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Re: Post-RAI loss of taste/numb tongue?

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Amy,

I am 10 days post RAI and have exactly the same thing! I mean exactly! I had

very little problems with my salivary glands, but had real problems with

numb-tongue and food tasting all the same. Biotene seems to help for me--but it

took it quite a few days to work. I am told the sense of taste will return in

another week or so and the numb tongue will eventually go away, as well. Think

cancer was meant to teach us patience? I am sorry you had to do this twice!

beth

Post-RAI loss of taste/numb tongue?

I am 8 days post-RAI (second dose) and have yet to regain most of my

sense of taste. Also, my tongue is numb, and feels like I've had my

mouth numbed for dental work permanently! Has this happened to

anyone else? I did not have this problem the first time I had RAI!

It is frustrating to eat and not really taste the food, and also to

talk with the " numb tongue " feeling. The tissues in my mouth are

white and seem to be dying off. I am using Biotene toothpaste and

mouthwash (thanks to the posts I've read about that!) but it doesn't

seem to help with this problem. Adding to this complication is the

fact that I am a voice teacher, so it affects my work if I can't

talk/sing correctly!! Any advice would be appreciated!

Amy :)

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Hi Amy, it took me about 3-4 weeks to get my taste back, I hated it

and I used Listorine for my tounge and took acidopholis each day.

That lasted about 1 week or so after RAI. Eva

> I am 8 days post-RAI (second dose) and have yet to regain most of

my

> sense of taste. Also, my tongue is numb, and feels like I've had

my

> mouth numbed for dental work permanently! Has this happened to

> anyone else? I did not have this problem the first time I had

RAI!

> It is frustrating to eat and not really taste the food, and also

to

> talk with the " numb tongue " feeling. The tissues in my mouth are

> white and seem to be dying off. I am using Biotene toothpaste and

> mouthwash (thanks to the posts I've read about that!) but it

doesn't

> seem to help with this problem. Adding to this complication is

the

> fact that I am a voice teacher, so it affects my work if I can't

> talk/sing correctly!! Any advice would be appreciated!

>

> Amy :)

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Thanks...I'm glad to hear your sense of taste came back...now I won't

worry so much!!

> > I am 8 days post-RAI (second dose) and have yet to regain most of

> my

> > sense of taste. Also, my tongue is numb, and feels like I've had

> my

> > mouth numbed for dental work permanently! Has this happened to

> > anyone else? I did not have this problem the first time I had

> RAI!

> > It is frustrating to eat and not really taste the food, and also

> to

> > talk with the " numb tongue " feeling. The tissues in my mouth are

> > white and seem to be dying off. I am using Biotene toothpaste

and

> > mouthwash (thanks to the posts I've read about that!) but it

> doesn't

> > seem to help with this problem. Adding to this complication is

> the

> > fact that I am a voice teacher, so it affects my work if I can't

> > talk/sing correctly!! Any advice would be appreciated!

> >

> > Amy :)

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