Guest guest Posted August 10, 2005 Report Share Posted August 10, 2005 Jill G. It made me laugh when you talked about the babbling brooks and the water. I had them put x-ray dye in me and then filled my bladder as full as as they could which I thought I was going to die. (This was years before my IC diagnoses) well after they filled it they had me laying on a x ray table with a crack down the middle of it. They turned on the faucet and told me to pee. Just think of water falls they say. Yeah how the hell was I suppose to think about those things when they wanted me to pee on myself. It didn't work. Jill H. Jill aj72300@...> wrote:, I think this message was for Jill H., but I too had the cystoscopy done. One word OUCH. Then they decided to stretch my urethra, double OUCH. Basically, they keep using " knitting needles " going up a size each time, until you can't stand the pain anymore. The urologist was convinced this would stop my chronic bladder infections. Little did we know, I didn't have bladder infections, I had kidney disease! He also wanted me to go thru special therapy to teach my brain to completely drain my bladder everytime I go. Needless to say, I never went for that therapy! What do you do, drink a big guld, sit on a toilet with someone next to you saying, visualize Niagra Falls, good, now trickling streams and babbling brooks. No thank you, there isn't enough therapy in the world to get over that one! Ha, ha. Jill G. > Hey Jill, > > Did you have the interstitial cysitis before the IgAN? I was asking because years ago when it was first diagnosed that I had gross hematuria, I was referred to a urologist. I had a cystoscopy done (which I vowed to NEVER have done again). It was ruled that I had IC with some kind of tumor on the outside of my irregular bladder, possibly endometerosis. > It was never followed up but I have had a laproscopy since then and no endo, no mention of tumors or a funky bladder. I can totally relate to the pain of IC, I used to worry before I even knew I kidney disease that I could get a kidney infection and not even know now it. Now it's even more of a fear with already less than perfect kidneys. > Do you take any meds for the IC...I used to take something that changed my urine to a bluish/green color...VERY effective but it's not available here in Canada, or atleast it wasn't 12 years ago. > > > > Quote Link to comment Share on other sites More sharing options...
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