Guest guest Posted March 11, 2003 Report Share Posted March 11, 2003 Wellcome & Jim This is definetely the place to post about 'Hal puts on his own socks for the very first time!!!!' or 'Hal actually ate a PICKLE' You can cheer, vent and cry here. It is a great group. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: Garbe Enviado el: Martes, 11 de Marzo de 2003 06:56 p.m. Para: Parenting_Autism Asunto: New Member Hi everyone, We are new to this group, so would like to introduce ourselves. We have 2 Autistic Kids, Hal 4.75 years, and Juli 2.5 years. Both kids are non-verbal, and go to preschool and have home therapy as well. We are also GFCF. We live in upstate NY, in a semi-rural area and are a bit socially isolated. We moved here right before Hal was born, and have had a hard time making friends, first we were busy with work and baby stuff....and then Autism stuff. I was diagnosed with Mono last summer, and am having a really slow recovery. My Doctor has told me that without a full nights sleep on a regular basis I may never get back to normal. (Juli has just started sleeping regularly, but after almost 5 years of being up every night I am still waking up automatically). We have found a great helper, Carina, who came from Sweden to be our Au-Pair, see America, and get experience working with AS kids. I think I would be in the hospital now without her! As our kids get bigger it seems we have less and less in common with our friends 'normal' families. They try, but don't really understand what we are dealing with. We have a few friends in the area with Autistic kids that we get together with every month or two for brunch, but that's about it. It was so nice last month to be able to announce to all are friends that Hal had finally become a 'Big Boy' by initiating peeing in the toilet for the first time! We even sent an e-mail to the White House! ( the 'auto-reply' we got was absolutely hilarious in context with our message; " the President is very interested... " ) We got so many positive responses from all our friends and list-mates. Up until that point I'm not sure that we had realized how wonderful it was to get support from people who REALLY, REALLY, understood how big a deal it was. Since then Hal has made some more advances, and Juli too, and it has been hard not to post these on our other Autism groups, but we didn't feel it was appropriate to post 'Hal puts on his own socks for the very first time!!!!' or 'Hal actually ate a PICKLE' on the Verbal behavior group, or DTT-NET, etc. After reviewing a few days of your posts it looks a good place to do this. - & Jim PS: how does " chat " work? I have never done it. If someone could e-mail me privately to explain I would appreciate it. PPS: for Amy. Friends of ours who have a AS son also named Noah, who was also diagnosed Bi-polar this year, have already reported vast improvements with PROPER meds in PROPER doses!!! It was such a relief for them to finally be able to do something for their Noah. We all know how devastating it is to get a serious diagnoses for our children, but don't forget that now that you know, there are more things you can do to help him. If you like, I will contact them on your behalf, they were able to see a very knowledgeable Doctor who is involved in the latest research, etc. They are at least 1 month ahead of you. Also Yahoo groups has a PDD-BPkids group, I saw it listed when I was looking for parenting groups (there are 851 Autism support groups at yahoo!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 ~ How many autistic kids do you have in the house? I know of one for sure here, I suspect three more. Now I am wondering what the record here is. Do we need a poll? Georga Hackworth Men. Can't live with 'em...can't trade 'em in for their weight in chocolate. Enter to win $50 worth of free books http://www.ubah.com/F1549 Re: New Member > > How wonderful that you found and Au-Pair that wanted to work with > autistic > > children!! Think she'd be interested in vacationing in the > Northwest with > > ? She could get lot's of experience there, right ? > Watch for > > 's welcome post and you'll understand what I mean. > > Sue!! Georga's house has to be as busy as mine. She has two more > kids than I do, I have more auties, so it's got to be about even. > What about Salli? She has five too and she's doing this job alone. > She needs more of her even more than I do. At least I can take turns > getting a nap when is home. I will however be the first one to > sign up for sleep relief, well, right behind Sara, and Georga and > frankly way too many of us. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Hi and Jim, welcome to the list! Tuna ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 > > Social isolation is a common problem among us - - > > Who said anything about not having a life? Hmm??? I have over 200 > friends I can talk to anytime I want, and they GET IT! I just have > to go online and there you guys are. :-) Very true. Sorry, I was writing too late at night again. (rather like tonight so I'm liable to make another mistake.) I meant face-to-face social situations. I can clear a room just by whispering the word autism. Actually it's quite fun sometimes to watch people's eyes glaze over. > And if I want someone to leave me alone all I have to do is mention my kids or writing. Though I haven't quite figured out why writing makes them run as fast as autism. Maybe they're afraid I'll ask them to read some of my work. >:] Tina *who needs to go to bed but has insomnia for some reason and DOESN'T Want it because all the kids are asleep.* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 > Sorry, I was writing too late at night again. (rather like tonight so > I'm liable to make another mistake.) Not at all. I have no social life at all, except for here. > > I meant face-to-face social situations. I can clear a room just by > whispering the word autism. Actually it's quite fun sometimes to > watch people's eyes glaze over. > And if I want someone to leave > me alone all I have to do is mention my kids or writing. Though I > haven't quite figured out why writing makes them run as fast as > autism. Maybe they're afraid I'll ask them to read some of my work. > >:] > LOL. Seriously, I have no social life. I go to school, doctor's, therapists, the pharmacy, which is conveniently at the grocery store, and with careful coordination to church, or the post office. Anything else is a rare event. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 --- In parenting_autism , " egcjssmom " > LOL. Seriously, I have no social life. I go to school, doctor's, > therapists, the pharmacy, which is conveniently at the grocery store, and with careful coordination to church, or the post office. > Anything else is a rare event. > That sounds very much like my life. Except I go to the post office simply because I work there. : / My boss was riding along on my route today (annual audit to see if they can cut my pay anymore) and I shut her up twice. Once by mentioning the word autism, once by telling her I write. Made the drive Much quieter. >:] Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Seriously, I have no social life. I go to school, doctor's, > > therapists, the pharmacy, which is conveniently at the grocery > store, and with careful coordination to church, or the post office. > > Anything else is a rare event. > > > > That sounds very much like my life. Except I go to the post office > simply because I work there. : / People do not believe me or really understand when I tell them that I do NOT take those boys out in public alone, unless it is something like school and doctor's. I do NOT take them out in public alone. It isn't worth the aggravation. > > My boss was riding along on my route today (annual audit to see if > they can cut my pay anymore) and I shut her up twice. Once by > mentioning the word autism, once by telling her I write. Made the > drive Much quieter. >:] Good thinking!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 > People do not believe me or really understand when I tell them that I do NOT take those boys out in public alone, unless it is something like school and doctor's. I do NOT take them out in public alone. > It isn't worth the aggravation. If I had as many kids as you I doubt I'd go out in public very often either. Even if they were all NT. It's definitely easier with fewer kids. Plus until hit about 7 years old she wasn't that difficult in public. She's not bad now but from 7 to 9 I didn't take her out at all. She had too many meltdowns if she didn't get to buy something. has always loved to shop. I don't know why with some of his sensitivities but he enjoys it. I'm very thankful, it makes grocery shopping much less painful. (I'm the one who hates to shop.) Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 I won't take the kids out in public without my husband. My latest experiment has been when we go grocery shopping, is that one of them gets to go in the store with me, rest of them get to sit in the car with Dad. Sometimes it goes well, somtimes it goes bad, like the last time that Savannah went in the grocery store with me. I was ready to strangle her. We needed quite a few thing to make it to our normal grocery day. The store that we go to for those sort of things, somehow has a shortage of carts. No idea why. Went in there, there were no carts and no hand baskets available. Told Savannah we had to carry everything. I went to hand something to Savannah to carry and she wouldn't take it. Told her she wasn't going to go back in the store with me since she couldn't be helpful. Ended up not getting half of what we needed because she wouldn't carry anything. Georga Hackworth Men. Can't live with 'em...can't trade 'em in for their weight in chocolate. Enter to win $50 worth of free books http://www.ubah.com/F1549 Re: New Member > Seriously, I have no social life. I go to school, doctor's, > > > therapists, the pharmacy, which is conveniently at the grocery > > store, and with careful coordination to church, or the post > office. > > > Anything else is a rare event. > > > > > > > That sounds very much like my life. Except I go to the post office > > simply because I work there. : / > > People do not believe me or really understand when I tell them that I > do NOT take those boys out in public alone, unless it is something > like school and doctor's. I do NOT take them out in public alone. > It isn't worth the aggravation. > > > > My boss was riding along on my route today (annual audit to see if > > they can cut my pay anymore) and I shut her up twice. Once by > > mentioning the word autism, once by telling her I write. Made the > > drive Much quieter. >:] > > Good thinking!! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 >>>>>>>>>>>>> I can clear a room just by whispering the word autism. >>>>>>>>>>>>> Oh yeah. All I have to do to kill a conversation is to mention any similarites between my ASD child and someone's NT child. Someone told me I talk about too much and I said " He's my son, I'll talk about him whenever I want. " So I don't chat much with other moms. I do have some good friends here tho, mostly through work. And a couple of them have worked as aides for autistic kids so they get it, most of the time. Tuna ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 > Someone told me I talk about > too much and I said " He's my son, I'll talk > about him whenever I want. " So I don't chat much with > other moms. Exactly! I'm not supposed to talk about my kids because other people think I should be ashamed of them?? That's the impression I get. I should be ashamed for making all the parents of NT kids feel uncomfortable. >:[ My kids aren't " normal " so I should hide them away and pretend I don't have any. Not going to happen. If someone doesn't like my being open and honest about my kids and celebrating their achievements (no matter how minor they might look to NT parents) then they don't have to have conversations with me. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 Did you ever think you'd be asking that question? lol Penny Re: Re: New Member ~ How many autistic kids do you have in the house? I know of one for sure here, I suspect three more. Now I am wondering what the record here is. Do we need a poll? Georga Hackworth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 Nope. But I don't think that we can put it on the parenting phrases list of things we thought we would never say. Georga Hackworth Men. Can't live with 'em...can't trade 'em in for their weight in chocolate. Enter to win $50 worth of free books http://www.ubah.com/F1549 Re: Re: New Member > > > ~ > How many autistic kids do you have in the house? I know of one for sure > here, I suspect three more. > Now I am wondering what the record here is. Do we need a poll? > > Georga Hackworth > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.