Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Hi Liz, I guess they're looking at everything, and every direction, huh. although our experience began 21 years ago, the trach never was about the pros/cons. There was no choice about it. went 21/2 months without it, following a bilateral atresia repair, and heart repairs, and she just couldn't make it on room air. She would slightly aspirate her oral feeds, but they weren't even attempting that after the first week or so, so that wasn't a deciding factor. She went overnight from a dying baby to a decidedly lively, playful baby. Within the next 10 days she was given a g-tube, at after another 7 we brought her home. (age 3 mos, + 1 very frustrating week getting them to let go of her) She never had pneumonia, or any other bronch/lung involvement. It's work, no denying that, but so worth it for us. 's problem was identified as a 'floppy esophogeal flap', and her atresia repair really only gave her partial breathing from one nostril. The right side never stayed patent. She also has a paralyzed left vocal chord, which may also have contributed. in Ma. (, 21 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Please share experiences, pros and cons. Thank you, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Thankyou , Yes, you are right. Sometimes there is no choice. I am going to go to the hospital tomorrow, the doctors are supposed to have a conference, hopefully, we will get some answers. is going on 2 weeks in PICU again, on ventilator and SLOWLY weaning off it. But somebody brought up the possible trach in the near future? We almost lost him the last time he went home, when he turned blue and stopped breathing, so........ Liz -- Re: tracheotomy Hi Liz, I guess they're looking at everything, and every direction, huh. although our experience began 21 years ago, the trach never was about the pros/cons. There was no choice about it. went 21/2 months without it, following a bilateral atresia repair, and heart repairs, and she just couldn't make it on room air. She would slightly aspirate her oral feeds, but they weren't even attempting that after the first week or so, so that wasn't a deciding factor. She went overnight from a dying baby to a decidedly lively, playful baby. Within the next 10 days she was given a g-tube, at after another 7 we brought her home. (age 3 mos, + 1 very frustrating week getting them to let go of her) She never had pneumonia, or any other bronch/lung involvement. It's work, no denying that, but so worth it for us. 's problem was identified as a 'floppy esophogeal flap', and her atresia repair really only gave her partial breathing from one nostril. The right side never stayed patent. She also has a paralyzed left vocal chord, which may also have contributed. in Ma. (, 21 yrs) Quote Link to comment Share on other sites More sharing options...
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