Question from a CHARGE memeber please help!!

[Guest guest]

I saw this post and was wondering if anyone can help her, she

replied to my post and wasn't sure if anyone would see it....

My name is Rose. My daughter Kaylin " maybe " had CHARGE. She

also ended up

being fighting Leukemia. She passed away unexpectedly last week. I

am trying to

find another CHARGER and her parents but at this time my life has

spun out of

control and I cannot find their number. I know they would like to

know. Could

you please ask maybe on the group listing and see if anyone might

have their

address or phone number? Thank you.

They live in the Los Angeles, California area. Their last name is

Khouri.

CHARGER is Cierra (4 and a half years old). Dad is . Mom is

Eloise or

Eloisa.

I have been a member since my daughter was born, taken great

information,

comfort, joy, and love reading the messages but I have not ever

posted a

message. I know you are very active so I was just wondering if you

could post a

question out for me.

Of course, thank you and all more than words can say. The Group

understands I

know. That has a been a great comfort to us these years.If anyone

knows them, my

e-mail is krose2@... or (310)612-4075.

THANKS!!

Crystal

[Guest guest]

Thank you. There are not enough words to convey my gratitude as of course

not enough tears to ease the pain. I received the information.

Thank You for the support, always and of course especially Now.

, Ed, and Kaylin (CHARGER 4 years, 8 months, and 5 days).

Question from a CHARGE memeber please help!!

I saw this post and was wondering if anyone can help her, she

replied to my post and wasn't sure if anyone would see it....

My name is Rose. My daughter Kaylin " maybe " had CHARGE. She

also ended up

being fighting Leukemia. She passed away unexpectedly last week. I

am trying to

find another CHARGER and her parents but at this time my life has

spun out of

control and I cannot find their number. I know they would like to

know. Could

you please ask maybe on the group listing and see if anyone might

have their

address or phone number? Thank you.

They live in the Los Angeles, California area. Their last name is

Khouri.

CHARGER is Cierra (4 and a half years old). Dad is . Mom is

Eloise or

Eloisa.

I have been a member since my daughter was born, taken great

information,

comfort, joy, and love reading the messages but I have not ever

posted a

message. I know you are very active so I was just wondering if you

could post a

question out for me.

Of course, thank you and all more than words can say. The Group

understands I

know. That has a been a great comfort to us these years.If anyone

knows them, my

e-mail is krose2@... or (310)612-4075.

THANKS!!

Crystal

[Guest guest]

Yes, I replied this afternoon and contacted the mom she was looking for.

Question from a CHARGE memeber please help!!

I saw this post and was wondering if anyone can help her, she

replied to my post and wasn't sure if anyone would see it....

My name is Rose. My daughter Kaylin " maybe " had CHARGE. She

also ended up

being fighting Leukemia. She passed away unexpectedly last week. I

am trying to

find another CHARGER and her parents but at this time my life has

spun out of

control and I cannot find their number. I know they would like to

know. Could

you please ask maybe on the group listing and see if anyone might

have their

address or phone number? Thank you.

They live in the Los Angeles, California area. Their last name is

Khouri.

CHARGER is Cierra (4 and a half years old). Dad is . Mom is

Eloise or

Eloisa.

I have been a member since my daughter was born, taken great

information,

comfort, joy, and love reading the messages but I have not ever

posted a

message. I know you are very active so I was just wondering if you

could post a

question out for me.

Of course, thank you and all more than words can say. The Group

understands I

know. That has a been a great comfort to us these years.If anyone

knows them, my

e-mail is krose2@... or (310)612-4075.

THANKS!!

Crystal

[Guest guest]

I'm so glad that could help. Know that you are in my thoughts.

Martha

[Guest guest]

Crystal,

I believe that Keedy has been in touch

pam

Question from a CHARGE memeber please help!!

I saw this post and was wondering if anyone can help her, she

replied to my post and wasn't sure if anyone would see it....

My name is Rose. My daughter Kaylin " maybe " had CHARGE. She

also ended up

being fighting Leukemia. She passed away unexpectedly last week. I

am trying to

find another CHARGER and her parents but at this time my life has

spun out of

control and I cannot find their number. I know they would like to

know. Could

you please ask maybe on the group listing and see if anyone might

have their

address or phone number? Thank you.

They live in the Los Angeles, California area. Their last name is

Khouri.

CHARGER is Cierra (4 and a half years old). Dad is . Mom is

Eloise or

Eloisa.

I have been a member since my daughter was born, taken great

information,

comfort, joy, and love reading the messages but I have not ever

posted a

message. I know you are very active so I was just wondering if you

could post a

question out for me.

Of course, thank you and all more than words can say. The Group

understands I

know. That has a been a great comfort to us these years.If anyone

knows them, my

e-mail is krose2@... or (310)612-4075.

THANKS!!

Crystal

[Guest guest]

Thank you all for your help. There are not enough words to convey my gratitude

as of course

not enough tears to ease the pain. I received the information and appreciate it

greatly.

Thank You for the support, always and of course especially Now.

, Ed, and Kaylin(CHARGER 4 years, 8 months, and 5 days) Rose

Re: Question from a CHARGE memeber please help!!

I'm so glad that could help. Know that you are in my thoughts.

Martha

[Guest guest]

I sent her the email address she was looking for.

>

> I saw this post and was wondering if anyone can help her, she

> replied to my post and wasn't sure if anyone would see it....

>

> My name is Rose. My daughter Kaylin " maybe " had CHARGE. She

> also ended up

> being fighting Leukemia. She passed away unexpectedly last week. I

> am trying to

> find another CHARGER and her parents but at this time my life has

> spun out of

> control and I cannot find their number. I know they would like to

> know. Could

> you please ask maybe on the group listing and see if anyone might

> have their

> address or phone number? Thank you.

> They live in the Los Angeles, California area. Their last name is

> Khouri.

> CHARGER is Cierra (4 and a half years old). Dad is . Mom is

> Eloise or

> Eloisa.

>

> I have been a member since my daughter was born, taken great

> information,

> comfort, joy, and love reading the messages but I have not ever

> posted a

> message. I know you are very active so I was just wondering if you

> could post a

> question out for me.

>

> Of course, thank you and all more than words can say. The Group

> understands I

> know. That has a been a great comfort to us these years.If anyone

> knows them, my

> e-mail is krose2@... or (310)612-4075.

>

> THANKS!!

> Crystal

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

I am glad, I wasn't sure if the post would get lost or not so I just

wanted to make sure she got the information she needed.

Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

wife to Dan in Illinois

>

> Thank you all for your help. There are not enough words to convey

my gratitude as of course

> not enough tears to ease the pain. I received the information and

appreciate it greatly.

> Thank You for the support, always and of course especially Now.

> , Ed, and Kaylin(CHARGER 4 years, 8 months, and 5 days) Rose

>

> Re: Question from a CHARGE memeber please

help!!

>

>

> I'm so glad that could help. Know that you are in my

thoughts.

> Martha

>

>

[Guest guest]

Thank you all for helping . I had a message on the machine but I

was not in the office yesterday.

n

supermama95 wrote:

>

> I am glad, I wasn't sure if the post would get lost or not so I just

> wanted to make sure she got the information she needed.

> Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

> wife to Dan in Illinois

>

>

> >

> > Thank you all for your help. There are not enough words to convey

> my gratitude as of course

> > not enough tears to ease the pain. I received the information and

> appreciate it greatly.

> > Thank You for the support, always and of course especially Now.

> > , Ed, and Kaylin(CHARGER 4 years, 8 months, and 5 days) Rose

> >

> > Re: Question from a CHARGE memeber please

> help!!

> >

> >

> > I'm so glad that could help. Know that you are in my

> thoughts.

> > Martha

> >

> >

[Guest guest]

cool i saw it on every post guess she was coverying everything was she cris

>

> Thank you all for helping . I had a message on the machine but I

> was not in the office yesterday.

> n

>

> supermama95 wrote:

> >

> > I am glad, I wasn't sure if the post would get lost or not so I just

> > wanted to make sure she got the information she needed.

> > Crystal mom to (10), (3), and Eva (20 month old CHARGEr)

> > wife to Dan in Illinois

> >

> >

> > >

> > > Thank you all for your help. There are not enough words to convey

> > my gratitude as of course

> > > not enough tears to ease the pain. I received the information and

> > appreciate it greatly.

> > > Thank You for the support, always and of course especially Now.

> > > , Ed, and Kaylin(CHARGER 4 years, 8 months, and 5 days) Rose

> > >

> > > Re: Question from a CHARGE memeber please

> > help!!

> > >

> > >

> > > I'm so glad that could help. Know that you are in my

> > thoughts.

> > > Martha

> > >

> > >