Re: Hormones and which Dr. - B.

[Guest guest]

whats wrong with whitmore doing botox?

C From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

[Guest guest]

Goldstein does botox From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

[Guest guest]

Oh, okay, B.-- for some reason I thought you were on the Eastern side of Canada. Hmm, I'm trying to think of any possibilities for you...and if I find someone, I'll let you know. That is ridiculous that you might have to wait a year!!! Who has time to wait like that when you are in PAIN?! *ugh*I have heard mixed reviews about Hope H., too. I even considered going to her myself, but decided not to. I'll let you know if I come across anyone. Take Care,ChelleSubject: Re: My Success Story - How I got well - B.To: VulvarDisorders Received: Friday, January 30, 2009, 8:02 PM

B. - many women have indeed had to use more than one treatment in order to get well. I know you are thinking about seeing Dr. Marvel or Dr. Goldstein. Dr. G. is expensive, but he at least does understand that 'hormones' can be the culprit for the pain (or a part of it). I was thinking I read a response from someone who said Dr. Marvel ignored her complaints about a hormonal connection. I would think about calling them both or seeing if you can email with them, since you are out of the country. I wonder if there could be a specialist closer to the border that would be knowledgeable about the hormonal side of vulvar pain.

Have you tried contacting the NVA for a list of specialists in the New England area? Just some thoughts...Hugs, Chelle

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[Guest guest]

Hi Chelle,

It is *inhuman* to make someone wait close to year for treatment! And

that's just for the *first* visit! I'm only going to TO because

Manitoba Health is *paying* for most of it (including plane fare).

But Canada's healthcare system is really bad for wait times-

*especially* for chronic pain- some specialists take *many years* to

get into.

I know some people on here see Dr. Kellogg-Spadt in Philly. I wonder

if she has any awareness of hormone issues???? I hear she's

wonderful, but that clinic director e Whitmore is not very

tactful (as per ratemds.com). That's why I've been kinda hesitant to

go to her office. I've been looking at the Eastern U.S. for

specialists, because that's where most of them seem to be located.

> From: Chelle

> Subject: Re: My Success Story - How I got well - B.

> To: VulvarDisorders

> Received: Friday, January 30, 2009, 8:02 PM

>

>

>

>

>

>

>

>

> B. - many women have indeed had to use more than one

treatment in order to get well. I know you are thinking about seeing

Dr. Marvel or Dr. Goldstein. Dr. G. is expensive, but he at least

does understand that 'hormones' can be the culprit for the pain (or a

part of it). I was thinking I read a response from someone who said

Dr. Marvel ignored her complaints about a hormonal connection.

>

> I would think about calling them both or seeing if you can email

with them, since you are out of the country. I wonder if there could

be a specialist closer to the border that would be knowledgeable about

the hormonal side of vulvar pain.

> Have you tried contacting the NVA for a list of specialists in the

New England area? Just some thoughts...

>

> Hugs, Chelle

>

>

>

>

>

>

>

>

>

> All new Yahoo! Mail - Get a sneak peak at messages with a

handy reading pane.

>

[Guest guest]

Hmm, you know, I was wondering about as a possibility for you too. Hopefully Hollis will chime in -- she currently sees . I don't think I've heard any of her patients say they don't like her...so that is a good track record. I'm glad you mentioned ratemds.com. That is a good place to find info on potential docs. I've rated several myself. You know, even if the system is going to pay for the treatments... that is a long time to wait! Oh, what do you think of Dr. Vliet's book? Does her info seem to fit any of your symptoms? Hang in there...ChelleHi Chelle,

It is *inhuman* to make someone wait close to year for treatment! Andthat's just for the *first* visit! I'm only going to TO becauseManitoba Health is *paying* for most of it (including plane fare). But Canada's healthcare system is really bad for wait times-*especially* for chronic pain- some specialists take *many years* toget into.I know some people on here see Dr. Kellogg-Spadt in Philly. I wonderif she has any awareness of hormone issues???? I hear she'swonderful, but that clinic director e Whitmore is not verytactful (as per ratemds.com). That's why I've been kinda hesitant togo to her office. I've been looking at the Eastern U.S. forspecialists, because that's where most of them seem to be located.

[Guest guest]

Hi Chelle,

You know, I just realized I was reading the wrong edition of Vliet's

book (the 1995 edition). I just learned she has a more recent one,

which I've not read. The 1995 book was very heavy reading- I didn't

get far into it!

I may reconsider seeing . The only disadvantage to her is she

doesn't do nerve blocks or botox (Whitmore does them...unfortunately).

I don't know if these would help the mild tissue and muscle

dysfunction I have, but I am curious. Still, if Dr Kellogg could

otherwise help me, it might be worth to reconsider seeing her.

B.

> Hi Chelle,

>

> It is *inhuman* to make someone wait close to year for treatment! And

> that's just for the *first* visit! I'm only going to TO because

> Manitoba Health is *paying* for most of it (including plane fare).

> But Canada's healthcare system is really bad for wait times-

> *especially* for chronic pain- some specialists take *many years* to

> get into.

>

> I know some people on here see Dr. Kellogg-Spadt in Philly. I wonder

> if she has any awareness of hormone issues???? I hear she's

> wonderful, but that clinic director e Whitmore is not very

> tactful (as per ratemds.com). That's why I've been kinda hesitant to

> go to her office. I've been looking at the Eastern U.S. for

> specialists, because that's where most of them seem to be located.

>

[Guest guest]

Hi Carolyn,My issue is not with Whitmore's skill level- I'm sure she knows what she's doing. My concern is that I've heard this doctor treats her patients very unkindly (as per ratemds.com). It's not just one or two negative reviews- it's many. I am very sensitive, and my feelings get hurt easily. From everything I've heard, Dr. Whitmore is insensitive in her manner towards patients. Now, maybe some people can handle that, but I can't- I've dealt with enough nasty physicians already, and I can't take anymore of that type of treatment.Subject: Re: Re:

Hormones and which Dr. - B.To: VulvarDisorders Received: Saturday, January 31, 2009, 11:47 PM

whats wrong with whitmore doing botox?

C From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

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[Guest guest]

I've heard that. How much does he charge for it? I fear it might be an above average fee, as he is already so expensive. And botox is not cheap to begin with. But I may consider it, anyway, if it's recommended for me.Subject: Re: Re: Hormones and which Dr. - B.To: VulvarDisorders Received: Sunday, February 1, 2009, 12:05 AM

Goldstein does botox From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

Get the name you've always wanted ! @ymail.com or @rocketmail.com.

[Guest guest]

Tina

Was your botox Ct guided? How did they do it - vaginally?

C

From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

[Guest guest]

Tina

Was it into ur levator muscles

C From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

[Guest guest]

thats really odd, never heard of botox there, its usually injected into the muscles

C From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

[Guest guest]

I go to . I love her. She does know about hormones. Never saw Whitmore.

Sherri

Re: Hormones and which Dr. - B.

Hmm, you know, I was wondering about as a possibility for you too. Hopefully Hollis will chime in -- she currently sees . I don't think I've heard any of her patients say they don't like her...so that is a good track record. I'm glad you mentioned ratemds.com. That is a good place to find info on potential docs. I've rated several myself. You know, even if the system is going to pay for the treatments... that is a long time to wait! Oh, what do you think of Dr. Vliet's book? Does her info seem to fit any of your symptoms? Hang in there...Chelle

Hi Chelle, It is *inhuman* to make someone wait close to year for treatment! Andthat's just for the *first* visit! I'm only going to TO becauseManitoba Health is *paying* for most of it (including plane fare). But Canada's healthcare system is really bad for wait times-*especially* for chronic pain- some specialists take *many years* toget into.I know some people on here see Dr. Kellogg-Spadt in Philly. I wonderif she has any awareness of hormone issues???? I hear she'swonderful, but that clinic director e Whitmore is not verytactful (as per ratemds.com). That's why I've been kinda hesitant togo to her office. I've been looking at the Eastern U.S. forspecialists, because that's where most of them seem to be located.

[Guest guest]

I've tried a botox injection and a steroid injection and neither help. Although my doctor has another patient has had a patient who says that botox really helps her. Now if you do decide this be prepared for pain like you never felt, well that is next to child birth or breaking a bone. It only lasts a few seconds even though you're lubed up and numbed up with lidocaine, it's a hell of an experience, so bring someone with you to squeze their hand off. Good luck!

Tina M.

Re: Re: Hormones and which Dr. - B.To: VulvarDisorders Received: Sunday, February 1, 2009, 12:05 AM

Goldstein does botox

From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

Get the name you've always wanted ! @ymail.com or @rocketmail.com.

[Guest guest]

I had it done with a needle like a regular injection needle in my pain areas on my vulva which is in two different spots. I don't know what Ct guided means. Overall it wasn't fun to say the least and didn't make any bit of difference. No more injections for me. Two different ones are enough..... Hope this helps.

Tina M.

Re: Re: Hormones and which Dr. - B.

Tina

Was your botox Ct guided? How did they do it - vaginally?

C

From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

[Guest guest]

Ouch! I wonder if everyone's experience is that painful.How much did the botox and the steroid injections cost you?

From: Carolyn52192@ aol.com <Carolyn52192@ aol.com>Subject: Re: Re: Hormones and which Dr. - B.To: VulvarDisorders@ yahoogroups. comReceived: Sunday, February 1, 2009, 12:05 AM

Goldstein does botox

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[Guest guest]

It was the pain areas at the base of my vulva near the opening on each side. I'm having a pain day too

Re: Re: Hormones and which Dr. - B.

Tina

Was it into ur levator muscles

C

From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

[Guest guest]

It was covered on my husband's insurance under tricare. He is active duty in the USMC. Me on the other hand a vulvar vestibulitis patient seeking relief......

Tina.

Re: Re: Hormones and which Dr. - B.To: VulvarDisorders@ yahoogroups. comReceived: Sunday, February 1, 2009, 12:05 AM

Goldstein does botox

From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

Get the name you've always wanted ! @ymail.com or @rocketmail. com.

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[Guest guest]

It was injected into my muscles. My husband was there offering his support.

Re: Re: Hormones and which Dr. - B.

thats really odd, never heard of botox there, its usually injected into the muscles

C

From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

[Guest guest]

Tina,

She's talking about the doctor using a CT scan to help guide with the placement of the Botox injections.

Kristy

Subject: Re: Re: Hormones and which Dr. - B.To: VulvarDisorders Date: Sunday, February 1, 2009, 5:21 PM

I had it done with a needle like a regular injection needle in my pain areas on my vulva which is in two different spots. I don't know what Ct guided means. Overall it wasn't fun to say the least and didn't make any bit of difference. No more injections for me. Two different ones are enough..... Hope this helps.

Tina M.

Re: Re: Hormones and which Dr. - B.

Tina

Was your botox Ct guided? How did they do it - vaginally?

C

From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

[Guest guest]

Oh.... Thanks. No, I was just given a straight injection. Never had a CT scan for this.

Tina.

Re: Re: Hormones and which Dr. - B.

Tina

Was your botox Ct guided? How did they do it - vaginally?

C

From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.