Lori re

[Guest guest]

Lori,

How's doing after the surgery? It sounds like she is doing well today. I

loved reading about signing 'more horse'. WOWIE, I just love to see language

expanding. :-)

Your advice below was very sensitive and well-taken also. It CAN be

overwhelming. It is really helpful to take one day at a time.

Mom to Kendra, 20 with CHARGE, , 25, and Camille, 28

caitlyn s charge

i am sorry but the futre does look so bleek for my grandaughter caitlyn

since i came on this sight i have learnt alot but getting rather

worried i have heard of sleep partys when the chargers dont need much

sleep good and bad things about the findo opp that caitlyn will be

hving shortly and autism to in charge children and bullying at scool i

know caitlyn is only nearly 1 year old but we have think about there

futre s it all sounds like this year all over again fighting for

everything for them it is so hard in the north east you get no help or

support my daughter is only 19 years old she is the mum of caitlyn

though kellie does a fantastic job and caitlyn is doing well i dont

think kellie could cope with another year like this one i know they say

it gets easyer but they have not sorted out her vision or hearing yet i

know it can take years to totaly understand the full exent of a childs

vision and hearing but life is like a roller coster up one day down the

next good news one day bad the next caitlyn is blind in one eye she a

cyst on the other eye and colinbolma in both eyes of the retner they

dont know how she sees what she sees they just say she is making good

use of what ever vusion she has well i will stop moaning and going on

this sight is such a help and thanks to all in charge land