Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 My daughter recently underwent an EEG to rule out Kleffner-Landau syndrome (I knew she didn't have it because it affects receptive speech as well and she has no trouble there). I went ahead and did it because I thought that the results might point us in the right direction (this was before I learned about apraxia). The Dr. has not phoned me with the results, so I'm assuming they were normal. She too is 20 months old, and suspected to be apraxic. Like your son, she is non-verbal with the exception of mamma and hi (both of which she acquired after starting EFA's), and is on target or ahead in every other area of development. As far as the EEG goes, it was not a great experience. They strapped her to a board with her arms across her chest and wrapped her so that she could not move. Then they measured her head and face and marked where they were going to place the electrodes (or whatever they're called). Once she was all marked, they scrubbed each spot with an abrasive cleanser followed by a thick waxy paste that held the electrodes in place. This process took well over an hour, and she screamed the entire time. The funny part was when the nurse looked at me and said " Ok, now I need you to get her to sleep " . Surprisingly, she did eventually fall asleep, after screaming another 20 minutes. She was allowed to sleep 10 or 15 minutes, then I was instructed to awake her. The nurse flashed strobe lights at different intervals, then had her blow on a pinwheel for five minutes (that didn't really work). When the test was over, she was still wrapped on the papoose board another 15 minutes while they removed all of the wires and glue. The entire experience was horrible. She just looked at me while she cried like " Mom, why don't you help me? " , which made me cry too, but I suppose it will be worth it if it tells us something. A friend of mine just had one done on her 15 month old daughter in a different hospital because of complications following the MMR vaccine, and the procedure was nearly identical, other than an extra step of rubberbanding her hair into tiny ponytails because it was in the way. Hope that helps! karrieschweikert <karrie_woodcock@...> wrote: Did anyone's developmental pediatrican recommend an MRI and/or an EEG to determine whether any neurological structural abnormalities were contributing to lack of speech? My 20 mo DS is essentially non- verbal, but cognitively/socially, etc. evaluates at or above age appropriate. He has EI speech 1x/week and we are just starting private speech therapy an additional 3x/week. His developmental ped has recommended an MRI and EEG. Just curious whether anyone else has done this? What did it entail? Did you learn anything? I would really appreciate any input. Thanks! --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Oh my gosh, what a HORRIBLE EEG experience! We've had both an MRI (to rule out tuberous sclerosis) and two EEGs (to rule out absence or partial seizures) and all went great. For the MRI (he was 25 months old), they put him to sleep. So other than a little freaking out when he woke up, it was smooth. For both EEGs (at 21 months and 26 months) (the 20-minute and the 24-hour ambulatory), they didn't do any strapping down of any kind. No scrubbing of the head. I gently held while they put the electrodes on with some adhesive. That took about 15-20 minutes to put them all on. Then they wrapped his head in gauze to keep the electrodes there. For the 20-minute, they would have preferred him to fall asleep, but he didn't. For the 24-hour, he just walked around for a day with his head wrapped, wires hanging out, and a big 'ol battery pack that I followed him around with. Then it took under 5 minutes to get the electrodes off. That was it. No big deal for any of us. BTW, all 3 tests came back negative..... HTH! --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 My daughter recently underwent an EEG to rule out Kleffner-Landau syndrome (I knew she didn't have it because it affects receptive speech as well and she has no trouble there). I went ahead and did it because I thought that the results might point us in the right direction (this was before I learned about apraxia). The Dr. has not phoned me with the results, so I'm assuming they were normal. She too is 20 months old, and suspected to be apraxic. Like your son, she is non-verbal with the exception of mamma and hi (both of which she acquired after starting EFA's), and is on target or ahead in every other area of development. As far as the EEG goes, it was not a great experience. They strapped her to a board with her arms across her chest and wrapped her so that she could not move. Then they measured her head and face and marked where they were going to place the electrodes (or whatever they're called). Once she was all marked, they scrubbed each spot with an abrasive cleanser followed by a thick waxy paste that held the electrodes in place. This process took well over an hour, and she screamed the entire time. The funny part was when the nurse looked at me and said " Ok, now I need you to get her to sleep " . Surprisingly, she did eventually fall asleep, after screaming another 20 minutes. She was allowed to sleep 10 or 15 minutes, then I was instructed to awake her. The nurse flashed strobe lights at different intervals, then had her blow on a pinwheel for five minutes (that didn't really work). When the test was over, she was still wrapped on the papoose board another 15 minutes while they removed all of the wires and glue. The entire experience was horrible. She just looked at me while she cried like " Mom, why don't you help me? " , which made me cry too, but I suppose it will be worth it if it tells us something. A friend of mine just had one done on her 15 month old daughter in a different hospital because of complications following the MMR vaccine, and the procedure was nearly identical, other than an extra step of rubberbanding her hair into tiny ponytails because it was in the way. Hope that helps! karrieschweikert <karrie_woodcock@...> wrote: Did anyone's developmental pediatrican recommend an MRI and/or an EEG to determine whether any neurological structural abnormalities were contributing to lack of speech? My 20 mo DS is essentially non- verbal, but cognitively/socially, etc. evaluates at or above age appropriate. He has EI speech 1x/week and we are just starting private speech therapy an additional 3x/week. His developmental ped has recommended an MRI and EEG. Just curious whether anyone else has done this? What did it entail? Did you learn anything? I would really appreciate any input. Thanks! --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Wow!! I am amazed! My dd has had 2MRIs and 6 EEGs (5 sleep deprived 1hr and 1 48hr ambulatory) My dd has never had her head scrubbed with an abrasive nor was she ever strapped down. She has had these tests as young as 6m old and they wrapped her tight in a blanket. She is 3 1/2 yrs old. All of her tests have always come up " Normal " (still waiting for 48hr EEG results) and she has a Seizure Disorder. Sorry about the horrible experience. In , Vrolijk <allison_g@...> wrote: > > Oh my gosh, what a HORRIBLE EEG experience! > > We've had both an MRI (to rule out tuberous sclerosis) and two EEGs (to rule out absence or partial seizures) and all went great. For the MRI (he was 25 months old), they put him to sleep. So other than a little freaking out when he woke up, it was smooth. > > For both EEGs (at 21 months and 26 months) (the 20-minute and the 24-hour ambulatory), they didn't do any strapping down of any kind. No scrubbing of the head. I gently held while they put the electrodes on with some adhesive. That took about 15-20 minutes to put them all on. Then they wrapped his head in gauze to keep the electrodes there. For the 20-minute, they would have preferred him to fall asleep, but he didn't. For the 24-hour, he just walked around for a day with his head wrapped, wires hanging out, and a big 'ol battery pack that I followed him around with. Then it took under 5 minutes to get the electrodes off. That was it. No big deal for any of us. > > BTW, all 3 tests came back negative..... > > HTH! > > > > > --------------------------------- > Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 My 2yo son has gone thru both. He suffered from a febrial seizure due to roseola last year at this time. He was sent to a pediatric neurologist who did an EEG. At our followup appt, I asked her about his speech delay and she sent him for a MRI. Everything showed to be normal. The EEG was the worst I think. They stick a bunch of leads to the child's head and expect them to sit still for 1 hour. Yeah..right! I was happy (with the help of me brining his favorite movie with me) to get him to sit still for 45min. The MRI, he was given a sedative and he slept thru it. The whole thing took 2 hours (from giving him the sedative, the MRI, and waiting for him to wake up enough to go home). When we got home he slept for an additional 3 hours. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Oh my gosh, what a HORRIBLE EEG experience! We've had both an MRI (to rule out tuberous sclerosis) and two EEGs (to rule out absence or partial seizures) and all went great. For the MRI (he was 25 months old), they put him to sleep. So other than a little freaking out when he woke up, it was smooth. For both EEGs (at 21 months and 26 months) (the 20-minute and the 24-hour ambulatory), they didn't do any strapping down of any kind. No scrubbing of the head. I gently held while they put the electrodes on with some adhesive. That took about 15-20 minutes to put them all on. Then they wrapped his head in gauze to keep the electrodes there. For the 20-minute, they would have preferred him to fall asleep, but he didn't. For the 24-hour, he just walked around for a day with his head wrapped, wires hanging out, and a big 'ol battery pack that I followed him around with. Then it took under 5 minutes to get the electrodes off. That was it. No big deal for any of us. BTW, all 3 tests came back negative..... HTH! --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 We had it done on our son when he was a little under four years old. My experience was not so bad, but the EEG revealed Benign Childhood Epilepsy... Well, I really think it is worth finding a Speech Therapist that is " VERY " experienced with Apraxia to get an evaluation. I had some bad experiences with SLP's too, and spent two years going though speech with no results. Deborah > Did anyone's developmental pediatrican recommend an MRI and/or an EEG > to determine whether any neurological structural abnormalities were > contributing to lack of speech? My 20 mo DS is essentially non- > verbal, but cognitively/socially, etc. evaluates at or above age > appropriate. He has EI speech 1x/week and we are just starting > private speech therapy an additional 3x/week. His developmental ped > has recommended an MRI and EEG. Just curious whether anyone else has > done this? What did it entail? Did you learn anything? I would > really appreciate any input. Thanks! > > > > > > > --------------------------------- > Get your email and more, right on the new .com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Wow!! I am amazed! My dd has had 2MRIs and 6 EEGs (5 sleep deprived 1hr and 1 48hr ambulatory) My dd has never had her head scrubbed with an abrasive nor was she ever strapped down. She has had these tests as young as 6m old and they wrapped her tight in a blanket. She is 3 1/2 yrs old. All of her tests have always come up " Normal " (still waiting for 48hr EEG results) and she has a Seizure Disorder. Sorry about the horrible experience. In , Vrolijk <allison_g@...> wrote: > > Oh my gosh, what a HORRIBLE EEG experience! > > We've had both an MRI (to rule out tuberous sclerosis) and two EEGs (to rule out absence or partial seizures) and all went great. For the MRI (he was 25 months old), they put him to sleep. So other than a little freaking out when he woke up, it was smooth. > > For both EEGs (at 21 months and 26 months) (the 20-minute and the 24-hour ambulatory), they didn't do any strapping down of any kind. No scrubbing of the head. I gently held while they put the electrodes on with some adhesive. That took about 15-20 minutes to put them all on. Then they wrapped his head in gauze to keep the electrodes there. For the 20-minute, they would have preferred him to fall asleep, but he didn't. For the 24-hour, he just walked around for a day with his head wrapped, wires hanging out, and a big 'ol battery pack that I followed him around with. Then it took under 5 minutes to get the electrodes off. That was it. No big deal for any of us. > > BTW, all 3 tests came back negative..... > > HTH! > > > > > --------------------------------- > Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 My 2yo son has gone thru both. He suffered from a febrial seizure due to roseola last year at this time. He was sent to a pediatric neurologist who did an EEG. At our followup appt, I asked her about his speech delay and she sent him for a MRI. Everything showed to be normal. The EEG was the worst I think. They stick a bunch of leads to the child's head and expect them to sit still for 1 hour. Yeah..right! I was happy (with the help of me brining his favorite movie with me) to get him to sit still for 45min. The MRI, he was given a sedative and he slept thru it. The whole thing took 2 hours (from giving him the sedative, the MRI, and waiting for him to wake up enough to go home). When we got home he slept for an additional 3 hours. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Barbara, Did the onset of your son's speech problems coincide with the roseola and high fever? Just curious... Kerri > > My 2yo son has gone thru both. He suffered from a febrial seizure due > to roseola last year at this time. He was sent to a pediatric > neurologist who did an EEG. At our followup appt, I asked her about > his speech delay and she sent him for a MRI. Everything showed to be > normal. > > The EEG was the worst I think. They stick a bunch of leads to the > child's head and expect them to sit still for 1 hour. Yeah..right! I > was happy (with the help of me brining his favorite movie with me) to > get him to sit still for 45min. > > The MRI, he was given a sedative and he slept thru it. The whole thing > took 2 hours (from giving him the sedative, the MRI, and waiting for > him to wake up enough to go home). When we got home he slept for an > additional 3 hours. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 We had it done on our son when he was a little under four years old. My experience was not so bad, but the EEG revealed Benign Childhood Epilepsy... Well, I really think it is worth finding a Speech Therapist that is " VERY " experienced with Apraxia to get an evaluation. I had some bad experiences with SLP's too, and spent two years going though speech with no results. Deborah > Did anyone's developmental pediatrican recommend an MRI and/or an EEG > to determine whether any neurological structural abnormalities were > contributing to lack of speech? My 20 mo DS is essentially non- > verbal, but cognitively/socially, etc. evaluates at or above age > appropriate. He has EI speech 1x/week and we are just starting > private speech therapy an additional 3x/week. His developmental ped > has recommended an MRI and EEG. Just curious whether anyone else has > done this? What did it entail? Did you learn anything? I would > really appreciate any input. Thanks! > > > > > > > --------------------------------- > Get your email and more, right on the new .com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 We finally got in to see a neurologist at age 3, who ordered the MRI and EEG which we did this august. I wanted to know why my son had dev delays since no one could for sure say apraxia. And boy am I glad they did this testing because the news we found out was highly unexpected but really explains it all.....my 3 yr old son has mild cp and has been apparently having petitmal seizures. The cp explains the speech and motor delay as well as the extreme sensory integration too. As far as how the tests went, they were both farely simple. The MRI they actually sedated my son, I was told they do that for all young children. And the EEG, just as others mentioned, they put gel type " glue " on their head (after they mark out all the spots) and then attach the electrodes to it. My son is extremely tactile deffensive so he screamed during that part and then he actually feel alseep (which is what they hope for). They flashed the lights in his face and yes after about 20 minutes I had to wake him to get him to blow on a pinwheel. Then that's it, they gently remove the electrodes. The man I had was so nice and gentle with my son. I felt it went very well. And I am glad I had it done, it puts many of my what and why questions to rest. Janel > > Did anyone's developmental pediatrican recommend an MRI and/or an EEG > to determine whether any neurological structural abnormalities were > contributing to lack of speech? My 20 mo DS is essentially non- > verbal, but cognitively/socially, etc. evaluates at or above age > appropriate. He has EI speech 1x/week and we are just starting > private speech therapy an additional 3x/week. His developmental ped > has recommended an MRI and EEG. Just curious whether anyone else has > done this? What did it entail? Did you learn anything? I would > really appreciate any input. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Barbara, Did the onset of your son's speech problems coincide with the roseola and high fever? Just curious... Kerri > > My 2yo son has gone thru both. He suffered from a febrial seizure due > to roseola last year at this time. He was sent to a pediatric > neurologist who did an EEG. At our followup appt, I asked her about > his speech delay and she sent him for a MRI. Everything showed to be > normal. > > The EEG was the worst I think. They stick a bunch of leads to the > child's head and expect them to sit still for 1 hour. Yeah..right! I > was happy (with the help of me brining his favorite movie with me) to > get him to sit still for 45min. > > The MRI, he was given a sedative and he slept thru it. The whole thing > took 2 hours (from giving him the sedative, the MRI, and waiting for > him to wake up enough to go home). When we got home he slept for an > additional 3 hours. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 We finally got in to see a neurologist at age 3, who ordered the MRI and EEG which we did this august. I wanted to know why my son had dev delays since no one could for sure say apraxia. And boy am I glad they did this testing because the news we found out was highly unexpected but really explains it all.....my 3 yr old son has mild cp and has been apparently having petitmal seizures. The cp explains the speech and motor delay as well as the extreme sensory integration too. As far as how the tests went, they were both farely simple. The MRI they actually sedated my son, I was told they do that for all young children. And the EEG, just as others mentioned, they put gel type " glue " on their head (after they mark out all the spots) and then attach the electrodes to it. My son is extremely tactile deffensive so he screamed during that part and then he actually feel alseep (which is what they hope for). They flashed the lights in his face and yes after about 20 minutes I had to wake him to get him to blow on a pinwheel. Then that's it, they gently remove the electrodes. The man I had was so nice and gentle with my son. I felt it went very well. And I am glad I had it done, it puts many of my what and why questions to rest. Janel > > Did anyone's developmental pediatrican recommend an MRI and/or an EEG > to determine whether any neurological structural abnormalities were > contributing to lack of speech? My 20 mo DS is essentially non- > verbal, but cognitively/socially, etc. evaluates at or above age > appropriate. He has EI speech 1x/week and we are just starting > private speech therapy an additional 3x/week. His developmental ped > has recommended an MRI and EEG. Just curious whether anyone else has > done this? What did it entail? Did you learn anything? I would > really appreciate any input. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 We too went through the EEG experience. I've heard pros and cons on this but I decided to make Nick a book showing him what would happen when he went to the hospital. He was around 28 months old at the time. The book told him step by step in 2 year old terms where we were going and a picture, then what they were doing. I had a picture of him and drew electrodes all over his head The important part was that I included the good things we would do after - HAVE ICE CREAM! and then we would come home. I think it was very comforting to him that he knew ahead what was going to happen. The only surprise for all of us was the abrasive cleaner that basically was sandpaper. That wasn't okay with Nick and he sobbed. It was an emotional experience for all of us and in our case was over kill with testing since there were no other symptoms calling for an EEG. Good luck with what you choose to do. McCann > > Did anyone's developmental pediatrican recommend an MRI and/or an EEG > to determine whether any neurological structural abnormalities were > contributing to lack of speech? My 20 mo DS is essentially non- > verbal, but cognitively/socially, etc. evaluates at or above age > appropriate. He has EI speech 1x/week and we are just starting > private speech therapy an additional 3x/week. His developmental ped > has recommended an MRI and EEG. Just curious whether anyone else has > done this? What did it entail? Did you learn anything? I would > really appreciate any input. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 We too went through the EEG experience. I've heard pros and cons on this but I decided to make Nick a book showing him what would happen when he went to the hospital. He was around 28 months old at the time. The book told him step by step in 2 year old terms where we were going and a picture, then what they were doing. I had a picture of him and drew electrodes all over his head The important part was that I included the good things we would do after - HAVE ICE CREAM! and then we would come home. I think it was very comforting to him that he knew ahead what was going to happen. The only surprise for all of us was the abrasive cleaner that basically was sandpaper. That wasn't okay with Nick and he sobbed. It was an emotional experience for all of us and in our case was over kill with testing since there were no other symptoms calling for an EEG. Good luck with what you choose to do. McCann > > Did anyone's developmental pediatrican recommend an MRI and/or an EEG > to determine whether any neurological structural abnormalities were > contributing to lack of speech? My 20 mo DS is essentially non- > verbal, but cognitively/socially, etc. evaluates at or above age > appropriate. He has EI speech 1x/week and we are just starting > private speech therapy an additional 3x/week. His developmental ped > has recommended an MRI and EEG. Just curious whether anyone else has > done this? What did it entail? Did you learn anything? I would > really appreciate any input. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Janel, Which test revealed these problems or did both contribute to the diagnosis? Thanks, Kristi > > > > Did anyone's developmental pediatrican recommend an MRI and/or an > EEG > > to determine whether any neurological structural abnormalities were > > contributing to lack of speech? My 20 mo DS is essentially non- > > verbal, but cognitively/socially, etc. evaluates at or above age > > appropriate. He has EI speech 1x/week and we are just starting > > private speech therapy an additional 3x/week. His developmental ped > > has recommended an MRI and EEG. Just curious whether anyone else > has > > done this? What did it entail? Did you learn anything? I would > > really appreciate any input. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Janel, Which test revealed these problems or did both contribute to the diagnosis? Thanks, Kristi > > > > Did anyone's developmental pediatrican recommend an MRI and/or an > EEG > > to determine whether any neurological structural abnormalities were > > contributing to lack of speech? My 20 mo DS is essentially non- > > verbal, but cognitively/socially, etc. evaluates at or above age > > appropriate. He has EI speech 1x/week and we are just starting > > private speech therapy an additional 3x/week. His developmental ped > > has recommended an MRI and EEG. Just curious whether anyone else > has > > done this? What did it entail? Did you learn anything? I would > > really appreciate any input. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 We did both, too - despite the fact that we never saw any seizure indications. Surprise, surprise...We discovered that was having seizures at night (left frontal lobe). We did the follow-up MRI to rule out anything structural & it came back clear. I am so glad that our dev ped pushed us to do this. I REALLY didn't want to. The putting-on and taking-off of the electrodes was pretty traumatic, but the EEG itself (we did 24 hour ambulatory) was no big deal. We started on Depakote a few weeks ago and i can already see improvements in his motor planning & general regulation/ability to handle conflicts, as well as his speech attempts. And we may not even have him on a full therapeutic dose, yet (he's having blood work done next week). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 We did both, too - despite the fact that we never saw any seizure indications. Surprise, surprise...We discovered that was having seizures at night (left frontal lobe). We did the follow-up MRI to rule out anything structural & it came back clear. I am so glad that our dev ped pushed us to do this. I REALLY didn't want to. The putting-on and taking-off of the electrodes was pretty traumatic, but the EEG itself (we did 24 hour ambulatory) was no big deal. We started on Depakote a few weeks ago and i can already see improvements in his motor planning & general regulation/ability to handle conflicts, as well as his speech attempts. And we may not even have him on a full therapeutic dose, yet (he's having blood work done next week). Quote Link to comment Share on other sites More sharing options...
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