Re: Looking for Advice from fellow Parents

[Guest guest]

That doesn't sound like it would have to indicate autism. I think

that a lot of that could be sensory based.

Steph

-- In , " a " <kejacobson@...>

wrote:

>

> I have a 4 year old son with Developmental Verbal Despraxia that

is

> known what is not known is wheather he is autistic or not.

> Quick history at age two Ethan had his second set of tubes put in

> his ears after finding out he could not hear from age 1.5 to 2

soon

> after he was evaluated at an Arena appt. and not given a diagnosis

> because the Dr.s could not see enought signs to truely diagnosis

> him. Speech therapy was started along with Early Childhood

Special

> Education at age 2.5 and speech began to come along at age 3.5.

His

> speech is now coming along well still start sounds are hard and

> ending are comming slowly but he is trying and not getting

> frustrated when we do not understand him. The thing that is

driving

> me nuts is not knowing if he is on the Spectrum or not. He can be

a

> normal little boy and very disaplined at home ( we have very

strict

> rules at home) but his teachers at school refused to give up on

> Autism. They use that he does not like it when they change the

> physical placement of circle time or the fact that he did not want

> to take his shoes off at their beach party and that it takes him

> three to four times to hear and watch a new song being sung and

> danced to before he joins in. But I can pick him up at daycare

and

> say get your coat we are going to go get your hair cut and there

is

> no problem or we can go a week will taking a bath every night and

> one night I will say NO bath and he will not argue. What is going

> on? Does any one else have a child with Apraxia and Autism or did

> anyone else have a childs development become affected to resemble

> some of these behaviors? I need some advise on what to do. Any

> advise or criticism would be apriciated.

> a

>

[Guest guest]

I just wanted to comment on your post because it reminded me of my 5

year old daughter who is not autistic, but has

had similar issues. Some examples: When she was in daycare she

refused to let a clown paint her face during circus day(she was the

only one). At her traditional preschool she was upset when circle

time moved. She complained when the poem recited before snack time

changed. She gets very anxious when the month changes - no kidding!

Once we were at a friend's house and they were playing hullabaloo

(the game) and she refused to play. After she watched the kids play

twice she decided to play and then loved it! I could go on. I think

some of this is typical with 4 year olds. They can only control so

many things in their lives. Although I also agree that it can be

sensory based - my daughter was a colicky baby and doesn't adapt to

change very well. I've seen improvements with her as she has gotten

older, and also as we talk about the problems more. Now if we are

going into a situation that might be different than she expects I try

to prep her about what might happen. Of course, I can't anticipate

everything.

Not sure if this helps you at all, but just wanted to let you know

that I had similar issues without autism or apraxia. Also, I think

what you said about him being different at school vs at home is

important. If he tolerates change at home better than at school

maybe there is something else that can be done at school. Some

children just don't " transition " well and need space to accept

changes on their terms.

>

> I have a 4 year old son with Developmental Verbal Despraxia that is

> known what is not known is wheather he is autistic or not.

> Quick history at age two Ethan had his second set of tubes put in

> his ears after finding out he could not hear from age 1.5 to 2 soon

> after he was evaluated at an Arena appt. and not given a diagnosis

> because the Dr.s could not see enought signs to truely diagnosis

> him. Speech therapy was started along with Early Childhood Special

> Education at age 2.5 and speech began to come along at age 3.5.

His

> speech is now coming along well still start sounds are hard and

> ending are comming slowly but he is trying and not getting

> frustrated when we do not understand him. The thing that is

driving

> me nuts is not knowing if he is on the Spectrum or not. He can be

a

> normal little boy and very disaplined at home ( we have very strict

> rules at home) but his teachers at school refused to give up on

> Autism. They use that he does not like it when they change the

> physical placement of circle time or the fact that he did not want

> to take his shoes off at their beach party and that it takes him

> three to four times to hear and watch a new song being sung and

> danced to before he joins in. But I can pick him up at daycare and

> say get your coat we are going to go get your hair cut and there is

> no problem or we can go a week will taking a bath every night and

> one night I will say NO bath and he will not argue. What is going

> on? Does any one else have a child with Apraxia and Autism or did

> anyone else have a childs development become affected to resemble

> some of these behaviors? I need some advise on what to do. Any

> advise or criticism would be apriciated.

> a

>

[Guest guest]

Sounds like a typical kid - sometimes and angel and sometimes a pain-

in-the-butt! I agree with the other post that maybe there are some

sensory issues. Maybe his teachers think speech + sensory issues =

autism? As far as speech goes, is his communication impaired, or

just speech? In other words, does he use his language to

communicate meaningfully (no scripting, no echolalia (sp?))? Has a

developmental specialist ever diagnosed him with PDD or ASD?

I'm no expert on this stuff, but then again your son's teacher

probably isn't either.

Kerri

>

> I have a 4 year old son with Developmental Verbal Despraxia that

is

> known what is not known is wheather he is autistic or not.

> Quick history at age two Ethan had his second set of tubes put in

> his ears after finding out he could not hear from age 1.5 to 2

soon

> after he was evaluated at an Arena appt. and not given a diagnosis

> because the Dr.s could not see enought signs to truely diagnosis

> him. Speech therapy was started along with Early Childhood

Special

> Education at age 2.5 and speech began to come along at age 3.5.

His

> speech is now coming along well still start sounds are hard and

> ending are comming slowly but he is trying and not getting

> frustrated when we do not understand him. The thing that is

driving

> me nuts is not knowing if he is on the Spectrum or not. He can be

a

> normal little boy and very disaplined at home ( we have very

strict

> rules at home) but his teachers at school refused to give up on

> Autism. They use that he does not like it when they change the

> physical placement of circle time or the fact that he did not want

> to take his shoes off at their beach party and that it takes him

> three to four times to hear and watch a new song being sung and

> danced to before he joins in. But I can pick him up at daycare

and

> say get your coat we are going to go get your hair cut and there

is

> no problem or we can go a week will taking a bath every night and

> one night I will say NO bath and he will not argue. What is going

> on? Does any one else have a child with Apraxia and Autism or did

> anyone else have a childs development become affected to resemble

> some of these behaviors? I need some advise on what to do. Any

> advise or criticism would be apriciated.

> a

>

[Guest guest]

Thanks for replying Karri. What do you think or mean by a sensory

issue? I guess we are still still kind of new to this whole thing

so if you could explain that would be great. His speech is impaired

as it is not fully understandable to others other than myself and

close family members. He has meaningful communication. And his

speech therapist at the hospital does not think he has autism but

she does not see him every day as his teacher and speech therapist

at school do. What do you think now?

a

> >

> > I have a 4 year old son with Developmental Verbal Despraxia that

> is

> > known what is not known is wheather he is autistic or not.

> > Quick history at age two Ethan had his second set of tubes put

in

> > his ears after finding out he could not hear from age 1.5 to 2

> soon

> > after he was evaluated at an Arena appt. and not given a

diagnosis

> > because the Dr.s could not see enought signs to truely diagnosis

> > him. Speech therapy was started along with Early Childhood

> Special

> > Education at age 2.5 and speech began to come along at age 3.5.

> His

> > speech is now coming along well still start sounds are hard and

> > ending are comming slowly but he is trying and not getting

> > frustrated when we do not understand him. The thing that is

> driving

> > me nuts is not knowing if he is on the Spectrum or not. He can

be

> a

> > normal little boy and very disaplined at home ( we have very

> strict

> > rules at home) but his teachers at school refused to give up on

> > Autism. They use that he does not like it when they change the

> > physical placement of circle time or the fact that he did not

want

> > to take his shoes off at their beach party and that it takes him

> > three to four times to hear and watch a new song being sung and

> > danced to before he joins in. But I can pick him up at daycare

> and

> > say get your coat we are going to go get your hair cut and there

> is

> > no problem or we can go a week will taking a bath every night

and

> > one night I will say NO bath and he will not argue. What is

going

> > on? Does any one else have a child with Apraxia and Autism or

did

> > anyone else have a childs development become affected to

resemble

> > some of these behaviors? I need some advise on what to do. Any

> > advise or criticism would be apriciated.

> > a

> >

>

[Guest guest]

Hi a-

I would take him for a neuropsych eval. A neuropsychologist will do a

very thorough, detailed evaluation, and should be able to give you an

accurate dx.

>

> I have a 4 year old son with Developmental Verbal Despraxia that is

> known what is not known is wheather he is autistic or not.

> Quick history at age two Ethan had his second set of tubes put in

> his ears after finding out he could not hear from age 1.5 to 2 soon

> after he was evaluated at an Arena appt. and not given a diagnosis

> because the Dr.s could not see enought signs to truely diagnosis

> him. Speech therapy was started along with Early Childhood Special

> Education at age 2.5 and speech began to come along at age 3.5. His

> speech is now coming along well still start sounds are hard and

> ending are comming slowly but he is trying and not getting

> frustrated when we do not understand him. The thing that is driving

> me nuts is not knowing if he is on the Spectrum or not. He can be a

> normal little boy and very disaplined at home ( we have very strict

> rules at home) but his teachers at school refused to give up on

> Autism. They use that he does not like it when they change the

> physical placement of circle time or the fact that he did not want

> to take his shoes off at their beach party and that it takes him

> three to four times to hear and watch a new song being sung and

> danced to before he joins in. But I can pick him up at daycare and

> say get your coat we are going to go get your hair cut and there is

> no problem or we can go a week will taking a bath every night and

> one night I will say NO bath and he will not argue. What is going

> on? Does any one else have a child with Apraxia and Autism or did

> anyone else have a childs development become affected to resemble

> some of these behaviors? I need some advise on what to do. Any

> advise or criticism would be apriciated.

> a

>

[Guest guest]

That does sound like Ethan. Now you said your daugther was not

autistic but I am guessing because of the message board she has

Apraxia. Now can I ask at what age did you get a diagnosis of this

for her? And how has her speech affected her over all social

development do you think? Ehtan did not begin to speek till age 3.5

and I think that has a lot to do with him being behind in a lot of

social areas of kids his age. What do you think or what have you

noticed?

a

> >

> > I have a 4 year old son with Developmental Verbal Despraxia that

is

> > known what is not known is wheather he is autistic or not.

> > Quick history at age two Ethan had his second set of tubes put

in

> > his ears after finding out he could not hear from age 1.5 to 2

soon

> > after he was evaluated at an Arena appt. and not given a

diagnosis

> > because the Dr.s could not see enought signs to truely diagnosis

> > him. Speech therapy was started along with Early Childhood

Special

> > Education at age 2.5 and speech began to come along at age 3.5.

> His

> > speech is now coming along well still start sounds are hard and

> > ending are comming slowly but he is trying and not getting

> > frustrated when we do not understand him. The thing that is

> driving

> > me nuts is not knowing if he is on the Spectrum or not. He can

be

> a

> > normal little boy and very disaplined at home ( we have very

strict

> > rules at home) but his teachers at school refused to give up on

> > Autism. They use that he does not like it when they change the

> > physical placement of circle time or the fact that he did not

want

> > to take his shoes off at their beach party and that it takes him

> > three to four times to hear and watch a new song being sung and

> > danced to before he joins in. But I can pick him up at daycare

and

> > say get your coat we are going to go get your hair cut and there

is

> > no problem or we can go a week will taking a bath every night

and

> > one night I will say NO bath and he will not argue. What is

going

> > on? Does any one else have a child with Apraxia and Autism or

did

> > anyone else have a childs development become affected to

resemble

> > some of these behaviors? I need some advise on what to do. Any

> > advise or criticism would be apriciated.

> > a

> >

>

[Guest guest]

Yes, I will second that. In this way, were were able to discount ASD

and get concurrence on the apraxia dx.

Warm regards,

******************

(Rochester, NY)

Mom to , 2.9 years, Developmental Verbal Dyspraxia

& , 7 months

________________________________

From:

[mailto: ] On Behalf Of maryebe

Sent: Tuesday, February 28, 2006 9:50 PM

Subject: [ ] Re: Looking for Advice from fellow

Parents

Hi a-

I would take him for a neuropsych eval. A neuropsychologist will do a

very thorough, detailed evaluation, and should be able to give you an

accurate dx.

>

> I have a 4 year old son with Developmental Verbal Despraxia that is

> known what is not known is wheather he is autistic or not.

> Quick history at age two Ethan had his second set of tubes put in

> his ears after finding out he could not hear from age 1.5 to 2 soon

> after he was evaluated at an Arena appt. and not given a diagnosis

> because the Dr.s could not see enought signs to truely diagnosis

> him. Speech therapy was started along with Early Childhood Special

> Education at age 2.5 and speech began to come along at age 3.5. His

> speech is now coming along well still start sounds are hard and

> ending are comming slowly but he is trying and not getting

> frustrated when we do not understand him. The thing that is driving

> me nuts is not knowing if he is on the Spectrum or not. He can be a

> normal little boy and very disaplined at home ( we have very strict

> rules at home) but his teachers at school refused to give up on

> Autism. They use that he does not like it when they change the

> physical placement of circle time or the fact that he did not want

> to take his shoes off at their beach party and that it takes him

> three to four times to hear and watch a new song being sung and

> danced to before he joins in. But I can pick him up at daycare and

> say get your coat we are going to go get your hair cut and there is

> no problem or we can go a week will taking a bath every night and

> one night I will say NO bath and he will not argue. What is going

> on? Does any one else have a child with Apraxia and Autism or did

> anyone else have a childs development become affected to resemble

> some of these behaviors? I need some advise on what to do. Any

> advise or criticism would be apriciated.

> a

[Guest guest]

Thanks

I am going to look into getting him into seeing a neuropsych. We

are looking at loosing our insurance at the end of April so I am

going to get on the ball to get things done soon. What do you think

will happen at such an appoitment? What do they do and look for?

Everyones help is great.

Thanks again a

> >

> > I have a 4 year old son with Developmental Verbal Despraxia that

is

> > known what is not known is wheather he is autistic or not.

> > Quick history at age two Ethan had his second set of tubes put

in

> > his ears after finding out he could not hear from age 1.5 to 2

soon

> > after he was evaluated at an Arena appt. and not given a

diagnosis

> > because the Dr.s could not see enought signs to truely diagnosis

> > him. Speech therapy was started along with Early Childhood

Special

> > Education at age 2.5 and speech began to come along at age 3.5.

His

> > speech is now coming along well still start sounds are hard and

> > ending are comming slowly but he is trying and not getting

> > frustrated when we do not understand him. The thing that is

driving

> > me nuts is not knowing if he is on the Spectrum or not. He can

be a

> > normal little boy and very disaplined at home ( we have very

strict

> > rules at home) but his teachers at school refused to give up on

> > Autism. They use that he does not like it when they change the

> > physical placement of circle time or the fact that he did not

want

> > to take his shoes off at their beach party and that it takes him

> > three to four times to hear and watch a new song being sung and

> > danced to before he joins in. But I can pick him up at daycare

and

> > say get your coat we are going to go get your hair cut and there

is

> > no problem or we can go a week will taking a bath every night

and

> > one night I will say NO bath and he will not argue. What is

going

> > on? Does any one else have a child with Apraxia and Autism or

did

> > anyone else have a childs development become affected to

resemble

> > some of these behaviors? I need some advise on what to do. Any

> > advise or criticism would be apriciated.

> > a

> >

>

[Guest guest]

a,

Actually my daughter is not apraxic, which is why I wanted to share

my experience with you. She has no " official " diagnosis, but I think

she did have some sensory issues that we have been able to manage.

My 2.5 year old son is a late talker -that's why I'm on here. His

diagnosis is expressive speech disorder, but we've only been in

therapy a couple of months. At 2 he was talking single word or

syllable and some signs (we started signs at 15 months when I could

tell he was getting frustrated). I'm not sure if he is apraxic. I

started looking around for an explanation and ran across the Late

Talker book which led me here. His therapist said she wasn't sure he

wanted to talk which upset me because I can see his frustration when

he wants to talk. He doesn't make certain basic sounds -this week we

are working on h and w. I HAVE noticed social issues with him. Of

course, he is much younger than Ethan, but already he is standoffish

when with other children. He does not respond when others children

say hi to him, but he likes to walk up and touch them. Of course,

the other children don't like that very much and get upset. I am

working on trying to get him into some group classes so he can work

on his social skills because I am very worried about that in the long

run.

Hope that helps.

> > >

> > > I have a 4 year old son with Developmental Verbal Despraxia

that

> is

> > > known what is not known is wheather he is autistic or not.

> > > Quick history at age two Ethan had his second set of tubes put

> in

> > > his ears after finding out he could not hear from age 1.5 to 2

> soon

> > > after he was evaluated at an Arena appt. and not given a

> diagnosis

> > > because the Dr.s could not see enought signs to truely

diagnosis

> > > him. Speech therapy was started along with Early Childhood

> Special

> > > Education at age 2.5 and speech began to come along at age

3.5.

> > His

> > > speech is now coming along well still start sounds are hard and

> > > ending are comming slowly but he is trying and not getting

> > > frustrated when we do not understand him. The thing that is

> > driving

> > > me nuts is not knowing if he is on the Spectrum or not. He can

> be

> > a

> > > normal little boy and very disaplined at home ( we have very

> strict

> > > rules at home) but his teachers at school refused to give up

on

> > > Autism. They use that he does not like it when they change the

> > > physical placement of circle time or the fact that he did not

> want

> > > to take his shoes off at their beach party and that it takes

him

> > > three to four times to hear and watch a new song being sung and

> > > danced to before he joins in. But I can pick him up at daycare

> and

> > > say get your coat we are going to go get your hair cut and

there

> is

> > > no problem or we can go a week will taking a bath every night

> and

> > > one night I will say NO bath and he will not argue. What is

> going

> > > on? Does any one else have a child with Apraxia and Autism or

> did

> > > anyone else have a childs development become affected to

> resemble

> > > some of these behaviors? I need some advise on what to do.

Any

> > > advise or criticism would be apriciated.

> > > a

> > >

> >

>

[Guest guest]

a,

By " sensory issue " I meant that he may have a little bit of Sensory

Integration Disfunction. Many of the children on this board have

SID - it can be very mild or extreme and often accompanies apraxia

and autism. There is a good book out there on it called The Out-of-

Sync Child. Basically some kids can be either under- or over-

sensitive in any one or many of their senses. For instance some

kids might be totally turned-off by the feel of sand on their skin,

and some might really crave that feeling. The way the book

describes it (at least what I take away from it) is that if your

child always seems to get upset really easily when other kids

wouldn't (or vice versa) then you should look deeper to see if there

may be sensory issues. My daughter Meg has mild SID. I started to

suspect this when through 14 weeks of Kindermusik class she got used

to it at about the 12th week - before that she had meltdowns every

time (and I can't remember any other children having meltdowns at

all).

SID is pretty common - I think 10% of kids? But the good news is

that lots of them grow out of it, and there are therapy techniques

to help too. Either the fish oil really helped Meg, or she started

growing out of it at around the same time. She's still a little

more sensitive than the average kid, but it's not affecting her life

too much anymore. By the way, an occupational therapist with

experience in SID should be able to evaluate your son and treat him

if necessary.

It really doesn't sound to me like your son has autism, but again

I'm no expert and I've never met him.

Hope this helps!

Kerri

> > >

> > > I have a 4 year old son with Developmental Verbal Despraxia

that

> > is

> > > known what is not known is wheather he is autistic or not.

> > > Quick history at age two Ethan had his second set of tubes put

> in

> > > his ears after finding out he could not hear from age 1.5 to 2

> > soon

> > > after he was evaluated at an Arena appt. and not given a

> diagnosis

> > > because the Dr.s could not see enought signs to truely

diagnosis

> > > him. Speech therapy was started along with Early Childhood

> > Special

> > > Education at age 2.5 and speech began to come along at age

3.5.

> > His

> > > speech is now coming along well still start sounds are hard

and

> > > ending are comming slowly but he is trying and not getting

> > > frustrated when we do not understand him. The thing that is

> > driving

> > > me nuts is not knowing if he is on the Spectrum or not. He

can

> be

> > a

> > > normal little boy and very disaplined at home ( we have very

> > strict

> > > rules at home) but his teachers at school refused to give up

on

> > > Autism. They use that he does not like it when they change

the

> > > physical placement of circle time or the fact that he did not

> want

> > > to take his shoes off at their beach party and that it takes

him

> > > three to four times to hear and watch a new song being sung

and

> > > danced to before he joins in. But I can pick him up at

daycare

> > and

> > > say get your coat we are going to go get your hair cut and

there

> > is

> > > no problem or we can go a week will taking a bath every night

> and

> > > one night I will say NO bath and he will not argue. What is

> going

> > > on? Does any one else have a child with Apraxia and Autism or

> did

> > > anyone else have a childs development become affected to

> resemble

> > > some of these behaviors? I need some advise on what to do.

Any

> > > advise or criticism would be apriciated.

> > > a

> > >

> >

>

[Guest guest]

Thanks again to all of you. The Book suggestions were helpful I

already have The-Out-of Sync Child Has Fun, but I just sent my

husband on a 30 mile erand to get me the Out-of-Sync Child book. I

took some of your advise and called his OT from when we had his

first evaluation done and sure enough she thought and still thinks

he has Sensory Intergration Dysfunction. I am going to be calling

his teacher tomorrow and TELLING her we need to have the OT at

school work with him. I am also going to be calling his

neurodevelopmental Dr. tomorrow and see if she recomends that we

begin seeing the OT at the hospital again as we did see he for a few

months when Ethan was 2. The OT did say that the difference between

him at home and school was probally because home is more inviting

and less over stimulating. If I have done my resurch right I would

say Ethan is Hyposensitive since he is some times big into running

and bumping into things and crashing, destroying and some times

bullyish, But then he can calm himself. I am so glad I only work

part time so I can tend to the kids and read the book tomorrow to

learn more. I just wish I knew what was over stimulating him at

school. Thanks again to all of you.

a

SE Minnesota

>

> a,

>

> By " sensory issue " I meant that he may have a little bit of

Sensory

> Integration Disfunction. Many of the children on this board have

> SID - it can be very mild or extreme and often accompanies apraxia

> and autism. There is a good book out there on it called The Out-

of-

> Sync Child. Basically some kids can be either under- or over-

> sensitive in any one or many of their senses. For instance some

> kids might be totally turned-off by the feel of sand on their

skin,

> and some might really crave that feeling. The way the book

> describes it (at least what I take away from it) is that if your

> child always seems to get upset really easily when other kids

> wouldn't (or vice versa) then you should look deeper to see if

there

> may be sensory issues. My daughter Meg has mild SID. I started

to

> suspect this when through 14 weeks of Kindermusik class she got

used

> to it at about the 12th week - before that she had meltdowns every

> time (and I can't remember any other children having meltdowns at

> all).

>

> SID is pretty common - I think 10% of kids? But the good news is

> that lots of them grow out of it, and there are therapy techniques

> to help too. Either the fish oil really helped Meg, or she

started

> growing out of it at around the same time. She's still a little

> more sensitive than the average kid, but it's not affecting her

life

> too much anymore. By the way, an occupational therapist with

> experience in SID should be able to evaluate your son and treat

him

> if necessary.

>

> It really doesn't sound to me like your son has autism, but again

> I'm no expert and I've never met him.

>

> Hope this helps!

>

> Kerri