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I had my computer crash and lost many file. I have a letter that had been

posted on the in the past year of a letter to teacher introducing the child and

apraxia. Does any one have a copy of this letter.

Thanks in advance for your help

Lauric

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sometimes I like the new search aspect of -right now

isn't one of them. I can't find it but think I recall it.

I'm curious if Kathy suggested how to write the letter since she is

a teacher and an active mom in this group. Then again like me I

believe she just brings a Late Talker book to the new teacher and

that kind of sums it up (except she signs my name inside the book so

they will know how great friends we are)...Kathy you there to

comment? So far this is what I found on letters (from Kathy and a

few others)

Altoonakenton@...

Great Letter! Don't you think if teachers acted as teachers that

most of the

problems we have would be solved or at least not as bad? I am a

teacher so I

feel I can comment....and I am not talking about all teachers--just

the ones

that should be working in front of a computer not with children!!

The whole

point of being a teacher is supposed to be to teach and get the

child to " get "

the material...so without having to have an IQ of 200, it only makes

sense that

to have a child succeed you must teach in a way that he/she will

learn...DUH

!!!!!!!!!! It infuriates me when I read stories like yours!!! ...and

before

any teacher replies to my post that if they don't listen to

administration they

will not be rehired, then look for another career! When your

classroom door

closes there are plenty of ways to help a child, even if

administration says

otherwise and plenty of ways to let the parents know what the laws

are like

calling them and suggesting books to purchase or borrow like

's Law and

even if parents cannot read or write, then writing a letter for them

and simply

putting it in an envelope works!!!

OK...I'll stop now....and go and take my ulcer meds....AAHH

kathy nj...I should start writing under a different name LOL

>

> I could write a book on this topic myself. We use to live in

Alaska and for 5 years I struggled to get the school district to

address my son's vision impairment. My son is legally blind, has

nystagmus and has albinism (albino) and I had Teachers of the VI

telling me that she is not providing accommodations to my son

because he does not trip over students or desks. DUH!!!! I wanted

to laugh at her but I realized that she was serious. Another thing

that tops my charts was when the Director of Special Education told

me and I will quote, " A teacher does not have to provide everything

listed in an IEP only what they feel is necessary. " I asked her if

she had lost her mind and then went on to quote parts of the IDEA.

They really had no clue what they were up against until I got angry

because a teacher wrote on my son's report card, " Zackary's main

problem is that he needs to complete his homework and overcome his

vision impairment. " Can you believe that in writing for the world to

> see. Have any of you seen that comedy show with the guy that

wants to pass out the signs that say " stupid " LOL

> In the end I realized that if I was going to win I had to play

their game so I began to play. Here is an example of a a letter

that I sent to everyone at the IEP meeting the day after the

meeting. See below this note.

> I would also like to say that everyone should buy a copy of the

book slaw to Special Education and go through it and highlight

the area's that address your child's situation. I also used sticky

tabs to mark places that I thought that I might need during an IEP

so that I could flip to it and quote.

> One more thing that I heard over and over and over that was dumb

was " That's your interpretation of the law. " LOL Sheri (see below)

>

>

> Subject: Zackary Brown's IEP Meeting

> Date: 05-08-2002

> In Physical Attendance: Mrs. JB…,

Principal

> Mr. P…, Regular Education Teacher

> Mrs. A…, Academic Resource

> Sheri B Mother of Zackary B

> B Father of Zackary B

>

> In Attendance via Teleconference: Ms. M…Special Education

District Office

> Mrs. L…,Guided Independent Study

> Mrs. B…, Vision

Specialist

>

> This meeting was called to address the issues concerning the

implementation of Zackary Brown's IEP from 09-99 - present.

> 1. Ms. M stated that according to Zackary's IEP, Zackary has

been receiving S.P.E.D. services, with resource students that he

was not entitled to receive. She stated that testing would be

necessary to evaluate Zackary for such services. However the

district would continue to provide those services because they are

listed in his IEP.

> After careful review of the laws governing this I determined

that Zackary is eligible for continued services as outlined in his

I.E.P. due to his disability.

> " Special Education " is defined in Section 300.26(a)(1) " As used

in this part, the term special education means specially designed

instruction, at no cost to the parents, to meet the unique needs of

a child with a disability ... "

> Within the federal IDEA regulations services can not remain

exclusive to only certain types of disabilities, but must be

individual to the needs of the child, regardless of the disability

in Section 300.347(a)(3) which states that the IEP must contain any

services, aids, modifications that are necessary for the child to

make adequate progress. Sec. 300.541(B)(1) Criteria for determining

the team may not identify a child as having a specific learning

disability if the severe discrepancy between ability and achievement

is primarily of—A visual, hearing or motor impairment.

> We propose that appropriate cognitive testing be

done as well as academic testing to determine both the cognitive

abilities and the academic level of Zackary. We will approve the

cognitive test called WISC 3. The administrator of this testing

will use interpretation of sub-test that require tracking skills.

We require specific information regarding the length of sessions and

a detailed breakdown of how the sub-testing will be presented to

Zackary. Final approval from both parents is required after we have

received an explanation of testing procedures.

> According to Section 300.532(e) " Tests are selected

and administered so as best to ensure that if a tests is

administered to a child with impaired sensory, manual, or speaking

skills, the test will accurately reflect the child's aptitude or

achievement level or whatever other factors the test purports to

measure, rather than reflecting the child's impaired sensory,

manual, or speaking skills (unless those skills are the factors that

the test purports to measure). Section 300.532(h) " In evaluating

each child with a disability under Sections 300.531-300.536, the

evaluation is sufficiently comprehensive to identify all of the

child's special education and related services needs, whether or not

commonly linked to the disability category in which the child has

been classified. "

> 2. Ms. M stated that proper testing that involved reading

and writing was required to accurately assess Zackary's educational

needs for placement into such programs. And if parental approval

was not provided for such testing services could discontinue.

(Section 300.531) Each public agency shall conduct a full and

individual education; in accordance with Sec. 300.532 and Sec.

300.533, before the initial provision of special education and

related services related to a child with a disability under Part B

of the act. (20 U.S.C. 1414(a) (1))

>

> Sheri and B stated that they didn't feel this was an

accurate assessment of Zackary's cognitive abilities. They will

consent to testing that would access Zackary's visual function.

However, it is inappropriate to test him on his reading abilities

and it is not necessary to determine if Zackary is qualified to

receive these services due to his visual disability.

>

> I understood this to mean that that district is requesting to

assess Zackary's cognitive development through reading and written

material, more accurately accessing the districts inability to

provide the services outlined specifically in Zackary's IEP.

>

> We propose that cognitive testing be done as well as academic

testing to determine both the ability level and the academic level

of Zackary. Providing the information to make the best placement

for Zackary's individual needs. Section 300.532 (e) " Tests are

selected and administered so as best to ensure that if a tests is

administered to a child with impaired sensory, manual, or speaking

skills, the test will accurately reflect the child's aptitude or

achievement level or whatever other factors the test purports to

measure, rather than reflecting the child's impaired sensory,

manual, or speaking skills (unless those skills are the factors that

the test purports to measure). " And Section 300.532(h) " In

evaluating each child with a disability under Sections 300.531-

300.536, the evaluation is sufficiently comprehensive to identify

all of the child's special education and related services needs,

whether or not commonly linked to the disability category in which

the child has been

> classified.

>

> 3. Ms. M asked Mr. P if in his opinion, and appropriate

materials were provided, would Zackary be able to accomplish the

assignments provided to him.

>

> Mr. P replied that he had trouble answering that because there

were times that Zackary was able to accomplish the assignment when

it was provided to him in large enough font, and there were times

that Zackary was provided with a comparably sized font and yet acted

as though he couldn't see to read the materials that were provided.

Mr. P is not qualified to make this determination he has not been

provided with the training that is legally entitled to him. This

training should have been provided as directed in accordance with 20

U.S.C.1453 © (3) (D)(i) Improvement strategies – Each state

improvement plan shall-describe the strategies the state will use to

address the needs identified under subsection (B) including – how

the state will address the identified needs for in-service and pre –

service preparation to ensure that all personnel who work with

children with disabilities (professional and paraprofessional who

provide special education, general education, related services, or

> early intervention services)have the skills and knowledge

necessary to meet the needs of children with disabilities.

Including a description of how – The state will prepare general and

special education personnel with content and knowledge and

collaborative skills needed to meet the needs of children with

disabilities, including how the state will work with other states on

common certification criteria.

>

> Sheri Brown stated that Zackary B is legally blind. And

individuals with legal blindness see better sometimes than others

depending on changes in lighting, fatigue, and complexity of the

task are some of the factors involved. What Mr. P described is

part of his disability.

>

> We understood this to be Ms. M attempting to justify not

providing services outlined in the IEP, and her asking for Mr. P to

provide a " judgment " of Zackary's academic competencies. Which

would not be a fair assessment of Zackary's abilities since he was

not provided the tools necessary that would allow him the

opportunity to be educated in a free and appropriate manner,

according to federal mandate (Public Law 102-119, known as the

Individuals with Disabilities Education Act, Part B (34 CFR Parts

300 and 301 and Appendix C) that all disabled children receive a

free appropriate public education, a school district must provide

special education and related services at no cost to the child or

her/his parents.

>

> 4. Mrs. B stated that she did not have a copy of Zackary's

Functional Vision Evaluation dated 9-29-98 this evaluation was

current through 9-29-02.

> Sheri Brown asked what she used to determine services that were

provided.

> Mrs B stated that she had only information in her file as

provided by the previous vision specialist. Ms. F.

>

> The district prior to the reevaluation date on this evatuation

employed Ms. F and Mrs. B therefore this information should have

been part of Zackary's file. We understand this to mean the P F did

not find the information to be necessary in determination of

services because it was not part of his existing file. And that Ms.

F determined this information not to be of importance to the next

Vision Specialist. And that Mrs. B determined services that were

necessary for Zackary's educational success without evaluating the

formal assessment. An assessment that Ms. M stated was necessary to

evaluate and provide appropriate action. Additionally, Mrs. B was

not aware of all aspects of Zackary's disability she was only

provided with the plan of action. Professionally she did not

evaluate the information necessary make her own determination as to

the specific needs of this child. Mrs. B did not obtain a copy of

this report to better serve Zackary's visual needs and make adequate

> assessment of the individuals needs. Resulting in the needs

acknowledged in the Functional Vision Evaluation not being addressed

even though specific action is provided in the IEP that Mrs. B did

have a copy of but did not properly execute the provisions outlined

in Zack's IEP. 20 U.S.C. 1414 ( c ) ADDITIONAL REQUIREMENTS FOR

EVALUATION AND REEVALUATIONS. Review existing evaluation data. As

part of an initial evaluation (if appropriate) and as part of any

reevaluation under this section, the IEP Team described in

subsection (d) (1) (B) and other qualified professionals, as

appropriate shall – review existing evaluation data on the child

including existing evaluation data and information provided by the

parents.… this is also provided for under (1)Sec. 300.533(a) (1)

Determination of needed evaluation data. - Review existing

evaluation data on the child.

>

> 5. Mr. P stated that he felt that he was accurately

providing the proper size font. As best as he could determine

according to the font sample provided by Ms. B.

>

> We understand this to mean that the proper training was not

provided to the regular education teacher to enable him to

accurately provide services to our son. This is a direct violation

of the " New " Individuals with Disabilities Act, Personal Development

for Staff and Parents of Students with Visual Impairments Position

Statement III, as part of IDEA's " reauthorization, " enacted on June

04, 1997. Copy provided upon request.

>

>

> Sheri Brown asked Mrs. B if she checked with Mr. P to determine

if he had any questions or to see if assistance was needed to modify

materials.

>

> Mrs. B stated that she " assumed " that he didn't need assistance

or have questions because he didn't call her.

>

> We understand this to mean that Mrs. B does not feel that it was

necessary to determine if accurate implementation of the IEP was

being provided to Zackary. And it was not necessary to determine if

Zackary had needs that were not being addressed.

> Sec. 300.555(a) (B) Technical assistance and training activities

Each SEA shall carry out activities to ensure the teachers and

administrators in all public agencies – Are fully informed about

their responsibilities for implementing Sec 300.550; and are

provided with technical assistance and training necessary to assist

them in this efforts (Authority: 20 U.S.C. 1412(a)(5))

>

> This meeting was set to continue on 05-16, 2002 at the District

Office at 9:00 am.

>

> Thank You,

> Brown

> Sheri Brown

>

> Cc: Mrs. JB, Mr. P, Mrs. A, Ms. M, Mrs. L, Mrs.B, Mr. M,

>

>

>

> ---------------------------------

> Brings words and photos together (easily) with

> PhotoMail - it's free and works with .

>

>

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Share on other sites

sometimes I like the new search aspect of -right now

isn't one of them. I can't find it but think I recall it.

I'm curious if Kathy suggested how to write the letter since she is

a teacher and an active mom in this group. Then again like me I

believe she just brings a Late Talker book to the new teacher and

that kind of sums it up (except she signs my name inside the book so

they will know how great friends we are)...Kathy you there to

comment? So far this is what I found on letters (from Kathy and a

few others)

Altoonakenton@...

Great Letter! Don't you think if teachers acted as teachers that

most of the

problems we have would be solved or at least not as bad? I am a

teacher so I

feel I can comment....and I am not talking about all teachers--just

the ones

that should be working in front of a computer not with children!!

The whole

point of being a teacher is supposed to be to teach and get the

child to " get "

the material...so without having to have an IQ of 200, it only makes

sense that

to have a child succeed you must teach in a way that he/she will

learn...DUH

!!!!!!!!!! It infuriates me when I read stories like yours!!! ...and

before

any teacher replies to my post that if they don't listen to

administration they

will not be rehired, then look for another career! When your

classroom door

closes there are plenty of ways to help a child, even if

administration says

otherwise and plenty of ways to let the parents know what the laws

are like

calling them and suggesting books to purchase or borrow like

's Law and

even if parents cannot read or write, then writing a letter for them

and simply

putting it in an envelope works!!!

OK...I'll stop now....and go and take my ulcer meds....AAHH

kathy nj...I should start writing under a different name LOL

>

> I could write a book on this topic myself. We use to live in

Alaska and for 5 years I struggled to get the school district to

address my son's vision impairment. My son is legally blind, has

nystagmus and has albinism (albino) and I had Teachers of the VI

telling me that she is not providing accommodations to my son

because he does not trip over students or desks. DUH!!!! I wanted

to laugh at her but I realized that she was serious. Another thing

that tops my charts was when the Director of Special Education told

me and I will quote, " A teacher does not have to provide everything

listed in an IEP only what they feel is necessary. " I asked her if

she had lost her mind and then went on to quote parts of the IDEA.

They really had no clue what they were up against until I got angry

because a teacher wrote on my son's report card, " Zackary's main

problem is that he needs to complete his homework and overcome his

vision impairment. " Can you believe that in writing for the world to

> see. Have any of you seen that comedy show with the guy that

wants to pass out the signs that say " stupid " LOL

> In the end I realized that if I was going to win I had to play

their game so I began to play. Here is an example of a a letter

that I sent to everyone at the IEP meeting the day after the

meeting. See below this note.

> I would also like to say that everyone should buy a copy of the

book slaw to Special Education and go through it and highlight

the area's that address your child's situation. I also used sticky

tabs to mark places that I thought that I might need during an IEP

so that I could flip to it and quote.

> One more thing that I heard over and over and over that was dumb

was " That's your interpretation of the law. " LOL Sheri (see below)

>

>

> Subject: Zackary Brown's IEP Meeting

> Date: 05-08-2002

> In Physical Attendance: Mrs. JB…,

Principal

> Mr. P…, Regular Education Teacher

> Mrs. A…, Academic Resource

> Sheri B Mother of Zackary B

> B Father of Zackary B

>

> In Attendance via Teleconference: Ms. M…Special Education

District Office

> Mrs. L…,Guided Independent Study

> Mrs. B…, Vision

Specialist

>

> This meeting was called to address the issues concerning the

implementation of Zackary Brown's IEP from 09-99 - present.

> 1. Ms. M stated that according to Zackary's IEP, Zackary has

been receiving S.P.E.D. services, with resource students that he

was not entitled to receive. She stated that testing would be

necessary to evaluate Zackary for such services. However the

district would continue to provide those services because they are

listed in his IEP.

> After careful review of the laws governing this I determined

that Zackary is eligible for continued services as outlined in his

I.E.P. due to his disability.

> " Special Education " is defined in Section 300.26(a)(1) " As used

in this part, the term special education means specially designed

instruction, at no cost to the parents, to meet the unique needs of

a child with a disability ... "

> Within the federal IDEA regulations services can not remain

exclusive to only certain types of disabilities, but must be

individual to the needs of the child, regardless of the disability

in Section 300.347(a)(3) which states that the IEP must contain any

services, aids, modifications that are necessary for the child to

make adequate progress. Sec. 300.541(B)(1) Criteria for determining

the team may not identify a child as having a specific learning

disability if the severe discrepancy between ability and achievement

is primarily of—A visual, hearing or motor impairment.

> We propose that appropriate cognitive testing be

done as well as academic testing to determine both the cognitive

abilities and the academic level of Zackary. We will approve the

cognitive test called WISC 3. The administrator of this testing

will use interpretation of sub-test that require tracking skills.

We require specific information regarding the length of sessions and

a detailed breakdown of how the sub-testing will be presented to

Zackary. Final approval from both parents is required after we have

received an explanation of testing procedures.

> According to Section 300.532(e) " Tests are selected

and administered so as best to ensure that if a tests is

administered to a child with impaired sensory, manual, or speaking

skills, the test will accurately reflect the child's aptitude or

achievement level or whatever other factors the test purports to

measure, rather than reflecting the child's impaired sensory,

manual, or speaking skills (unless those skills are the factors that

the test purports to measure). Section 300.532(h) " In evaluating

each child with a disability under Sections 300.531-300.536, the

evaluation is sufficiently comprehensive to identify all of the

child's special education and related services needs, whether or not

commonly linked to the disability category in which the child has

been classified. "

> 2. Ms. M stated that proper testing that involved reading

and writing was required to accurately assess Zackary's educational

needs for placement into such programs. And if parental approval

was not provided for such testing services could discontinue.

(Section 300.531) Each public agency shall conduct a full and

individual education; in accordance with Sec. 300.532 and Sec.

300.533, before the initial provision of special education and

related services related to a child with a disability under Part B

of the act. (20 U.S.C. 1414(a) (1))

>

> Sheri and B stated that they didn't feel this was an

accurate assessment of Zackary's cognitive abilities. They will

consent to testing that would access Zackary's visual function.

However, it is inappropriate to test him on his reading abilities

and it is not necessary to determine if Zackary is qualified to

receive these services due to his visual disability.

>

> I understood this to mean that that district is requesting to

assess Zackary's cognitive development through reading and written

material, more accurately accessing the districts inability to

provide the services outlined specifically in Zackary's IEP.

>

> We propose that cognitive testing be done as well as academic

testing to determine both the ability level and the academic level

of Zackary. Providing the information to make the best placement

for Zackary's individual needs. Section 300.532 (e) " Tests are

selected and administered so as best to ensure that if a tests is

administered to a child with impaired sensory, manual, or speaking

skills, the test will accurately reflect the child's aptitude or

achievement level or whatever other factors the test purports to

measure, rather than reflecting the child's impaired sensory,

manual, or speaking skills (unless those skills are the factors that

the test purports to measure). " And Section 300.532(h) " In

evaluating each child with a disability under Sections 300.531-

300.536, the evaluation is sufficiently comprehensive to identify

all of the child's special education and related services needs,

whether or not commonly linked to the disability category in which

the child has been

> classified.

>

> 3. Ms. M asked Mr. P if in his opinion, and appropriate

materials were provided, would Zackary be able to accomplish the

assignments provided to him.

>

> Mr. P replied that he had trouble answering that because there

were times that Zackary was able to accomplish the assignment when

it was provided to him in large enough font, and there were times

that Zackary was provided with a comparably sized font and yet acted

as though he couldn't see to read the materials that were provided.

Mr. P is not qualified to make this determination he has not been

provided with the training that is legally entitled to him. This

training should have been provided as directed in accordance with 20

U.S.C.1453 © (3) (D)(i) Improvement strategies – Each state

improvement plan shall-describe the strategies the state will use to

address the needs identified under subsection (B) including – how

the state will address the identified needs for in-service and pre –

service preparation to ensure that all personnel who work with

children with disabilities (professional and paraprofessional who

provide special education, general education, related services, or

> early intervention services)have the skills and knowledge

necessary to meet the needs of children with disabilities.

Including a description of how – The state will prepare general and

special education personnel with content and knowledge and

collaborative skills needed to meet the needs of children with

disabilities, including how the state will work with other states on

common certification criteria.

>

> Sheri Brown stated that Zackary B is legally blind. And

individuals with legal blindness see better sometimes than others

depending on changes in lighting, fatigue, and complexity of the

task are some of the factors involved. What Mr. P described is

part of his disability.

>

> We understood this to be Ms. M attempting to justify not

providing services outlined in the IEP, and her asking for Mr. P to

provide a " judgment " of Zackary's academic competencies. Which

would not be a fair assessment of Zackary's abilities since he was

not provided the tools necessary that would allow him the

opportunity to be educated in a free and appropriate manner,

according to federal mandate (Public Law 102-119, known as the

Individuals with Disabilities Education Act, Part B (34 CFR Parts

300 and 301 and Appendix C) that all disabled children receive a

free appropriate public education, a school district must provide

special education and related services at no cost to the child or

her/his parents.

>

> 4. Mrs. B stated that she did not have a copy of Zackary's

Functional Vision Evaluation dated 9-29-98 this evaluation was

current through 9-29-02.

> Sheri Brown asked what she used to determine services that were

provided.

> Mrs B stated that she had only information in her file as

provided by the previous vision specialist. Ms. F.

>

> The district prior to the reevaluation date on this evatuation

employed Ms. F and Mrs. B therefore this information should have

been part of Zackary's file. We understand this to mean the P F did

not find the information to be necessary in determination of

services because it was not part of his existing file. And that Ms.

F determined this information not to be of importance to the next

Vision Specialist. And that Mrs. B determined services that were

necessary for Zackary's educational success without evaluating the

formal assessment. An assessment that Ms. M stated was necessary to

evaluate and provide appropriate action. Additionally, Mrs. B was

not aware of all aspects of Zackary's disability she was only

provided with the plan of action. Professionally she did not

evaluate the information necessary make her own determination as to

the specific needs of this child. Mrs. B did not obtain a copy of

this report to better serve Zackary's visual needs and make adequate

> assessment of the individuals needs. Resulting in the needs

acknowledged in the Functional Vision Evaluation not being addressed

even though specific action is provided in the IEP that Mrs. B did

have a copy of but did not properly execute the provisions outlined

in Zack's IEP. 20 U.S.C. 1414 ( c ) ADDITIONAL REQUIREMENTS FOR

EVALUATION AND REEVALUATIONS. Review existing evaluation data. As

part of an initial evaluation (if appropriate) and as part of any

reevaluation under this section, the IEP Team described in

subsection (d) (1) (B) and other qualified professionals, as

appropriate shall – review existing evaluation data on the child

including existing evaluation data and information provided by the

parents.… this is also provided for under (1)Sec. 300.533(a) (1)

Determination of needed evaluation data. - Review existing

evaluation data on the child.

>

> 5. Mr. P stated that he felt that he was accurately

providing the proper size font. As best as he could determine

according to the font sample provided by Ms. B.

>

> We understand this to mean that the proper training was not

provided to the regular education teacher to enable him to

accurately provide services to our son. This is a direct violation

of the " New " Individuals with Disabilities Act, Personal Development

for Staff and Parents of Students with Visual Impairments Position

Statement III, as part of IDEA's " reauthorization, " enacted on June

04, 1997. Copy provided upon request.

>

>

> Sheri Brown asked Mrs. B if she checked with Mr. P to determine

if he had any questions or to see if assistance was needed to modify

materials.

>

> Mrs. B stated that she " assumed " that he didn't need assistance

or have questions because he didn't call her.

>

> We understand this to mean that Mrs. B does not feel that it was

necessary to determine if accurate implementation of the IEP was

being provided to Zackary. And it was not necessary to determine if

Zackary had needs that were not being addressed.

> Sec. 300.555(a) (B) Technical assistance and training activities

Each SEA shall carry out activities to ensure the teachers and

administrators in all public agencies – Are fully informed about

their responsibilities for implementing Sec 300.550; and are

provided with technical assistance and training necessary to assist

them in this efforts (Authority: 20 U.S.C. 1412(a)(5))

>

> This meeting was set to continue on 05-16, 2002 at the District

Office at 9:00 am.

>

> Thank You,

> Brown

> Sheri Brown

>

> Cc: Mrs. JB, Mr. P, Mrs. A, Ms. M, Mrs. L, Mrs.B, Mr. M,

>

>

>

> ---------------------------------

> Brings words and photos together (easily) with

> PhotoMail - it's free and works with .

>

>

Link to comment
Share on other sites

>

i googled and found this is it what you were talking about?

Dear teacher,

This year you'll be having my very special child in your class. When

you look at my child, you will see eyes that light up and are full of

life. He or she looks like the other children in your classroom. But

my child has lived with a lot of silence and a great struggle to

communicate. My child has Apraxia of Speech.

Childhood Apraxia of Speech is a speech disorder that is both

difficult to diagnose and challenging to treat. Children with apraxia

know what they want to say the words are in their heads but often the

child is not able to produce the words clearly. For unknown reasons,

children with apraxia have great difficulty planning and producing

the precise, highly refined and specific series of movements of the

tongue, lips, jaw and palate that are necessary for intelligible

speech. As one expert has said, The problem occurs when the brain

tries to tell the muscles what to do -- somehow that message gets

scrambled. It's like trying to watch cable TV stations without the

right descrambler. There is nothing wrong with the TV station, and

nothing wrong with your set. It's just that your set can't read the

signal that the station is sending out. The child's language-learning

task is to figure out how to somehow unscramble the mixed message

her/his brain is sending to her/his muscles.1

Children with apraxia, however, do understand language and speech.

These children are smart! However, others might mistake and misjudge

their unclear speech or quietness as a lack of intelligence. Many

children with apraxia experience a great sense of failure and

frustration in their attempts to communicate. Some children grow

even quieter; others may act out their frustration. Children with

apraxia need the support of teachers and parents.

What you can do

A speech-language pathologist (SLP) needs to help my child learn to

speak with more ease and clarity. It will help my child if you

communicate frequently with the SLP and determine if there are things

that you can do in the classroom to help my child communicate and

practice speech.

Try to create a tension-free and interesting " communication

environment " for my child. Encourage but do not insist he/she try to

speak. Praise his/her attempts at speech, if only for effort. Please

know that sometimes my child might not respond or might respond " I

don't know " as a way to help themselves get out of a difficult

communication challenge.

Be patient. Sometimes the fast pace of others can leave my child out

of the experience although he/she may be able to successfully

communicate if others just offer a bit more time and patience.

Watch for and even create opportunities to help my child make

friends. It can be difficult for a child with apraxia to " break

into " social communication and situations. A supportive and

nurturing teacher can surely help. No child should be lonely and all

children need a friend.

Intervene immediately in any situations that involve bullying or

teasing. Reassure my child that you are his/her supporter and

advocate and that no teasing is acceptable.

Be aware that sometimes children with apraxia are also physically

uncoordinated, making competitive sports or even drawing, cutting,

and other motor tasks difficult. If you notice something, please do

bring it to my attention so we can work together to help my child.

Keep alert for any other signs of learning difficulty. Sometimes

children with apraxia have difficulty learning to read, write, spell

or do math.

Be open to alternative ways my child may need to communicate. Often

sign language, augmentative devices, or pictures can help my child as

a bridge to clear speech, helping us gain insight into his or her

thoughts.

Include me as your partner. I want very much to help my child and to

do everything possible to help him or her. I hope we will always

reach out to communicate and share information with each other for

the benefit of my child.

with appreciation,

>

> I had my computer crash and lost many file. I have a letter that had been

> posted on the in the past year of a letter to teacher introducing the child

and

> apraxia. Does any one have a copy of this letter.

>

> Thanks in advance for your help

>

> Lauric

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Share on other sites

Thanks I don't know if this was the one lost or not -but

if it is may have been a blessing (or a sign) if it was!

Please don't anyone call it childhood apraxia of speech in writing

which is also what CAS stands for in a letter that possibly goes into

your child's permanent file. This is serious. I've been saying

this for years and my son Tanner is now 10 and it horrifies me that

this ridiculous name is still being used. Many of you will remember

my words or warning years from now....when your child is no longer

preschool age and still has some subtle speech impairment ten years

from now or longer. You do NOT want " childhood apraxia of speech "

or CAS on your child's school records or anywhere! Just say NO!

Childhood apraxia of speech is OK for a 3 or even 5 year old child

when the parents are so overwhelmed it's actually a comforting name

because it implies that apraxia is a preschool or just able to be

starting kindergarten age type condition they'll outgrow. But using the

name " childhood apraxia of speech " even with a 7 year old if he's

anything like my son Tanner

http://www.cherab.org/information/familiesrelate/letter.html you're

already starting to push it-and forget it by the time they are

9...and saying it's " childhood apraxia of speech " is absolutely an

insult for anyone in the tweenie years -10-12, and not at all

appropriate and possibly a destructive name for those in their teens

or older...In this group we know there are teens and older with

apraxia -like http://www.cherab.org/news/.html and

Khalid

http://www.cherab.org/information/familiesrelate/success.html -so

just call it what it is -apraxia. And is childhood apraxia of

speech ever a good name -even for a preschool child?! Isn't it

ironic that apraxia is a condition where the longer the utterance

the more difficult to articulate -and yet some genius decides that

giving children with apraxia the Guinness book of world records

longest name ever is a good idea! Hello! Perhaps they are

thinking " once the child can say their diagnosis...they are cured! "

Speech therapy for apraxia consists of teaching the name " childhood

apraxia of speech " starting with the " ch " sound!

I say verbal or oral apraxia here or when talking to therapists -but

when I talk to people like new teachers or neighbors or strangers

who have not a clue what apraxia is anyway -I kept/keep it simple

and just said " apraxia -it's a speech impairment " It's fine if you

want to specify by saying " of speech " after, or " verbal "

and/or " oral " before, but keep in mind most of the kids today with

apraxia 'don't' just have an impairment of speech, most also have

sensory issues, low tone, some motor deficits in the body.... so

unless you want to open a can of worms and write down every

diagnosis your child has and freak the new teacher out -just call it

apraxia and hand them a copy of The Late Talker saying " this may

help you better understand what ny has " . They'll not only read

it and learn from it -but they will thank you and pass it to other

teachers to read. Hurray for your child and hurray for all the

other children from the awareness.

So don't say CAS -say KIS and Keep It Simple!!! For the sake of

the children and their future.

If one didn't want to take the easy and in my opinion better road of

just handing over a copy of The Late Talker book and wanted to write

a letter -childhood apraxia of speech wouldn't be the only thing I'd

take out Is this person kidding with the " Keep alert for any other

signs of learning difficulty. Sometimes children with apraxia have

difficulty learning to read, write, spell or do math " Ahhhhhh!!!!

Talk about setting up a child for failure even before s/he starts!

Tells me right there that letter wasn't written by someone in this

group -in this group we are aware that children with apraxia can be

superior students due to their awesome memories. And I'd take out

the " very special child " right up top too for obvious reasons -very

special child reads " very special needs child "

As far as some of the other suggestions the good ones have come up

in this group as suggestions but again I too recall a specific

letter to new teachers. Perhaps CHERAB VP Cheryl

http://www.cherab.org/about/cheryl.html helped write it....she is

an award winning teacher. (and a quiet member of this group -but

Cheryl let me know!)

=====

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Share on other sites

I had this sample letter in my favorites and thought maybe it would

give you some ideas. This one is a sample letter for ADHD, so you

will have to change some things to fit the apraxia, SID or Hypotonia

symptoms of your child.

Tina

A Letter To My Child's Teacher...

To those who may teach my child:

My child has been diagnosed as having Attention Deficit

Hyperactivity Disorder.

As a parent, I expect my child to behave in an acceptable manner at

school and anywhere else. However, I have had to recognize that

certain behaviors are characteristic of ADHD. I have had to realize

that while some of these behaviors may be inconvenient or

unexpected, they are not unacceptable or " bad " . They are simply

different.

Please keep these differences in mind as you teach my child. Correct

when you must, and please accommodate -or tolerate- when you can.

Please contact me if there are any questions or problems.

Thank you.

Because my child has ADHD, you may expect to see these:

Physical Behaviors

Fidgeting, squirming, or otherwise being in " constant motion " .

Clumsiness

May fall down a lot

Bumping into other students or objects in the classroom

Classroom Behaviors

May not listen to instructions

Will begin work without waiting to hear or read instructions

Trouble staying on task

Poor penmanship

Will lose or misplace papers, pencils and other materials

Will have to be reminded to clean up any work areas that may be used

Will probably be at your desk more often than most students

Will often ask questions which may or may not relate to what you are

discussing

Will give unexpected responses to questions

May well turn in class work, tests, etc. before other children, but

with lower quality than possible

Will occasionally " Hyper focus " on a topic to the point of fixation.

Social Behaviors

Tends to be " bossy " with other children

Tends to object strongly to what is perceived as " unfair " .

Interrupts other's conversations

Intrudes on other's games or activities

Trouble waiting in line

May ignore others or simply walk away during a conversation

Emotional Behaviors

Sudden and sometimes drastic mood swings

Has feelings hurt easily

Easily frustrated

Tends to overreact to correction or criticism

Appearances

May appear disheveled-- even five minutes after being bathed and

dressed. (We TRY, honest!)

Often lost in thought

May " self-talk " with silent lip movements

>

> I had my computer crash and lost many file. I have a letter that

had been

> posted on the in the past year of a letter to teacher introducing

the child and

> apraxia. Does any one have a copy of this letter.

>

> Thanks in advance for your help

>

> Lauric

>

>

>

Link to comment
Share on other sites

I wanted to add also that in the past has mentioned a

communication book. Landon has aproximately 50+ words, but not all of

them you can understand when out of context and some sound very

similiar. Landon will be starting a church program 2 days a week in

September. His teacher isn't always going to know what he is trying

to say so I plan on writing his words and what they sound like in a

tablet as a reference guide for her.

Tina

>

> >

> > I had my computer crash and lost many file. I have a letter that

> had been

> > posted on the in the past year of a letter to teacher introducing

> the child and

> > apraxia. Does any one have a copy of this letter.

> >

> > Thanks in advance for your help

> >

> > Lauric

> >

> >

> >

Link to comment
Share on other sites

>

i googled and found this is it what you were talking about?

Dear teacher,

This year you'll be having my very special child in your class. When

you look at my child, you will see eyes that light up and are full of

life. He or she looks like the other children in your classroom. But

my child has lived with a lot of silence and a great struggle to

communicate. My child has Apraxia of Speech.

Childhood Apraxia of Speech is a speech disorder that is both

difficult to diagnose and challenging to treat. Children with apraxia

know what they want to say the words are in their heads but often the

child is not able to produce the words clearly. For unknown reasons,

children with apraxia have great difficulty planning and producing

the precise, highly refined and specific series of movements of the

tongue, lips, jaw and palate that are necessary for intelligible

speech. As one expert has said, The problem occurs when the brain

tries to tell the muscles what to do -- somehow that message gets

scrambled. It's like trying to watch cable TV stations without the

right descrambler. There is nothing wrong with the TV station, and

nothing wrong with your set. It's just that your set can't read the

signal that the station is sending out. The child's language-learning

task is to figure out how to somehow unscramble the mixed message

her/his brain is sending to her/his muscles.1

Children with apraxia, however, do understand language and speech.

These children are smart! However, others might mistake and misjudge

their unclear speech or quietness as a lack of intelligence. Many

children with apraxia experience a great sense of failure and

frustration in their attempts to communicate. Some children grow

even quieter; others may act out their frustration. Children with

apraxia need the support of teachers and parents.

What you can do

A speech-language pathologist (SLP) needs to help my child learn to

speak with more ease and clarity. It will help my child if you

communicate frequently with the SLP and determine if there are things

that you can do in the classroom to help my child communicate and

practice speech.

Try to create a tension-free and interesting " communication

environment " for my child. Encourage but do not insist he/she try to

speak. Praise his/her attempts at speech, if only for effort. Please

know that sometimes my child might not respond or might respond " I

don't know " as a way to help themselves get out of a difficult

communication challenge.

Be patient. Sometimes the fast pace of others can leave my child out

of the experience although he/she may be able to successfully

communicate if others just offer a bit more time and patience.

Watch for and even create opportunities to help my child make

friends. It can be difficult for a child with apraxia to " break

into " social communication and situations. A supportive and

nurturing teacher can surely help. No child should be lonely and all

children need a friend.

Intervene immediately in any situations that involve bullying or

teasing. Reassure my child that you are his/her supporter and

advocate and that no teasing is acceptable.

Be aware that sometimes children with apraxia are also physically

uncoordinated, making competitive sports or even drawing, cutting,

and other motor tasks difficult. If you notice something, please do

bring it to my attention so we can work together to help my child.

Keep alert for any other signs of learning difficulty. Sometimes

children with apraxia have difficulty learning to read, write, spell

or do math.

Be open to alternative ways my child may need to communicate. Often

sign language, augmentative devices, or pictures can help my child as

a bridge to clear speech, helping us gain insight into his or her

thoughts.

Include me as your partner. I want very much to help my child and to

do everything possible to help him or her. I hope we will always

reach out to communicate and share information with each other for

the benefit of my child.

with appreciation,

>

> I had my computer crash and lost many file. I have a letter that had been

> posted on the in the past year of a letter to teacher introducing the child

and

> apraxia. Does any one have a copy of this letter.

>

> Thanks in advance for your help

>

> Lauric

Link to comment
Share on other sites

Thanks I don't know if this was the one lost or not -but

if it is may have been a blessing (or a sign) if it was!

Please don't anyone call it childhood apraxia of speech in writing

which is also what CAS stands for in a letter that possibly goes into

your child's permanent file. This is serious. I've been saying

this for years and my son Tanner is now 10 and it horrifies me that

this ridiculous name is still being used. Many of you will remember

my words or warning years from now....when your child is no longer

preschool age and still has some subtle speech impairment ten years

from now or longer. You do NOT want " childhood apraxia of speech "

or CAS on your child's school records or anywhere! Just say NO!

Childhood apraxia of speech is OK for a 3 or even 5 year old child

when the parents are so overwhelmed it's actually a comforting name

because it implies that apraxia is a preschool or just able to be

starting kindergarten age type condition they'll outgrow. But using the

name " childhood apraxia of speech " even with a 7 year old if he's

anything like my son Tanner

http://www.cherab.org/information/familiesrelate/letter.html you're

already starting to push it-and forget it by the time they are

9...and saying it's " childhood apraxia of speech " is absolutely an

insult for anyone in the tweenie years -10-12, and not at all

appropriate and possibly a destructive name for those in their teens

or older...In this group we know there are teens and older with

apraxia -like http://www.cherab.org/news/.html and

Khalid

http://www.cherab.org/information/familiesrelate/success.html -so

just call it what it is -apraxia. And is childhood apraxia of

speech ever a good name -even for a preschool child?! Isn't it

ironic that apraxia is a condition where the longer the utterance

the more difficult to articulate -and yet some genius decides that

giving children with apraxia the Guinness book of world records

longest name ever is a good idea! Hello! Perhaps they are

thinking " once the child can say their diagnosis...they are cured! "

Speech therapy for apraxia consists of teaching the name " childhood

apraxia of speech " starting with the " ch " sound!

I say verbal or oral apraxia here or when talking to therapists -but

when I talk to people like new teachers or neighbors or strangers

who have not a clue what apraxia is anyway -I kept/keep it simple

and just said " apraxia -it's a speech impairment " It's fine if you

want to specify by saying " of speech " after, or " verbal "

and/or " oral " before, but keep in mind most of the kids today with

apraxia 'don't' just have an impairment of speech, most also have

sensory issues, low tone, some motor deficits in the body.... so

unless you want to open a can of worms and write down every

diagnosis your child has and freak the new teacher out -just call it

apraxia and hand them a copy of The Late Talker saying " this may

help you better understand what ny has " . They'll not only read

it and learn from it -but they will thank you and pass it to other

teachers to read. Hurray for your child and hurray for all the

other children from the awareness.

So don't say CAS -say KIS and Keep It Simple!!! For the sake of

the children and their future.

If one didn't want to take the easy and in my opinion better road of

just handing over a copy of The Late Talker book and wanted to write

a letter -childhood apraxia of speech wouldn't be the only thing I'd

take out Is this person kidding with the " Keep alert for any other

signs of learning difficulty. Sometimes children with apraxia have

difficulty learning to read, write, spell or do math " Ahhhhhh!!!!

Talk about setting up a child for failure even before s/he starts!

Tells me right there that letter wasn't written by someone in this

group -in this group we are aware that children with apraxia can be

superior students due to their awesome memories. And I'd take out

the " very special child " right up top too for obvious reasons -very

special child reads " very special needs child "

As far as some of the other suggestions the good ones have come up

in this group as suggestions but again I too recall a specific

letter to new teachers. Perhaps CHERAB VP Cheryl

http://www.cherab.org/about/cheryl.html helped write it....she is

an award winning teacher. (and a quiet member of this group -but

Cheryl let me know!)

=====

Link to comment
Share on other sites

I had this sample letter in my favorites and thought maybe it would

give you some ideas. This one is a sample letter for ADHD, so you

will have to change some things to fit the apraxia, SID or Hypotonia

symptoms of your child.

Tina

A Letter To My Child's Teacher...

To those who may teach my child:

My child has been diagnosed as having Attention Deficit

Hyperactivity Disorder.

As a parent, I expect my child to behave in an acceptable manner at

school and anywhere else. However, I have had to recognize that

certain behaviors are characteristic of ADHD. I have had to realize

that while some of these behaviors may be inconvenient or

unexpected, they are not unacceptable or " bad " . They are simply

different.

Please keep these differences in mind as you teach my child. Correct

when you must, and please accommodate -or tolerate- when you can.

Please contact me if there are any questions or problems.

Thank you.

Because my child has ADHD, you may expect to see these:

Physical Behaviors

Fidgeting, squirming, or otherwise being in " constant motion " .

Clumsiness

May fall down a lot

Bumping into other students or objects in the classroom

Classroom Behaviors

May not listen to instructions

Will begin work without waiting to hear or read instructions

Trouble staying on task

Poor penmanship

Will lose or misplace papers, pencils and other materials

Will have to be reminded to clean up any work areas that may be used

Will probably be at your desk more often than most students

Will often ask questions which may or may not relate to what you are

discussing

Will give unexpected responses to questions

May well turn in class work, tests, etc. before other children, but

with lower quality than possible

Will occasionally " Hyper focus " on a topic to the point of fixation.

Social Behaviors

Tends to be " bossy " with other children

Tends to object strongly to what is perceived as " unfair " .

Interrupts other's conversations

Intrudes on other's games or activities

Trouble waiting in line

May ignore others or simply walk away during a conversation

Emotional Behaviors

Sudden and sometimes drastic mood swings

Has feelings hurt easily

Easily frustrated

Tends to overreact to correction or criticism

Appearances

May appear disheveled-- even five minutes after being bathed and

dressed. (We TRY, honest!)

Often lost in thought

May " self-talk " with silent lip movements

>

> I had my computer crash and lost many file. I have a letter that

had been

> posted on the in the past year of a letter to teacher introducing

the child and

> apraxia. Does any one have a copy of this letter.

>

> Thanks in advance for your help

>

> Lauric

>

>

>

Link to comment
Share on other sites

I wanted to add also that in the past has mentioned a

communication book. Landon has aproximately 50+ words, but not all of

them you can understand when out of context and some sound very

similiar. Landon will be starting a church program 2 days a week in

September. His teacher isn't always going to know what he is trying

to say so I plan on writing his words and what they sound like in a

tablet as a reference guide for her.

Tina

>

> >

> > I had my computer crash and lost many file. I have a letter that

> had been

> > posted on the in the past year of a letter to teacher introducing

> the child and

> > apraxia. Does any one have a copy of this letter.

> >

> > Thanks in advance for your help

> >

> > Lauric

> >

> >

> >

Link to comment
Share on other sites

Hi-

I believe it is a great idea to write a letter to the teacher at the

beginning of the school year. By all means, write your own. And

use whatever name you believe is most appropropriate - personally, I

always refer to " apraxia, which is a motor speech disorder " when I

am talking to those that are uniformed. If you use CAS or DAS, at

least you will be using a phrase that is google-able and they can

find journal artilces with those terms.

I think handing a teacher The Late Talker or some other book would

possibly be appropriate later in the school year, but never right at

the beginning. A short descriptive letter of your child and whatever

difficulties they have regarding speech or any other learning

disabilities would be something they could much more easily handle

right now. In reality, there will be some in this group who bring

their child on the first day of school only to find out that the

teacher has not yet even seen their IEP...sad, but true. So while I

have had many teachers who do " extra " reading on apraxia, certainly

many, if not most, do not. So a letter like this could help

to " fill in the blanks " and make them take another (or a first) look

at the IEP. In my " perfect world " , I'm always hoping that my

teachers and therapists have been attending conferences and reading

cutting edge journals all summer. But most have been going to the

swimming pool and chasing kids around for three months just like we

have.

And honestly, I would most definitely ask them to watch for other

learning problems that may arise, because like it or not, many

children with apraxia do have other issues, particularly with

reading and spelling. Of course, NOT ALL do, but many. Mine does.

It is not wrong to inform the teacher of this risk factor, but it is

your choice. Not addressing it in your letter will not make the

risk go away, but you do run the risk of having the teacher " look "

at your child differently when armed with that knowlege.

Each of our children are so different, and we must make sure that

the teachers understand that. Some are very intelligent. Some have

co-exisiting ASD or other disabilities. Some have health issues.

Some, but very few it seems, have stand-alone apraxia. Your letter

will need to address the uniqueness of your child.

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Here's one of the archives Tina:

Re: - communication book

, all those who work with (private and school based) or care for

your child should be included in writing into the " Communication

Book "

so that all can be on the same page and for all the reasons given

below.

If your children's teachers are not writing into your child's

communication book and it's just a one way street, it's apparent that

you need to add " daily correspondence to be written in a

communication

book by (fill in professionals names here) and all those that work

with ____(child's name) " as part of your child's IEP. You've probably

already read The Late Talker book -but it's apparent that the

professionals at your child's school have not. So I pulled the

following quote about the communication book from our book The Late

Talker for you to share with the school professionals when you

request

this added to the IEP:

" As it is so difficult for your late-talking child to communicate,

it's up to all of the adults in his life to keep in touch with each

other and let each other know about the part of his day that they

have

shared. One of the best ways of keeping everyone in the loop is

through a " communication book. " It's the child's diary, except that

there may be half a dozen different contributors. For instance, the

highlight of your child's evening may have been a party at which he

was given a new truck. But his delight easily turns to frustration

the

next morning when he cannot share this event with his teacher. By

writing the details in his communication book you provide the teacher

with the information she needs to open a dialogue with him.

Record other activities in the book: new words he might have

produced,

an explanation of why he has been happy or sad. Correspondingly, the

school teacher could write a brief message explaining why he has that

stamp of a puppy on his hand, or providing the words of a song

they've

been learning. Your child's babysitter or daycare provider can write

down what he had for lunch, or what games he played. Perhaps there is

sensitive information that they don't want to discuss in front of him

and prefer to put in writing? If you have a private therapist as well

as a school-based therapist this is a way for them to pool their

knowledge, coordinate what words they are working on, what strategies

they are employing, and what progress he has made. The net result is

that everyone who cares for your child, and who cares about your

child, can have a more informed conversation with him. They will be

able to prompt him because of their inside knowledge. It will make

him

feel more comfortable and relieve his frustration.

Inside the communication book you can also keep a " dictionary " to

translate your child's language or actions. As he increases his

vocabulary, add each new word to his own personal dictionary.

LISA'S LIST (Design note: Separate panel)

Here is a list of things that wrote in Tanner's communication

book when he was three years old.

Sound Translation

" Ju Pee " Juice please (he'd also sign for drink)

" Die die die " Either tight or side

" High high high " He wants a lot or it's very big (both

hands up in air)

" Tee Tee Tee Tee " Little bit, tiny

" Ma ma mommy "

or " da da daddy " Where is mommy or daddy?

" Bobo " His brother, Dakota

" Doo Doo " His Aunt

" Doo Doo Doodie " I want a cookie

" Eeee " eat Hungry (he'd also sign for eat)

" Doe " Go

" Me, me, me? No? " Can I?

" Tee tee tee tee me? " Is it OK for me to have a tiny bit?

" Bow " (He can say " ball " but sometimes it comes out

like this)

" Na na know " I don't know

" Eah " Egg

" Tay " OK

" Die die die die " I go outside?

" Di di dis " Look at this

(Design Note: End Separate Panel) "

any other questions about it just let me know!

=====

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If you use CAS or DAS, at

> least you will be using a phrase that is google-able and they can

> find journal artilces with those terms.

, I'd rather my son Tanner's teachers didn't google DAS or CAS

because they wouldn't get information I'd want to share. I just

checked and the letter to teachers (below) was written by one of the

founders of apraxia-kids. (Not the co founder of apraxia kids I work

with through Speechville.com, Mikel -the other one)

Apraxia is neither a childhood condition nor a developmental one,

although it may cause some developmental delays which may be

misconstrued as learning disabilities by the misinformed -or those

that follow old information.

You may be aware that I've spoken to Dr. Rosenthal

http://www.facultydirectory.ucr.edu/cgi-bin/pub/public_individual.pl?faculty=534

about our children

" The issue of using verbal based cognitive or receptive testing on

verbal disabled children?

http://www.cherab.org/news/verbaldisabledtest.html Just like in the

story behind the movie " Stand and Deliver " -I love the

quote " students will rise to the level of expectations "

http://www.kcbx.net/~jbunin/files/reviews/teachers.html which is

most likely based in proof by the research of Dr. Rosenthal.

http://www.pineforge.com/newman4study/resources/rosenthal1.htm I've

spoken to Dr. Rosenthal about the current testing problem our

society and school systems are placing on verbal disabled children,

how this is discriminatory - and the damaging impact of using this

type of testing based on what his research proves. Dr. Rosenthal is

shocked to say the least -and agrees with my views on this -he

believes this should be studied as well. "

Now after knowing his research -read quotes from this CAS letter:

" It can be difficult for a child with apraxia to " break into " social

communication and situations....Intervene immediately in any

situations that involve bullying or teasing...Be aware that

sometimes children with apraxia are also physically uncoordinated,

making competitive sports or even drawing, cutting,and other motor

tasks difficult....Keep alert for any other signs of learning

difficulty. Sometimes children with apraxia have difficulty

learning to read, write,spell or do math. "

If I'm going to try self fulfilling prophecy on either side -it's going to be on

the side

that my boys will be great students. (but I knew about Dr.

Rosenthal's study from when I was little through my PhD aunt)

Truth is, it would have been horrible if I gave a letter like this

to any of my son Tanner's teachers before he even started school.

The warnings above don't apply to him at all. Actually -how would

any new parent of any child know, apraxic or not, even before school

started? Why would you want to warn a teacher about something that

may never happen? My son Tanner blends in with the norm and has

tons of friends, is never teased today and in his entire school

history was only teased once or twice which is probably still in the

range of normal -and has none of the issues warned about above -is a

great student that teachers love to have in class. In fact he

excels in math and spelling like most speech impaired children would

because of the amazing memory thing. (Well there is one warning left

out that I'd keep in- apraxia is not just a childhood condition-

Tanner is still 2 deviations below on expressive speech and he is

10. Kids like Tanner who are very bright may test well and read

well and write well -but can't answer questions verbally well -in

fact Tanner may sound immature to his peers.

School starts -what do I do for both my boys? I 'talk' to the new

teachers each year at the open house before school starts -and for

my apraxic son Tanner -during that talk I let them know how bright

he is -and what a great kid he is, and up till second grade " if you

want to know what he has mainly overcome -this is a book about it "

and handed them a copy of The Late Talker. That's it and they all

thanked me and amazingly they all understand Tanner.

This past year Tanner had a college prep type situation with 3 main

teachers and 3 other teachers and I didn't give out The Late Talker

book. Last year -the first year I didn't give The Late Talker book

out -this is what happened...ignorance! Check the archives -the

proof is in the pudding as they say.

" The way I still see apraxia present today in my son Tanner is that

he talks in a way that is motor comfortable for him and that makes

him sound immature for his age, and not bright -like he is.

Tanner's receptive and cognitive ability in both clinical testing

and in the classroom in written tests, in some areas such as

creative writing and math are way above average. He reads better

than he talks. He is able to blend...and some may not know there is

an impairment there -but the discrimination presents in ways that I

posted such as his one teacher's comment (in front of Tanner) last

year in 3rd grade

" No matter how much time I give Tanner to answer a question when he

raises his hand, it's not clear he understands the work. The only

reason we know he understands it is because he tests so well " As a

parent I should not be faced with such hurtful ignorance from an

educational professional. Thank goodness that Tanner continued to

raise his hand to answer questions...that his belief in himself is

still high...but that's probably because I talked to Tanner, his

teachers -spent around a thousand dollars on private testing from

various professionals. If Tanner was deaf I wouldn't have had to do

this. So to be more direct -some may say Tanner himself is " cured "

of apraxia...I see the impairment present in a more sophisticated

way -and I see that Tanner has learned how to overcome it most of

the time. Get your child in a mainstream science and social studies

class if they are apraxic and have them answer questions using the

sophisticated words...and you let me know if he blends then.

Problem changes -but tired or stressed or put into a situation with

complex and sophisticated thoughts that need to be

communicated...and that's where you'll see apraxia pop up again. As

Earl once said about his stuttering... " Once a stutterer,

always a stutterer " Yet most people don't know he and many others

are stutterers.

Read this list and be amazed who is on it

http://www.stutteringhelp.org/Default.aspx?tabid=128

Stuttering some may not know, like apraxia, is a motor planning

impairment of speech. "

=====

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