Re: Re: More emotional with Vitamin E?

[Guest guest]

Hi I have posted a few times, I put my son on the 400 ius. He, too, became

more emotional and a little more defiant. He was on it for about 2.5 weeks

and I took him off. I plan on putting him back on around Sunday and try it

again to see if I get the same results. I'll keep you posted. Phyllis -

Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

[Guest guest]

Hi I have posted a few times, I put my son on the 400 ius. He, too, became

more emotional and a little more defiant. He was on it for about 2.5 weeks

and I took him off. I plan on putting him back on around Sunday and try it

again to see if I get the same results. I'll keep you posted. Phyllis -

Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

[Guest guest]

My 7yr old seemed also to be very revved up on vit E and perhaps too much.

I also remember trying her on vit B6 for irritablility from her Keppra med. I

felt like she got more irritable and revved up on this too but shrugged it off

at the time and stopped the B6.

Does it make sense to anyone why these vitamins would effect a child in such a

way?

karen

" claudia.morris " <claudia.morris@...> wrote:

> Did anyone else notice their child was more emotional

(crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>

[Guest guest]

My 7yr old seemed also to be very revved up on vit E and perhaps too much.

I also remember trying her on vit B6 for irritablility from her Keppra med. I

felt like she got more irritable and revved up on this too but shrugged it off

at the time and stopped the B6.

Does it make sense to anyone why these vitamins would effect a child in such a

way?

karen

" claudia.morris " <claudia.morris@...> wrote:

> Did anyone else notice their child was more emotional

(crying easily)

> when taking Vitamin E?

>

>

>

>

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>

[Guest guest]

Just an added Vit. E benefit. My husband and I both have Keratosis

Pilaris (sp?). Ours is fairly mild. So our daughter was doomed from

the start. Hers is much worse and covers about 80-90 % of her

extremities. Nothing ( and I mean NOTHING) has helped, most things

only made it worse. Her KP is now better than it has been in over 18

months. BONUS! She speaks, she's more and more coordinated, her

therapists have their mouths hanging open and the nursery school no

longer calls me because she has a " rash " . (!). I love vitamin e... and

for trying it on her son and letting us know about her

experiences as a parent.

Life is good.

Kris

On Sep 20, 2006, at 6:47 PM, claudia.morris wrote:

>

>

> Did you see any benefits with the vit E, or just changes in

> temperment?

> Also are people giving vit E alone or together with omega 3?

>

> Just trying to piece this all together...a vit E deficiency will

> impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> without sufficient vit E)...which is probably why omega supplements

> alone have helped many apraxic kids. It will take some time to reverse

> the omega deficiency with vit E alone. Things that might improve with

> vit E alone are tone and sensory issues, but I suspect speech and

> coordination will need both omega and vit E for maximum benefit. So

> for the best results, I think these 2 will need to be given together.

> Ultimately it makes sense that these children will need much less

> omega 3 supplements over time, once supply is replenished and vit E is

> doing its thing. All theoretical, yes. But makes sense

> mechanistically. Although changes were drastic and rapid in my son

> once vit E was added, he had been on and responding well to omega 3

> supplements for nearly a year. These changes will take time. If

> people start to see some good improvement in speech or coordination -

> but a little crankiness - it may be worth your while to ride it out.

> Again, it all depends on just how bad the crankiness is. A few

> tantrums in exchange for improved communication and coordination may

> give you less frustration tantrums down the road. But anyone who

> tries this should definitely post their results...both positive,

> negative or nothing. It is likely that children with other issues like

> seizures may not respond in the same way as children with pure

> apraxia...although it may be worth at least trying since its a benign

> intervention. So far I have collected emails from at least 12 families

> with good to great responses to vit E supplements. At some point, the

> responders should put together a description of their child so we can

> identify those more likely to respond. But it seems that kids with

> apraxia alone, as well as kids with a PDD diagnosis have responded.

> This is really very exciting.

>

> -

>

> > Hi I have posted a few times, I put my son on the 400 ius. He,

> too, became

> > more emotional and a little more defiant. He was on it for about

> 2.5 weeks

> > and I took him off. I plan on putting him back on around Sunday

> and try it

> > again to see if I get the same results. I'll keep you posted.

> Phyllis -

> > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> >

> >

> >

[Guest guest]

responding to on positive responses - My son does take the 3

ProEFAs/1ProEPA in the a.m. - 2/EFA and 1 Flax and that is when I added the Vit

E.

Positive changes I couldn't see any, but plan on adding it back again this

weekend... I will try to keep a log of changes I notice. He does have some

sensory issues... like squeezing... I appreciate your response - as I know you

are very busy and get many emails directed for you. I definitely agree with

what you are saying. I will post again in a week or so with any notable

changes. With warmest regards to all...Phyllis

[Guest guest]

Just an added Vit. E benefit. My husband and I both have Keratosis

Pilaris (sp?). Ours is fairly mild. So our daughter was doomed from

the start. Hers is much worse and covers about 80-90 % of her

extremities. Nothing ( and I mean NOTHING) has helped, most things

only made it worse. Her KP is now better than it has been in over 18

months. BONUS! She speaks, she's more and more coordinated, her

therapists have their mouths hanging open and the nursery school no

longer calls me because she has a " rash " . (!). I love vitamin e... and

for trying it on her son and letting us know about her

experiences as a parent.

Life is good.

Kris

On Sep 20, 2006, at 6:47 PM, claudia.morris wrote:

>

>

> Did you see any benefits with the vit E, or just changes in

> temperment?

> Also are people giving vit E alone or together with omega 3?

>

> Just trying to piece this all together...a vit E deficiency will

> impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> without sufficient vit E)...which is probably why omega supplements

> alone have helped many apraxic kids. It will take some time to reverse

> the omega deficiency with vit E alone. Things that might improve with

> vit E alone are tone and sensory issues, but I suspect speech and

> coordination will need both omega and vit E for maximum benefit. So

> for the best results, I think these 2 will need to be given together.

> Ultimately it makes sense that these children will need much less

> omega 3 supplements over time, once supply is replenished and vit E is

> doing its thing. All theoretical, yes. But makes sense

> mechanistically. Although changes were drastic and rapid in my son

> once vit E was added, he had been on and responding well to omega 3

> supplements for nearly a year. These changes will take time. If

> people start to see some good improvement in speech or coordination -

> but a little crankiness - it may be worth your while to ride it out.

> Again, it all depends on just how bad the crankiness is. A few

> tantrums in exchange for improved communication and coordination may

> give you less frustration tantrums down the road. But anyone who

> tries this should definitely post their results...both positive,

> negative or nothing. It is likely that children with other issues like

> seizures may not respond in the same way as children with pure

> apraxia...although it may be worth at least trying since its a benign

> intervention. So far I have collected emails from at least 12 families

> with good to great responses to vit E supplements. At some point, the

> responders should put together a description of their child so we can

> identify those more likely to respond. But it seems that kids with

> apraxia alone, as well as kids with a PDD diagnosis have responded.

> This is really very exciting.

>

> -

>

> > Hi I have posted a few times, I put my son on the 400 ius. He,

> too, became

> > more emotional and a little more defiant. He was on it for about

> 2.5 weeks

> > and I took him off. I plan on putting him back on around Sunday

> and try it

> > again to see if I get the same results. I'll keep you posted.

> Phyllis -

> > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> >

> >

> >

[Guest guest]

responding to on positive responses - My son does take the 3

ProEFAs/1ProEPA in the a.m. - 2/EFA and 1 Flax and that is when I added the Vit

E.

Positive changes I couldn't see any, but plan on adding it back again this

weekend... I will try to keep a log of changes I notice. He does have some

sensory issues... like squeezing... I appreciate your response - as I know you

are very busy and get many emails directed for you. I definitely agree with

what you are saying. I will post again in a week or so with any notable

changes. With warmest regards to all...Phyllis

[Guest guest]

It was the discussion of EFA's and the rash that, to me also, sound

like KP that convinced me even more to start my daughter on EFA's. The

KP showed a mild improvement with just EFA's but that's it. With vit.

e the KP has improved by 80% or more. What I don't know if it's the

vitamin e def that was the problem or is it that the vitamin e is now

helping the EFA's be fully utlized/absorbed. Whichever.... her skin is

looking better than ever.

Kris

On Sep 21, 2006, at 8:41 AM, myjunkytrash wrote:

> Thank you for this post! I have KP too, mostly on my arms and

> pretty mild. So far, my son looks like he is spared, but this all

> reminds me. When I was reading the Late Talker book, one of the

> symptoms of EFA deficiency was (can't remember the exact wording)

> bumps on arms (and maybe thighs)--it sounded like KP. KP often gets

> worse during pregnancy, supposedly because of hormones, but I

> started thinking, what if it got worse during pregnancy because a

> pregnant woman's EFAs get depleted, going to the baby? I sort of

> filed this away, obviously KP isn't my biggest concern right now,

> but I can't help but wonder, what if KP was more common in people

> who need additional EFAs? What if my need for extra EFAs was passed

> down to my son or what if he didn't get as many as he needed while

> in utero or while breast feeding because of this? Sorry, I know I'm

> babbling but I'm just wondering if there is a connection here. All

> that aside, have you tried the supplements yourself and have they

> worked for your KP? Do you find it's the Vit E that is working for

> your son or are you giving him fish oils too?

>

> Thanks,

> Kristi

>

>

> > >

> > > Did you see any benefits with the vit E, or just changes in

> > > temperment?

> > > Also are people giving vit E alone or together with omega 3?

> > >

> > > Just trying to piece this all together...a vit E deficiency will

> > > impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> > > without sufficient vit E)...which is probably why omega

> supplements

> > > alone have helped many apraxic kids. It will take some time to

> reverse

> > > the omega deficiency with vit E alone. Things that might

> improve with

> > > vit E alone are tone and sensory issues, but I suspect speech

> and

> > > coordination will need both omega and vit E for maximum

> benefit. So

> > > for the best results, I think these 2 will need to be given

> together.

> > > Ultimately it makes sense that these children will need much

> less

> > > omega 3 supplements over time, once supply is replenished and

> vit E is

> > > doing its thing. All theoretical, yes. But makes sense

> > > mechanistically. Although changes were drastic and rapid in my

> son

> > > once vit E was added, he had been on and responding well to

> omega 3

> > > supplements for nearly a year. These changes will take time. If

> > > people start to see some good improvement in speech or

> coordination -

> > > but a little crankiness - it may be worth your while to ride it

> out.

> > > Again, it all depends on just how bad the crankiness is. A few

> > > tantrums in exchange for improved communication and

> coordination may

> > > give you less frustration tantrums down the road. But anyone who

> > > tries this should definitely post their results...both positive,

> > > negative or nothing. It is likely that children with other

> issues like

> > > seizures may not respond in the same way as children with pure

> > > apraxia...although it may be worth at least trying since its a

> benign

> > > intervention. So far I have collected emails from at least 12

> families

> > > with good to great responses to vit E supplements. At some

> point, the

> > > responders should put together a description of their child so

> we can

> > > identify those more likely to respond. But it seems that kids

> with

> > > apraxia alone, as well as kids with a PDD diagnosis have

> responded.

> > > This is really very exciting.

> > >

> > > -

> > >

> > > > Hi I have posted a few times, I put my son on the 400 ius. He,

> > > too, became

> > > > more emotional and a little more defiant. He was on it for

> about

> > > 2.5 weeks

> > > > and I took him off. I plan on putting him back on around

> Sunday

> > > and try it

> > > > again to see if I get the same results. I'll keep you posted.

> > > Phyllis -

> > > > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> > > >

> > > >

> > > >

[Guest guest]

It was the discussion of EFA's and the rash that, to me also, sound

like KP that convinced me even more to start my daughter on EFA's. The

KP showed a mild improvement with just EFA's but that's it. With vit.

e the KP has improved by 80% or more. What I don't know if it's the

vitamin e def that was the problem or is it that the vitamin e is now

helping the EFA's be fully utlized/absorbed. Whichever.... her skin is

looking better than ever.

Kris

On Sep 21, 2006, at 8:41 AM, myjunkytrash wrote:

> Thank you for this post! I have KP too, mostly on my arms and

> pretty mild. So far, my son looks like he is spared, but this all

> reminds me. When I was reading the Late Talker book, one of the

> symptoms of EFA deficiency was (can't remember the exact wording)

> bumps on arms (and maybe thighs)--it sounded like KP. KP often gets

> worse during pregnancy, supposedly because of hormones, but I

> started thinking, what if it got worse during pregnancy because a

> pregnant woman's EFAs get depleted, going to the baby? I sort of

> filed this away, obviously KP isn't my biggest concern right now,

> but I can't help but wonder, what if KP was more common in people

> who need additional EFAs? What if my need for extra EFAs was passed

> down to my son or what if he didn't get as many as he needed while

> in utero or while breast feeding because of this? Sorry, I know I'm

> babbling but I'm just wondering if there is a connection here. All

> that aside, have you tried the supplements yourself and have they

> worked for your KP? Do you find it's the Vit E that is working for

> your son or are you giving him fish oils too?

>

> Thanks,

> Kristi

>

>

> > >

> > > Did you see any benefits with the vit E, or just changes in

> > > temperment?

> > > Also are people giving vit E alone or together with omega 3?

> > >

> > > Just trying to piece this all together...a vit E deficiency will

> > > impact omega 3 reserve (ie omega 3 will be oxidized or destroyed

> > > without sufficient vit E)...which is probably why omega

> supplements

> > > alone have helped many apraxic kids. It will take some time to

> reverse

> > > the omega deficiency with vit E alone. Things that might

> improve with

> > > vit E alone are tone and sensory issues, but I suspect speech

> and

> > > coordination will need both omega and vit E for maximum

> benefit. So

> > > for the best results, I think these 2 will need to be given

> together.

> > > Ultimately it makes sense that these children will need much

> less

> > > omega 3 supplements over time, once supply is replenished and

> vit E is

> > > doing its thing. All theoretical, yes. But makes sense

> > > mechanistically. Although changes were drastic and rapid in my

> son

> > > once vit E was added, he had been on and responding well to

> omega 3

> > > supplements for nearly a year. These changes will take time. If

> > > people start to see some good improvement in speech or

> coordination -

> > > but a little crankiness - it may be worth your while to ride it

> out.

> > > Again, it all depends on just how bad the crankiness is. A few

> > > tantrums in exchange for improved communication and

> coordination may

> > > give you less frustration tantrums down the road. But anyone who

> > > tries this should definitely post their results...both positive,

> > > negative or nothing. It is likely that children with other

> issues like

> > > seizures may not respond in the same way as children with pure

> > > apraxia...although it may be worth at least trying since its a

> benign

> > > intervention. So far I have collected emails from at least 12

> families

> > > with good to great responses to vit E supplements. At some

> point, the

> > > responders should put together a description of their child so

> we can

> > > identify those more likely to respond. But it seems that kids

> with

> > > apraxia alone, as well as kids with a PDD diagnosis have

> responded.

> > > This is really very exciting.

> > >

> > > -

> > >

> > > > Hi I have posted a few times, I put my son on the 400 ius. He,

> > > too, became

> > > > more emotional and a little more defiant. He was on it for

> about

> > > 2.5 weeks

> > > > and I took him off. I plan on putting him back on around

> Sunday

> > > and try it

> > > > again to see if I get the same results. I'll keep you posted.

> > > Phyllis -

> > > > Nicolas 5.6 years old and dx w/PDD/NOS/mild and apraxia.

> > > >

> > > >

> > > >