Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 I would like to know of children that have a deformed dwarf cochlea that has lost more hearing as they age. Garland's cochlea does not have enough turns in it. He also has fluctuation in his hearing, which is a concern. The school does not think that the fluctuation is an issue, because he uses his voice. He started speaking last October, which is not totally intelligible. They have dropped his sing language. Which we are not happy with. Does anyone have any info to share with us. We are in the state of Texas. , Randy & Garland Goodwin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 I believe Kennedy's cochlea is okay; however, there were other conductive issues that happened with her, causing a further 50 db loss when she was four. That took her from a moderate-severe loss to a severe-profound loss. I am glad I pushed for sign; when her hearing aid is off, she is deaf for all intents and purposes, even though she can speak as she did lose her hearing post-lingually. I think it's good to have the sign backing them up, anything can happen. > > I would like to know of children that have a deformed dwarf cochlea that > has lost more hearing as they age. Garland's cochlea does not have enough > turns in it. He also has fluctuation in his hearing, which is a concern. The > school does not think that the fluctuation is an issue, because he uses his > voice. He started speaking last October, which is not totally intelligible. > They have dropped his sing language. Which we are not happy with. > > Does anyone have any info to share with us. We are in the state of Texas. > > , Randy & Garland Goodwin > > -- " It is far better to grasp the universe as it really is than to persist in delusion, however satisfying and reassuring. " --Carl Sagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 i have a small one and fluctuating hearin gto > > I believe Kennedy's cochlea is okay; however, there were other > conductive > issues that happened with her, causing a further 50 db loss when she was > four. That took her from a moderate-severe loss to a severe-profound loss. > I am glad I pushed for sign; when her hearing aid is off, she is deaf for > all intents and purposes, even though she can speak as she did lose her > hearing post-lingually. > I think it's good to have the sign backing them up, anything can happen. > > > On 12/11/06, & Randy <michelle.goodwin@...<michelle.goodwin%40charter.net>> > wrote: > > > > I would like to know of children that have a deformed dwarf cochlea that > > has lost more hearing as they age. Garland's cochlea does not have > enough > > turns in it. He also has fluctuation in his hearing, which is a concern. > The > > school does not think that the fluctuation is an issue, because he uses > his > > voice. He started speaking last October, which is not totally > intelligible. > > They have dropped his sing language. Which we are not happy with. > > > > Does anyone have any info to share with us. We are in the state of > Texas. > > > > , Randy & Garland Goodwin > > > > > > -- > " It is far better to grasp the universe as it really is than to persist in > delusion, however satisfying and reassuring. " --Carl Sagan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Have you lost any more hearing Ellen? If you did, at what age? , Randy & Garland Goodwin ---- ellen howe wrote: ============= i have a small one and fluctuating hearin gto > > I believe Kennedy's cochlea is okay; however, there were other > conductive > issues that happened with her, causing a further 50 db loss when she was > four. That took her from a moderate-severe loss to a severe-profound loss. > I am glad I pushed for sign; when her hearing aid is off, she is deaf for > all intents and purposes, even though she can speak as she did lose her > hearing post-lingually. > I think it's good to have the sign backing them up, anything can happen. > > > On 12/11/06, & Randy <michelle.goodwin@...<michelle.goodwin%40charter.net>> > wrote: > > > > I would like to know of children that have a deformed dwarf cochlea that > > has lost more hearing as they age. Garland's cochlea does not have > enough > > turns in it. He also has fluctuation in his hearing, which is a concern. > The > > school does not think that the fluctuation is an issue, because he uses > his > > voice. He started speaking last October, which is not totally > intelligible. > > They have dropped his sing language. Which we are not happy with. > > > > Does anyone have any info to share with us. We are in the state of > Texas. > > > > , Randy & Garland Goodwin > > > > > > -- > " It is far better to grasp the universe as it really is than to persist in > delusion, however satisfying and reassuring. " --Carl Sagan > > Quote Link to comment Share on other sites More sharing options...
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