Re: QUIESTION ABOUT VITAMIN E

[Guest guest]

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

> I just brought some vitamin e at walgrEens(all walgreens vitamins

are

> buy one get one free f.y.i ) for my son 3years and 2mos. They had

a

> vitamin e there with gamma but it was 400i.u. So I was asking the

> pharmacy about it telling him it would be for a 3year old he said

that

> was too high because of the fat through the years could hurt him

as he

> grows so he told me to go with the 200 i.u/ d-alpha to start out

with

> so is that okay to give him one of those a day wondering if

anyone

> could answer this ? Also his vitamins will be in tomoorrow yeah I

will

> be starting him on 2- 3,6,9, omega for children with a lemon taste

and

> then do I give him 1 vitamin e with that and also he does take a

multi

> vitamin w/iron too daily so is this too much to give at once in

the

> morning ?Is there anthing else I should give him with this? He was

dx

> with severe apraxia I can't wait to see if there will be any

changes

> in him . Thanks Merci

>

[Guest guest]

Hi-

Thank you for answering my quiestion but you know how it is when someone tells

you something your like what? I 'am glad to know it's harmless so should I be

giving him 2 of the 200 IU then? I'am new to all of this how old is your son?

and does he have apraxia oral and verbal ? Thanks again for getting back with

me have a good evening !!!

Merci

" claudia.morris " <claudia.morris@...> wrote:

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

> I just brought some vitamin e at walgrEens(all walgreens vitamins

are

> buy one get one free f.y.i ) for my son 3years and 2mos. They had

a

> vitamin e there with gamma but it was 400i.u. So I was asking the

> pharmacy about it telling him it would be for a 3year old he said

that

> was too high because of the fat through the years could hurt him

as he

> grows so he told me to go with the 200 i.u/ d-alpha to start out

with

> so is that okay to give him one of those a day wondering if

anyone

> could answer this ? Also his vitamins will be in tomoorrow yeah I

will

> be starting him on 2- 3,6,9, omega for children with a lemon taste

and

> then do I give him 1 vitamin e with that and also he does take a

multi

> vitamin w/iron too daily so is this too much to give at once in

the

> morning ?Is there anthing else I should give him with this? He was

dx

> with severe apraxia I can't wait to see if there will be any

changes

> in him . Thanks Merci

>

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

> I just brought some vitamin e at walgrEens(all walgreens vitamins

are

> buy one get one free f.y.i ) for my son 3years and 2mos. They had

a

> vitamin e there with gamma but it was 400i.u. So I was asking the

> pharmacy about it telling him it would be for a 3year old he said

that

> was too high because of the fat through the years could hurt him

as he

> grows so he told me to go with the 200 i.u/ d-alpha to start out

with

> so is that okay to give him one of those a day wondering if

anyone

> could answer this ? Also his vitamins will be in tomoorrow yeah I

will

> be starting him on 2- 3,6,9, omega for children with a lemon taste

and

> then do I give him 1 vitamin e with that and also he does take a

multi

> vitamin w/iron too daily so is this too much to give at once in

the

> morning ?Is there anthing else I should give him with this? He was

dx

> with severe apraxia I can't wait to see if there will be any

changes

> in him . Thanks Merci

>

[Guest guest]

I am new to this group and although my son (3 1/2 yrs

old) has been on ProEFA since he was 24 months, I am

just learning that we can now give more than two a day

and that we also need to give vitamin E.

My son was diagnosed with apraxia through EI, but the

private speech therapist he has had since he turned 3

feels he instead has a mild to moderate phonological

disorder. Four days after starting the fish oil, he

went from grunts with signs to 25 words in a week so

he is a much different child from when he was first

diagnosed.

- What do you mean when you say our kids are

differnt? Since I don't know what my son actually

has, do I need to have a test done to see if he is

deficient? I haven't started any yet because his

pediatrician wanted to look into what would be toxic.

If she says 400 IU is too much, do I just give it

anyway? Also, could I have the exact name of what you

are using since you said you were going back to it

because your new brand didn't work. I want to make

sure I get the right one that works.

If this works, the timing on it couldn't be better.

My son just started pre-school 2 weeks ago and when he

tries to talk to the other kids, they just look at him

and walk away because they don't understand what he is

saying. My doctor, speech therapist and the teacher

insist this will help to make him clearer because of

the strong desire to talk to the other kids, but it

breaks my heart to see. (Yes, due to some seperation

issues I am having, I am still quietly sitting in the

room.)

Please help!

__________________________________________________

[Guest guest]

My Will seems to have better coordination all though his " speech " isn't much

improved. I do think he was trying to say " momma " yesterday. he is totally non

verbal with no mouth noises. All of his noises come from his throat. He's been

taking the Vit E for almost 2 weeks and I have missed a few days in there. We

take the Alpha Gamma mix. each capsule has 200 IU Alpha and 200 IU gamma. He

gets 2 each day. He's really been active and doing much more gross motor

movement.

Sherry

" claudia.morris " <claudia.morris@...> wrote:

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

> I just brought some vitamin e at walgrEens(all walgreens vitamins

are

> buy one get one free f.y.i ) for my son 3years and 2mos. They had

a

> vitamin e there with gamma but it was 400i.u. So I was asking the

> pharmacy about it telling him it would be for a 3year old he said

that

> was too high because of the fat through the years could hurt him

as he

> grows so he told me to go with the 200 i.u/ d-alpha to start out

with

> so is that okay to give him one of those a day wondering if

anyone

> could answer this ? Also his vitamins will be in tomoorrow yeah I

will

> be starting him on 2- 3,6,9, omega for children with a lemon taste

and

> then do I give him 1 vitamin e with that and also he does take a

multi

> vitamin w/iron too daily so is this too much to give at once in

the

> morning ?Is there anthing else I should give him with this? He was

dx

> with severe apraxia I can't wait to see if there will be any

changes

> in him . Thanks Merci

>

Sherry Milner

Don't forget to checkout Will's progress!!!

http://www.caringbridge.org/visit/willmilner

29:11:

For I know the plans I have for you, " declares the LORD, " plans to prosper you

and not to harm you, plans to give you hope and a future.

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

Hi-

Thank you for answering my quiestion but you know how it is when someone tells

you something your like what? I 'am glad to know it's harmless so should I be

giving him 2 of the 200 IU then? I'am new to all of this how old is your son?

and does he have apraxia oral and verbal ? Thanks again for getting back with

me have a good evening !!!

Merci

" claudia.morris " <claudia.morris@...> wrote:

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

> I just brought some vitamin e at walgrEens(all walgreens vitamins

are

> buy one get one free f.y.i ) for my son 3years and 2mos. They had

a

> vitamin e there with gamma but it was 400i.u. So I was asking the

> pharmacy about it telling him it would be for a 3year old he said

that

> was too high because of the fat through the years could hurt him

as he

> grows so he told me to go with the 200 i.u/ d-alpha to start out

with

> so is that okay to give him one of those a day wondering if

anyone

> could answer this ? Also his vitamins will be in tomoorrow yeah I

will

> be starting him on 2- 3,6,9, omega for children with a lemon taste

and

> then do I give him 1 vitamin e with that and also he does take a

multi

> vitamin w/iron too daily so is this too much to give at once in

the

> morning ?Is there anthing else I should give him with this? He was

dx

> with severe apraxia I can't wait to see if there will be any

changes

> in him . Thanks Merci

>

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

I am new to this group and although my son (3 1/2 yrs

old) has been on ProEFA since he was 24 months, I am

just learning that we can now give more than two a day

and that we also need to give vitamin E.

My son was diagnosed with apraxia through EI, but the

private speech therapist he has had since he turned 3

feels he instead has a mild to moderate phonological

disorder. Four days after starting the fish oil, he

went from grunts with signs to 25 words in a week so

he is a much different child from when he was first

diagnosed.

- What do you mean when you say our kids are

differnt? Since I don't know what my son actually

has, do I need to have a test done to see if he is

deficient? I haven't started any yet because his

pediatrician wanted to look into what would be toxic.

If she says 400 IU is too much, do I just give it

anyway? Also, could I have the exact name of what you

are using since you said you were going back to it

because your new brand didn't work. I want to make

sure I get the right one that works.

If this works, the timing on it couldn't be better.

My son just started pre-school 2 weeks ago and when he

tries to talk to the other kids, they just look at him

and walk away because they don't understand what he is

saying. My doctor, speech therapist and the teacher

insist this will help to make him clearer because of

the strong desire to talk to the other kids, but it

breaks my heart to see. (Yes, due to some seperation

issues I am having, I am still quietly sitting in the

room.)

Please help!

__________________________________________________

[Guest guest]

My Will seems to have better coordination all though his " speech " isn't much

improved. I do think he was trying to say " momma " yesterday. he is totally non

verbal with no mouth noises. All of his noises come from his throat. He's been

taking the Vit E for almost 2 weeks and I have missed a few days in there. We

take the Alpha Gamma mix. each capsule has 200 IU Alpha and 200 IU gamma. He

gets 2 each day. He's really been active and doing much more gross motor

movement.

Sherry

" claudia.morris " <claudia.morris@...> wrote:

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

> I just brought some vitamin e at walgrEens(all walgreens vitamins

are

> buy one get one free f.y.i ) for my son 3years and 2mos. They had

a

> vitamin e there with gamma but it was 400i.u. So I was asking the

> pharmacy about it telling him it would be for a 3year old he said

that

> was too high because of the fat through the years could hurt him

as he

> grows so he told me to go with the 200 i.u/ d-alpha to start out

with

> so is that okay to give him one of those a day wondering if

anyone

> could answer this ? Also his vitamins will be in tomoorrow yeah I

will

> be starting him on 2- 3,6,9, omega for children with a lemon taste

and

> then do I give him 1 vitamin e with that and also he does take a

multi

> vitamin w/iron too daily so is this too much to give at once in

the

> morning ?Is there anthing else I should give him with this? He was

dx

> with severe apraxia I can't wait to see if there will be any

changes

> in him . Thanks Merci

>

Sherry Milner

Don't forget to checkout Will's progress!!!

http://www.caringbridge.org/visit/willmilner

29:11:

For I know the plans I have for you, " declares the LORD, " plans to prosper you

and not to harm you, plans to give you hope and a future.

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

My 7 yr old had 4 days of vit E but also had mag citrate 2 of those days to help

w/constipation. Last night she had7 hrs of neurological issues......she

couldn't talk, couldn't swallow well, wouldn't lay day and couldn't close her

eyes or suck her thumb to try to sleep. She was very scared and asked over and

over to go to hospital. Her O2 was fine, her skin very pale, flat facial

affect.

She doesn't have a rare underlying condition which is normal excellently

controlled expcept when I have added things for constipations like miralax,

lactolose, mineral oil. I don't know if it was the mag citrate and may be

upsetting her 'system' (say system b/c I don'tknow what is really happening) or

the vit E. I am sure there are many that don't expe. this level of sensitivity

but thought I should share with the group anyways. I am not sure I will ever be

able to tell you if unique to AHC or if mag citrate or vit e cause.

I did think she had lots more energy once she started with vit e but also saw

little bit with first uses of mag citrate.

karen v.

Sherry <sherrymilner@...> wrote:

My Will seems to have better coordination all though his " speech "

isn't much improved. I do think he was trying to say " momma " yesterday. he is

totally non verbal with no mouth noises. All of his noises come from his throat.

He's been taking the Vit E for almost 2 weeks and I have missed a few days in

there. We take the Alpha Gamma mix. each capsule has 200 IU Alpha and 200 IU

gamma. He gets 2 each day. He's really been active and doing much more gross

motor movement.

Sherry

" claudia.morris " <claudia.morris@...> wrote:

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

[Guest guest]

Yesterday we were at our couson's baseball game. My son said something

that sounded like " potty " so I took him to the potty. He screamed and

screamed! We went back to our seats. He made the same request so I

took him back to the toileta nd sat him down upon it. Again,

screaming! Just outside the door he pointed to the playground. He was

trying to tell me he wanted to go to the playground and I thought he

was trying to tell me he had to go potty! No wonder he was so

frustrated! He cannot imitate. He is 39 mos old. He pretty much only

makes vowel sounds. He can't make consonant sounds. I think you need

to seek out different help for your son.

" ...> My son just started pre-school 2 weeks ago and when he tries to

talk to the other kids, they just look at him and walk away because

they don't understand what he is saying. My doctor, speech therapist

and the teacher insist this will help to make him clearer because of

the strong desire to talk to the other kids, but it breaks my heart to

see. (Yes, due to some seperation issues I am having, I am still

quietly sitting in the room.)... "

[Guest guest]

Please correct me if I'm wrong but isn't Magnesium used to stop preterm labor??

I believe it gives woman the same feeling. I'm trying to recall hearing about

this because I have never been given it. I would take an uneducated guess and

say it sounds like a reaction to the Magnesium to me. Of course I think it's

definitely worth calling your ped. and letting them know. How scary!!

Maybe someone else can give more info..

Amy D.

kcventi <kcventi@...> wrote:

My 7 yr old had 4 days of vit E but also had mag citrate 2 of those

days to help w/constipation. Last night she had7 hrs of neurological

issues......she couldn't talk, couldn't swallow well, wouldn't lay day and

couldn't close her eyes or suck her thumb to try to sleep. She was very scared

and asked over and over to go to hospital. Her O2 was fine, her skin very pale,

flat facial affect.

She doesn't have a rare underlying condition which is normal excellently

controlled expcept when I have added things for constipations like miralax,

lactolose, mineral oil. I don't know if it was the mag citrate and may be

upsetting her 'system' (say system b/c I don'tknow what is really happening) or

the vit E. I am sure there are many that don't expe. this level of sensitivity

but thought I should share with the group anyways. I am not sure I will ever be

able to tell you if unique to AHC or if mag citrate or vit e cause.

I did think she had lots more energy once she started with vit e but also saw

little bit with first uses of mag citrate.

karen v.

Sherry <sherrymilner@...> wrote:

My Will seems to have better coordination all though his " speech " isn't much

improved. I do think he was trying to say " momma " yesterday. he is totally non

verbal with no mouth noises. All of his noises come from his throat. He's been

taking the Vit E for almost 2 weeks and I have missed a few days in there. We

take the Alpha Gamma mix. each capsule has 200 IU Alpha and 200 IU gamma. He

gets 2 each day. He's really been active and doing much more gross motor

movement.

Sherry

" claudia.morris " <claudia.morris@...> wrote:

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

Amy

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

[Guest guest]

My 7 yr old had 4 days of vit E but also had mag citrate 2 of those days to help

w/constipation. Last night she had7 hrs of neurological issues......she

couldn't talk, couldn't swallow well, wouldn't lay day and couldn't close her

eyes or suck her thumb to try to sleep. She was very scared and asked over and

over to go to hospital. Her O2 was fine, her skin very pale, flat facial

affect.

She doesn't have a rare underlying condition which is normal excellently

controlled expcept when I have added things for constipations like miralax,

lactolose, mineral oil. I don't know if it was the mag citrate and may be

upsetting her 'system' (say system b/c I don'tknow what is really happening) or

the vit E. I am sure there are many that don't expe. this level of sensitivity

but thought I should share with the group anyways. I am not sure I will ever be

able to tell you if unique to AHC or if mag citrate or vit e cause.

I did think she had lots more energy once she started with vit e but also saw

little bit with first uses of mag citrate.

karen v.

Sherry <sherrymilner@...> wrote:

My Will seems to have better coordination all though his " speech "

isn't much improved. I do think he was trying to say " momma " yesterday. he is

totally non verbal with no mouth noises. All of his noises come from his throat.

He's been taking the Vit E for almost 2 weeks and I have missed a few days in

there. We take the Alpha Gamma mix. each capsule has 200 IU Alpha and 200 IU

gamma. He gets 2 each day. He's really been active and doing much more gross

motor movement.

Sherry

" claudia.morris " <claudia.morris@...> wrote:

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

[Guest guest]

Yesterday we were at our couson's baseball game. My son said something

that sounded like " potty " so I took him to the potty. He screamed and

screamed! We went back to our seats. He made the same request so I

took him back to the toileta nd sat him down upon it. Again,

screaming! Just outside the door he pointed to the playground. He was

trying to tell me he wanted to go to the playground and I thought he

was trying to tell me he had to go potty! No wonder he was so

frustrated! He cannot imitate. He is 39 mos old. He pretty much only

makes vowel sounds. He can't make consonant sounds. I think you need

to seek out different help for your son.

" ...> My son just started pre-school 2 weeks ago and when he tries to

talk to the other kids, they just look at him and walk away because

they don't understand what he is saying. My doctor, speech therapist

and the teacher insist this will help to make him clearer because of

the strong desire to talk to the other kids, but it breaks my heart to

see. (Yes, due to some seperation issues I am having, I am still

quietly sitting in the room.)... "

[Guest guest]

Please correct me if I'm wrong but isn't Magnesium used to stop preterm labor??

I believe it gives woman the same feeling. I'm trying to recall hearing about

this because I have never been given it. I would take an uneducated guess and

say it sounds like a reaction to the Magnesium to me. Of course I think it's

definitely worth calling your ped. and letting them know. How scary!!

Maybe someone else can give more info..

Amy D.

kcventi <kcventi@...> wrote:

My 7 yr old had 4 days of vit E but also had mag citrate 2 of those

days to help w/constipation. Last night she had7 hrs of neurological

issues......she couldn't talk, couldn't swallow well, wouldn't lay day and

couldn't close her eyes or suck her thumb to try to sleep. She was very scared

and asked over and over to go to hospital. Her O2 was fine, her skin very pale,

flat facial affect.

She doesn't have a rare underlying condition which is normal excellently

controlled expcept when I have added things for constipations like miralax,

lactolose, mineral oil. I don't know if it was the mag citrate and may be

upsetting her 'system' (say system b/c I don'tknow what is really happening) or

the vit E. I am sure there are many that don't expe. this level of sensitivity

but thought I should share with the group anyways. I am not sure I will ever be

able to tell you if unique to AHC or if mag citrate or vit e cause.

I did think she had lots more energy once she started with vit e but also saw

little bit with first uses of mag citrate.

karen v.

Sherry <sherrymilner@...> wrote:

My Will seems to have better coordination all though his " speech " isn't much

improved. I do think he was trying to say " momma " yesterday. he is totally non

verbal with no mouth noises. All of his noises come from his throat. He's been

taking the Vit E for almost 2 weeks and I have missed a few days in there. We

take the Alpha Gamma mix. each capsule has 200 IU Alpha and 200 IU gamma. He

gets 2 each day. He's really been active and doing much more gross motor

movement.

Sherry

" claudia.morris " <claudia.morris@...> wrote:

You want to start out with at least 400 IU. It is harmless. Most

people (MDs or pharmacists) will have no clue. Our kids are

different. The fact that there is a response to vit E suggests there

is something deficient. But 400 IU is totally safe. Up to 1000

grams is totally safe according to vitamin E experts I have been

talking to. I have done a great deal of research before putting my

child on this. We are on higher doses than I would feel comfortable

suggesting anyone try. But at the same time, we cut about 200IU a

day (because we switched to a alpha/gamma combo) - and we have lost

intelligibility. I started noticing in into the second day, but last

night I was only understanding him 25-50 % of the time and he was

sounding VERY apraxic, whereas he had become nearly 100%

intelligible to me and conversational. Now I'm getting shorter

phrases. I am going to go back to the brand and dose I was using

before, because it seemed to be working. This is all new for me

too. But he is as sensitive to decreases in vit E as he was to fish

oil. I am not seeing and changes in coordination, but not going to

wait around for that to happen to. -

Amy

---------------------------------

Get your own web address for just $1.99/1st yr. We'll help. Small

Business.

[Guest guest]

>

> You want to start out with at least 400 IU. It is harmless. Most

> people (MDs or pharmacists) will have no clue. Our kids are

> different. The fact that there is a response to vit E suggests

there

> is something deficient. But 400 IU is totally safe. Up to 1000

> grams is totally safe according to vitamin E experts I have been

> talking to. I have done a great deal of research before putting my

> child on this. We are on higher doses than I would feel

comfortable

> suggesting anyone try. But at the same time, we cut about 200IU a

> day (because we switched to a alpha/gamma combo) - and we have

lost

> intelligibility. I started noticing in into the second day, but

last

> night I was only understanding him 25-50 % of the time and he was

> sounding VERY apraxic, whereas he had become nearly 100%

> intelligible to me and conversational. Now I'm getting shorter

> phrases. I am going to go back to the brand and dose I was using

> before, because it seemed to be working. This is all new for me

> too. But he is as sensitive to decreases in vit E as he was to

fish

> oil. I am not seeing and changes in coordination, but not going to

> wait around for that to happen to. -

>

>

>

>

>

>

> Amy

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>

[Guest guest]

My daughter is on other medications for seizures (Keppra 500mgx2/day; lamictal

125mg day) and for Altern. Hemiplegia (flunarazine - a calcium channel blocker

15mg/day); CoQ10 50-100 mg/day.

I stopped the vit e and mag for 2 days. Today I gave another low dose of

natural calm which equals around 300mg (but she only drank half of this). She

was ok. I wonder if the several days of using natural calm and then the one day

of going back to the liquid mag citrate was a big build up in her system or that

it dehydrated her. SHe has always been extremely sensitive and easily

dehydrated since a baby. She would alwyas get constipated 4-5 days before cold

symptoms showed up. I wondered with her longer term use of miralax and/or

lactalose if somehow a dehyration was occuring just enough to upset her system

and bring out the AHC like neuro symptoms she usually does not present with

anymore. I was very worried I had upset her electrolytes possibly with

magnesium even if I wasn't using alot but more the daily use of it.

We are going to follow with a gastro but wonder if it is b/c of her calcium

channel blocker what can we do b/c she can't come off this. Some children

coming off these meds with AHC have had devestating reactions with month long

episodes they never recover from. I hope there is an answer out there for her.

I would like to start back the vit e once the constipation is resolved (for

now) without mag. so I can see if we run into issues again.

I have my fingers crossed for all those seeing/experience success with vit e.

thanks for the advice

karen and addie

" claudia.morris " <claudia.morris@...> wrote:

>

> You want to start out with at least 400 IU. It is harmless. Most

> people (MDs or pharmacists) will have no clue. Our kids are

> different. The fact that there is a response to vit E suggests

there

> is something deficient. But 400 IU is totally safe. Up to 1000

> grams is totally safe according to vitamin E experts I have been

> talking to. I have done a great deal of research before putting my

> child on this. We are on higher doses than I would feel

comfortable

> suggesting anyone try. But at the same time, we cut about 200IU a

> day (because we switched to a alpha/gamma combo) - and we have

lost

> intelligibility. I started noticing in into the second day, but

last

> night I was only understanding him 25-50 % of the time and he was

> sounding VERY apraxic, whereas he had become nearly 100%

> intelligible to me and conversational. Now I'm getting shorter

> phrases. I am going to go back to the brand and dose I was using

> before, because it seemed to be working. This is all new for me

> too. But he is as sensitive to decreases in vit E as he was to

fish

> oil. I am not seeing and changes in coordination, but not going to

> wait around for that to happen to. -

>

>

>

>

>

>

> Amy

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>

[Guest guest]

>

> You want to start out with at least 400 IU. It is harmless. Most

> people (MDs or pharmacists) will have no clue. Our kids are

> different. The fact that there is a response to vit E suggests

there

> is something deficient. But 400 IU is totally safe. Up to 1000

> grams is totally safe according to vitamin E experts I have been

> talking to. I have done a great deal of research before putting my

> child on this. We are on higher doses than I would feel

comfortable

> suggesting anyone try. But at the same time, we cut about 200IU a

> day (because we switched to a alpha/gamma combo) - and we have

lost

> intelligibility. I started noticing in into the second day, but

last

> night I was only understanding him 25-50 % of the time and he was

> sounding VERY apraxic, whereas he had become nearly 100%

> intelligible to me and conversational. Now I'm getting shorter

> phrases. I am going to go back to the brand and dose I was using

> before, because it seemed to be working. This is all new for me

> too. But he is as sensitive to decreases in vit E as he was to

fish

> oil. I am not seeing and changes in coordination, but not going to

> wait around for that to happen to. -

>

>

>

>

>

>

> Amy

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>

[Guest guest]

My guess -- it's the Miralax -- http://www.danasview.net/miralax.htm

About 4% of it is absorbed into the system.

My son it light years better now that I have him on enzymes,

magnesium and vitamin c.

> >

> > You want to start out with at least 400 IU. It is harmless. Most

> > people (MDs or pharmacists) will have no clue. Our kids are

> > different. The fact that there is a response to vit E suggests

> there

> > is something deficient. But 400 IU is totally safe. Up to 1000

> > grams is totally safe according to vitamin E experts I have been

> > talking to. I have done a great deal of research before putting

my

> > child on this. We are on higher doses than I would feel

> comfortable

> > suggesting anyone try. But at the same time, we cut about 200IU a

> > day (because we switched to a alpha/gamma combo) - and we have

> lost

> > intelligibility. I started noticing in into the second day, but

> last

> > night I was only understanding him 25-50 % of the time and he was

> > sounding VERY apraxic, whereas he had become nearly 100%

> > intelligible to me and conversational. Now I'm getting shorter

> > phrases. I am going to go back to the brand and dose I was using

> > before, because it seemed to be working. This is all new for me

> > too. But he is as sensitive to decreases in vit E as he was to

> fish

> > oil. I am not seeing and changes in coordination, but not going

to

> > wait around for that to happen to. -

> >

> >

> >

> >

> >

> >

> > Amy

> >

> >

> > ---------------------------------

> > Get your own web address for just $1.99/1st yr. We'll help.

> Small Business.

> >

> >

[Guest guest]

> >

> > You want to start out with at least 400 IU. It is harmless. Most

> > people (MDs or pharmacists) will have no clue. Our kids are

> > different. The fact that there is a response to vit E suggests

> there

> > is something deficient. But 400 IU is totally safe. Up to 1000

> > grams is totally safe according to vitamin E experts I have been

> > talking to. I have done a great deal of research before putting

my

> > child on this. We are on higher doses than I would feel

> comfortable

> > suggesting anyone try. But at the same time, we cut about 200IU

a

> > day (because we switched to a alpha/gamma combo) - and we have

> lost

> > intelligibility. I started noticing in into the second day, but

> last

> > night I was only understanding him 25-50 % of the time and he

was

> > sounding VERY apraxic, whereas he had become nearly 100%

> > intelligible to me and conversational. Now I'm getting shorter

> > phrases. I am going to go back to the brand and dose I was using

> > before, because it seemed to be working. This is all new for me

> > too. But he is as sensitive to decreases in vit E as he was to

> fish

> > oil. I am not seeing and changes in coordination, but not going

to

> > wait around for that to happen to. -

> >

> >

> >

> >

> >

> >

> > Amy

> >

> >

> > ---------------------------------

> > Get your own web address for just $1.99/1st yr. We'll help.

> Small Business.

> >

> >

[Guest guest]

My daughter is on other medications for seizures (Keppra 500mgx2/day; lamictal

125mg day) and for Altern. Hemiplegia (flunarazine - a calcium channel blocker

15mg/day); CoQ10 50-100 mg/day.

I stopped the vit e and mag for 2 days. Today I gave another low dose of

natural calm which equals around 300mg (but she only drank half of this). She

was ok. I wonder if the several days of using natural calm and then the one day

of going back to the liquid mag citrate was a big build up in her system or that

it dehydrated her. SHe has always been extremely sensitive and easily

dehydrated since a baby. She would alwyas get constipated 4-5 days before cold

symptoms showed up. I wondered with her longer term use of miralax and/or

lactalose if somehow a dehyration was occuring just enough to upset her system

and bring out the AHC like neuro symptoms she usually does not present with

anymore. I was very worried I had upset her electrolytes possibly with

magnesium even if I wasn't using alot but more the daily use of it.

We are going to follow with a gastro but wonder if it is b/c of her calcium

channel blocker what can we do b/c she can't come off this. Some children

coming off these meds with AHC have had devestating reactions with month long

episodes they never recover from. I hope there is an answer out there for her.

I would like to start back the vit e once the constipation is resolved (for

now) without mag. so I can see if we run into issues again.

I have my fingers crossed for all those seeing/experience success with vit e.

thanks for the advice

karen and addie

" claudia.morris " <claudia.morris@...> wrote:

>

> You want to start out with at least 400 IU. It is harmless. Most

> people (MDs or pharmacists) will have no clue. Our kids are

> different. The fact that there is a response to vit E suggests

there

> is something deficient. But 400 IU is totally safe. Up to 1000

> grams is totally safe according to vitamin E experts I have been

> talking to. I have done a great deal of research before putting my

> child on this. We are on higher doses than I would feel

comfortable

> suggesting anyone try. But at the same time, we cut about 200IU a

> day (because we switched to a alpha/gamma combo) - and we have

lost

> intelligibility. I started noticing in into the second day, but

last

> night I was only understanding him 25-50 % of the time and he was

> sounding VERY apraxic, whereas he had become nearly 100%

> intelligible to me and conversational. Now I'm getting shorter

> phrases. I am going to go back to the brand and dose I was using

> before, because it seemed to be working. This is all new for me

> too. But he is as sensitive to decreases in vit E as he was to

fish

> oil. I am not seeing and changes in coordination, but not going to

> wait around for that to happen to. -

>

>

>

>

>

>

> Amy

>

>

> ---------------------------------

> Get your own web address for just $1.99/1st yr. We'll help.

Small Business.

>

>

[Guest guest]

My guess -- it's the Miralax -- http://www.danasview.net/miralax.htm

About 4% of it is absorbed into the system.

My son it light years better now that I have him on enzymes,

magnesium and vitamin c.

> >

> > You want to start out with at least 400 IU. It is harmless. Most

> > people (MDs or pharmacists) will have no clue. Our kids are

> > different. The fact that there is a response to vit E suggests

> there

> > is something deficient. But 400 IU is totally safe. Up to 1000

> > grams is totally safe according to vitamin E experts I have been

> > talking to. I have done a great deal of research before putting

my

> > child on this. We are on higher doses than I would feel

> comfortable

> > suggesting anyone try. But at the same time, we cut about 200IU a

> > day (because we switched to a alpha/gamma combo) - and we have

> lost

> > intelligibility. I started noticing in into the second day, but

> last

> > night I was only understanding him 25-50 % of the time and he was

> > sounding VERY apraxic, whereas he had become nearly 100%

> > intelligible to me and conversational. Now I'm getting shorter

> > phrases. I am going to go back to the brand and dose I was using

> > before, because it seemed to be working. This is all new for me

> > too. But he is as sensitive to decreases in vit E as he was to

> fish

> > oil. I am not seeing and changes in coordination, but not going

to

> > wait around for that to happen to. -

> >

> >

> >

> >

> >

> >

> > Amy

> >

> >

> > ---------------------------------

> > Get your own web address for just $1.99/1st yr. We'll help.

> Small Business.

> >

> >

[Guest guest]

Actually, the mag used for preterm labor is magnesium sulfate, not magnesium

citrate. (believe me, I know......3 course of it. Yech!). So I'm not sure

she's talking about the same thing.

> My 7 yr old had 4 days of vit E but also had mag citrate

2 of those days to help w/constipation. Last night she had7 hrs of

neurological issues...... she couldn't talk, couldn't swallow well,

wouldn't lay day and couldn't

---------------------------------

All-new - Fire up a more powerful email and get things done faster.

[Guest guest]

> >

> > You want to start out with at least 400 IU. It is harmless. Most

> > people (MDs or pharmacists) will have no clue. Our kids are

> > different. The fact that there is a response to vit E suggests

> there

> > is something deficient. But 400 IU is totally safe. Up to 1000

> > grams is totally safe according to vitamin E experts I have been

> > talking to. I have done a great deal of research before putting

my

> > child on this. We are on higher doses than I would feel

> comfortable

> > suggesting anyone try. But at the same time, we cut about 200IU

a

> > day (because we switched to a alpha/gamma combo) - and we have

> lost

> > intelligibility. I started noticing in into the second day, but

> last

> > night I was only understanding him 25-50 % of the time and he

was

> > sounding VERY apraxic, whereas he had become nearly 100%

> > intelligible to me and conversational. Now I'm getting shorter

> > phrases. I am going to go back to the brand and dose I was using

> > before, because it seemed to be working. This is all new for me

> > too. But he is as sensitive to decreases in vit E as he was to

> fish

> > oil. I am not seeing and changes in coordination, but not going

to

> > wait around for that to happen to. -

> >

> >

> >

> >

> >

> >

> > Amy

> >

> >

> > ---------------------------------

> > Get your own web address for just $1.99/1st yr. We'll help.

> Small Business.

> >

> >

[Guest guest]

> > My 7 yr old had 4 days of vit E but also had mag citrate

> 2 of those days to help w/constipation. Last night she had7 hrs of

> neurological issues...... she couldn't talk, couldn't swallow

well,

> wouldn't lay day and couldn't

>

>

> ---------------------------------

> All-new - Fire up a more powerful email and get

things done faster.

>

>

[Guest guest]

> >

> > You want to start out with at least 400 IU. It is harmless. Most

> > people (MDs or pharmacists) will have no clue. Our kids are

> > different. The fact that there is a response to vit E suggests

> there

> > is something deficient. But 400 IU is totally safe. Up to 1000

> > grams is totally safe according to vitamin E experts I have been

> > talking to. I have done a great deal of research before putting

my

> > child on this. We are on higher doses than I would feel

> comfortable

> > suggesting anyone try. But at the same time, we cut about 200IU

a

> > day (because we switched to a alpha/gamma combo) - and we have

> lost

> > intelligibility. I started noticing in into the second day, but

> last

> > night I was only understanding him 25-50 % of the time and he

was

> > sounding VERY apraxic, whereas he had become nearly 100%

> > intelligible to me and conversational. Now I'm getting shorter

> > phrases. I am going to go back to the brand and dose I was using

> > before, because it seemed to be working. This is all new for me

> > too. But he is as sensitive to decreases in vit E as he was to

> fish

> > oil. I am not seeing and changes in coordination, but not going

to

> > wait around for that to happen to. -

> >

> >

> >

> >

> >

> >

> > Amy

> >

> >

> > ---------------------------------

> > Get your own web address for just $1.99/1st yr. We'll help.

> Small Business.

> >

> >