Re: scary moments.....any tips??

[Guest guest]

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How about an invisible leash!

Tina

>

> Hello all

>

> I just read the " Fear of Getting Lost " part of late talker and I

> thought OMG, that is exactly what I was thinking the other day

when

> my son disappeared at Sams. He was literally at my side one second

> and gone the next. Thankfully he was just inside the little

playhouse

> they have set up for display. But when I was looking for him (in

near

> panic mode), calling his name (ok, nearly yelling his name with a

> you're in so much trouble tone) it dawned on me that if someone

> grabbed him he wouldn't be able to say NO or YOU ARE NOT MY MOMMY,

> etc. It scared the crap out of me to think that he would just look

> like another bratty 2 yr old having a fit. Noone would even think

> there was a problem.

>

> Not wanting to be an alarmist or give everyone something else to

> obsess about - this is just something that hits really close to

home

> for me (won't get into it here) but I'll just say that I know too

> much about how bad things happen to good people.

>

> So....what is my point you ask? I want to see if anyone else who

has

> dealt with this fear and what did you do? I know that as a mom

that

> fear is always in the back of your brain and we always have our

third

> eye - as my husband calls it - trained on our children. I liked

the

> tips in the book but does anyone have any other tricks up their

> sleeve? Shy of a leash (just kidding) I am trying to think of a

> middle ground that will help me stay sane and keep my son safe (or

at

> least safer).

>

> Thanks Again

>

> Martha McCabe

>

[Guest guest]

Martha you may find a few tips in the following archive. If not

take comfort in the fact that you are not alone!

Also it does change to other fears...

Tanner called on my cell today to tell me the police were at our house.

I knew Glenn was there and said " WHY? " " April Fools Mommy! "

He got me!

From: " kiddietalk " <kiddietalk@...>

Date: Thu Oct 6, 2005 2:48 pm

Subject: Re: ID tags kiddietalk

" What I would really like is to get a GPS implantable tag "

great minds think alike! Below is a helpful message about

IDs and various ways of going about this -as well as a message I

sent here awhile ago about when 'I' first came up with " lojack for

kids " in the toy industry and was told that was just crazy. They're

doing it for years now in pets -and guess what? It 'is' being

tested right now in people -but it does freak out many. Guess it's

too Big Brotherish for some (who don't know what it's like to be in

a state of horror if God forbid your 4 or 5 year old child runs off

at the mall and can't say he own name no less his phone number!)

To this day I'll never forget the day our family went to a wine

harvesting festival in NJ where you help pick the grapes -then take

part in a big party with food and music. Alba Vineyards does or did

it each year and it's awesome http://www.albavineyards.com

Tanner somehow wandered off from the group of us. It was our family

and some neighbor's and their kids too...Tanner was just all of a

sudden out of sight gone. One minute everyone saw him and the next -

gone. We couldn't find our little pumpkin who looked like a baby

cherub, our 4 year old who was essentially nonverbal. (This is the

fancy party I've talked about here where Tanner pointed to a plate

of cookies and said " doo doo doodie? " which was his way of asking

for a cookie.)

We were surrounded by endless fields of grapes and the winery with

all the

large vats and equipment, the sun was setting, and I felt horror

like you have no idea unless you were in this situation. I ran

towards the one exit out and shouted not to let any cars leave. I

wanted to check trunks (they didn't do that) We had everyone

looking and Tanner was found behind a vat. I guess one day we will

be able to look back on that and laugh -perhaps when he's an

adult. Right now it's still a memory that makes me feel sick.

From: " kiddietalk " <kiddietalk@...>

Date: Wed Mar 9, 2005 9:38 pm

Subject: Re: ability to know phone number etc.../ID Bracelets etc.

kiddietalk

This topic has come up many times and with many horror stories as to

why to get an ID bracelet. This is why we have resources and

reasons as well as suggestions for ID bracelets in The Late Talker

book.

Vicki, may not need insurance to cover them. ID's don't have to be

costly to be effective -they can be -but in addition to the obvious

ID bracelets -you can use anything to 'make' an ID bracelet -

including the 5 dollar doggie tag from the local pet store attached

to a sneaker shoelace or something.

I do have an archive from a few years ago for those of you who may

or may not

have read The Late Talker. Since my kids

are now a bit older (and speaking of out of the box " IDs " ) I also

have a

suggestion for those of us with older children that works really

well -I recommend looking into it.

A few weeks ago I posted a story about how a child was lost at

Universal and how devastated he was -and how miraculously in that

crazy crowd of people I somehow found his mother.

/message/37902

That child looked to be around ten years old. Almost right after

that happened my husband went out and purchased two cheaper Nextel

phones http://www.nextel.com/ for our two boys who are now 8 and 10

years old. Programmed into the phone are all the emergency numbers

our kids would need as a just in case. They both know they are not

allowed to use the phone for anything but an emergency -but the

direct connect/two way or for those who don't know -walkie talkie

aspect -that's free no matter how much it's used. In addition to

peace of mind when we go to places like the theme parks now that

they can no longer get 'lost' Tanner has all of a sudden enjoyed

talking on the phone. Not that he didn't or wouldn't talk on the

phone before -but not much. Then of course there is the 'cool'

factor (something to think of when you have a child with a speech

impairment -even one like Tanner who has lots of friends and isn't

teased) Some of you may think doing this a bit extravagant, but

honestly after paying over 100 dollars an hour (!!) for just one

session

of therapy -the 30 or so bucks a month (!!) for security and

encouraging

more speech sounds like a steal.

Our two boys now have two other friends who have Nextel as well...I

think I smell a trend -someone just has to do the marketing -and not

much!

I tried to contact the inventor of http://www.petsmobility.com/ -

would love to help work on marketing for that concept for children

but he didn't call me back! Hmph. (and tried to secure the domain

name 'kidsmobility' but the owner of petsmobility already had but...I

did secure 'kidmobility' Anyway the inventor of petsmobility must

be thinking, like me and I'm sure others....just watch -you'll see

it in a few

years)

From: " kiddietalk <kiddietalk@...> " <kiddietalk@...>

Date: Fri Feb 7, 2003 9:08 pm

Subject: Re: ID Brancelets

Hi Carole!

A few people (including me) just posted some places to find ID

bracelets which you probably read right after you sent your message.

Another place someone suggested about a year ago was using the ID

tags you

can pick up pretty inexpensively at the pet stores which typically

allow you around three lines. You can then attach it to the laces of

the shoes

(near the toes)

I posted a long time before that to have the following information

on ID

tags

Learning to talk

Able to understand

Please call 123-456-7890

I would put " learning to talk " so that they knew he had some type of

speech impediment -and not that he was in shock or something when he

didn't talk. I would put " able to understand " so they knew he

wasn't mentally retarded or deaf -and wouldn't talk in front of him

like he wasn't there. And I would put our contact number (for

obvious reasons)

From: "

[Guest guest]

Wow. I never thought about that. My eyes started tearing as I read

it. You are SO right. People would think it's just another two year

old having another fit.

is 2.5 year old, a stroller to him is the devil, and I tried

the little backpack, kid leashes they sell at walmart and he wants no

part in it. He doesn't listen to me EVER. He just runs off.

If I scream his name he won't even turn around. He " ignores " mommy

and daddy when we call him.

Is that normal with children of Apraxia?

>

> Hello all

>

> I just read the " Fear of Getting Lost " part of late talker and I

> thought OMG, that is exactly what I was thinking the other day when

> my son disappeared at Sams. He was literally at my side one second

> and gone the next. Thankfully he was just inside the little

playhouse

> they have set up for display. But when I was looking for him (in

near

> panic mode), calling his name (ok, nearly yelling his name with a

> you're in so much trouble tone) it dawned on me that if someone

> grabbed him he wouldn't be able to say NO or YOU ARE NOT MY MOMMY,

> etc. It scared the crap out of me to think that he would just look

> like another bratty 2 yr old having a fit. Noone would even think

> there was a problem.

>

> Not wanting to be an alarmist or give everyone something else to

> obsess about - this is just something that hits really close to

home

> for me (won't get into it here) but I'll just say that I know too

> much about how bad things happen to good people.

>

> So....what is my point you ask? I want to see if anyone else who

has

> dealt with this fear and what did you do? I know that as a mom that

> fear is always in the back of your brain and we always have our

third

> eye - as my husband calls it - trained on our children. I liked the

> tips in the book but does anyone have any other tricks up their

> sleeve? Shy of a leash (just kidding) I am trying to think of a

> middle ground that will help me stay sane and keep my son safe (or

at

> least safer).

>

> Thanks Again

>

> Martha McCabe

>

[Guest guest]

Hi Martha!!

I have had this same fear. From an early age I always told my

children that if they ever get seperated from me to find a mom. A

mom will always help a child out and there is almost always a mom

somewhere around close by. Until was able to talk, I had a

laminated card I always gave him that had his name on it, my name on

it, my cell phone number and a note saying he was non-verbal but

could understand all that was said to him. We used these cards when

we went to Disney World, or just to the walmart. We told him to

find a mom and to hand her the card if he was every lost. We even

practiced at home. YOu never know when a child is going to wander

off.

In case of someone " snatching " the child, I would tell them to do

whatever they can to get loose and run to the nearest mom. Once

again, a mom is not going to let a child who is clinging to their

leg go with someone unless they can prove they are the child's

parent. Would you??? Plus if they have the card the mom could

verify by calling the cell phone number.

My younger son who has no disability/disorder did get lost recently

in Walmart. I had to have them do a " code Adam " where they close

everything down and everyone looks for the lost child. Once he was

found (he was 6 years old) a woman came up to me and told me I

should be proud of him because he came right up to her and told her

His mom always told him if he got lost to find another mom and she

would help him. He was crying so she immediatly calmed him down and

took care of him. Yes, he is verbal - but I believe it would have

worked just as well if he would have handed her the card I mentioned

above. Needless to say I hugged the woman and we both cried!!

Okay - just my two cents!

>

> Hello all

>

> I just read the " Fear of Getting Lost " part of late talker and I

> thought OMG, that is exactly what I was thinking the other day

when

> my son disappeared at Sams. He was literally at my side one second

> and gone the next. Thankfully he was just inside the little

playhouse

> they have set up for display. But when I was looking for him (in

near

> panic mode), calling his name (ok, nearly yelling his name with a

> you're in so much trouble tone) it dawned on me that if someone

> grabbed him he wouldn't be able to say NO or YOU ARE NOT MY MOMMY,

> etc. It scared the crap out of me to think that he would just look

> like another bratty 2 yr old having a fit. Noone would even think

> there was a problem.

>

> Not wanting to be an alarmist or give everyone something else to

> obsess about - this is just something that hits really close to

home

> for me (won't get into it here) but I'll just say that I know too

> much about how bad things happen to good people.

>

> So....what is my point you ask? I want to see if anyone else who

has

> dealt with this fear and what did you do? I know that as a mom

that

> fear is always in the back of your brain and we always have our

third

> eye - as my husband calls it - trained on our children. I liked

the

> tips in the book but does anyone have any other tricks up their

> sleeve? Shy of a leash (just kidding) I am trying to think of a

> middle ground that will help me stay sane and keep my son safe (or

at

> least safer).

>

> Thanks Again

>

> Martha McCabe

>

[Guest guest]

I have a few ideas.... I actually do use a type of leash with Adem

anytime we are going somewhere really big like traveling, airports,

zoo, fairs ect. but in malls and stores he too will have nothing to

do with them. I usually do a reverse physcology on him by explaining

that I need him to keep me safe. This usually results in willingness

to wear the " bungie " and him being very attentive to my needs. I use

one that is actually a really long piece of elastic that goes around

my wrist and his wrist. it gives him a good running lenght (be

careful not to trip people who are not looking for a hazard only 2

feet above thier feet. lol....

Now.... I am having more difficulties getting him to use the bungie

anymore. He is getting big.... I have been doing alot of research

and seriously considering a child GPS device. this is a watch that

has a built in gps that will allow you to locate your baby almost

instantly. it is waterproof, and cannot be removed without a key. if

it is somehow removed without the key there is an alarm. but thing

is if someone snached your kid most would think it is just a watch,

or if they knew what it was they would choose another kid. I had

found one last year that I can't seem to find again that had LOTS of

options of tracking even older kids. like automatic check that they

got home after school, if they are not where they should be at that

exact time it will notify you immediately via telephone so you can

run a trace of were your kid is.... but right now were usually just

trying to figure out which rack of clothes they are hiding under

right? LOL..... Anyways, he is one unit that allows you to add

multiple kids at once.... Hope it helps!

http://www.brickhousesecurity.com/vbsik.html

On a diffrent angle, I have the same fear of leaving my Adem with

anyone, that includes family, daycare, ect... I'm always so worried

that if something DID happen he would not be able to tell me.

And " happen " doesn't always mean physical. I worry that they will

even act inappropriate and I not know it weather it allowing him to

watch a horror movie they are watching on TV, or fighting in front

of him. Adem just uses the long drawn out variations of

AHHHHHUUUUUUUHHHHHHHAAAAAAHHHHHHAHHHHHHHJUUUUUU with hand jestures

to talk. I REALLY need to get this book ASAP.... Wonder where I can

buy it without ordering it online?????

>

> Hello all

>

> I just read the " Fear of Getting Lost " part of late talker and I

> thought OMG, that is exactly what I was thinking the other day

when

> my son disappeared at Sams. He was literally at my side one second

> and gone the next. Thankfully he was just inside the little

playhouse

> they have set up for display. But when I was looking for him (in

near

> panic mode), calling his name (ok, nearly yelling his name with a

> you're in so much trouble tone) it dawned on me that if someone

> grabbed him he wouldn't be able to say NO or YOU ARE NOT MY MOMMY,

> etc. It scared the crap out of me to think that he would just look

> like another bratty 2 yr old having a fit. Noone would even think

> there was a problem.

>

> Not wanting to be an alarmist or give everyone something else to

> obsess about - this is just something that hits really close to

home

> for me (won't get into it here) but I'll just say that I know too

> much about how bad things happen to good people.

>

> So....what is my point you ask? I want to see if anyone else who

has

> dealt with this fear and what did you do? I know that as a mom

that

> fear is always in the back of your brain and we always have our

third

> eye - as my husband calls it - trained on our children. I liked

the

> tips in the book but does anyone have any other tricks up their

> sleeve? Shy of a leash (just kidding) I am trying to think of a

> middle ground that will help me stay sane and keep my son safe (or

at

> least safer).

>

> Thanks Again

>

> Martha McCabe

>

[Guest guest]

Sounds " normal " for a 2.5 year old.

[ ] Re: scary moments.....any tips??

Wow. I never thought about that. My eyes started tearing as I read

it. You are SO right. People would think it's just another two year

old having another fit.

is 2.5 year old, a stroller to him is the devil, and I tried

the little backpack, kid leashes they sell at walmart and he wants no

part in it. He doesn't listen to me EVER. He just runs off.

If I scream his name he won't even turn around. He " ignores " mommy

and daddy when we call him.

Is that normal with children of Apraxia?

[Guest guest]

I've wondered this myself. My child doesn't always respond to his

name and he will run off. If I'm in a store, I don't let him down.

He's either in the shopping cart or on my hip (most likely

struggling to get down. You should see the bicep on my right arm!)

Not always responding to his name worries his ST the most (and I

think made her suspect autism for a while, though I don't think she

still does). He's just so inconsistent with it, sometimes he does,

other times he seems to ignore me. Does anyone else have any

feedback on this??

> >

> > Hello all

> >

> > I just read the " Fear of Getting Lost " part of late talker and I

> > thought OMG, that is exactly what I was thinking the other day

when

> > my son disappeared at Sams. He was literally at my side one

second

> > and gone the next. Thankfully he was just inside the little

> playhouse

> > they have set up for display. But when I was looking for him (in

> near

> > panic mode), calling his name (ok, nearly yelling his name with

a

> > you're in so much trouble tone) it dawned on me that if someone

> > grabbed him he wouldn't be able to say NO or YOU ARE NOT MY

MOMMY,

> > etc. It scared the crap out of me to think that he would just

look

> > like another bratty 2 yr old having a fit. Noone would even

think

> > there was a problem.

> >

> > Not wanting to be an alarmist or give everyone something else to

> > obsess about - this is just something that hits really close to

> home

> > for me (won't get into it here) but I'll just say that I know

too

> > much about how bad things happen to good people.

> >

> > So....what is my point you ask? I want to see if anyone else who

> has

> > dealt with this fear and what did you do? I know that as a mom

that

> > fear is always in the back of your brain and we always have our

> third

> > eye - as my husband calls it - trained on our children. I liked

the

> > tips in the book but does anyone have any other tricks up their

> > sleeve? Shy of a leash (just kidding) I am trying to think of a

> > middle ground that will help me stay sane and keep my son safe

(or

> at

> > least safer).

> >

> > Thanks Again

> >

> > Martha McCabe

> >

>

[Guest guest]

Landon last spring (18 mos.) up until Winter if we were outside he

would run off. At the time I couldn't figure out why he was doing

it. He is sensitive to too much Auditory input. Since it has

warmed up (here in Georgia) he has gotten better about regulating

himself. He doesn't run off anymore and will turn around if I call

his name. At first I thought, geez he doesn't know his name! I

would be chasing him and yelling his name and he was just so focused

on the noise he would run. Now at 31 months, he knows when he needs

to come in the house. We will be playing outside, and I will see

him walk across the back yard from the swing set, and he goes in the

house and sits on the couch for some quiet time.

Tina

>

> I've wondered this myself. My child doesn't always respond to his

> name and he will run off. If I'm in a store, I don't let him

down.

> He's either in the shopping cart or on my hip (most likely

> struggling to get down. You should see the bicep on my right

arm!)

> Not always responding to his name worries his ST the most (and I

> think made her suspect autism for a while, though I don't think

she

> still does). He's just so inconsistent with it, sometimes he

does,

> other times he seems to ignore me. Does anyone else have any

> feedback on this??

>

>