easily)

> when taking Vitamin E?

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

>

>

[Guest guest]

Hi

My son was not emotional, but he was very hyper, the first three days. I

almost stopped because I did not know if it was going to be ongoing. From the

fourth day, he was back to his normal self. I was a little worried.

As for seeing any sign on sensory improvements so far? No. But, boy oh boy,

he his talking like a chatter box. And repeating everything he's sister says.

the other nite, himself and his sister had a sleepover in our bedroom. And we

all said goodnite to each other, My husband and I heard him say good-night so

clearly, we thought it was his sister, and for a moment, I thought, that was his

voice, and we all looked at each other bewildered. THAT WAS NEHEMIAH!!!. It

was so clear like the day. So his words are coming out so clearly than it was

two weeks ago. It only takes one cue for him to repeat. And he is singing with

rythm. Wow.. He is!

Just thought I'ld share.

Jola

We are still expectant to see more changes.

mommtlc <oldworldtile@...> wrote:

Did anyone else notice their child was more emotional (crying easily)

when taking Vitamin E?

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

my son is also crying more....but not as a result of Vitamin E...he started

about 6-8 months ago as a way of getting his way. He somehow discovered

that through crying, he received sympathy, therefore, Dad and Grandma gave

him what he wanted....Before that, he used to throw things or would seem

indifferent....I just started giving him Vitamin E two weeks ago.

" Mandy Knapp "

<mknapp2000@...>

< >

Sent by: cc:

@yaho Subject: Re:

[ ] More emotional with Vitamin E?

ogroups.com

09/19/2006 12:19 PM

Please respond to

I have noticed that Gavin is crying more, but more as a way to communicate.

Before, he would just let his brothers take whatever they wanted from him

and then go about his playing. Now he gets upset, and cries about it and

they end up giving it back because it does " bother " him where it didn't

seem

to before.

Mandy Knapp

Creative Memories Unit Leader

(847) 245-4133

(224) 577-8304

www.mycmsite.com/mandyknapp

Your Life | Your Story | Your Way

[ ] More emotional with Vitamin E?

> Did anyone else notice their child was more emotional (crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My son has been on Vitamin E for 2 weeks. He has had 2 episodes that

he was pointedly emotional but I see them as attempts to communicate.

Since he also has sensory issues it's hard to determine whether he is

being emotional from the Vit E (400IU per day) or if he's being a

typical 3 yo (we never had terrible two's but rather terrible three's

in my family) or if it's a sensiry integration issue.

My son has also been attending OT twice a week for 30 minutes each

session for a month - maybe it's that? LOL!

That being said he doesn't seem to be being harmed by it. Again it

seems like he's trying extra hard to communicate and can't so he melts

down as a way of dealing with it.

>

> Did anyone else notice their child was more emotional (crying

easily) when taking Vitamin E?

[Guest guest]

> Did anyone else notice their child was more emotional

(crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls.

Great rates starting at 1¢/min.

>

>

[Guest guest]

> Did anyone else notice their child was more emotional

(crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>

[Guest guest]

Us too. I couldn't decide if I was losing my mind (and patience), or if my son

really was

whining more. He's only been on the vit e for a week, but I think I am going to

stop and

see what happens.

-- In , KRISTINE OBRIEN <kpo_105@...> wrote:

>

> YES! My son never cried when I left him at preschool all last year. Now he

cries when I

leave (he's been on Vit E for about 2.5 weeks) He also is more emotional at

home.

>

> Curious to hear other responses. Is this a good thing or a bad thing?

>

> e

>

> mommtlc <oldworldtile@...> wrote:

> Did anyone else notice their child was more emotional (crying

easily)

> when taking Vitamin E?

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

>

>

[Guest guest]

Did you see any benefits with the vit E, or just changes in temperment?

Also are people giving vit E alone or together with omega 3?

Just trying to piece this all together...a vit E deficiency will

impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

without sufficient vit E)...which is probably why omega supplements

alone have helped many apraxic kids. It will take some time to reverse

the omega deficiency with vit E alone. Things that might improve with

vit E alone are tone and sensory issues, but I suspect speech and

coordination will need both omega and vit E for maximum benefit. So

for the best results, I think these 2 will need to be given together.

Ultimately it makes sense that these children will need much less

omega 3 supplements over time, once supply is replenished and vit E is

doing its thing. All theoretical, yes. But makes sense

mechanistically. Although changes were drastic and rapid in my son

once vit E was added, he had been on and responding well to omega 3

supplements for nearly a year. These changes will take time. If

people start to see some good improvement in speech or coordination -

but a little crankiness - it may be worth your while to ride it out.

Again, it all depends on just how bad the crankiness is. A few

tantrums in exchange for improved communication and coordination may

give you less frustration tantrums down the road. But anyone who

tries this should definitely post their results...both positive,

negative or nothing. It is likely that children with other issues like

seizures may not respond in the same way as children with pure

apraxia...although it may be worth at least trying since its a benign

intervention. So far I have collected emails from at least 12 families

with good to great responses to vit E supplements. At some point, the

responders should put together a description of their child so we can

identify those more likely to respond. But it seems that kids with

apraxia alone, as well as kids with a PDD diagnosis have responded.

This is really very exciting.

-

> Hi I have posted a few times, I put my son on the 400 ius. He,

too, became

> more emotional and a little more defiant. He was on it for about

2.5 weeks

> and I took him off. I plan on putting him back on around Sunday

and try it

> again to see if I get the same results. I'll keep you posted.

Phyllis -

> Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

>

>

>

[Guest guest]

Did you see any benefits with the vit E, or just changes in temperment?

Also are people giving vit E alone or together with omega 3?

Just trying to piece this all together...a vit E deficiency will

impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

without sufficient vit E)...which is probably why omega supplements

alone have helped many apraxic kids. It will take some time to reverse

the omega deficiency with vit E alone. Things that might improve with

vit E alone are tone and sensory issues, but I suspect speech and

coordination will need both omega and vit E for maximum benefit. So

for the best results, I think these 2 will need to be given together.

Ultimately it makes sense that these children will need much less

omega 3 supplements over time, once supply is replenished and vit E is

doing its thing. All theoretical, yes. But makes sense

mechanistically. Although changes were drastic and rapid in my son

once vit E was added, he had been on and responding well to omega 3

supplements for nearly a year. These changes will take time. If

people start to see some good improvement in speech or coordination -

but a little crankiness - it may be worth your while to ride it out.

Again, it all depends on just how bad the crankiness is. A few

tantrums in exchange for improved communication and coordination may

give you less frustration tantrums down the road. But anyone who

tries this should definitely post their results...both positive,

negative or nothing. It is likely that children with other issues like

seizures may not respond in the same way as children with pure

apraxia...although it may be worth at least trying since its a benign

intervention. So far I have collected emails from at least 12 families

with good to great responses to vit E supplements. At some point, the

responders should put together a description of their child so we can

identify those more likely to respond. But it seems that kids with

apraxia alone, as well as kids with a PDD diagnosis have responded.

This is really very exciting.

-

> Hi I have posted a few times, I put my son on the 400 ius. He,

too, became

> more emotional and a little more defiant. He was on it for about

2.5 weeks

> and I took him off. I plan on putting him back on around Sunday

and try it

> again to see if I get the same results. I'll keep you posted.

Phyllis -

> Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

>

>

>

[Guest guest]

Thank you for this post! I have KP too, mostly on my arms and

pretty mild. So far, my son looks like he is spared, but this all

reminds me. When I was reading the Late Talker book, one of the

symptoms of EFA deficiency was (can't remember the exact wording)

bumps on arms (and maybe thighs)--it sounded like KP. KP often gets

worse during pregnancy, supposedly because of hormones, but I

started thinking, what if it got worse during pregnancy because a

pregnant woman's EFAs get depleted, going to the baby? I sort of

filed this away, obviously KP isn't my biggest concern right now,

but I can't help but wonder, what if KP was more common in people

who need additional EFAs? What if my need for extra EFAs was passed

down to my son or what if he didn't get as many as he needed while

in utero or while breast feeding because of this? Sorry, I know I'm

babbling but I'm just wondering if there is a connection here. All

that aside, have you tried the supplements yourself and have they

worked for your KP? Do you find it's the Vit E that is working for

your son or are you giving him fish oils too?

Thanks,

Kristi

> >

> > Did you see any benefits with the vit E, or just changes in

> > temperment?

> > Also are people giving vit E alone or together with omega 3?

> >

> > Just trying to piece this all together...a vit E deficiency will

> > impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> > without sufficient vit E)...which is probably why omega

supplements

> > alone have helped many apraxic kids. It will take some time to

reverse

> > the omega deficiency with vit E alone. Things that might

improve with

> > vit E alone are tone and sensory issues, but I suspect speech

and

> > coordination will need both omega and vit E for maximum

benefit. So

> > for the best results, I think these 2 will need to be given

together.

> > Ultimately it makes sense that these children will need much

less

> > omega 3 supplements over time, once supply is replenished and

vit E is

> > doing its thing. All theoretical, yes. But makes sense

> > mechanistically. Although changes were drastic and rapid in my

son

> > once vit E was added, he had been on and responding well to

omega 3

> > supplements for nearly a year. These changes will take time. If

> > people start to see some good improvement in speech or

coordination -

> > but a little crankiness - it may be worth your while to ride it

out.

> > Again, it all depends on just how bad the crankiness is. A few

> > tantrums in exchange for improved communication and

coordination may

> > give you less frustration tantrums down the road. But anyone who

> > tries this should definitely post their results...both positive,

> > negative or nothing. It is likely that children with other

issues like

> > seizures may not respond in the same way as children with pure

> > apraxia...although it may be worth at least trying since its a

benign

> > intervention. So far I have collected emails from at least 12

families

> > with good to great responses to vit E supplements. At some

point, the

> > responders should put together a description of their child so

we can

> > identify those more likely to respond. But it seems that kids

with

> > apraxia alone, as well as kids with a PDD diagnosis have

responded.

> > This is really very exciting.

> >

> > -

> >

> > > Hi I have posted a few times, I put my son on the 400 ius. He,

> > too, became

> > > more emotional and a little more defiant. He was on it for

about

> > 2.5 weeks

> > > and I took him off. I plan on putting him back on around

Sunday

> > and try it

> > > again to see if I get the same results. I'll keep you posted.

> > Phyllis -

> > > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> > >

> > >

> > >

[Guest guest]

I have KP too! I didn't know what it was until today when I asked the

pediatrician what the bumps on my daughters arm and cheek were (she

just turned 2 and already has it). Oddly though I only noticed the

bumps recently, and we started the fish oil a month and a half ago.

We're both taking 400 IU of E a day now, and the fish oil, and we both

have KP. Your theory about KP being caused from EFA deficiency makes

sense to me, but unless we need a ton more than we're getting it

doesn't seem true for us.

Crystal

> > >

> > > Did you see any benefits with the vit E, or just changes in

> > > temperment?

> > > Also are people giving vit E alone or together with omega 3?

> > >

> > > Just trying to piece this all together...a vit E deficiency will

> > > impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> > > without sufficient vit E)...which is probably why omega

> supplements

> > > alone have helped many apraxic kids. It will take some time to

> reverse

> > > the omega deficiency with vit E alone. Things that might

> improve with

> > > vit E alone are tone and sensory issues, but I suspect speech

> and

> > > coordination will need both omega and vit E for maximum

> benefit. So

> > > for the best results, I think these 2 will need to be given

> together.

> > > Ultimately it makes sense that these children will need much

> less

> > > omega 3 supplements over time, once supply is replenished and

> vit E is

> > > doing its thing. All theoretical, yes. But makes sense

> > > mechanistically. Although changes were drastic and rapid in my

> son

> > > once vit E was added, he had been on and responding well to

> omega 3

> > > supplements for nearly a year. These changes will take time. If

> > > people start to see some good improvement in speech or

> coordination -

> > > but a little crankiness - it may be worth your while to ride it

> out.

> > > Again, it all depends on just how bad the crankiness is. A few

> > > tantrums in exchange for improved communication and

> coordination may

> > > give you less frustration tantrums down the road. But anyone who

> > > tries this should definitely post their results...both positive,

> > > negative or nothing. It is likely that children with other

> issues like

> > > seizures may not respond in the same way as children with pure

> > > apraxia...although it may be worth at least trying since its a

> benign

> > > intervention. So far I have collected emails from at least 12

> families

> > > with good to great responses to vit E supplements. At some

> point, the

> > > responders should put together a description of their child so

> we can

> > > identify those more likely to respond. But it seems that kids

> with

> > > apraxia alone, as well as kids with a PDD diagnosis have

> responded.

> > > This is really very exciting.

> > >

> > > -

> > >

> > > > Hi I have posted a few times, I put my son on the 400 ius. He,

> > > too, became

> > > > more emotional and a little more defiant. He was on it for

> about

> > > 2.5 weeks

> > > > and I took him off. I plan on putting him back on around

> Sunday

> > > and try it

> > > > again to see if I get the same results. I'll keep you posted.

> > > Phyllis -

> > > > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> > > >

> > > >

> > > >

[Guest guest]

About 7-10 days after starting on his vitamin e supplement, my son

became SO hyper, it was unreal! For about four days, he was up until

11 pm (he is 25 months) and did not nap. One night my husband and I

just burst out laughing when we were trying to get him to sleep b/c

he just started kicking his legs up in the air launching his whole

body of the bed.

I took it as a good sign...b/c this is what happened to a lesser

extreme when we started on the fish oil supplements and we had good

results shortly after. The good news is that it only lasted 4 days

and then he calmed back down. The great news is that the vitamin e

has really helped him, as I have mentioned already in another post.

Good luck!

Robin

>

>

> Did you see any benefits with the vit E, or just changes in

temperment?

> Also are people giving vit E alone or together with omega 3?

>

> Just trying to piece this all together...a vit E deficiency will

> impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> without sufficient vit E)...which is probably why omega supplements

> alone have helped many apraxic kids. It will take some time to

reverse

> the omega deficiency with vit E alone. Things that might improve

with

> vit E alone are tone and sensory issues, but I suspect speech and

> coordination will need both omega and vit E for maximum benefit.

So

> for the best results, I think these 2 will need to be given

together.

> Ultimately it makes sense that these children will need much less

> omega 3 supplements over time, once supply is replenished and vit E

is

> doing its thing. All theoretical, yes. But makes sense

> mechanistically. Although changes were drastic and rapid in my son

> once vit E was added, he had been on and responding well to omega 3

> supplements for nearly a year. These changes will take time. If

> people start to see some good improvement in speech or

coordination -

> but a little crankiness - it may be worth your while to ride it

out.

> Again, it all depends on just how bad the crankiness is. A few

> tantrums in exchange for improved communication and coordination

may

> give you less frustration tantrums down the road. But anyone who

> tries this should definitely post their results...both positive,

> negative or nothing. It is likely that children with other issues

like

> seizures may not respond in the same way as children with pure

> apraxia...although it may be worth at least trying since its a

benign

> intervention. So far I have collected emails from at least 12

families

> with good to great responses to vit E supplements. At some point,

the

> responders should put together a description of their child so we

can

> identify those more likely to respond. But it seems that kids with

> apraxia alone, as well as kids with a PDD diagnosis have responded.

> This is really very exciting.

>

> -

>

> > Hi I have posted a few times, I put my son on the 400 ius. He,

> too, became

> > more emotional and a little more defiant. He was on it for about

> 2.5 weeks

> > and I took him off. I plan on putting him back on around Sunday

> and try it

> > again to see if I get the same results. I'll keep you posted.

> Phyllis -

> > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> >

> >

> >

[Guest guest]

Thank you for this post! I have KP too, mostly on my arms and

pretty mild. So far, my son looks like he is spared, but this all

reminds me. When I was reading the Late Talker book, one of the

symptoms of EFA deficiency was (can't remember the exact wording)

bumps on arms (and maybe thighs)--it sounded like KP. KP often gets

worse during pregnancy, supposedly because of hormones, but I

started thinking, what if it got worse during pregnancy because a

pregnant woman's EFAs get depleted, going to the baby? I sort of

filed this away, obviously KP isn't my biggest concern right now,

but I can't help but wonder, what if KP was more common in people

who need additional EFAs? What if my need for extra EFAs was passed

down to my son or what if he didn't get as many as he needed while

in utero or while breast feeding because of this? Sorry, I know I'm

babbling but I'm just wondering if there is a connection here. All

that aside, have you tried the supplements yourself and have they

worked for your KP? Do you find it's the Vit E that is working for

your son or are you giving him fish oils too?

Thanks,

Kristi

> >

> > Did you see any benefits with the vit E, or just changes in

> > temperment?

> > Also are people giving vit E alone or together with omega 3?

> >

> > Just trying to piece this all together...a vit E deficiency will

> > impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> > without sufficient vit E)...which is probably why omega

supplements

> > alone have helped many apraxic kids. It will take some time to

reverse

> > the omega deficiency with vit E alone. Things that might

improve with

> > vit E alone are tone and sensory issues, but I suspect speech

and

> > coordination will need both omega and vit E for maximum

benefit. So

> > for the best results, I think these 2 will need to be given

together.

> > Ultimately it makes sense that these children will need much

less

> > omega 3 supplements over time, once supply is replenished and

vit E is

> > doing its thing. All theoretical, yes. But makes sense

> > mechanistically. Although changes were drastic and rapid in my

son

> > once vit E was added, he had been on and responding well to

omega 3

> > supplements for nearly a year. These changes will take time. If

> > people start to see some good improvement in speech or

coordination -

> > but a little crankiness - it may be worth your while to ride it

out.

> > Again, it all depends on just how bad the crankiness is. A few

> > tantrums in exchange for improved communication and

coordination may

> > give you less frustration tantrums down the road. But anyone who

> > tries this should definitely post their results...both positive,

> > negative or nothing. It is likely that children with other

issues like

> > seizures may not respond in the same way as children with pure

> > apraxia...although it may be worth at least trying since its a

benign

> > intervention. So far I have collected emails from at least 12

families

> > with good to great responses to vit E supplements. At some

point, the

> > responders should put together a description of their child so

we can

> > identify those more likely to respond. But it seems that kids

with

> > apraxia alone, as well as kids with a PDD diagnosis have

responded.

> > This is really very exciting.

> >

> > -

> >

> > > Hi I have posted a few times, I put my son on the 400 ius. He,

> > too, became

> > > more emotional and a little more defiant. He was on it for

about

> > 2.5 weeks

> > > and I took him off. I plan on putting him back on around

Sunday

> > and try it

> > > again to see if I get the same results. I'll keep you posted.

> > Phyllis -

> > > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> > >

> > >

> > >

[Guest guest]

I have KP too! I didn't know what it was until today when I asked the

pediatrician what the bumps on my daughters arm and cheek were (she

just turned 2 and already has it). Oddly though I only noticed the

bumps recently, and we started the fish oil a month and a half ago.

We're both taking 400 IU of E a day now, and the fish oil, and we both

have KP. Your theory about KP being caused from EFA deficiency makes

sense to me, but unless we need a ton more than we're getting it

doesn't seem true for us.

Crystal

> > >

> > > Did you see any benefits with the vit E, or just changes in

> > > temperment?

> > > Also are people giving vit E alone or together with omega 3?

> > >

> > > Just trying to piece this all together...a vit E deficiency will

> > > impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> > > without sufficient vit E)...which is probably why omega

> supplements

> > > alone have helped many apraxic kids. It will take some time to

> reverse

> > > the omega deficiency with vit E alone. Things that might

> improve with

> > > vit E alone are tone and sensory issues, but I suspect speech

> and

> > > coordination will need both omega and vit E for maximum

> benefit. So

> > > for the best results, I think these 2 will need to be given

> together.

> > > Ultimately it makes sense that these children will need much

> less

> > > omega 3 supplements over time, once supply is replenished and

> vit E is

> > > doing its thing. All theoretical, yes. But makes sense

> > > mechanistically. Although changes were drastic and rapid in my

> son

> > > once vit E was added, he had been on and responding well to

> omega 3

> > > supplements for nearly a year. These changes will take time. If

> > > people start to see some good improvement in speech or

> coordination -

> > > but a little crankiness - it may be worth your while to ride it

> out.

> > > Again, it all depends on just how bad the crankiness is. A few

> > > tantrums in exchange for improved communication and

> coordination may

> > > give you less frustration tantrums down the road. But anyone who

> > > tries this should definitely post their results...both positive,

> > > negative or nothing. It is likely that children with other

> issues like

> > > seizures may not respond in the same way as children with pure

> > > apraxia...although it may be worth at least trying since its a

> benign

> > > intervention. So far I have collected emails from at least 12

> families

> > > with good to great responses to vit E supplements. At some

> point, the

> > > responders should put together a description of their child so

> we can

> > > identify those more likely to respond. But it seems that kids

> with

> > > apraxia alone, as well as kids with a PDD diagnosis have

> responded.

> > > This is really very exciting.

> > >

> > > -

> > >

> > > > Hi I have posted a few times, I put my son on the 400 ius. He,

> > > too, became

> > > > more emotional and a little more defiant. He was on it for

> about

> > > 2.5 weeks

> > > > and I took him off. I plan on putting him back on around

> Sunday

> > > and try it

> > > > again to see if I get the same results. I'll keep you posted.

> > > Phyllis -

> > > > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> > > >

> > > >

> > > >

[Guest guest]

About 7-10 days after starting on his vitamin e supplement, my son

became SO hyper, it was unreal! For about four days, he was up until

11 pm (he is 25 months) and did not nap. One night my husband and I

just burst out laughing when we were trying to get him to sleep b/c

he just started kicking his legs up in the air launching his whole

body of the bed.

I took it as a good sign...b/c this is what happened to a lesser

extreme when we started on the fish oil supplements and we had good

results shortly after. The good news is that it only lasted 4 days

and then he calmed back down. The great news is that the vitamin e

has really helped him, as I have mentioned already in another post.

Good luck!

Robin

>

>

> Did you see any benefits with the vit E, or just changes in

temperment?

> Also are people giving vit E alone or together with omega 3?

>

> Just trying to piece this all together...a vit E deficiency will

> impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> without sufficient vit E)...which is probably why omega supplements

> alone have helped many apraxic kids. It will take some time to

reverse

> the omega deficiency with vit E alone. Things that might improve

with

> vit E alone are tone and sensory issues, but I suspect speech and

> coordination will need both omega and vit E for maximum benefit.

So

> for the best results, I think these 2 will need to be given

together.

> Ultimately it makes sense that these children will need much less

> omega 3 supplements over time, once supply is replenished and vit E

is

> doing its thing. All theoretical, yes. But makes sense

> mechanistically. Although changes were drastic and rapid in my son

> once vit E was added, he had been on and responding well to omega 3

> supplements for nearly a year. These changes will take time. If

> people start to see some good improvement in speech or

coordination -

> but a little crankiness - it may be worth your while to ride it

out.

> Again, it all depends on just how bad the crankiness is. A few

> tantrums in exchange for improved communication and coordination

may

> give you less frustration tantrums down the road. But anyone who

> tries this should definitely post their results...both positive,

> negative or nothing. It is likely that children with other issues

like

> seizures may not respond in the same way as children with pure

> apraxia...although it may be worth at least trying since its a

benign

> intervention. So far I have collected emails from at least 12

families

> with good to great responses to vit E supplements. At some point,

the

> responders should put together a description of their child so we

can

> identify those more likely to respond. But it seems that kids with

> apraxia alone, as well as kids with a PDD diagnosis have responded.

> This is really very exciting.

>

> -

>

> > Hi I have posted a few times, I put my son on the 400 ius. He,

> too, became

> > more emotional and a little more defiant. He was on it for about

> 2.5 weeks

> > and I took him off. I plan on putting him back on around Sunday

> and try it

> > again to see if I get the same results. I'll keep you posted.

> Phyllis -

> > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> >

> >

> >