Guest guest Posted June 10, 2003 Report Share Posted June 10, 2003 Ladies - Please say a prayer for Clarissa she goes this am for some Lung funtion tests. Please keep her in your prayers. Maybe this will give us some answers...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2003 Report Share Posted June 11, 2003 Cindy, how is Clarissa? Krissy > Ladies - Please say a prayer for Clarissa she goes this am for some Lung funtion tests. Please keep her in your prayers. Maybe this will give us some answers...... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Barbara, No words of wisdom, just a quick note to let you know I care about you and I'm so sorry you're going through all this. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 To all: Thanks for your supportive notes. The appointment that I had on Tues was just one of many where one soc contradicted what another doc was prescribing. In this case, though, if I went with what the cath doc said it would screw things up big time besides going against the other doc (who is in the same office and supposed to be the one doing my meds). Given that I only have a short time to get the meds squared away before the driving eval and before I run about of benefit time from work and will have go on no salary, I can't afford a week of things putting me backward on the meds. Just wish they'd put their heads together instead of up their butts. Craziness and I feel like garbage. I'm just needing some quiet time for myself and so will be laying low. Thanks, though. I'll be ok and will pop in when feeling a little better. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 I know this does not come as a surprise to you but just think all is so darn stinky and needs to finally resolved for you mental state a well as physical well being Will let you rest, just please open up the door of your heart enough for you to allow yourself the help of those who so love you. You know shutting down will not help you but understand you need to talk and talk somemore. hugs my friend JoAnn s Momma Re: All To all: Thanks for your supportive notes. The appointment that I had on Tues was just one of many where one soc contradicted what another doc was prescribing. In this case, though, if I went with what the cath doc said it would screw things up big time besides going against the other doc (who is in the same office and supposed to be the one doing my meds). Given that I only have a short time to get the meds squared away before the driving eval and before I run about of benefit time from work and will have go on no salary, I can't afford a week of things putting me backward on the meds. Just wish they'd put their heads together instead of up their butts. Craziness and I feel like garbage. I'm just needing some quiet time for myself and so will be laying low. Thanks, though. I'll be ok and will pop in when feeling a little better. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 I know this does not come as a surprise to you but just think all is so darn stinky and needs to finally resolved for you mental state a well as physical well being Will let you rest, just please open up the door of your heart enough for you to allow yourself the help of those who so love you. You know shutting down will not help you but understand you need to talk and talk somemore. hugs my friend JoAnn s Momma Re: All To all: Thanks for your supportive notes. The appointment that I had on Tues was just one of many where one soc contradicted what another doc was prescribing. In this case, though, if I went with what the cath doc said it would screw things up big time besides going against the other doc (who is in the same office and supposed to be the one doing my meds). Given that I only have a short time to get the meds squared away before the driving eval and before I run about of benefit time from work and will have go on no salary, I can't afford a week of things putting me backward on the meds. Just wish they'd put their heads together instead of up their butts. Craziness and I feel like garbage. I'm just needing some quiet time for myself and so will be laying low. Thanks, though. I'll be ok and will pop in when feeling a little better. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 I know this does not come as a surprise to you but just think all is so darn stinky and needs to finally resolved for you mental state a well as physical well being Will let you rest, just please open up the door of your heart enough for you to allow yourself the help of those who so love you. You know shutting down will not help you but understand you need to talk and talk somemore. hugs my friend JoAnn s Momma Re: All To all: Thanks for your supportive notes. The appointment that I had on Tues was just one of many where one soc contradicted what another doc was prescribing. In this case, though, if I went with what the cath doc said it would screw things up big time besides going against the other doc (who is in the same office and supposed to be the one doing my meds). Given that I only have a short time to get the meds squared away before the driving eval and before I run about of benefit time from work and will have go on no salary, I can't afford a week of things putting me backward on the meds. Just wish they'd put their heads together instead of up their butts. Craziness and I feel like garbage. I'm just needing some quiet time for myself and so will be laying low. Thanks, though. I'll be ok and will pop in when feeling a little better. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 JoAnn - This is a situation that has come up over and over again since the clinic is set up so that most paitents do not have an identified physcian and the docs supposedly work together as a "team." Trica and I are among the few that HAD an identified doc but then he went out on medical leave, throwing us back into a system where you never know who the hell you're gonna end up seeing and they each think that they have a better idead then the doc that you saw the week before.. An utterly ridiculous system. When my doc went out on leave, the "plan" was for them to leave the cath in until they could get me set up on a medication plan that would cover me until my doc returned. Dr. Gentlesoul was to cover my medication set-up and this other doc would keep a check on the catheter. The catheter doc, though, then tried to step in and change the medications that Dr. Gentlesoul had been put in charge of. We were already having a lot of trouble getting me up to level because of side effects and the new complication of my finding out that I had that SAME.mysositis thing going on so any disruption was going to jsut throw me two feet backwards when my time that I could afford to be on work leave was limited (unless i didn't want to have money anymore). Well after explaining the situation by phone this morning to a nurse who has taken it upon herself over the past few months to serve as my "point of contact," she told me to follow my instinct and ignore the doc's instructions who had told me to cut back on the very meds that other doc had been carefully working with me to increase. She later called me again to say that she had reached the doc (Dr.GentleSoul) originally been assigned to set up a medication plan for me and he fully agreed for me to ignore what Dr.StickHisNoseIntoOtherDoctor'sBusiness (the one who supposed to be only covering my catheter) had said. He would personally talk with Dr. Stick and get things straightened out. This Dr. Stick not only wanted me to cut WAY back on what Dr. Gentlesoul had so carefully prescribed, he also wanted me to start taking one of the meds that I had been told that I could absolutley no longer take, and in fact had just been weaned off of, because of the mysotis. Freaking turf issues and it has the potential of messing with my body and livelihood. Just fed up. Have enough to deal with here without dealing with this garbage. Like you, I'm going back to bed. Everyone, please understand, I am not giving up. I'm just really frustrated, scared, and incredibly tired. I hurt all over from the rebound of the myositis, feel drugged from the meds, and can't see worth SUGAR. As much as I would like to be, I just don't have the energy to be there for anyone else right now and I hate that. I've always sworn that I wouldn't let anything kick my butt and ti appears, only temporarily I hope, that it's doing exactly that. So one note for all and one that it is focused fully on me and my "issues," nonetheless is sent with great love and appreciation for all of you. I mean that from the bottom of my heart. God, I hope the kids at work are okay. BarbaraJoAnn & Russ Ford wrote: I know this does not come as a surprise to you but just think all is so darn stinky and needs to finally resolved for you mental state a well as physical well being Will let you rest, just please open up the door of your heart enough for you to allow yourself the help of those who so love you. You know shutting down will not help you but understand you need to talk and talk somemore. hugs my friend JoAnn s Momma Re: All To all: Thanks for your supportive notes. The appointment that I had on Tues was just one of many where one soc contradicted what another doc was prescribing. In this case, though, if I went with what the cath doc said it would screw things up big time besides going against the other doc (who is in the same office and supposed to be the one doing my meds). Given that I only have a short time to get the meds squared away before the driving eval and before I run about of benefit time from work and will have go on no salary, I can't afford a week of things putting me backward on the meds. Just wish they'd put their heads together instead of up their butts. Craziness and I feel like garbage. I'm just needing some quiet time for myself and so will be laying low. Thanks, though. I'll be ok and will pop in when feeling a little better. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Barbara, I am so sorry that you are having so much trouble with the meds, drs, cath and pain. You have always been so supportive to all of us...let us support you now...Vent all you want...sometimes it helps more then you think. I know how frustrating this all must be for you...Hopefully it will all fall into place...but it might take time. I know I am not a patient person when it comes to all this myself...but I am learning to be. Hugs...Ginny__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Barbara, I am so sorry that you are having so much trouble with the meds, drs, cath and pain. You have always been so supportive to all of us...let us support you now...Vent all you want...sometimes it helps more then you think. I know how frustrating this all must be for you...Hopefully it will all fall into place...but it might take time. I know I am not a patient person when it comes to all this myself...but I am learning to be. Hugs...Ginny__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Barbara, I am so sorry that you are having so much trouble with the meds, drs, cath and pain. You have always been so supportive to all of us...let us support you now...Vent all you want...sometimes it helps more then you think. I know how frustrating this all must be for you...Hopefully it will all fall into place...but it might take time. I know I am not a patient person when it comes to all this myself...but I am learning to be. Hugs...Ginny__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Everyone, please understand, I am not giving up. I'm just really frustrated, scared, and incredibly tired. I hurt all over from the rebound of the myositis, feel drugged from the meds, and can't see worth SUGAR. As much as I would like to be, I just don't have the energy to be there for anyone else right now and I hate that. I've always sworn that I wouldn't let anything kick my butt and ti appears, only temporarily I hope, that it's doing exactly that. So one note for all and one that it is focused fully on me and my "issues," nonetheless is sent with great love and appreciation for all of you. I mean that from the bottom of my heart. God, I hope the kids at work are okay. Barbara Barbara, I just want you to know that you have been so much help to all of us.I want to tell you to lean back and take care of your needs for a while. Please just concentrate on getting yourself better. I will keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Everyone, please understand, I am not giving up. I'm just really frustrated, scared, and incredibly tired. I hurt all over from the rebound of the myositis, feel drugged from the meds, and can't see worth SUGAR. As much as I would like to be, I just don't have the energy to be there for anyone else right now and I hate that. I've always sworn that I wouldn't let anything kick my butt and ti appears, only temporarily I hope, that it's doing exactly that. So one note for all and one that it is focused fully on me and my "issues," nonetheless is sent with great love and appreciation for all of you. I mean that from the bottom of my heart. God, I hope the kids at work are okay. Barbara Barbara, I just want you to know that you have been so much help to all of us.I want to tell you to lean back and take care of your needs for a while. Please just concentrate on getting yourself better. I will keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Everyone, please understand, I am not giving up. I'm just really frustrated, scared, and incredibly tired. I hurt all over from the rebound of the myositis, feel drugged from the meds, and can't see worth SUGAR. As much as I would like to be, I just don't have the energy to be there for anyone else right now and I hate that. I've always sworn that I wouldn't let anything kick my butt and ti appears, only temporarily I hope, that it's doing exactly that. So one note for all and one that it is focused fully on me and my "issues," nonetheless is sent with great love and appreciation for all of you. I mean that from the bottom of my heart. God, I hope the kids at work are okay. Barbara Barbara, I just want you to know that you have been so much help to all of us.I want to tell you to lean back and take care of your needs for a while. Please just concentrate on getting yourself better. I will keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Given that I only have a short time to get the meds squared away before the driving eval and before I run about of benefit time from work and will have go on no salary, I can't afford a week of things putting me backward on the meds. Just wish they'd put their heads together instead of up their butts. Craziness and I feel like garbage. I'm just needing some quiet time for myself and so will be laying low. Thanks, though. I'll be ok and will pop in when feeling a little better. Barbara Barbara, Just to let you know that I will be praying for you. Now get some rest and don't worry we will try not to bother you too much, just know that we are here for you. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Given that I only have a short time to get the meds squared away before the driving eval and before I run about of benefit time from work and will have go on no salary, I can't afford a week of things putting me backward on the meds. Just wish they'd put their heads together instead of up their butts. Craziness and I feel like garbage. I'm just needing some quiet time for myself and so will be laying low. Thanks, though. I'll be ok and will pop in when feeling a little better. Barbara Barbara, Just to let you know that I will be praying for you. Now get some rest and don't worry we will try not to bother you too much, just know that we are here for you. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Barbara I know you're having a difficult time right now and I'm so sorry to hear that your feeling so low. Please know that you are in my thoughts and hope that the days ahead will be brighter. You've been an inspiration to many here on the boards and everyone here is pulling for you and keeping you in their prayers. love and gentle hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Barbara I know you're having a difficult time right now and I'm so sorry to hear that your feeling so low. Please know that you are in my thoughts and hope that the days ahead will be brighter. You've been an inspiration to many here on the boards and everyone here is pulling for you and keeping you in their prayers. love and gentle hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Barbara, Right now do not worry about giving us support, just take care of you, and let us give you support for a change. Please know that you are in my thoughts and prayers and want to see you get some rest so that you do feel better soon! Take Care and if you need anything, please do not hesitate to write and ask. LOL Always! Dawn wrote: Everyone, please understand, I am not giving up. I'm just really frustrated, scared, and incredibly tired. I hurt all over from the rebound of the myositis, feel drugged from the meds, and can't see worth SUGAR. As much as I would like to be, I just don't have the energy to be there for anyone else right now and I hate that. I've always sworn that I wouldn't let anything kick my butt and ti appears, only temporarily I hope, that it's doing exactly that. So one note for all and one that it is focused fully on me and my "issues," nonetheless is sent with great love and appreciation for all of you. I mean that from the bottom of my heart. God, I hope the kids at work are okay. Barbara Barbara, I just want you to know that you have been so much help to all of us.I want to tell you to lean back and take care of your needs for a while. Please just concentrate on getting yourself better. I will keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Barbara, Right now do not worry about giving us support, just take care of you, and let us give you support for a change. Please know that you are in my thoughts and prayers and want to see you get some rest so that you do feel better soon! Take Care and if you need anything, please do not hesitate to write and ask. LOL Always! Dawn wrote: Everyone, please understand, I am not giving up. I'm just really frustrated, scared, and incredibly tired. I hurt all over from the rebound of the myositis, feel drugged from the meds, and can't see worth SUGAR. As much as I would like to be, I just don't have the energy to be there for anyone else right now and I hate that. I've always sworn that I wouldn't let anything kick my butt and ti appears, only temporarily I hope, that it's doing exactly that. So one note for all and one that it is focused fully on me and my "issues," nonetheless is sent with great love and appreciation for all of you. I mean that from the bottom of my heart. God, I hope the kids at work are okay. Barbara Barbara, I just want you to know that you have been so much help to all of us.I want to tell you to lean back and take care of your needs for a while. Please just concentrate on getting yourself better. I will keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Barbara, Right now do not worry about giving us support, just take care of you, and let us give you support for a change. Please know that you are in my thoughts and prayers and want to see you get some rest so that you do feel better soon! Take Care and if you need anything, please do not hesitate to write and ask. LOL Always! Dawn wrote: Everyone, please understand, I am not giving up. I'm just really frustrated, scared, and incredibly tired. I hurt all over from the rebound of the myositis, feel drugged from the meds, and can't see worth SUGAR. As much as I would like to be, I just don't have the energy to be there for anyone else right now and I hate that. I've always sworn that I wouldn't let anything kick my butt and ti appears, only temporarily I hope, that it's doing exactly that. So one note for all and one that it is focused fully on me and my "issues," nonetheless is sent with great love and appreciation for all of you. I mean that from the bottom of my heart. God, I hope the kids at work are okay. Barbara Barbara, I just want you to know that you have been so much help to all of us.I want to tell you to lean back and take care of your needs for a while. Please just concentrate on getting yourself better. I will keep you in my prayers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Thanks to everyone. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Thanks to everyone. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Thanks to everyone. Barbara Quote Link to comment Share on other sites More sharing options...
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