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Strickly in the muscles

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I think it's entirely possible for the pain to be muscular yet for lidocaine to block it. If muscles are spasming nerves will be affected even if they are at the surface of your vulva. They become inflamed and hypersensitive to the touch even if the touch isn't where the insult is happening. What treatment protocols have you tried? I know you are looking for The Answer but very few of us have found that answer. I know for me it was probably a MULTITUDE of causes that caused my vulvar pain and it took several different treatments used in conjunction to become pain free. I got into a huge, screaming argument with a nurse once on the phone who was completely stupid. I thought I had an infection and wanted to get in asap. She said, "Doctor says you're in pain because you have vestibulitis." I say, "OK, but

I want to know WHY I have it, and I think it's because I've had repeat infections and need him to see me in the next day or two to see if I have another one." She agrees to talk to him and calls me back, "No, doctor says you are in pain because of vestibulitis, and it comes from having, um, vestibulitis. It won't go away until you agree to surgery." So I ask, "But WHY did I get the pain in the first place, this makes no logical sense. I'm not going to agree to surgery unless he can tell me how I can prevent this in the future-you can only cut so much out of there." She says, "It's because you have vestibulitis, that's why you have pain."

Wow...gee...I am in such good hands I can't wait to go under anesthetic and open up my legs for y'all. I'm glad I never did because I'm pain free without surgery.

I guess my point is you go to three docs, you will likely get three diagnosis, three different ideas about causes and yet you will still have pain unless you have started trying combinations of treatments. In my case, bc pills made me more likely to have hormonal issues that sensitized my tissue. I had lyme which also made me more sensitive. I had repeat infections (due to allergies? resistant yeast? immune system issues? I don't know), causing sensitized nerves and muscle tightness. I had been a ballet dancer, horseback rider, and cheerleader, causing more pelvic floor tightness. If I had JUST done estrace or JUST done antidepressants or JUST done physical therapy I wouldn't have addressed the whole thing.

Good luck,

Lindsey

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Hi Lindsey and everyone, are you still taking antidepressants? and if

yes which one, and has anyone here good experiences with another

antidepressant than Amitriptilyne?

>

> I think it's entirely possible for the pain to be muscular yet for

lidocaine to block it.  If muscles are spasming nerves will be

affected even if they are at the surface of your vulva.  They become

inflamed and hypersensitive to the touch even if the touch isn't where

the insult is happening.  What treatment protocols have you tried?  I

know you are looking for The Answer but very few of us have found that

answer.  I know for me it was probably a MULTITUDE of causes that

caused my vulvar pain and it took several different treatments used in

conjunction to become pain free.  I got into a huge, screaming

argument with a nurse once on the phone who was completely stupid.  I

thought I had an infection and wanted to get in asap.  She said,

" Doctor says you're in pain because you have vestibulitis. "   I say,

" OK, but I want to know WHY I have it, and I think it's because I've

had repeat infections and need him to see me in the next day or two to see

> if I have another one. "   She agrees to talk to him and calls me

back, " No, doctor says you are in pain because of vestibulitis, and it

comes from having, um, vestibulitis.  It won't go away until you agree

to surgery. "   So I ask, " But WHY did I get the pain in the first

place, this makes no logical sense.  I'm not going to agree to surgery

unless he can tell me how I can prevent this in the future-you can

only cut so much out of there. "   She says, " It's because you have

vestibulitis, that's why you have pain. "

> Wow...gee...I am in such good hands I can't wait to go under

anesthetic and open up my legs for y'all.  I'm glad I never did

because I'm pain free without surgery. 

> I guess my point is you go to three docs, you will likely get three

diagnosis, three different ideas about causes and yet you will still

have pain unless you have started trying combinations of treatments. 

In my case, bc pills made me more likely to have hormonal issues that

sensitized my tissue.  I had lyme which also made me more sensitive. 

I had repeat infections (due to allergies?  resistant yeast?  immune

system issues?  I don't know), causing sensitized nerves and muscle

tightness.  I had been a ballet dancer, horseback rider, and

cheerleader, causing more pelvic floor tightness.  If I had JUST done

estrace or JUST done antidepressants or JUST done physical therapy I

wouldn't have addressed the whole thing.

> Good luck,

> Lindsey

>

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I just started taking well burtrien on 1/20/09 and still on lexapro. Being on the new medication has a side effect of little sleep......

Tina M.

Re: "Strickly in the muscles"

Hi Lindsey and everyone, are you still taking antidepressants? and ifyes which one, and has anyone here good experiences with anotherantidepressant than Amitriptilyne?>> I think it's entirely possible for the pain to be muscular yet forlidocaine to block it. If muscles are spasming nerves will beaffected even if they are at the surface of your vulva. They becomeinflamed and hypersensitive to the touch even if the touch isn't wherethe insult is happening. What treatment protocols have you tried? Iknow you are looking for The Answer but very few of us have found thatanswer. I know for me it was probably a MULTITUDE of causes thatcaused my vulvar pain and it took several different treatments used inconjunction to become pain free. I got into a huge, screamingargument with a nurse once on the phone who was completely stupid. Ithought I had an infection and wanted to get in asap. She said,"Doctor says you're in pain because you have vestibulitis." I say,"OK, but I want to know WHY I have it, and I think it's because I'vehad repeat infections and need him to see me in the next day or two to see> if I have another one." She agrees to talk to him and calls meback, "No, doctor says you are in pain because of vestibulitis, and itcomes from having, um, vestibulitis. It won't go away until you agreeto surgery." So I ask, "But WHY did I get the pain in the firstplace, this makes no logical sense. I'm not going to agree to surgeryunless he can tell me how I can prevent this in the future-you canonly cut so much out of there." She says, "It's because you havevestibulitis, that's why you have pain."> Wow...gee...I am in such good hands I can't wait to go underanesthetic and open up my legs for y'all. I'm glad I never didbecause I'm pain free without surgery. > I guess my point is you go to three docs, you will likely get threediagnosis, three different ideas about causes and yet you will stillhave pain unless you have started trying combinations of treatments. In my case, bc pills made me more likely to have hormonal issues thatsensitized my tissue. I had lyme which also made me more sensitive. I had repeat infections (due to allergies? resistant yeast? immunesystem issues? I don't know), causing sensitized nerves and muscletightness. I had been a ballet dancer, horseback rider, andcheerleader, causing more pelvic floor tightness. If I had JUST doneestrace or JUST done antidepressants or JUST done physical therapy Iwouldn't have addressed the whole thing.> Good luck,> Lindsey>

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thanks Lindsey

I finally feel that I am in the right place. I have a doctor that I have confidence in that he will help me find the answers to all this mess.

Today, he did dry needling. Wow, the trigger points in areas that I never even knew existed! I feel like if something doesn't work, he will continue to try to find answers. Ordered an xray of my pelvis, after examining my muscles right above the pubic bone- explained that where it connects can be sometimes off center. Then he wants to check my thyroid again, I mean come on what kinda doc takes this much time to research all this stuff- none I have been to yet!

Hes great- the best doctor I have been to - makes me think Im going to get over this!

C Stay up to date on the latest news - from sports scores to stocks and so much more.

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Stay up to date on the latest news - from sports scores to stocks and so much more.

thanks Lindsey

I finally feel that I am in the right place. I have a doctor that I have confidence in that he will help me find the answers to all this mess.

Today, he did dry needling. Wow, the trigger points in areas that I never even knew existed! I feel like if something doesn't work, he will continue to try to find answers. Ordered an xray of my pelvis, after examining my muscles right above the pubic bone- explained that where it connects can be sometimes off center. Then he wants to check my thyroid again, I mean come on what kinda doc takes this much time to research all this stuff- none I have been to yet!

Hes great- the best doctor I have been to - makes me think Im going to get over this!

C Stay up to date on the latest news - from sports scores to stocks and so much more.

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