Re:

[Guest guest]

T,

Thank you for sharing your story with us. I am glad to hear you feel like you

are starting to heal some. I know this group helped me feel better about ttc

and my future more than I could ever say. The minute I started reading the

posts I felt so much relief, just knowing that everything I was feeling was

normal and ok. I can't believe that you went through all that in the hospital

and that no one would listen to you. I am so glad you found us and I hope you

continue to post. M

Throssell susan.throssell@...> wrote: hi, i have loads of

emails and i cannot believe how differently i feel

today. i don't feel alone anymore, i have carried this alone for a year and

now i don't have to. everyone has been so kind sharing their stories and so

now, for the first time since it hapened i would like to share mine.

august 2000 i went on holiday with my mum and stepdad and my son. i had just

started taking the contraceptive pill and while i was on holiday i had my

first period. (oh i'm from the uk by the way so hope you can understand my

terminology.) i was in alot of agony and had to spend the day in bed, i

thought it was sun stroke as i had been out the whole day before in the sun.

that was that, when i got back i had a feeling i was pregnant, bloated

stomach etc but put it down to being on the pill and forgot about it. by the

time my next period came, i was two days early and the pain was absolutely

incredible. i've had bad pains before but this was something different, i

couldn't even stand up, i went to the hospital and the doctor there told me

i had cystitis, i was crying telling him i knew it wasn't that, i told him

exactly what the pain was like and he said it was just a urinary infection.

i knew he was wrong, i couldn't even leave the hospital because i couldn't

walk, i had to go and stay with my dad for him to look after my son, he was

very worried about me as i was crying out in pain. anyway, the next day i

felt better!! bit embarassed at acting like a baby over period pains!! that

was on the sunday, by the wednesday night i was in agony again, all through

the night i had to keep getting up to empty my bowels, i couldn't even stand

without blacking out, i had to crawl to the bathroom, i rang the emergency

doctors number and was told because it didn't hurt when i pressed my stomach

i wasn't an emergency! i felt abit daft and so tried to get some sleep. by

the morning i had spoken to my mum and she had told me to ring the doctors,

my brother did and i was told i probabally had food poisening?!!! but i knew

it wasnt that and by this time i knew something was horribly wrong, i was as

white as a sheet and had to crawl to the car to be driven to the hospital,

by that stage i didn't care what was wrong i just wanted to be looked after.

when i got to accident and emergency i was seen by a doctor, i now know i

had every single symptom of an ep and yet noone thought of it, im kinda

angry about the fact they didn't know what was wrong. i was told i needed a

blood transfusion because i'd lost 4 pints of blood due to a heavy period,

they weren't listening to me, it wasn't heavy, it had lasted for a bit

longer but it wasn't heavy. i was admitted and given pethadine so by now

the pain had gone, luckily for me there were no beds on the general ward in

the hospital and so i was sent to the gynacalogical ward where it is routine

to do a pregnancy test.

the student nurse came in and told me i was pregnant and for 5 glorious

minutes i was pregnant. i was scared, thought my dad would be mad at me

getting pregnant again, but i didn't care, i really wanted this baby. then

the doctor came in and said because i was bleeding they needed to do a scan

to check the baby was ok, still noone thought it was an ep, it was just like

they weren't listening to me. when they gave me the scan i will never forget

the doctor saying, " there is no baby in your womb " . i didn't understand what

she meant, my first thought was that the pregnancy test was wrong and i was

gutted. she then said there was a shadow in one of my tubes and went on to

say i would have to go down to surgery and take my baby out.

i went down within half an hour, i was abit dazed it all hapened so quickly,

i didn't know what an ep was and certainly didn't know how dangerous it was,

the nurse hugged me before i went into theatre and said " thank you susan for

coming to hospital with wind " as thats what i thought it was.

they took out my left tube and my baby, i thought you could save the baby

but noone told me you couldn't. then for the next year i got better. it

wasnt until last week when my new boyfriend asked me if i wanted to have any

more children which coincided with horrendous pain from my period that i

realised how terrified and sad i have been about the whole experience. and

then i looked on the internet and today i feel like i am starting my

recovery for real.

thanks for letting me say all that

susan

xxxx

[Guest guest]

,

welcome to the road to recovery!!!! Im sorry for all that happened and

especially for stupid medical personel!!! I luckily had a medical background

and unfortunately knew too well what was happening when I was told it was

ectopic, I honestly believe no matter how much medical knowledge a person

has....they have NO CLUE until they go through it!!! But that does not excuse

them for not listeneing when someone says something is wrong!!! anyhow!!!

I am so glad you are here and we can all call each other friend and know that we

all understand each others pain, fear and anxieties!!!

Love Ya laura T

aka laurfie

Re:

hi, i have loads of emails and i cannot believe how differently i feel

today. i don't feel alone anymore, i have carried this alone for a year and

now i don't have to. everyone has been so kind sharing their stories and so

now, for the first time since it hapened i would like to share mine.

august 2000 i went on holiday with my mum and stepdad and my son. i had just

started taking the contraceptive pill and while i was on holiday i had my

first period. (oh i'm from the uk by the way so hope you can understand my

terminology.) i was in alot of agony and had to spend the day in bed, i

thought it was sun stroke as i had been out the whole day before in the sun.

that was that, when i got back i had a feeling i was pregnant, bloated

stomach etc but put it down to being on the pill and forgot about it. by the

time my next period came, i was two days early and the pain was absolutely

incredible. i've had bad pains before but this was something different, i

couldn't even stand up, i went to the hospital and the doctor there told me

i had cystitis, i was crying telling him i knew it wasn't that, i told him

exactly what the pain was like and he said it was just a urinary infection.

i knew he was wrong, i couldn't even leave the hospital because i couldn't

walk, i had to go and stay with my dad for him to look after my son, he was

very worried about me as i was crying out in pain. anyway, the next day i

felt better!! bit embarassed at acting like a baby over period pains!! that

was on the sunday, by the wednesday night i was in agony again, all through

the night i had to keep getting up to empty my bowels, i couldn't even stand

without blacking out, i had to crawl to the bathroom, i rang the emergency

doctors number and was told because it didn't hurt when i pressed my stomach

i wasn't an emergency! i felt abit daft and so tried to get some sleep. by

the morning i had spoken to my mum and she had told me to ring the doctors,

my brother did and i was told i probabally had food poisening?!!! but i knew

it wasnt that and by this time i knew something was horribly wrong, i was as

white as a sheet and had to crawl to the car to be driven to the hospital,

by that stage i didn't care what was wrong i just wanted to be looked after.

when i got to accident and emergency i was seen by a doctor, i now know i

had every single symptom of an ep and yet noone thought of it, im kinda

angry about the fact they didn't know what was wrong. i was told i needed a

blood transfusion because i'd lost 4 pints of blood due to a heavy period,

they weren't listening to me, it wasn't heavy, it had lasted for a bit

longer but it wasn't heavy. i was admitted and given pethadine so by now

the pain had gone, luckily for me there were no beds on the general ward in

the hospital and so i was sent to the gynacalogical ward where it is routine

to do a pregnancy test.

the student nurse came in and told me i was pregnant and for 5 glorious

minutes i was pregnant. i was scared, thought my dad would be mad at me

getting pregnant again, but i didn't care, i really wanted this baby. then

the doctor came in and said because i was bleeding they needed to do a scan

to check the baby was ok, still noone thought it was an ep, it was just like

they weren't listening to me. when they gave me the scan i will never forget

the doctor saying, " there is no baby in your womb " . i didn't understand what

she meant, my first thought was that the pregnancy test was wrong and i was

gutted. she then said there was a shadow in one of my tubes and went on to

say i would have to go down to surgery and take my baby out.

i went down within half an hour, i was abit dazed it all hapened so quickly,

i didn't know what an ep was and certainly didn't know how dangerous it was,

the nurse hugged me before i went into theatre and said " thank you susan for

coming to hospital with wind " as thats what i thought it was.

they took out my left tube and my baby, i thought you could save the baby

but noone told me you couldn't. then for the next year i got better. it

wasnt until last week when my new boyfriend asked me if i wanted to have any

more children which coincided with horrendous pain from my period that i

realised how terrified and sad i have been about the whole experience. and

then i looked on the internet and today i feel like i am starting my

recovery for real.

thanks for letting me say all that

susan

xxxx

[Guest guest]

Hi ,

Ok let me know when you decide to give her the pan because I will send you my

really hard cast iron one LOL!!! But seriously that is plain awful how your

dr addressed you after your ep. The dr that I was going to at the time I had

my ep(I was under o. induction because I gained alot of weight and wasn't

oing) was nice but he had told me that if I ever had another ep that he was

gonna take my remaining tube whether or not the ep was caught in time plus

after my ep I had a million questions but he seemed like I should just get on

with trying again and forget about wanting to know the answers to my

questions. He scared me so much that I cried all night after the appointment

and I felt in my heart that it was time to find another dr and I ended going

to one of my cousin's RE who did a reversal tubal ligation on her and it was

the best thing or I should say the most kindest thing I ever did for myself

because he is wonderful. Maybe your dr was having a bad day when she said

those things, but IF it is all the time she is a big ole crab than maybe you

can look for another dr who is eager to answer your questions as well as help

you get the family that your dreaming about.

I also think some of those technicians are monsters. When I was under o.

induction there was two technicians that I would go to to monitor my

follicles(I had to go to another office for the u/s)and one lady was a

doll she was so nice and so gentle BUT the other one was horrid.

Everytime did my u/s not to be gross but she would like ram the vaginal

probe in me and sometimes it would bring tears to my eyes and I would be

wobbly trying to walk after the u/s was over so one day I told the other girl

how is and she was telling me there were several complaints about

's mannerism so pulled her aside one day and told her that she had

to be gentle and 's reply was(she tried for 2 years finally getting pg

with an ep and went on to IVF which resulted in the birth of her twin

sons)that she was on the other end herself one time and since noone had

sympathy for her she couldn't " muster " any sympathy for the ones that are

currently under infertility treatments. told me after told her

that she had instant hate for her. Some of these technicians aren't worth

the sh** in space that they take up I mean sorry to say that but it is true.

So I think that technician that did your u/s needs the pan too LOL!!!!

Well I hope that you did have a better day and you know I have you in my

thoughts and prayers. I know that everything is gonna work out for you just

keep your chin up as best you can. Please take care.

(((((((HUGS)))))))

Love

Sheila

[Guest guest]

Hi ,

I want to welcome you to the group and tell you how sorry I am for your loss.

I know you mentioned something about having 2 ovaries and 1 tube and being

able to get pg. According to what my RE told me you ONLY need 1 healthy

tube. I know there are some on the board who have ovualted from the ovary

opposite the side with the tube and they have gotten pg. So I now know that

there is the chance to get pg every month not every other and when I

" officially " start ttc again it will be every month. Do you use any thing to

help you know when your oing? If not maybe you can try that and see what

happens. Please take care.

Love

Sheila

[Guest guest]

Hi Sheila. Thank you so much for your concern and the information. Noone,

including the drs will give me a straight answer in regards to ovulating

every month or every other. I have been TTC since Oct 2000 and nothing yet.

I just switched drs and I am checking my basal temp every morning since

Sept. I think the worst part is when aunt flow visits (I do like that

expression!!) It really depresses me for a couple of days and it takes alot

of effort to snap out of it. My boyfriend is supportive but I think he is

getting furstrated himself. He wants me to tell the dr to put me on

fertility drugs but I still want to try the natural route ( it worked once).

Anyway, enough babbling, I just want to thank you and the rest of the group

for your support and hopefully we can all help each other through our

experiences.

KAREN CALHOUN

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Hi ,

I want to welcome you to the group and tell you how sorry I am for your

loss.

I know you mentioned something about having 2 ovaries and 1 tube and being

able to get pg. According to what my RE told me you ONLY need 1 healthy

tube. I know there are some on the board who have ovualted from the ovary

opposite the side with the tube and they have gotten pg. So I now know that

there is the chance to get pg every month not every other and when I

" officially " start ttc again it will be every month. Do you use any thing

to

help you know when your oing? If not maybe you can try that and see what

happens. Please take care.

Love

Sheila

[Guest guest]

No, you won't be the same. I don't know how you'll feel after the initial

phases of treatment are over--the pre-op diagnosis, the surgery (or surgeries,

in my case and many others'!), being hypo, having RAI, the doctor's visits and

bloodwork and medication and any medication adjustments that have to be made and

then (probably) going hypo for the follow-up scan, then having the scan itself

and going back on medication--but I can tell you that I assumed that, with all

my other medical problems, getting that clean scan wouldn't mean all that much.

Well, I was wrong, it means everything! It was exactly two years from the day I

learned I probably had cancer (8/8/01) to the day I was cleared to go back to

work after the scan--I think it was very nearly two years to the minute,

actually--and I feel very, very different now. Absolutely wonderful. And I

still have all the same medical problems I had before...they're just so much

easier to live with now.

Wait and see what happens. You may well feel just as uplifted. Meanwhile, you

still have a life to enjoy! (There's a gift shop in my apt. building, and ever

since that day in August '01 I've been going in there a lot and buying myself

presents. Jewelry, usually. Pretty stuff, not expensive.)

Write me any time you like, OK?

Barbara

[Guest guest]

CONGRATULATIONS! That is a great loss in one week - yay!

Nichole

Clear DayI've really been feeling down lately about losing weight. But I had

decided last week to journal better and exercise more and guess what? I'd lost

3.4 pounds this week. YEA!!!!!!!!

[Guest guest]

I exercise about 6 days a week I usually get in about 3 hours of walking

every other day except when I volunteer and then I get 5. I also do exercise

tapes anywhere from 30 mins to a hour and I do 100 arm curls each way and 100

of

the thigh master