Re: fatigue/ B. - Amy

[Guest guest]

Hi Amy,

Thanks so much for your encouragment about exercise. It's interesting

you should mention that becuase, both her neph and her neuro have

actually really encouraged (demanded!) that she exercise (daily if she

can). At first she really protested because she feels so wiped out,

but since we've been home from camping (not even a week so far), she

has been riding our eliptical 30 minutes (on a really gentle program I

might add - nothing super strenuous) and then lifting hand weights.

Still she gets her heart beating and works up a good sweat.

It's only been 5 days, but I told her last night, I think it might be

helping. I know it's true, but I still think it's strange to think

that exercising would give you energy. She was exercising months ago

when she first started the pred., but once the fatigue got bad, she

quit. I hope she can stick with it this time. You are right about

her needing to get into shape to play soccer. She's played for years

and never had to " get into shape " before. She's always just taken

that for granted. It's a different body she's going to be playing

with this year.

I'm glad you were able to figure out what the trigger was for your

daughter. UTIs are miserable. I'm grateful that I can school her at

home, but I know there are times they would treat her differently if

she was constantly missing " school " . When will you start this year?

I'm still ordering my curriculum.

B, Elisabet's mom

> actually I've found that exercise does help combat the fatigue

quite well. When I miss my workout for a few days I start to feel it

and it takes all I have to get back on track....once there my energy

level does improve. Soccer might be a good thing for Elisabet if the

docs say it's o.k. For one it would give her something to focus on

and look forward to, and for two it would give her some exercise which

helps detox your system thru sweating. I honestly feel like I have

more energy after I work up a good sweat. If she truly wants to play

this fall she should start some low impact exercise now, WITH doctor

approval that is, so she is ready to play later. Something along the

lines of walking, swimming, working with tension bands, Pilates, or

even a workout similar to Curves where the machines only put as much

stress on your body as your body puts on them. Again because I can't

say it enough, check with the doctor before starting anything.

>

> I also hate it when the doctors won't take you seriously because you

homeschool and 'well you child can just rest right?' My daughter had

a bout of constant bladder infections that were treated less

aggressively than they would have been had she been in public school.

The up side to it is I was able to pinpoint the trigger for them and

since avoiding her trigger (bubble bath) she no longer gets them.

>

> Amy G.