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Re: update -

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Hi

So you won't be doing PD after all, but instead going on hemodialysis if

necessary until you can get the transplant surgery? This is pretty big news!

I almost missed it.

If so, this is a different situation than someone who is starting

hemodialysis and going on the waiting list. Such a person could be waiting

years, but in your case it's different. Hemodialysis via a catheter is

adequate if it's just temporary. The problem, besides the inconvenience and

the risk of more frequent infection, is that you can't get a high enough

blood flow with a catheter to provide adequate dialysis when doing it 3

times per week, and sometimes it's necessary to extend the treatment time.

Less blood flow in the same, fixed amount of time means less removal of

toxins and phosphorus. Phosphorus especially is difficult to remove. It

takes a long treatment time, and regular 3 times per week hemo is simply not

enough. But it should be fine for only a few weeks or even a few months. I

wouldn't worry about it if it's only for a short time. Still, I'm hoping you

won't need it at all before they can schedule the transplant.

Pierre

Re: peripheral neuropathy and update

>

> Hi karen,

>

> I have not had the peripheral neuropathy but Kathleen has so perhaps she

> can

> jump in and answer that one.

>

> That is good news that your cousin looks like a go for a transplant. We

> are

> almost at the same place. My Neph told me yesterday that because my

> potential donor looks like she will work out, no PD catheter for me

> either. My Neph

> prefers temporary access for hemo since they are hoping it will only be

> for

> hopefully a few weeks.

>

> I do have my concerns about dialysis via a temporary catheter though

> because

> Pierre has always said that is not the way to go. I was told that the

> wait

> time for PD access just to have the surgery scheduled is about 6 weeks,

> then

> the time it takes for it to develop it would not be worth it. Hopefully

> taking me off Cozaar will lower my creatinine enough to be able to hold

> off on

> dialysis but I am beginning to have my doubts due to increased nausea,

> weight

> loss and just an overall increase in symptoms. Guess it is us against

> the

> clock now :-)

>

>

>

>

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