Christmas Cards

[Guest guest]

I just want to thanks EVERYONE who signed up for the Christmas Card

exchange, we have got so many cards and pictures with all of them. I

hung them all on the wall by Eva's crib. When Christmas is over I will

be putting them all in a book for her to keep forever. I have gotten

more cards from my groups then I have from people we know, I sent out

about 100 cards this year with letters of how our year has gone. I

just wanted to say thank you and I feel so blessed to have found ALL

of you!!

Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

wife to Dan in Illinois

[Guest guest]

I, too, truly appreciate the cards but also feel so guilty for not having

mailed ours. I'd planned to do so this weekend, but got sick early

Friday - well, you know how that goes. I hadn't realized, stupidly, that we

should send photos and spent last night after was in bed finding

good ones. She goes back to her house tomorrow, so cards may be late,

but they're coming. Martha --- who seems to always be late. I think it's the

Perkins' influence!

[Guest guest]

Don't stress to much about it, if anyone should understand its a

group of CHARGE families!!

Hugs,

Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

wife to Dan in Illinois

>

> I, too, truly appreciate the cards but also feel so guilty for not

having

> mailed ours. I'd planned to do so this weekend, but got

sick early

> Friday - well, you know how that goes. I hadn't realized,

stupidly, that we

> should send photos and spent last night after was in bed

finding

> good ones. She goes back to her house tomorrow, so cards may be

late,

> but they're coming. Martha --- who seems to always be late. I

think it's the

> Perkins' influence!

>

>

>

>

>

>

>

[Guest guest]

martha- why would you be behind this time of year?!? I feel like I always am 10

steps behind where I should be. I've cut down on the inside decorating this

year--just no time and then have to take it down in 2 weeks--have the tree up

and little tree above the entertainment center and little buildings stockings

are on the railing usually I do garland & lights too, but I need to get other

stuff doen first--there is always next year. don't worry about the cards--new

years cards are nice too!

Re: Christmas Cards

I, too, truly appreciate the cards but also feel so guilty for not having

mailed ours. I'd planned to do so this weekend, but got sick early

Friday - well, you know how that goes. I hadn't realized, stupidly, that we

should send photos and spent last night after was in bed finding

good ones. She goes back to her house tomorrow, so cards may be late,

but they're coming. Martha --- who seems to always be late. I think it's the

Perkins' influence!

[Guest guest]

We've really enjoyed receiving ours, too! I think we may be missing some--we've

only received 8 or 9, I think--but that's probably because I signed up late and

some people may have not seen our name on the last list that came out. (See,

Martha and , you're not the only ones who are late! Of course, we visited

Perkins this past summer, so perhaps we caught the " bug " you mention from there,

too! Hmm...) That's OK--I've enjoyed sending them as much as I have receiving

them. And that will teach me to be a little more prompt about signing up next

year! :-)

, mom to (4)

http://kauffmanlak.blogspot.com/

__________________________________________________

[Guest guest]

We love all of the ones we've received as well, they're all posted up in our

main hallway! I love all the pictures. We probably got nine or ten as

well. I think I sent out about at least 20. I'm hoping to get a lot this

week - with lots of pictures!

& Kennedy

www.chargesyndrome.info

>

> We've really enjoyed receiving ours, too! I think we may be missing

> some--we've only received 8 or 9, I think--but that's probably because I

> signed up late and some people may have not seen our name on the last list

> that came out. (See, Martha and , you're not the only ones who are

> late! Of course, we visited Perkins this past summer, so perhaps we caught

> the " bug " you mention from there, too! Hmm...) That's OK--I've enjoyed

> sending them as much as I have receiving them. And that will teach me to be

> a little more prompt about signing up next year! :-)

>

> , mom to (4)

> http://kauffmanlak.blogspot.com/

> __________________________________________________

>

[Guest guest]

Crystal,

All the talk of the wonderful Christmas cards and photos (especially the

photos!) has me wishing I had signed up in the first place!! I am glad it was

such a rousing success--perhaps next year!!!

All the best to you--I look forward to your posts and feel blessed by your

presence!

pam

Christmas Cards

I just want to thanks EVERYONE who signed up for the Christmas Card

exchange, we have got so many cards and pictures with all of them. I

hung them all on the wall by Eva's crib. When Christmas is over I will

be putting them all in a book for her to keep forever. I have gotten

more cards from my groups then I have from people we know, I sent out

about 100 cards this year with letters of how our year has gone. I

just wanted to say thank you and I feel so blessed to have found ALL

of you!!

Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

wife to Dan in Illinois

[Guest guest]

Martha,

do explain???? I don't understand.

xo

pam

Re: Christmas Cards

Don't stress to much about it, if anyone should understand its a

group of CHARGE families!!

Hugs,

Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

wife to Dan in Illinois

>

> I, too, truly appreciate the cards but also feel so guilty for not

having

> mailed ours. I'd planned to do so this weekend, but got

sick early

> Friday - well, you know how that goes. I hadn't realized,

stupidly, that we

> should send photos and spent last night after was in bed

finding

> good ones. She goes back to her house tomorrow, so cards may be

late,

> but they're coming. Martha --- who seems to always be late. I

think it's the

> Perkins' influence!

>

>

>

>

>

>

>

[Guest guest]

Pam,

I guess you were out of this particular loop during 's Perkins'

years.It was the subject of much good natured kidding. Meetings, etc.

always started late! Someone once commented that if a conference call

was scheduled for 10:00, we should plan on 10:15 or so. It's not a knock

at ya'll at all; rather, it's a quite lovely experience that we've carried with

us.

Don't fret!

Hugs - Martha

[Guest guest]

Pam and all,

i just can't let this go, and it's after midnight. Pam, it's who's

sick

(or weepy or waiting for the damn Provera to start her period). No one is

seriously " blaming " Perkins for anything; I get the feeling that you worry

about that. But, ya'll DO tend to be late for things. Said with endless love

and a huge grin! Martha

[Guest guest]

I will send you my picture and if you want to send me yours heres my

adress.

maddie dobelstein 61944 paris illinois 412 east court street

[Guest guest]

AHHHHH, now I get it!!!! And there is no denying that the ³upper echelon²

always have a double booked calendar!!!! I knew it was a joke, but needed

the beginning before the punch line!!!!

My grin is back at ya¹ along with the endless love!!!

pam

>

>

>

>

> Pam and all,

> i just can't let this go, and it's after midnight. Pam, it's who's

> sick

> (or weepy or waiting for the damn Provera to start her period). No one is

> seriously " blaming " Perkins for anything; I get the feeling that you worry

> about that. But, ya'll DO tend to be late for things. Said with endless love

> and a huge grin! Martha

>

>

[Guest guest]

Maddie-

We are in IL also. We are directly across the state almost to the MO

border! Nice to have to on the list!

Michele W

Aubrie's mom 9 yrs

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

Maddie D

Sent: Monday, December 18, 2006 1:58 AM

To: CHARGE

Subject: Re: Christmas Cards

I will send you my picture and if you want to send me yours heres my

adress.

maddie dobelstein 61944 paris illinois 412 east court street

__

[Guest guest]

We LOVE our cards and photos, too! I have all of the

cards and pictures hanging in our kitchen for all to

see. This was such a great idea!! I just sent ours

out a few days ago, so you should all be receiving

them any day now.

What a great way to enjoy the holidays and live the

magic of the season,

ina, mom to Luca (3) & Vinny (18 months w/ cHARgE)

--- supermama95 wrote:

> I just want to thanks EVERYONE who signed up for the

> Christmas Card

> exchange, we have got so many cards and pictures

> with all of them. I

> hung them all on the wall by Eva's crib. When

> Christmas is over I will

> be putting them all in a book for her to keep

> forever. I have gotten

> more cards from my groups then I have from people we

> know, I sent out

> about 100 cards this year with letters of how our

> year has gone. I

> just wanted to say thank you and I feel so blessed

> to have found ALL

> of you!!

>

> Crystal mom to (10), (3), and Eva (20

> month old CHARGEr)

> wife to Dan in Illinois

>

>

__________________________________________________

[Guest guest]

I have our cards addressed and ready to go - just waiting for a picture

of the boys to put in it. We have a picture on our fireplace and I've

taped all the pictures from the Christmas cards we've received on it -

so wonderful to put all the names and faces together. It was a wonderful

idea to exchange addresses this year.

Mom to Cameron, 4 (CHARGE) and , 6

[Guest guest]

Dear Beloved Charge List-

Our family has not sent out a Christmas card in six years. So much good

intention - never really got the photo together, was in a habit of including a

newsletter, and never really had the right moment and inspiration, blah blah

blah...each years delay made the plans for the following even more daunting...

this card exchange put things in a whole new priority. I wanted the cards to be

ontime. I wanted there to be a photo of our family. I wanted a montage of

to somehow show that the rough start does eventually lead somewhere.....

You can have anything you want, you can't have everything. Wanting the cards to

be ontime made the rest being " just right " secondary. So, I managed a montage

accessing only one small photo album and proofs of 's senior portrait. I

literally called the family together on a school night, set the camera up with

the remote on a kitchen chair. Took six pictures and chose the best of the six.

Sent it to Target on-line photo and picked them up the next day. The series of

photos that resulted in the one for the card are so funny - it makes a lovely

flip book of our family " in action " . )

I love the cards we have received so far. I love the loving, worn, cracked-open

look all our families have. I love the feeling of blessing and acceptance -

heaven here right now. Is this a glimpse of what a conference will be like? I

am not sure how I will manage faced with the overwhelming substance of our

families in person.

Thank you all so very much-

love,

yuka

[Guest guest]

I have to laugh! We always refer to " Deaf time " . IE: " Is that standard or

Deaf time start?? Seems like everything always starts 10-15 minutes late

because we have found the Deaf are very hard to get " rounded up " - too busy

chatting and hard to break away! Ever been to a Deaf function when it has

ended? It is even a joke among the Deaf: You say goodbye inside the home -

and chat some more; you say goodbye at the door - and chat some more; you

say goodbye on the porch - and chat some more; you say goodbye from the

sidewalk - and chat some more; you say goodbye from your car door - and ,

yes, CHAT SOME MORE!!!

Friends in CHARGE,

Marilyn Ogan

Mom of (14 yrs, CHARGE+ JRA)

Mom of Ken (17 yrs, Asperger's)

Wife of Rick

oganm@...

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

lewcap@...

Sent: Monday, December 18, 2006 1:07 AM

To: CHARGE

Subject: RE: Re: Christmas Cards

Pam,

I guess you were out of this particular loop during 's Perkins'

years.It was the subject of much good natured kidding. Meetings, etc.

always started late! Someone once commented that if a conference call

was scheduled for 10:00, we should plan on 10:15 or so. It's not a knock

at ya'll at all; rather, it's a quite lovely experience that we've carried

with us.

Don't fret!

Hugs - Martha

[Guest guest]

haha,, I was thinking the exact same thing, Marilyn! So often time is referred

to as 'deaf time' among people who are deaf. There is even a group I know of

that is named " Deaf Standard Time'!

:-)

RE: Re: Christmas Cards

Pam,

I guess you were out of this particular loop during 's Perkins'

years.It was the subject of much good natured kidding. Meetings, etc.

always started late! Someone once commented that if a conference call

was scheduled for 10:00, we should plan on 10:15 or so. It's not a knock

at ya'll at all; rather, it's a quite lovely experience that we've carried

with us.

Don't fret!

Hugs - Martha

[Guest guest]

Yuka,

I am not sure how I will manage to face the overwhelming substance that is

YOU!!!

pam

>

>

>

>

> Dear Beloved Charge List-

>

> Our family has not sent out a Christmas card in six years. So much good

> intention - never really got the photo together, was in a habit of including

> a newsletter, and never really had the right moment and inspiration, blah blah

> blah...each years delay made the plans for the following even more daunting...

> this card exchange put things in a whole new priority. I wanted the cards to

> be ontime. I wanted there to be a photo of our family. I wanted a montage of

> to somehow show that the rough start does eventually lead somewhere.....

> You can have anything you want, you can't have everything. Wanting the cards

> to be ontime made the rest being " just right " secondary. So, I managed a

> montage accessing only one small photo album and proofs of 's senior

> portrait. I literally called the family together on a school night, set the

> camera up with the remote on a kitchen chair. Took six pictures and chose the

> best of the six. Sent it to Target on-line photo and picked them up the next

> day. The series of photos that resulted in the one for the card are so funny

> - it makes a lovely flip book of our family " in action " . )

>

> I love the cards we have received so far. I love the loving, worn,

> cracked-open look all our families have. I love the feeling of blessing and

> acceptance - heaven here right now. Is this a glimpse of what a conference

> will be like? I am not sure how I will manage faced with the overwhelming

> substance of our families in person.

>

> Thank you all so very much-

>

> love,

> yuka

>

>

[Guest guest]

No Fretting!!!!

Xo

pam

>

>

>

>

> Pam,

> I guess you were out of this particular loop during 's Perkins'

> years.It was the subject of much good natured kidding. Meetings, etc.

> always started late! Someone once commented that if a conference call

> was scheduled for 10:00, we should plan on 10:15 or so. It's not a knock

> at ya'll at all; rather, it's a quite lovely experience that we've carried

> with us.

> Don't fret!

> Hugs - Martha

>

>

[Guest guest]

Yuka-

Yes, that is what a conference is like. Absolutely overwhelming in that

same way - full of " substance " , emotion, intensity, and love.

Michele W

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

Yuka Persico

Sent: Monday, December 18, 2006 11:57 AM

To: CHARGE

Subject: Re: Re: Christmas Cards

Dear Beloved Charge List-

Our family has not sent out a Christmas card in six years. So much good

intention - never really got the photo together, was in a habit of including

a newsletter, and never really had the right moment and inspiration, blah

blah blah...each years delay made the plans for the following even more

daunting... this card exchange put things in a whole new priority. I wanted

the cards to be ontime. I wanted there to be a photo of our family. I wanted

a montage of to somehow show that the rough start does eventually lead

somewhere..... You can have anything you want, you can't have everything.

Wanting the cards to be ontime made the rest being " just right " secondary.

So, I managed a montage accessing only one small photo album and proofs of

's senior portrait. I literally called the family together on a school

night, set the camera up with the remote on a kitchen chair. Took six

pictures and chose the best of the six. Sent it to Target on-line photo and

picked them up the next day. The series of photos that resulted in the one

for the card are so funny - it makes a lovely flip book of our family " in

action " . )

I love the cards we have received so far. I love the loving, worn,

cracked-open look all our families have. I love the feeling of blessing and

acceptance - heaven here right now. Is this a glimpse of what a conference

will be like? I am not sure how I will manage faced with the overwhelming

substance of our families in person.

Thank you all so very much-

love,

yuka

[Guest guest]

Ahhh, you guys make me smile with warmth. I don't even know what the card

exchange thing is all about but sounds really good and heartwarming. Well

done whoever came up with it. Sure I will find out next year and then fret

that we are a long way away and can't join in, but hey, maybe we could start

a UK chapter!

Marilyn made me laugh with " deaf time " . That may explain why I get on well

with deaf people. I run on African time and totally identify with the " deaf

goodbye " ! I will be sure to pass this on to my deaf friends for the

laughs. Hopefully, the habit is worldwide and the UK deaf people will find

it funny too.

Flo (UK)

Mum to - CHARGE - (6) and Elly (4)

[Guest guest]

well at least now i feel better for not having mailed mine - i'm going to

try to get them out this week but i hope you all will forgive me for not

getting it done sooner -- the good news is since i procrastinated so long

you will all get a picture as well because i just had one done when i got my

puppy and it was such a great picture i decided to send them in my christmas

cards

Cole

>

> I, too, truly appreciate the cards but also feel so guilty for not

> having

> mailed ours. I'd planned to do so this weekend, but got sick early

> Friday - well, you know how that goes. I hadn't realized, stupidly, that

> we

> should send photos and spent last night after was in bed finding

> good ones. She goes back to her house tomorrow, so cards may be late,

> but they're coming. Martha --- who seems to always be late. I think it's

> the

> Perkins' influence!

>

>

[Guest guest]

Oh Yuka, I can't wait to get the card. The last picture of I have on

my computer is the one where he was going to prom (can't remember if senior

or junior) and he looked so incredibly handsome!

>

> Dear Beloved Charge List-

>

> Our family has not sent out a Christmas card in six years. So much good

> intention - never really got the photo together, was in a habit of including

> a newsletter, and never really had the right moment and inspiration, blah

> blah blah...each years delay made the plans for the following even more

> daunting... this card exchange put things in a whole new priority. I wanted

> the cards to be ontime. I wanted there to be a photo of our family. I wanted

> a montage of to somehow show that the rough start does eventually lead

> somewhere..... You can have anything you want, you can't have everything.

> Wanting the cards to be ontime made the rest being " just right " secondary.

> So, I managed a montage accessing only one small photo album and proofs of

> 's senior portrait. I literally called the family together on a school

> night, set the camera up with the remote on a kitchen chair. Took six

> pictures and chose the best of the six. Sent it to Target on-line photo and

> picked them up the next day. The series of photos that resulted in the one

> for the card are so funny - it makes a lovely flip book of our family " in

> action " . )

>

> I love the cards we have received so far. I love the loving, worn,

> cracked-open look all our families have. I love the feeling of blessing and

> acceptance - heaven here right now. Is this a glimpse of what a conference

> will be like? I am not sure how I will manage faced with the overwhelming

> substance of our families in person.

>

> Thank you all so very much-

>

> love,

> yuka

>

>