Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Hi Tessa, Unless your disease is signifigantly advanced, there really isn't much to do. Keeping an eye on sodium is useful in a common sense kind of way - as is eating a healthy diet. Once you get a handle on blood pressure (as Walt indicated, that can take a bit - my son's neph slowly tweaked the doses in tiny increments over a period of 3-4 months until we arrived at something that was effective), you may find you can ease up on that a bit. Watch for making huge changes in diet while they are tweaking your meds. Cy Tessa tessa_garner@...> wrote: Since I am new at this I was wondering if anyone has any suggestions on a good diet to follow. I know I should cut back on salt but is there anything that you all do that helps. Tessa > > Tessa: > > > > Welcome to the group! > > > > I'm also wondering why they are suggesting cutting back. After my > > diagnosis, I have done a number of activities that could be > considered to be > > extremely strenuous. I also work well over 70 hours/week (although > not > > coaching cheerleaders). I get very tired, mainly because of > anemia, but > > using ProCrit helps get my blood levels back up. > > > > You might want to see if you can work this out with the doctor, > maybe ease > > out of some of the more strenuous lifts, and negotiate with the > doctor as to > > some level of activity that he can agree to... > > > > Walt > > > > _____ > > > > From: iga-nephropathy > > [mailto:iga-nephropathy ] On Behalf Of tessa_garner > > Sent: Tuesday, August 16, 2005 10:18 AM > > To: iga-nephropathy > > Subject: new member, need info > > > > > > Hello everyone: > > > > My name is Tessa. I am 21 years old and I was just diagnosed about > 3 > > weeks ago. I have had problems for about 5 years now and it took me > > this long to convince the doctors that is was my kidney's not my > > bladder. > > > > I am really confused about this disease and would love to know more > > about it. I am excited that I now have the ability to talk with > others > > that know what it is like. > > > > I am a cheerleading coach for college squads and all-star squads. I > was > > told by the doctor that I could not be hands on with them any more > so I > > am having a hard time dealing with thay. > > > > I hope to get to know some of you well. Talk with you all soon. > > > > Thanks for your help, > > Tessa > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely > supported > > by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Blade's neph put him on Lysinopril and a low sodium diet. He hasn't had a problem with high BP so far so both things dropped his BP WAY low (85/49) He lowered his dose from 5mg to 2.5mg and told Blade he can eat whatever he wanted.... Is watching the salt purely for BP purposes? > > > Tessa: > > > > > > Welcome to the group! > > > > > > I'm also wondering why they are suggesting cutting back. After my > > > diagnosis, I have done a number of activities that could be > > considered to be > > > extremely strenuous. I also work well over 70 hours/week > (although > > not > > > coaching cheerleaders). I get very tired, mainly because of > > anemia, but > > > using ProCrit helps get my blood levels back up. > > > > > > You might want to see if you can work this out with the doctor, > > maybe ease > > > out of some of the more strenuous lifts, and negotiate with the > > doctor as to > > > some level of activity that he can agree to... > > > > > > Walt > > > > > > _____ > > > > > > From: iga-nephropathy > > > [mailto:iga-nephropathy ] On Behalf Of tessa_garner > > > Sent: Tuesday, August 16, 2005 10:18 AM > > > To: iga-nephropathy > > > Subject: new member, need info > > > > > > > > > Hello everyone: > > > > > > My name is Tessa. I am 21 years old and I was just diagnosed > about > > 3 > > > weeks ago. I have had problems for about 5 years now and it took > me > > > this long to convince the doctors that is was my kidney's not my > > > bladder. > > > > > > I am really confused about this disease and would love to know > more > > > about it. I am excited that I now have the ability to talk with > > others > > > that know what it is like. > > > > > > I am a cheerleading coach for college squads and all-star squads. > I > > was > > > told by the doctor that I could not be hands on with them any > more > > so I > > > am having a hard time dealing with thay. > > > > > > I hope to get to know some of you well. Talk with you all soon. > > > > > > Thanks for your help, > > > Tessa > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > home page: > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > To unsubcribe via email, > > > iga-nephropathy-unsubscribe > > > Visit our companion website at www.igan.ca. The site is entirely > > supported > > > by donations. If you would like to help, go to: > > > http://www.igan.ca/id62.htm > > > > > > Thank you > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 I think that is just a good overall recommendation, watching your sodium. We tend to eat way too much sodium if the recommended amount is 2400mg/day for a full size active adult male, since you can eat that at breakfast. kristinamariakatrina kristi_53@...> wrote: Blade's neph put him on Lysinopril and a low sodium diet. He hasn't had a problem with high BP so far so both things dropped his BP WAY low (85/49) He lowered his dose from 5mg to 2.5mg and told Blade he can eat whatever he wanted.... Is watching the salt purely for BP purposes? > > > Tessa: > > > > > > Welcome to the group! > > > > > > I'm also wondering why they are suggesting cutting back. After my > > > diagnosis, I have done a number of activities that could be > > considered to be > > > extremely strenuous. I also work well over 70 hours/week > (although > > not > > > coaching cheerleaders). I get very tired, mainly because of > > anemia, but > > > using ProCrit helps get my blood levels back up. > > > > > > You might want to see if you can work this out with the doctor, > > maybe ease > > > out of some of the more strenuous lifts, and negotiate with the > > doctor as to > > > some level of activity that he can agree to... > > > > > > Walt > > > > > > _____ > > > > > > From: iga-nephropathy > > > [mailto:iga-nephropathy ] On Behalf Of tessa_garner > > > Sent: Tuesday, August 16, 2005 10:18 AM > > > To: iga-nephropathy > > > Subject: new member, need info > > > > > > > > > Hello everyone: > > > > > > My name is Tessa. I am 21 years old and I was just diagnosed > about > > 3 > > > weeks ago. I have had problems for about 5 years now and it took > me > > > this long to convince the doctors that is was my kidney's not my > > > bladder. > > > > > > I am really confused about this disease and would love to know > more > > > about it. I am excited that I now have the ability to talk with > > others > > > that know what it is like. > > > > > > I am a cheerleading coach for college squads and all-star squads. > I > > was > > > told by the doctor that I could not be hands on with them any > more > > so I > > > am having a hard time dealing with thay. > > > > > > I hope to get to know some of you well. Talk with you all soon. > > > > > > Thanks for your help, > > > Tessa > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > > home page: > > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > > > To unsubcribe via email, > > > iga-nephropathy-unsubscribe > > > Visit our companion website at www.igan.ca. The site is entirely > > supported > > > by donations. If you would like to help, go to: > > > http://www.igan.ca/id62.htm > > > > > > Thank you > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Hi Kristi, Based on Blade's kidney function being so good, he most likely does not need to follow any dietary restrictions. Other than low sodium (which is good for everyone, not just kidney patients) and sometimes low protein, usually there are no restrictions required until you get to 30% function or below. Even then, any renal diet needs to be in response to your (or Blade's in this case) individual lab results. In a message dated 8/16/2005 1:45:55 P.M. Pacific Daylight Time, kristi_53@... writes: Blade's neph put him on Lysinopril and a low sodium diet. He hasn't had a problem with high BP so far so both things dropped his BP WAY low (85/49) He lowered his dose from 5mg to 2.5mg and told Blade he can eat whatever he wanted.... Is watching the salt purely for BP purposes? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.