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Hi ,

Welcome to the group, my name is Marge and I've done W.W. a number of

times. It always works for me but then I go off and gain whatever I lost back.

This time I'm bound and determined to lose this weight. I'm at my highest ever

and just found out Tuesday that I'm a diabetic. So I certainly need to lose

this weight and get my sugar under control. This is a great group and I'm

sure you'll get to know everyone and enjoy. Have a great week.

Hugs,

Marge

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Welcome !

We have quite a group here! Hop right in and ask questions, share insights,

laugh with us, cry with us, etc.

I'm Tory and I've been at goal since Dec 2002. I love the program. It is so

easy and sensible and I truly love the feeling of control and freedom I have

since dropping 104 pounds.

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  • 3 months later...

Hi Shayla,

Welcome to our group! The way we communicate, is by posting emails back and

forth to one another. Even though we do have a chat room, our site works

best with this format. To my knowledge, the chat room has not been used in

quite some time.

It seems like many of us were diagnosed " suddenly " as you were, throwing us

totally off guard. I had always been a fairly healthy individual until IgAN

came along. There are definitely ways to help slow the progression though

and there is life after IgAN and a good one at that.

I encourage you to visit our sister site at _http://igan.ca/_

(http://igan.ca/) There is so much GREAT information for you to browse

through. We're

happy you found us. Hugs, Rita

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Hi Shayla,

A very warm welcome to you. I am sorry you were diagnosed three years ago.

I know it is very hard to get a diagnosis of a chronic illness when you have

been healthy up to that point. It does take time to get to a place where you

reach acceptance. It can feel very overwhelming at times but please know

you have found a group that is there to help answer questions and to offer you

any support you need. You are among people who really do understand.

Feel free to post emails since this group does not really use the chat room

and you will get answers from the group fairly quickly.

Welcome again,

In a message dated 9/11/2005 5:05:48 P.M. Pacific Daylight Time,

shaylamason@... writes:

Hello everyone,

I am new to the group and was wodering how do I find the chat room and we do

we meet. I was diagnosed with Iga nephropathy 3 years ago and it was

discovered all of a sudden. No one in my family has ever had it so everything

is new

to me. Sometimes I get a little concerned just because I never had medical

problems and think maybe it was just my imagination, but I know the reality is

that it is not.

Shayla

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Hello everyone,

I am new to the group and was wodering how do I find the chat room and we do we

meet. I was diagnosed with Iga nephropathy 3 years ago and it was discovered all

of a sudden. No one in my family has ever had it so everything is new to me.

Sometimes I get a little concerned just because I never had medical problems and

think maybe it was just my imagination, but I know the reality is that it is

not.

Shayla

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The chat room is available, but the only way to set up chats is to arrange

it beforehand for a specific time. None of us use the chat on a regular

basis, as we find that email provides an unlinked service -- allowing us to

work on our own time, rather than in chat mode.

Call us old fashioned, but most of us just prefer the email -- we realize

that younger members are more oriented toward chat, but you're probably not

going to find anyone else there...

Walt

_____

From: iga-nephropathy

[mailto:iga-nephropathy ] On Behalf Of Shayla Mason

Sent: Sunday, September 11, 2005 8:04 PM

To: iga-nephropathy

Subject: New

Hello everyone,

I am new to the group and was wodering how do I find the chat room and we do

we meet. I was diagnosed with Iga nephropathy 3 years ago and it was

discovered all of a sudden. No one in my family has ever had it so

everything is new to me. Sometimes I get a little concerned just because I

never had medical problems and think maybe it was just my imagination, but I

know the reality is that it is not.

Shayla

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> The chat room is available, but the only way to set up chats is to

arrange

> it beforehand for a specific time. None of us use the chat on a

regular

> basis, as we find that email provides an unlinked service --

allowing us to

> work on our own time, rather than in chat mode.

>

> Call us old fashioned, but most of us just prefer the email -- we

realize

> that younger members are more oriented toward chat, but you're

probably not

> going to find anyone else there...

>

> Walt

>

Hello Walter

The real problem about chatting in a such international group (no

offed !!) is the time difference : we have members from all over the

world, so everyone can be on a different time zone to the other...

This is difficult then to organise a chat when you're on so many

different time zone.

If it were 2 countries it would have been easier. But even with two

different countries, like Canada or USA, we have the time zone

problem.

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Thanks for the welcome. I don't think I am too bad or anything, but it was just

a shock more than anything. I had noticed blood in my urine and then further

test were run and the saw protein loss as well then the biopsy detected it. I

just don't understand how I could have gotten something like this and no one

else in the family has ever had any problems. Oh well, now I have joined this

group finally to find out more about it.

Does this have any impact on having children? I am in my late twenties and my

boyfriend and I are talking about getting married in the next 2 years and I

would like to have a family of my own. Should I be concerned?

Shayla

W4JC@... wrote:

Hi Shayla,

A very warm welcome to you. I am sorry you were diagnosed three years ago.

I know it is very hard to get a diagnosis of a chronic illness when you have

been healthy up to that point. It does take time to get to a place where you

reach acceptance. It can feel very overwhelming at times but please know

you have found a group that is there to help answer questions and to offer you

any support you need. You are among people who really do understand.

Feel free to post emails since this group does not really use the chat room

and you will get answers from the group fairly quickly.

Welcome again,

In a message dated 9/11/2005 5:05:48 P.M. Pacific Daylight Time,

shaylamason@... writes:

Hello everyone,

I am new to the group and was wodering how do I find the chat room and we do

we meet. I was diagnosed with Iga nephropathy 3 years ago and it was

discovered all of a sudden. No one in my family has ever had it so everything

is new

to me. Sometimes I get a little concerned just because I never had medical

problems and think maybe it was just my imagination, but I know the reality is

that it is not.

Shayla

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