Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 If your husband's family is from Jersey -did you visit there while pregnant? The following clip is from an archive (I put the entire post below) for those who believe that the numbers are higher in certain areas due to awareness. I'm starting to come to the conclusion that the reason there may be two distinct schools of thought on apraxia today is because the other group is located in Pittsburgh -where I've heard there are very few members -(even though some would believe there are tons of kids there) and...our group was started in New Apraxia, I mean Jersey. And for those who have not read this http://www.cherab.org/news/Save.html Anyway -let us know where you were while pregnant! " I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. " From /message/49314 Sat Jun 24, 2006 3:09 pm " kiddietalk " kiddietalk@... Re: does anyone else like to blame vaccines and other environmental Hey Joanne! The awareness thing only runs true at times in the explanation of diagnosis of apraxia and why certain areas are higher or lower. My co author of The Late Talker is neurodevelopmental pediatrician in private practice in NYC (and medical director for NYC Early Intervention for NYC) and she too could not explain the lack of apraxic children in Manhattan before 911. In that case anyway which is the most dramatic example out there -that was not due to lack of awareness that's for sure! The entire EI staff was and is fully knowledgeable about apraxia due to Dr. Agin. In fact the entire NYC tristate area is pretty up in general on apraxia. (back then Children's Apraxia Network and CHERAB had huge meetings) And it wasn't just the doctors. If you check the archives we had more than one example of producers in NYC before 911 looking to interview families in NYC (Manhattan)because it's cheaper and easier for them, and instead they always ended up going to NJ. Don't get me wrong there are apraxic children in Long Island and Westchester and all the surrounding boroughs of Manhattan -just not in Manhattan for some reason back then. Lack of soil for it to spread that way perhaps? And for those that don't know -parts of NJ are literally minutes away (given a time there is no traffic that is) over a bridge or through a tunnel from Manhattan. I checked the EPA where I live even before I moved, and it's no comparison clean to where I moved from. Also where I live now in addition to Tanner being the only apraxic child in any school he has gone to (which is just so weird!) in most cases I have to drive an hour or more to find another one! Florida may be toxic in parts,,,but Florida is a huge state. The Miami or Boca area and Tampa area appear to be higher for example in numbers of apraxic children than where I am on the Treasure Coast or the Panhandle areas both where our numbers are few to none. I remember I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. And runs Florida support in Vero and her daughter has global apraxia..but we have other than no members there and yet another example of someone from a " low " area where the ProEFA doesn't seem to work. I spoke to someone who works in soil for the state of Florida and told him I'd love to have soil testing comparison in different areas depending on number of apraxic children. Anyway I notice strange things that most don't notice. You can read one of them like the clearing of the throat thing in theaters in the following archive from 2005 that addressed this very same topic. Toxic Florida. I guess that's why it feels like home it me. Perhaps Florida today is like NJ was when I was a little girl! (and not for nothing but the planet's just not that big. Eventually there will be no way to move away from it unless you are away from all civilization...and rain...maybe in North Dakota or something (I can kid because there's nobody here from there right?) Re: Fwd: Envirnmental Working Group profile It doesn't say but I'm guessing this is posted in response to " Palm Beach Post News Toxins and Cord blood " /message/4129 1 I was going to comment on that article as well since of all areas of the country it was about the about the high amounts of 'toxins' found in children from all the farmland here in... Florida! (it was sent to me private as well but I didn't post it) I live on the waterways of the Treasure Coast of Florida now where Tropicana and other citrus farmers have run off chemicals coming through the waterways. And yet...tons of fish here, the people that live near me -virtually no apraxic children -and as of yet have not met any with autism either. If you ask those that grew up here " Who do you know with cancer? " (yes I'm the type of person that asks stuff like this) I get after a few moments where they stop and think about it " I'm not sure if I know anyone with cancer. I have to think about that. " If you are from New Jersey, how many of you can say that? Yes NJ 'was' known as the " Garden State " (or is? still?) but that was probably before there was a factory on every corner. Also I noticed something else I've pointed out to a few doctors. When you go to the movies or a play you always hit a dead spot where all is quiet for a few seconds at least. In NJ and NY where I used to live in both states -you'd always hear at least a few people during this quiet period either clearing their throats or coughing. Here (before the hurricanes) quiet. So if the babies here have tons of pesticides in their umbilical cords -perhaps it's some type of apraxia prevention. (just kidding I think) As far as vested interest, it's harder to find any studies completely void of any vested interest. This is why it is wise to examine all sides to find the truth. As one wise toy inventor always said to me " the proof is in the pudding " And.. I'll take pesticides over toxic black NJ ooze bird killer anyday! (from where I moved 'from' thank God) http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park's%20soil% 20is%20highly%20toxic.pdf ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 My severly apraxic son was born in TX! You should probably due a stats test on this site... " kiddietalk " <kiddietalk@...> Sent by: cc: @yaho Subject: [ ] Re: Things that make you go hmmmmm ... ogroups.com 08/30/2006 01:24 PM Please respond to If your husband's family is from Jersey -did you visit there while pregnant? The following clip is from an archive (I put the entire post below) for those who believe that the numbers are higher in certain areas due to awareness. I'm starting to come to the conclusion that the reason there may be two distinct schools of thought on apraxia today is because the other group is located in Pittsburgh -where I've heard there are very few members -(even though some would believe there are tons of kids there) and...our group was started in New Apraxia, I mean Jersey. And for those who have not read this http://www.cherab.org/news/Save.html Anyway -let us know where you were while pregnant! " I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. " From /message/49314 Sat Jun 24, 2006 3:09 pm " kiddietalk " kiddietalk@... Re: does anyone else like to blame vaccines and other environmental Hey Joanne! The awareness thing only runs true at times in the explanation of diagnosis of apraxia and why certain areas are higher or lower. My co author of The Late Talker is neurodevelopmental pediatrician in private practice in NYC (and medical director for NYC Early Intervention for NYC) and she too could not explain the lack of apraxic children in Manhattan before 911. In that case anyway which is the most dramatic example out there -that was not due to lack of awareness that's for sure! The entire EI staff was and is fully knowledgeable about apraxia due to Dr. Agin. In fact the entire NYC tristate area is pretty up in general on apraxia. (back then Children's Apraxia Network and CHERAB had huge meetings) And it wasn't just the doctors. If you check the archives we had more than one example of producers in NYC before 911 looking to interview families in NYC (Manhattan)because it's cheaper and easier for them, and instead they always ended up going to NJ. Don't get me wrong there are apraxic children in Long Island and Westchester and all the surrounding boroughs of Manhattan -just not in Manhattan for some reason back then. Lack of soil for it to spread that way perhaps? And for those that don't know -parts of NJ are literally minutes away (given a time there is no traffic that is) over a bridge or through a tunnel from Manhattan. I checked the EPA where I live even before I moved, and it's no comparison clean to where I moved from. Also where I live now in addition to Tanner being the only apraxic child in any school he has gone to (which is just so weird!) in most cases I have to drive an hour or more to find another one! Florida may be toxic in parts,,,but Florida is a huge state. The Miami or Boca area and Tampa area appear to be higher for example in numbers of apraxic children than where I am on the Treasure Coast or the Panhandle areas both where our numbers are few to none. I remember I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. And runs Florida support in Vero and her daughter has global apraxia..but we have other than no members there and yet another example of someone from a " low " area where the ProEFA doesn't seem to work. I spoke to someone who works in soil for the state of Florida and told him I'd love to have soil testing comparison in different areas depending on number of apraxic children. Anyway I notice strange things that most don't notice. You can read one of them like the clearing of the throat thing in theaters in the following archive from 2005 that addressed this very same topic. Toxic Florida. I guess that's why it feels like home it me. Perhaps Florida today is like NJ was when I was a little girl! (and not for nothing but the planet's just not that big. Eventually there will be no way to move away from it unless you are away from all civilization...and rain...maybe in North Dakota or something (I can kid because there's nobody here from there right?) Re: Fwd: Envirnmental Working Group profile It doesn't say but I'm guessing this is posted in response to " Palm Beach Post News Toxins and Cord blood " /message/4129 1 I was going to comment on that article as well since of all areas of the country it was about the about the high amounts of 'toxins' found in children from all the farmland here in... Florida! (it was sent to me private as well but I didn't post it) I live on the waterways of the Treasure Coast of Florida now where Tropicana and other citrus farmers have run off chemicals coming through the waterways. And yet...tons of fish here, the people that live near me -virtually no apraxic children -and as of yet have not met any with autism either. If you ask those that grew up here " Who do you know with cancer? " (yes I'm the type of person that asks stuff like this) I get after a few moments where they stop and think about it " I'm not sure if I know anyone with cancer. I have to think about that. " If you are from New Jersey, how many of you can say that? Yes NJ 'was' known as the " Garden State " (or is? still?) but that was probably before there was a factory on every corner. Also I noticed something else I've pointed out to a few doctors. When you go to the movies or a play you always hit a dead spot where all is quiet for a few seconds at least. In NJ and NY where I used to live in both states -you'd always hear at least a few people during this quiet period either clearing their throats or coughing. Here (before the hurricanes) quiet. So if the babies here have tons of pesticides in their umbilical cords -perhaps it's some type of apraxia prevention. (just kidding I think) As far as vested interest, it's harder to find any studies completely void of any vested interest. This is why it is wise to examine all sides to find the truth. As one wise toy inventor always said to me " the proof is in the pudding " And.. I'll take pesticides over toxic black NJ ooze bird killer anyday! (from where I moved 'from' thank God) http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park's%20soil% 20is%20highly%20toxic.pdf ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 " If your husband's family is from Jersey -did you visit there while pregnant? " No, we didn't, because my in-laws had just moved from Montclair, NJ to the Reading, PA area that very year. So, perhaps there is not a connection, but it does seem to be a tantalyzing coincidence, doesn't it, given everything else? When we went to our initial visit with Dr. Hyman, our Developmental Pediatrician (who rocks, by the way!), she confirmed the apraxia suspicion and basically told us to seek support online because there was not a significant enough population in our area to support a local group as of yet (I am paraphrasing here). She told us that apraxia was not a very common diagnosis in our area. Very interesting. Thank you for your reply, ! I am glad that the storm in Florida is much less than what was expected. Warm regards, ****************** (Rochester, NY) Mom to , 3.2 years, Verbal Apraxia & , 1 year ________________________________ From: [mailto: ] On Behalf Of kiddietalk Sent: Wednesday, August 30, 2006 1:25 PM Subject: [ ] Re: Things that make you go hmmmmm ... If your husband's family is from Jersey -did you visit there while pregnant? The following clip is from an archive (I put the entire post below) for those who believe that the numbers are higher in certain areas due to awareness. I'm starting to come to the conclusion that the reason there may be two distinct schools of thought on apraxia today is because the other group is located in Pittsburgh -where I've heard there are very few members -(even though some would believe there are tons of kids there) and...our group was started in New Apraxia, I mean Jersey. And for those who have not read this http://www.cherab.org/news/Save.html <http://www.cherab.org/news/Save.html> Anyway -let us know where you were while pregnant! " I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. " From /message/49314 < /message/49314> Sat Jun 24, 2006 3:09 pm " kiddietalk " kiddietalk@... <mailto:kiddietalk%40> Re: does anyone else like to blame vaccines and other environmental Hey Joanne! The awareness thing only runs true at times in the explanation of diagnosis of apraxia and why certain areas are higher or lower. My co author of The Late Talker is neurodevelopmental pediatrician in private practice in NYC (and medical director for NYC Early Intervention for NYC) and she too could not explain the lack of apraxic children in Manhattan before 911. In that case anyway which is the most dramatic example out there -that was not due to lack of awareness that's for sure! The entire EI staff was and is fully knowledgeable about apraxia due to Dr. Agin. In fact the entire NYC tristate area is pretty up in general on apraxia. (back then Children's Apraxia Network and CHERAB had huge meetings) And it wasn't just the doctors. If you check the archives we had more than one example of producers in NYC before 911 looking to interview families in NYC (Manhattan)because it's cheaper and easier for them, and instead they always ended up going to NJ. Don't get me wrong there are apraxic children in Long Island and Westchester and all the surrounding boroughs of Manhattan -just not in Manhattan for some reason back then. Lack of soil for it to spread that way perhaps? And for those that don't know -parts of NJ are literally minutes away (given a time there is no traffic that is) over a bridge or through a tunnel from Manhattan. I checked the EPA where I live even before I moved, and it's no comparison clean to where I moved from. Also where I live now in addition to Tanner being the only apraxic child in any school he has gone to (which is just so weird!) in most cases I have to drive an hour or more to find another one! Florida may be toxic in parts,,,but Florida is a huge state. The Miami or Boca area and Tampa area appear to be higher for example in numbers of apraxic children than where I am on the Treasure Coast or the Panhandle areas both where our numbers are few to none. I remember I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. And runs Florida support in Vero and her daughter has global apraxia..but we have other than no members there and yet another example of someone from a " low " area where the ProEFA doesn't seem to work. I spoke to someone who works in soil for the state of Florida and told him I'd love to have soil testing comparison in different areas depending on number of apraxic children. Anyway I notice strange things that most don't notice. You can read one of them like the clearing of the throat thing in theaters in the following archive from 2005 that addressed this very same topic. Toxic Florida. I guess that's why it feels like home it me. Perhaps Florida today is like NJ was when I was a little girl! (and not for nothing but the planet's just not that big. Eventually there will be no way to move away from it unless you are away from all civilization...and rain...maybe in North Dakota or something (I can kid because there's nobody here from there right?) Re: Fwd: Envirnmental Working Group profile It doesn't say but I'm guessing this is posted in response to " Palm Beach Post News Toxins and Cord blood " /message/4129 < /message/4129> 1 I was going to comment on that article as well since of all areas of the country it was about the about the high amounts of 'toxins' found in children from all the farmland here in... Florida! (it was sent to me private as well but I didn't post it) I live on the waterways of the Treasure Coast of Florida now where Tropicana and other citrus farmers have run off chemicals coming through the waterways. And yet...tons of fish here, the people that live near me -virtually no apraxic children -and as of yet have not met any with autism either. If you ask those that grew up here " Who do you know with cancer? " (yes I'm the type of person that asks stuff like this) I get after a few moments where they stop and think about it " I'm not sure if I know anyone with cancer. I have to think about that. " If you are from New Jersey, how many of you can say that? Yes NJ 'was' known as the " Garden State " (or is? still?) but that was probably before there was a factory on every corner. Also I noticed something else I've pointed out to a few doctors. When you go to the movies or a play you always hit a dead spot where all is quiet for a few seconds at least. In NJ and NY where I used to live in both states -you'd always hear at least a few people during this quiet period either clearing their throats or coughing. Here (before the hurricanes) quiet. So if the babies here have tons of pesticides in their umbilical cords -perhaps it's some type of apraxia prevention. (just kidding I think) As far as vested interest, it's harder to find any studies completely void of any vested interest. This is why it is wise to examine all sides to find the truth. As one wise toy inventor always said to me " the proof is in the pudding " And.. I'll take pesticides over toxic black NJ ooze bird killer anyday! (from where I moved 'from' thank God) http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park <http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park> 's%20soil% 20is%20highly%20toxic.pdf ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 We live in NJ and my 4 year old son is diagnosed with severe apraxia. Thanks Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 We're in Texas, though my daughter was not a real responder to EFAs. I give them to her still, since her bloodwork showed she was low. She responded much more to liposomal glutathione and carnaware. > > My severly apraxic son was born in TX! You should probably due a stats test > on this site... > > > > " kiddietalk " > <kiddietalk@...> To: > Sent by: cc: > @yaho Subject: [ ] Re: Things that make you go hmmmmm ... > ogroups.com > > > 08/30/2006 01:24 PM > Please respond to > > > > > > > If your husband's family is from Jersey -did you visit there while > pregnant? The following clip is from an archive (I put the entire > post below) for those who believe that the numbers are higher in > certain areas due to awareness. I'm starting to come to the > conclusion that the reason there may be two distinct schools of > thought on apraxia today is because the other group is located in > Pittsburgh -where I've heard there are very few members -(even > though some would believe there are tons of kids there) and...our > group was started in New Apraxia, I mean Jersey. > And for those who have not read this http://www.cherab.org/news/Save.html > > Anyway -let us know where you were while pregnant! > > " I was speaking once to a Mother from the Panhandle area of Florida > and > told her not to get her hopes up too much about ProEFA because it > probably won't work since in areas where our numbers are low the > chance of it working isn't that great. I told her about the cluster > areas in states like NJ, Ohio, Texas, California..and she cut me off > in shock. Her other children were fine but she lived in the > Panhandle for those pregnancies. However while she was pregnant > with her apraxic child she stayed with her Mother who had cancer in > Texas to take care of her. Coincidence? I'd say not. " > > From > /message/49314 > > Sat Jun 24, 2006 3:09 pm > " kiddietalk " kiddietalk@... > Re: does anyone else like to blame vaccines and other environmental > > > Hey Joanne! > > The awareness thing only runs true at times in the explanation of > diagnosis of apraxia and why certain areas are higher or lower. My > co author of The Late Talker is neurodevelopmental pediatrician in > private practice in NYC (and medical director for NYC Early > Intervention for NYC) and she too could not explain the lack of > apraxic children in Manhattan before 911. In that case anyway which > is the most dramatic example out there -that was not due to lack of > awareness that's for sure! The entire EI staff was and is fully > knowledgeable about apraxia due to Dr. Agin. In fact the entire NYC > tristate area is pretty up in general on apraxia. > (back then Children's Apraxia Network and CHERAB had huge meetings) > > And it wasn't just the doctors. If you check the archives we had > more than one example of producers in NYC before 911 looking to > interview families in NYC (Manhattan)because it's cheaper and easier > for them, and instead they always ended up going to NJ. Don't get > me wrong there are apraxic children in Long Island and Westchester > and all the surrounding boroughs of Manhattan -just not in Manhattan > for some reason back then. Lack of soil for it to spread that way > perhaps? > And for those that don't know -parts of NJ are literally minutes > away (given a time there is no traffic that is) over a bridge or > through a tunnel from Manhattan. > > I checked the EPA where I live even before I moved, and it's no > comparison clean to where I moved from. Also where I live now in > addition to Tanner being the only apraxic child in any school he has > gone to (which is just so weird!) in most cases I have to drive an > hour or more to find another one! Florida may be toxic in > parts,,,but Florida is a huge state. The Miami or Boca area and > Tampa area appear to be higher for example in numbers of apraxic > children than where I am on the Treasure Coast or the Panhandle > areas both where our numbers are few to none. I remember I was > speaking once to a Mother from the Panhandle area of Florida and > told her not to get her hopes up too much about ProEFA because it > probably won't work since in areas where our numbers are low the > chance of it working isn't that great. I told her about the cluster > areas in states like NJ, Ohio, Texas, California..and she cut me off > in shock. Her other children were fine but she lived in the > Panhandle for those pregnancies. However while she was pregnant > with her apraxic child she stayed with her Mother who had cancer in > Texas to take care of her. Coincidence? I'd say not. > > And runs Florida support in Vero and her daughter has > global apraxia..but we have other than no members there and > yet another example of someone from a " low " area where the ProEFA > doesn't seem to work. > > I spoke to someone who works in soil for the state of Florida and > told him I'd love to have soil testing comparison in different areas > depending on number of apraxic children. Anyway I notice strange > things that most don't notice. You can read one of them like the > clearing of the throat thing in theaters in the following archive > from 2005 that addressed this very same topic. Toxic Florida. I > guess that's why it feels like home it me. Perhaps Florida today is > like NJ was when I was a little girl! (and not for nothing but the > planet's just not that big. Eventually there will be no way to move > away from it unless you are away from all civilization...and > rain...maybe in North Dakota or something (I can kid because there's > nobody here from there right?) > > Re: Fwd: Envirnmental Working Group profile > > > It doesn't say but I'm guessing this is posted in response to > " Palm Beach Post News Toxins and Cord blood " > /message/4129 > 1 > > I was going to comment on that article as well since of all areas of > the country it was about the about the high amounts of 'toxins' found > in children from all the farmland here in... Florida! (it was sent to > me private as well but I didn't post it) > > I live on the waterways of the Treasure Coast of Florida now where > Tropicana and other citrus farmers have run off chemicals coming > through the waterways. And yet...tons of fish here, the people that > live near me -virtually no apraxic children -and as of yet have not > met any with autism either. If you ask those that grew up here " Who > do you know with cancer? " (yes I'm the type of person that asks > stuff like this) I get after a few moments where they stop and think > about it " I'm not sure if I know anyone with cancer. I have to > think about that. " If you are from New Jersey, how many of you can > say that? Yes NJ 'was' known as the " Garden State " (or is? still?) > but that was probably before there was a factory on every corner. > > Also I noticed something else I've pointed out to a few doctors. > When you go to the movies or a play you always hit a dead spot where > all is quiet for a few seconds at least. In NJ and NY where I used > to live in both states -you'd always hear at least a few people > during this quiet period either clearing their throats or coughing. > Here (before the hurricanes) quiet. > > So if the babies here have tons of pesticides in their umbilical > cords -perhaps it's some type of apraxia prevention. (just kidding I > think) > > As far as vested interest, it's harder to find any studies > completely void of any vested interest. This is why it is wise to > examine all sides to find the truth. > > As one wise toy inventor always said to me " the proof is in the > pudding " > > And.. I'll take pesticides over toxic black NJ ooze bird killer > anyday! (from > where I moved 'from' thank God) > http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park's%20soil% > 20is%20highly%20toxic.pdf > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 If your husband's family is from Jersey -did you visit there while pregnant? The following clip is from an archive (I put the entire post below) for those who believe that the numbers are higher in certain areas due to awareness. I'm starting to come to the conclusion that the reason there may be two distinct schools of thought on apraxia today is because the other group is located in Pittsburgh -where I've heard there are very few members -(even though some would believe there are tons of kids there) and...our group was started in New Apraxia, I mean Jersey. And for those who have not read this http://www.cherab.org/news/Save.html Anyway -let us know where you were while pregnant! " I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. " From /message/49314 Sat Jun 24, 2006 3:09 pm " kiddietalk " kiddietalk@... Re: does anyone else like to blame vaccines and other environmental Hey Joanne! The awareness thing only runs true at times in the explanation of diagnosis of apraxia and why certain areas are higher or lower. My co author of The Late Talker is neurodevelopmental pediatrician in private practice in NYC (and medical director for NYC Early Intervention for NYC) and she too could not explain the lack of apraxic children in Manhattan before 911. In that case anyway which is the most dramatic example out there -that was not due to lack of awareness that's for sure! The entire EI staff was and is fully knowledgeable about apraxia due to Dr. Agin. In fact the entire NYC tristate area is pretty up in general on apraxia. (back then Children's Apraxia Network and CHERAB had huge meetings) And it wasn't just the doctors. If you check the archives we had more than one example of producers in NYC before 911 looking to interview families in NYC (Manhattan)because it's cheaper and easier for them, and instead they always ended up going to NJ. Don't get me wrong there are apraxic children in Long Island and Westchester and all the surrounding boroughs of Manhattan -just not in Manhattan for some reason back then. Lack of soil for it to spread that way perhaps? And for those that don't know -parts of NJ are literally minutes away (given a time there is no traffic that is) over a bridge or through a tunnel from Manhattan. I checked the EPA where I live even before I moved, and it's no comparison clean to where I moved from. Also where I live now in addition to Tanner being the only apraxic child in any school he has gone to (which is just so weird!) in most cases I have to drive an hour or more to find another one! Florida may be toxic in parts,,,but Florida is a huge state. The Miami or Boca area and Tampa area appear to be higher for example in numbers of apraxic children than where I am on the Treasure Coast or the Panhandle areas both where our numbers are few to none. I remember I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. And runs Florida support in Vero and her daughter has global apraxia..but we have other than no members there and yet another example of someone from a " low " area where the ProEFA doesn't seem to work. I spoke to someone who works in soil for the state of Florida and told him I'd love to have soil testing comparison in different areas depending on number of apraxic children. Anyway I notice strange things that most don't notice. You can read one of them like the clearing of the throat thing in theaters in the following archive from 2005 that addressed this very same topic. Toxic Florida. I guess that's why it feels like home it me. Perhaps Florida today is like NJ was when I was a little girl! (and not for nothing but the planet's just not that big. Eventually there will be no way to move away from it unless you are away from all civilization...and rain...maybe in North Dakota or something (I can kid because there's nobody here from there right?) Re: Fwd: Envirnmental Working Group profile It doesn't say but I'm guessing this is posted in response to " Palm Beach Post News Toxins and Cord blood " /message/4129 1 I was going to comment on that article as well since of all areas of the country it was about the about the high amounts of 'toxins' found in children from all the farmland here in... Florida! (it was sent to me private as well but I didn't post it) I live on the waterways of the Treasure Coast of Florida now where Tropicana and other citrus farmers have run off chemicals coming through the waterways. And yet...tons of fish here, the people that live near me -virtually no apraxic children -and as of yet have not met any with autism either. If you ask those that grew up here " Who do you know with cancer? " (yes I'm the type of person that asks stuff like this) I get after a few moments where they stop and think about it " I'm not sure if I know anyone with cancer. I have to think about that. " If you are from New Jersey, how many of you can say that? Yes NJ 'was' known as the " Garden State " (or is? still?) but that was probably before there was a factory on every corner. Also I noticed something else I've pointed out to a few doctors. When you go to the movies or a play you always hit a dead spot where all is quiet for a few seconds at least. In NJ and NY where I used to live in both states -you'd always hear at least a few people during this quiet period either clearing their throats or coughing. Here (before the hurricanes) quiet. So if the babies here have tons of pesticides in their umbilical cords -perhaps it's some type of apraxia prevention. (just kidding I think) As far as vested interest, it's harder to find any studies completely void of any vested interest. This is why it is wise to examine all sides to find the truth. As one wise toy inventor always said to me " the proof is in the pudding " And.. I'll take pesticides over toxic black NJ ooze bird killer anyday! (from where I moved 'from' thank God) http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park's%20soil% 20is%20highly%20toxic.pdf ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 My severly apraxic son was born in TX! You should probably due a stats test on this site... " kiddietalk " <kiddietalk@...> Sent by: cc: @yaho Subject: [ ] Re: Things that make you go hmmmmm ... ogroups.com 08/30/2006 01:24 PM Please respond to If your husband's family is from Jersey -did you visit there while pregnant? The following clip is from an archive (I put the entire post below) for those who believe that the numbers are higher in certain areas due to awareness. I'm starting to come to the conclusion that the reason there may be two distinct schools of thought on apraxia today is because the other group is located in Pittsburgh -where I've heard there are very few members -(even though some would believe there are tons of kids there) and...our group was started in New Apraxia, I mean Jersey. And for those who have not read this http://www.cherab.org/news/Save.html Anyway -let us know where you were while pregnant! " I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. " From /message/49314 Sat Jun 24, 2006 3:09 pm " kiddietalk " kiddietalk@... Re: does anyone else like to blame vaccines and other environmental Hey Joanne! The awareness thing only runs true at times in the explanation of diagnosis of apraxia and why certain areas are higher or lower. My co author of The Late Talker is neurodevelopmental pediatrician in private practice in NYC (and medical director for NYC Early Intervention for NYC) and she too could not explain the lack of apraxic children in Manhattan before 911. In that case anyway which is the most dramatic example out there -that was not due to lack of awareness that's for sure! The entire EI staff was and is fully knowledgeable about apraxia due to Dr. Agin. In fact the entire NYC tristate area is pretty up in general on apraxia. (back then Children's Apraxia Network and CHERAB had huge meetings) And it wasn't just the doctors. If you check the archives we had more than one example of producers in NYC before 911 looking to interview families in NYC (Manhattan)because it's cheaper and easier for them, and instead they always ended up going to NJ. Don't get me wrong there are apraxic children in Long Island and Westchester and all the surrounding boroughs of Manhattan -just not in Manhattan for some reason back then. Lack of soil for it to spread that way perhaps? And for those that don't know -parts of NJ are literally minutes away (given a time there is no traffic that is) over a bridge or through a tunnel from Manhattan. I checked the EPA where I live even before I moved, and it's no comparison clean to where I moved from. Also where I live now in addition to Tanner being the only apraxic child in any school he has gone to (which is just so weird!) in most cases I have to drive an hour or more to find another one! Florida may be toxic in parts,,,but Florida is a huge state. The Miami or Boca area and Tampa area appear to be higher for example in numbers of apraxic children than where I am on the Treasure Coast or the Panhandle areas both where our numbers are few to none. I remember I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. And runs Florida support in Vero and her daughter has global apraxia..but we have other than no members there and yet another example of someone from a " low " area where the ProEFA doesn't seem to work. I spoke to someone who works in soil for the state of Florida and told him I'd love to have soil testing comparison in different areas depending on number of apraxic children. Anyway I notice strange things that most don't notice. You can read one of them like the clearing of the throat thing in theaters in the following archive from 2005 that addressed this very same topic. Toxic Florida. I guess that's why it feels like home it me. Perhaps Florida today is like NJ was when I was a little girl! (and not for nothing but the planet's just not that big. Eventually there will be no way to move away from it unless you are away from all civilization...and rain...maybe in North Dakota or something (I can kid because there's nobody here from there right?) Re: Fwd: Envirnmental Working Group profile It doesn't say but I'm guessing this is posted in response to " Palm Beach Post News Toxins and Cord blood " /message/4129 1 I was going to comment on that article as well since of all areas of the country it was about the about the high amounts of 'toxins' found in children from all the farmland here in... Florida! (it was sent to me private as well but I didn't post it) I live on the waterways of the Treasure Coast of Florida now where Tropicana and other citrus farmers have run off chemicals coming through the waterways. And yet...tons of fish here, the people that live near me -virtually no apraxic children -and as of yet have not met any with autism either. If you ask those that grew up here " Who do you know with cancer? " (yes I'm the type of person that asks stuff like this) I get after a few moments where they stop and think about it " I'm not sure if I know anyone with cancer. I have to think about that. " If you are from New Jersey, how many of you can say that? Yes NJ 'was' known as the " Garden State " (or is? still?) but that was probably before there was a factory on every corner. Also I noticed something else I've pointed out to a few doctors. When you go to the movies or a play you always hit a dead spot where all is quiet for a few seconds at least. In NJ and NY where I used to live in both states -you'd always hear at least a few people during this quiet period either clearing their throats or coughing. Here (before the hurricanes) quiet. So if the babies here have tons of pesticides in their umbilical cords -perhaps it's some type of apraxia prevention. (just kidding I think) As far as vested interest, it's harder to find any studies completely void of any vested interest. This is why it is wise to examine all sides to find the truth. As one wise toy inventor always said to me " the proof is in the pudding " And.. I'll take pesticides over toxic black NJ ooze bird killer anyday! (from where I moved 'from' thank God) http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park's%20soil% 20is%20highly%20toxic.pdf ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 You mentioned Ohio as a hot spot too.... any specific part? We're in Ohio between Cincinnati and Dayton. I havent' done much networking in regards to apraxia groups, but as a normal course of things I don't know anyone else with Apraxia or Autism. But I know Cincinnati especially always ends up really high on the most unhealthy city's to live in survey. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 " If your husband's family is from Jersey -did you visit there while pregnant? " No, we didn't, because my in-laws had just moved from Montclair, NJ to the Reading, PA area that very year. So, perhaps there is not a connection, but it does seem to be a tantalyzing coincidence, doesn't it, given everything else? When we went to our initial visit with Dr. Hyman, our Developmental Pediatrician (who rocks, by the way!), she confirmed the apraxia suspicion and basically told us to seek support online because there was not a significant enough population in our area to support a local group as of yet (I am paraphrasing here). She told us that apraxia was not a very common diagnosis in our area. Very interesting. Thank you for your reply, ! I am glad that the storm in Florida is much less than what was expected. Warm regards, ****************** (Rochester, NY) Mom to , 3.2 years, Verbal Apraxia & , 1 year ________________________________ From: [mailto: ] On Behalf Of kiddietalk Sent: Wednesday, August 30, 2006 1:25 PM Subject: [ ] Re: Things that make you go hmmmmm ... If your husband's family is from Jersey -did you visit there while pregnant? The following clip is from an archive (I put the entire post below) for those who believe that the numbers are higher in certain areas due to awareness. I'm starting to come to the conclusion that the reason there may be two distinct schools of thought on apraxia today is because the other group is located in Pittsburgh -where I've heard there are very few members -(even though some would believe there are tons of kids there) and...our group was started in New Apraxia, I mean Jersey. And for those who have not read this http://www.cherab.org/news/Save.html <http://www.cherab.org/news/Save.html> Anyway -let us know where you were while pregnant! " I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. " From /message/49314 < /message/49314> Sat Jun 24, 2006 3:09 pm " kiddietalk " kiddietalk@... <mailto:kiddietalk%40> Re: does anyone else like to blame vaccines and other environmental Hey Joanne! The awareness thing only runs true at times in the explanation of diagnosis of apraxia and why certain areas are higher or lower. My co author of The Late Talker is neurodevelopmental pediatrician in private practice in NYC (and medical director for NYC Early Intervention for NYC) and she too could not explain the lack of apraxic children in Manhattan before 911. In that case anyway which is the most dramatic example out there -that was not due to lack of awareness that's for sure! The entire EI staff was and is fully knowledgeable about apraxia due to Dr. Agin. In fact the entire NYC tristate area is pretty up in general on apraxia. (back then Children's Apraxia Network and CHERAB had huge meetings) And it wasn't just the doctors. If you check the archives we had more than one example of producers in NYC before 911 looking to interview families in NYC (Manhattan)because it's cheaper and easier for them, and instead they always ended up going to NJ. Don't get me wrong there are apraxic children in Long Island and Westchester and all the surrounding boroughs of Manhattan -just not in Manhattan for some reason back then. Lack of soil for it to spread that way perhaps? And for those that don't know -parts of NJ are literally minutes away (given a time there is no traffic that is) over a bridge or through a tunnel from Manhattan. I checked the EPA where I live even before I moved, and it's no comparison clean to where I moved from. Also where I live now in addition to Tanner being the only apraxic child in any school he has gone to (which is just so weird!) in most cases I have to drive an hour or more to find another one! Florida may be toxic in parts,,,but Florida is a huge state. The Miami or Boca area and Tampa area appear to be higher for example in numbers of apraxic children than where I am on the Treasure Coast or the Panhandle areas both where our numbers are few to none. I remember I was speaking once to a Mother from the Panhandle area of Florida and told her not to get her hopes up too much about ProEFA because it probably won't work since in areas where our numbers are low the chance of it working isn't that great. I told her about the cluster areas in states like NJ, Ohio, Texas, California..and she cut me off in shock. Her other children were fine but she lived in the Panhandle for those pregnancies. However while she was pregnant with her apraxic child she stayed with her Mother who had cancer in Texas to take care of her. Coincidence? I'd say not. And runs Florida support in Vero and her daughter has global apraxia..but we have other than no members there and yet another example of someone from a " low " area where the ProEFA doesn't seem to work. I spoke to someone who works in soil for the state of Florida and told him I'd love to have soil testing comparison in different areas depending on number of apraxic children. Anyway I notice strange things that most don't notice. You can read one of them like the clearing of the throat thing in theaters in the following archive from 2005 that addressed this very same topic. Toxic Florida. I guess that's why it feels like home it me. Perhaps Florida today is like NJ was when I was a little girl! (and not for nothing but the planet's just not that big. Eventually there will be no way to move away from it unless you are away from all civilization...and rain...maybe in North Dakota or something (I can kid because there's nobody here from there right?) Re: Fwd: Envirnmental Working Group profile It doesn't say but I'm guessing this is posted in response to " Palm Beach Post News Toxins and Cord blood " /message/4129 < /message/4129> 1 I was going to comment on that article as well since of all areas of the country it was about the about the high amounts of 'toxins' found in children from all the farmland here in... Florida! (it was sent to me private as well but I didn't post it) I live on the waterways of the Treasure Coast of Florida now where Tropicana and other citrus farmers have run off chemicals coming through the waterways. And yet...tons of fish here, the people that live near me -virtually no apraxic children -and as of yet have not met any with autism either. If you ask those that grew up here " Who do you know with cancer? " (yes I'm the type of person that asks stuff like this) I get after a few moments where they stop and think about it " I'm not sure if I know anyone with cancer. I have to think about that. " If you are from New Jersey, how many of you can say that? Yes NJ 'was' known as the " Garden State " (or is? still?) but that was probably before there was a factory on every corner. Also I noticed something else I've pointed out to a few doctors. When you go to the movies or a play you always hit a dead spot where all is quiet for a few seconds at least. In NJ and NY where I used to live in both states -you'd always hear at least a few people during this quiet period either clearing their throats or coughing. Here (before the hurricanes) quiet. So if the babies here have tons of pesticides in their umbilical cords -perhaps it's some type of apraxia prevention. (just kidding I think) As far as vested interest, it's harder to find any studies completely void of any vested interest. This is why it is wise to examine all sides to find the truth. As one wise toy inventor always said to me " the proof is in the pudding " And.. I'll take pesticides over toxic black NJ ooze bird killer anyday! (from where I moved 'from' thank God) http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park <http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park> 's%20soil% 20is%20highly%20toxic.pdf ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 It would be great to get a stats thing going. Problem has been that most of the people who have children that do surge on the EFAs (since the surge is so quick) move on. (from an archive I've sent out for years) " The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Just a few stick around to continue to help, because we remember what it's like to not have anyone around to help and appreciate anyone that was there... As far as the active group here, outside of those few that are here to help including those like myself who have children that have mainly overcome and various professionals -most of the rest are newbies, or those who have children that didn't respond to EFAs... Or parents of kids that are more impaired. If there is a way to work with those that run support groups or professionals in each state that could be a more accurate way of knowing -not sure. Back when we had in person support groups that's when I got to see things. Or we continue to ask people where they live when they post. Work with SLPs in each state?..suggestions? ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 We live in NJ and my 4 year old son is diagnosed with severe apraxia. Thanks Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 We're in Texas, though my daughter was not a real responder to EFAs. I give them to her still, since her bloodwork showed she was low. She responded much more to liposomal glutathione and carnaware. > > My severly apraxic son was born in TX! You should probably due a stats test > on this site... > > > > " kiddietalk " > <kiddietalk@...> To: > Sent by: cc: > @yaho Subject: [ ] Re: Things that make you go hmmmmm ... > ogroups.com > > > 08/30/2006 01:24 PM > Please respond to > > > > > > > If your husband's family is from Jersey -did you visit there while > pregnant? The following clip is from an archive (I put the entire > post below) for those who believe that the numbers are higher in > certain areas due to awareness. I'm starting to come to the > conclusion that the reason there may be two distinct schools of > thought on apraxia today is because the other group is located in > Pittsburgh -where I've heard there are very few members -(even > though some would believe there are tons of kids there) and...our > group was started in New Apraxia, I mean Jersey. > And for those who have not read this http://www.cherab.org/news/Save.html > > Anyway -let us know where you were while pregnant! > > " I was speaking once to a Mother from the Panhandle area of Florida > and > told her not to get her hopes up too much about ProEFA because it > probably won't work since in areas where our numbers are low the > chance of it working isn't that great. I told her about the cluster > areas in states like NJ, Ohio, Texas, California..and she cut me off > in shock. Her other children were fine but she lived in the > Panhandle for those pregnancies. However while she was pregnant > with her apraxic child she stayed with her Mother who had cancer in > Texas to take care of her. Coincidence? I'd say not. " > > From > /message/49314 > > Sat Jun 24, 2006 3:09 pm > " kiddietalk " kiddietalk@... > Re: does anyone else like to blame vaccines and other environmental > > > Hey Joanne! > > The awareness thing only runs true at times in the explanation of > diagnosis of apraxia and why certain areas are higher or lower. My > co author of The Late Talker is neurodevelopmental pediatrician in > private practice in NYC (and medical director for NYC Early > Intervention for NYC) and she too could not explain the lack of > apraxic children in Manhattan before 911. In that case anyway which > is the most dramatic example out there -that was not due to lack of > awareness that's for sure! The entire EI staff was and is fully > knowledgeable about apraxia due to Dr. Agin. In fact the entire NYC > tristate area is pretty up in general on apraxia. > (back then Children's Apraxia Network and CHERAB had huge meetings) > > And it wasn't just the doctors. If you check the archives we had > more than one example of producers in NYC before 911 looking to > interview families in NYC (Manhattan)because it's cheaper and easier > for them, and instead they always ended up going to NJ. Don't get > me wrong there are apraxic children in Long Island and Westchester > and all the surrounding boroughs of Manhattan -just not in Manhattan > for some reason back then. Lack of soil for it to spread that way > perhaps? > And for those that don't know -parts of NJ are literally minutes > away (given a time there is no traffic that is) over a bridge or > through a tunnel from Manhattan. > > I checked the EPA where I live even before I moved, and it's no > comparison clean to where I moved from. Also where I live now in > addition to Tanner being the only apraxic child in any school he has > gone to (which is just so weird!) in most cases I have to drive an > hour or more to find another one! Florida may be toxic in > parts,,,but Florida is a huge state. The Miami or Boca area and > Tampa area appear to be higher for example in numbers of apraxic > children than where I am on the Treasure Coast or the Panhandle > areas both where our numbers are few to none. I remember I was > speaking once to a Mother from the Panhandle area of Florida and > told her not to get her hopes up too much about ProEFA because it > probably won't work since in areas where our numbers are low the > chance of it working isn't that great. I told her about the cluster > areas in states like NJ, Ohio, Texas, California..and she cut me off > in shock. Her other children were fine but she lived in the > Panhandle for those pregnancies. However while she was pregnant > with her apraxic child she stayed with her Mother who had cancer in > Texas to take care of her. Coincidence? I'd say not. > > And runs Florida support in Vero and her daughter has > global apraxia..but we have other than no members there and > yet another example of someone from a " low " area where the ProEFA > doesn't seem to work. > > I spoke to someone who works in soil for the state of Florida and > told him I'd love to have soil testing comparison in different areas > depending on number of apraxic children. Anyway I notice strange > things that most don't notice. You can read one of them like the > clearing of the throat thing in theaters in the following archive > from 2005 that addressed this very same topic. Toxic Florida. I > guess that's why it feels like home it me. Perhaps Florida today is > like NJ was when I was a little girl! (and not for nothing but the > planet's just not that big. Eventually there will be no way to move > away from it unless you are away from all civilization...and > rain...maybe in North Dakota or something (I can kid because there's > nobody here from there right?) > > Re: Fwd: Envirnmental Working Group profile > > > It doesn't say but I'm guessing this is posted in response to > " Palm Beach Post News Toxins and Cord blood " > /message/4129 > 1 > > I was going to comment on that article as well since of all areas of > the country it was about the about the high amounts of 'toxins' found > in children from all the farmland here in... Florida! (it was sent to > me private as well but I didn't post it) > > I live on the waterways of the Treasure Coast of Florida now where > Tropicana and other citrus farmers have run off chemicals coming > through the waterways. And yet...tons of fish here, the people that > live near me -virtually no apraxic children -and as of yet have not > met any with autism either. If you ask those that grew up here " Who > do you know with cancer? " (yes I'm the type of person that asks > stuff like this) I get after a few moments where they stop and think > about it " I'm not sure if I know anyone with cancer. I have to > think about that. " If you are from New Jersey, how many of you can > say that? Yes NJ 'was' known as the " Garden State " (or is? still?) > but that was probably before there was a factory on every corner. > > Also I noticed something else I've pointed out to a few doctors. > When you go to the movies or a play you always hit a dead spot where > all is quiet for a few seconds at least. In NJ and NY where I used > to live in both states -you'd always hear at least a few people > during this quiet period either clearing their throats or coughing. > Here (before the hurricanes) quiet. > > So if the babies here have tons of pesticides in their umbilical > cords -perhaps it's some type of apraxia prevention. (just kidding I > think) > > As far as vested interest, it's harder to find any studies > completely void of any vested interest. This is why it is wise to > examine all sides to find the truth. > > As one wise toy inventor always said to me " the proof is in the > pudding " > > And.. I'll take pesticides over toxic black NJ ooze bird killer > anyday! (from > where I moved 'from' thank God) > http://www.eohsi.rutgers.edu/pdf/Tony%20Sclafani%20-%20Park's%20soil% > 20is%20highly%20toxic.pdf > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 You mentioned Ohio as a hot spot too.... any specific part? We're in Ohio between Cincinnati and Dayton. I havent' done much networking in regards to apraxia groups, but as a normal course of things I don't know anyone else with Apraxia or Autism. But I know Cincinnati especially always ends up really high on the most unhealthy city's to live in survey. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 It would be great to get a stats thing going. Problem has been that most of the people who have children that do surge on the EFAs (since the surge is so quick) move on. (from an archive I've sent out for years) " The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Just a few stick around to continue to help, because we remember what it's like to not have anyone around to help and appreciate anyone that was there... As far as the active group here, outside of those few that are here to help including those like myself who have children that have mainly overcome and various professionals -most of the rest are newbies, or those who have children that didn't respond to EFAs... Or parents of kids that are more impaired. If there is a way to work with those that run support groups or professionals in each state that could be a more accurate way of knowing -not sure. Back when we had in person support groups that's when I got to see things. Or we continue to ask people where they live when they post. Work with SLPs in each state?..suggestions? ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Perhaps town/city and state could be requested from each new member when they join the listserv, at the very least. " The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either.. " This is very true. At a recent EI team meeting, our SLP made the comment that, " doesn't really present as an apraxic child any longer in many ways. She can imitate speech and her intelligibility is really quite good. " Our Developmental Pediatrician made a similar comment a few weeks ago. We are floored. " Just a few stick around to continue to help, because we remember what it's like to not have anyone around to help and appreciate anyone that was there... " I am grateful for that. I see apraxia as a manageable condition. I pray every day that will have no residual problems. I guess only time will tell, as her speech is still emerging and she is so young. But this whole struggle has changed me. I am compelled to stick around and although I am not an expert, I do feel experienced in the " trenches " already. I also pray every day that my 13 month old is not affected. She is saying some words, pointing and generally, really " plugged in, " so I am encouraged. But gosh, I worry every day about that. Warm regards, ****************** (Rochester, NY) Mom to , 3.2 years, Verbal Apraxia & , 1 year ________________________________ From: [mailto: ] On Behalf Of kiddietalk Sent: Wednesday, August 30, 2006 10:13 PM Subject: [ ] Re: Things that make you go hmmmmm ... It would be great to get a stats thing going. Problem has been that most of the people who have children that do surge on the EFAs (since the surge is so quick) move on. (from an archive I've sent out for years) " The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Just a few stick around to continue to help, because we remember what it's like to not have anyone around to help and appreciate anyone that was there... As far as the active group here, outside of those few that are here to help including those like myself who have children that have mainly overcome and various professionals -most of the rest are newbies, or those who have children that didn't respond to EFAs... Or parents of kids that are more impaired. If there is a way to work with those that run support groups or professionals in each state that could be a more accurate way of knowing -not sure. Back when we had in person support groups that's when I got to see things. Or we continue to ask people where they live when they post. Work with SLPs in each state?..suggestions? ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Perhaps town/city and state could be requested from each new member when they join the listserv, at the very least. " The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either.. " This is very true. At a recent EI team meeting, our SLP made the comment that, " doesn't really present as an apraxic child any longer in many ways. She can imitate speech and her intelligibility is really quite good. " Our Developmental Pediatrician made a similar comment a few weeks ago. We are floored. " Just a few stick around to continue to help, because we remember what it's like to not have anyone around to help and appreciate anyone that was there... " I am grateful for that. I see apraxia as a manageable condition. I pray every day that will have no residual problems. I guess only time will tell, as her speech is still emerging and she is so young. But this whole struggle has changed me. I am compelled to stick around and although I am not an expert, I do feel experienced in the " trenches " already. I also pray every day that my 13 month old is not affected. She is saying some words, pointing and generally, really " plugged in, " so I am encouraged. But gosh, I worry every day about that. Warm regards, ****************** (Rochester, NY) Mom to , 3.2 years, Verbal Apraxia & , 1 year ________________________________ From: [mailto: ] On Behalf Of kiddietalk Sent: Wednesday, August 30, 2006 10:13 PM Subject: [ ] Re: Things that make you go hmmmmm ... It would be great to get a stats thing going. Problem has been that most of the people who have children that do surge on the EFAs (since the surge is so quick) move on. (from an archive I've sent out for years) " The child on ProEFA or some other EFA formula's like it no longer fits the criteria of the classic definition of apraxia -and yet doesn't fit the classic perception of what a late talker is either... Some of the parents become more focused on other everyday activities with their child and start to drift away from the support sources. Problem with this attitude is that unless your child is really up to speed on all aspects of speech and language, the support sources that helped in the beginning will still benefit your child today. ProEFA alone is not the only answer and until we know how and why it works (or why in a handful of children it doesn't) we can't improve on it " Just a few stick around to continue to help, because we remember what it's like to not have anyone around to help and appreciate anyone that was there... As far as the active group here, outside of those few that are here to help including those like myself who have children that have mainly overcome and various professionals -most of the rest are newbies, or those who have children that didn't respond to EFAs... Or parents of kids that are more impaired. If there is a way to work with those that run support groups or professionals in each state that could be a more accurate way of knowing -not sure. Back when we had in person support groups that's when I got to see things. Or we continue to ask people where they live when they post. Work with SLPs in each state?..suggestions? ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 We're South of Akron/Cleveland, OH and we have a VERY LARGE group of apraxia/autism cases here. In our dist, in 1 class there are 4 apraxia cases and 3 autistic. In the next dist., they've gotten a grant for the large amount of autistic kids in their school. We're surrounded by farms & factories. Don't know which it would come from. ________________________________________________________________________ Try Juno Platinum for Free! Then, only $9.95/month! Unlimited Internet Access with 1GB of Email Storage. Visit http://www.juno.com/value to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 We're South of Akron/Cleveland, OH and we have a VERY LARGE group of apraxia/autism cases here. In our dist, in 1 class there are 4 apraxia cases and 3 autistic. In the next dist., they've gotten a grant for the large amount of autistic kids in their school. We're surrounded by farms & factories. Don't know which it would come from. ________________________________________________________________________ Try Juno Platinum for Free! Then, only $9.95/month! Unlimited Internet Access with 1GB of Email Storage. Visit http://www.juno.com/value to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 > > > " The child on ProEFA or some other EFA formula's like it no longer > fits the criteria of the classic definition of apraxia -and yet > doesn't fit the classic perception of what a late talker is > either.. " > > This is very true. At a recent EI team meeting, our SLP made the > comment that, " doesn't really present as an apraxic child any > longer in many ways. She can imitate speech and her intelligibility is > really quite good. " Our Developmental Pediatrician made a similar > comment a few weeks ago. We are floored. " This is happening to us too!!!!! My son is 2.6 (30 months) and both his speech therapist and the director of the center think he might " test out " and not qualify for services with the school district when he turns 3. They are also really reluctant to actually label him as apraxic because he has progressed so much so fast and now presents as a kid with a mild to moderate phonological disorder. From barely a dozen " words " at two along with classic oral apraxia (couldn't blow, lick, pucker, do rasberries etc.), he now is at above age level both in language and cognitively. He does still have significant articulation problems and some oral motor issues, but kids in our district don't normally qualify for services based on that alone. We are looking at a private preschool and private speech therapy for him after he is 3. I credit the fish oil for most of this (along with a great therapist and lots of homework). We started him on 1 capsule of ProEFA a day at 22 months and added a 2nd capsule at 27 months. I'm now trying to decide whether to add 1 ProEPA or go with the Vitamin E instead. (Max's Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 > > > " The child on ProEFA or some other EFA formula's like it no longer > fits the criteria of the classic definition of apraxia -and yet > doesn't fit the classic perception of what a late talker is > either.. " > > This is very true. At a recent EI team meeting, our SLP made the > comment that, " doesn't really present as an apraxic child any > longer in many ways. She can imitate speech and her intelligibility is > really quite good. " Our Developmental Pediatrician made a similar > comment a few weeks ago. We are floored. " This is happening to us too!!!!! My son is 2.6 (30 months) and both his speech therapist and the director of the center think he might " test out " and not qualify for services with the school district when he turns 3. They are also really reluctant to actually label him as apraxic because he has progressed so much so fast and now presents as a kid with a mild to moderate phonological disorder. From barely a dozen " words " at two along with classic oral apraxia (couldn't blow, lick, pucker, do rasberries etc.), he now is at above age level both in language and cognitively. He does still have significant articulation problems and some oral motor issues, but kids in our district don't normally qualify for services based on that alone. We are looking at a private preschool and private speech therapy for him after he is 3. I credit the fish oil for most of this (along with a great therapist and lots of homework). We started him on 1 capsule of ProEFA a day at 22 months and added a 2nd capsule at 27 months. I'm now trying to decide whether to add 1 ProEPA or go with the Vitamin E instead. (Max's Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 We are having the same experience. My son was barely verbal at 24 mos (da da) and could not blow or move his tongue on command. Now he can blow bubbles, blow a horn, move his tongue laterally and up. He can say many words now and tries to immitate everything he hears (dangerous! ) He has even learned to approximate armadillo! (ah ma di LO) FOUR syllables, yippee!! His speech therapists also say he doesn't present as apraxic anymore and no one is quite sure what's going on or how to diagnose him. He's almost 29 mos now and I have him on 2 Omega 3,6,9 (same as ProEFA) and 1 EPA a day. And of course I am going to try the vit E next. > > > > > " The child on ProEFA or some other EFA formula's like it no > longer > > fits the criteria of the classic definition of apraxia -and yet > > doesn't fit the classic perception of what a late talker is > > either.. " > > > > This is very true. At a recent EI team meeting, our SLP made the > > comment that, " doesn't really present as an apraxic child > any > > longer in many ways. She can imitate speech and her > intelligibility > is > > really quite good. " Our Developmental Pediatrician made a similar > > comment a few weeks ago. We are floored. " > > This is happening to us too!!!!! My son is 2.6 (30 months) and both > his speech therapist and the director of the center think he > might " test out " and not qualify for services with the school > district when he turns 3. They are also really reluctant to > actually label him as apraxic because he has progressed so much so > fast and now presents as a kid with a mild to moderate phonological > disorder. > > From barely a dozen " words " at two along with classic oral apraxia > (couldn't blow, lick, pucker, do rasberries etc.), he now is at > above age level both in language and cognitively. He does still > have significant articulation problems and some oral motor issues, > but kids in our district don't normally qualify for services based > on that alone. We are looking at a private preschool and private > speech therapy for him after he is 3. I credit the fish oil for > most of this (along with a great therapist and lots of homework). > We started him on 1 capsule of ProEFA a day at 22 months and added a > 2nd capsule at 27 months. I'm now trying to decide whether to add 1 > ProEPA or go with the Vitamin E instead. > > (Max's Mom) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 We are having the same experience. My son was barely verbal at 24 mos (da da) and could not blow or move his tongue on command. Now he can blow bubbles, blow a horn, move his tongue laterally and up. He can say many words now and tries to immitate everything he hears (dangerous! ) He has even learned to approximate armadillo! (ah ma di LO) FOUR syllables, yippee!! His speech therapists also say he doesn't present as apraxic anymore and no one is quite sure what's going on or how to diagnose him. He's almost 29 mos now and I have him on 2 Omega 3,6,9 (same as ProEFA) and 1 EPA a day. And of course I am going to try the vit E next. > > > > > " The child on ProEFA or some other EFA formula's like it no > longer > > fits the criteria of the classic definition of apraxia -and yet > > doesn't fit the classic perception of what a late talker is > > either.. " > > > > This is very true. At a recent EI team meeting, our SLP made the > > comment that, " doesn't really present as an apraxic child > any > > longer in many ways. She can imitate speech and her > intelligibility > is > > really quite good. " Our Developmental Pediatrician made a similar > > comment a few weeks ago. We are floored. " > > This is happening to us too!!!!! My son is 2.6 (30 months) and both > his speech therapist and the director of the center think he > might " test out " and not qualify for services with the school > district when he turns 3. They are also really reluctant to > actually label him as apraxic because he has progressed so much so > fast and now presents as a kid with a mild to moderate phonological > disorder. > > From barely a dozen " words " at two along with classic oral apraxia > (couldn't blow, lick, pucker, do rasberries etc.), he now is at > above age level both in language and cognitively. He does still > have significant articulation problems and some oral motor issues, > but kids in our district don't normally qualify for services based > on that alone. We are looking at a private preschool and private > speech therapy for him after he is 3. I credit the fish oil for > most of this (along with a great therapist and lots of homework). > We started him on 1 capsule of ProEFA a day at 22 months and added a > 2nd capsule at 27 months. I'm now trying to decide whether to add 1 > ProEPA or go with the Vitamin E instead. > > (Max's Mom) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 - How wonderful! " We started him on 1 capsule of ProEFA a day at 22 months and added a 2nd capsule at 27 months. I'm now trying to decide whether to add 1 ProEPA or go with the Vitamin E instead. " Why not do both? gets 2 ProEFA/1 ProEPA twice a day (so, 6 capsules) plus 1 vitamin e capsule (400IU d-alpha with d-gamma mixed-in). Warm regards, ****************** (Rochester, NY) Mom to , 3.3 years, Verbal Apraxia & , 1.1 years (and babbling away!) ________________________________ From: [mailto: ] On Behalf Of epoxycozy Sent: Friday, September 01, 2006 2:42 PM Subject: [ ] Re: Things that make you go hmmmmm ... > > > " The child on ProEFA or some other EFA formula's like it no longer > fits the criteria of the classic definition of apraxia -and yet > doesn't fit the classic perception of what a late talker is > either.. " > > This is very true. At a recent EI team meeting, our SLP made the > comment that, " doesn't really present as an apraxic child any > longer in many ways. She can imitate speech and her intelligibility is > really quite good. " Our Developmental Pediatrician made a similar > comment a few weeks ago. We are floored. " This is happening to us too!!!!! My son is 2.6 (30 months) and both his speech therapist and the director of the center think he might " test out " and not qualify for services with the school district when he turns 3. They are also really reluctant to actually label him as apraxic because he has progressed so much so fast and now presents as a kid with a mild to moderate phonological disorder. From barely a dozen " words " at two along with classic oral apraxia (couldn't blow, lick, pucker, do rasberries etc.), he now is at above age level both in language and cognitively. He does still have significant articulation problems and some oral motor issues, but kids in our district don't normally qualify for services based on that alone. We are looking at a private preschool and private speech therapy for him after he is 3. I credit the fish oil for most of this (along with a great therapist and lots of homework). We started him on 1 capsule of ProEFA a day at 22 months and added a 2nd capsule at 27 months. I'm now trying to decide whether to add 1 ProEPA or go with the Vitamin E instead. (Max's Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 " He can say many words now and tries to immitate everything he hears (dangerous! ) " Dangerous but wonderful! :-) is fond of saying " Shoot! " and " Stop it! " and " Thank you much! " and " So cute! " Adorable (and we are so GRATEFUL and THRILLED about it). " He has even learned to approximate armadillo! (ah ma di LO) FOUR syllables, yippee!! " LOVE it! is saying " alligator " and " broccoli " :-). " His speech therapists also say he doesn't present as apraxic anymore and no one is quite sure what's going on or how to diagnose him. " We are holding the apraxia diagnosis from our Developmental Pediatrician, as it gets us what we need at this point. " I have him on 2 Omega 3,6,9 (same as ProEFA) and 1 EPA a day. And of course I am going to try the vit E next. " Yep - we do 2 Omega 3-6-9 / 1 EPA twice a day and have just added the E. Here's to continued improvement for all of our kids! Warm regards, ****************** (Rochester, NY) Mom to , 3.3 years, Verbal Apraxia & , 1.1 years (and babbling away!) ________________________________ From: [mailto: ] On Behalf Of myjunkytrash Sent: Saturday, September 02, 2006 12:12 AM Subject: [ ] Re: Things that make you go hmmmmm ... We are having the same experience. My son was barely verbal at 24 mos (da da) and could not blow or move his tongue on command. Now he can blow bubbles, blow a horn, move his tongue laterally and up. He can say many words now and tries to immitate everything he hears (dangerous! ) He has even learned to approximate armadillo! (ah ma di LO) FOUR syllables, yippee!! His speech therapists also say he doesn't present as apraxic anymore and no one is quite sure what's going on or how to diagnose him. He's almost 29 mos now and I have him on 2 Omega 3,6,9 (same as ProEFA) and 1 EPA a day. And of course I am going to try the vit E next. > > > > > " The child on ProEFA or some other EFA formula's like it no > longer > > fits the criteria of the classic definition of apraxia -and yet > > doesn't fit the classic perception of what a late talker is > > either.. " > > > > This is very true. At a recent EI team meeting, our SLP made the > > comment that, " doesn't really present as an apraxic child > any > > longer in many ways. She can imitate speech and her > intelligibility > is > > really quite good. " Our Developmental Pediatrician made a similar > > comment a few weeks ago. We are floored. " > > This is happening to us too!!!!! My son is 2.6 (30 months) and both > his speech therapist and the director of the center think he > might " test out " and not qualify for services with the school > district when he turns 3. They are also really reluctant to > actually label him as apraxic because he has progressed so much so > fast and now presents as a kid with a mild to moderate phonological > disorder. > > From barely a dozen " words " at two along with classic oral apraxia > (couldn't blow, lick, pucker, do rasberries etc.), he now is at > above age level both in language and cognitively. He does still > have significant articulation problems and some oral motor issues, > but kids in our district don't normally qualify for services based > on that alone. We are looking at a private preschool and private > speech therapy for him after he is 3. I credit the fish oil for > most of this (along with a great therapist and lots of homework). > We started him on 1 capsule of ProEFA a day at 22 months and added a > 2nd capsule at 27 months. I'm now trying to decide whether to add 1 > ProEPA or go with the Vitamin E instead. > > (Max's Mom) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Yes, why not both? > > > > > " The child on ProEFA or some other EFA formula's like it no > longer > > fits the criteria of the classic definition of apraxia -and yet > > doesn't fit the classic perception of what a late talker is > > either.. " > > > > This is very true. At a recent EI team meeting, our SLP made the > > comment that, " doesn't really present as an apraxic child > any > > longer in many ways. She can imitate speech and her > intelligibility > is > > really quite good. " Our Developmental Pediatrician made a similar > > comment a few weeks ago. We are floored. " > > This is happening to us too!!!!! My son is 2.6 (30 months) and both > his speech therapist and the director of the center think he > might " test out " and not qualify for services with the school > district when he turns 3. They are also really reluctant to > actually label him as apraxic because he has progressed so much so > fast and now presents as a kid with a mild to moderate phonological > disorder. > > From barely a dozen " words " at two along with classic oral apraxia > (couldn't blow, lick, pucker, do rasberries etc.), he now is at > above age level both in language and cognitively. He does still > have significant articulation problems and some oral motor issues, > but kids in our district don't normally qualify for services based > on that alone. We are looking at a private preschool and private > speech therapy for him after he is 3. I credit the fish oil for > most of this (along with a great therapist and lots of homework). > We started him on 1 capsule of ProEFA a day at 22 months and added a > 2nd capsule at 27 months. I'm now trying to decide whether to add 1 > ProEPA or go with the Vitamin E instead. > > (Max's Mom) > > > > > > > Quote Link to comment Share on other sites More sharing options...
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