Re: Popping out of Lurkdom for a few days:

[Guest guest]

Hi ,

Wow, 50th wedding anniversary! That must have been a

great celebration!!! Maybe one day you and I, and

others on site will be celebrating the same wonderful

life event. I'm only a little over 1/2 way there, but

fairly stable marriage. We don't hardly ever argue,

cause we are too busy working! I am so glad you will

be able to see your daughters in another 2 weeks.

Hopefully that will pick up your spirits during this

stressful 2 week period while you are anxiously hoping

your GFR will improve.

Wishing you the best.

I certainly agree with you regarding hoping the

decrease in my GFR was due to recent illness. Now I

wonder if in fact, I should have called my local neph

last week. (hind sight, of course). But I definitely

didn't want to go into the hospital, (not ER or

otherwise), and I thought by now my labs would have

corrected themself. My curent GFR is 46, not to bad,

but considering I was 85 about a 1 1/2 years ago or

so, seems like is declining more rapidly than I would

have expected. " The waiting game... Chin up... " the

power of positive thinking. I will also have the

" opportunity " to see a new PCP next week. She's what

a call a " baby " doctor, just got out of school a

couple of years ago. That part is a little

challenging, but she has a good reputation, so

hopefully will be O.K. I already REALLY miss, my

previous PCP. I would have called him (last week) if

his office had still been open. He was/IS TOPS in my

book.

Oh, yeah, Me rest? Hahaha. What about you, my

dear!!!!!

Great to hear from you again, I'll try to pop in and

out more frequently than the last couple of months. I

head back home tonight.

I'll be praying for you (more than ever) over the next

couple weeks. I really and truely hope your GFR

improves and stabilizes until your transplant process

is more complete. Take the very best of care !

Bonnie

--- W4JC@... wrote:

>

> Oh dear Bonnie,

>

> I am so disappointed to hear the GFR has declined.

> I was so hoping the GFR

> would have stabilized with the Cellcept. What is

> your current GFR? I pray

> it is due to your recent illness and that it might

> rebound to your previous

> level. At least the edema is under control. It got

> really bad for you there

> for a while.

>

> I did see my daughters two weekends ago when the

> family all got together in

> Pismo beach to celebrate my parent's 50th

> anniversary. It was great being

> together. They are coming up next weekend too so I

> will get to see them again

> :-) That always makes me so happy.

>

> Try to get some rest this weekend Bonnie.

>

>

>

> In a message dated 8/5/2005 8:06:56 P.M. Pacific

> Daylight Time,

> bd4679@... writes:

>

> Hi and Amy,

> It's great to hear from you as well! It is very

> hard

> to believe it's been a year! How time goes

> traveling

> by. The edema is better thanks to Lasix 40mg/day

> and

> HCTZ 25mg/day. The only time I notice the swelling

> up

> into my thighs is when I'm ill, and can't take the

> diuretics. I had a bout of GI flu over the past

> week

> or two, with vomiting and diarrhea. I was afraid

> to

> take the Lasix, for fear of dehydration, so held it

> for 1 1/2 days, then " bingo " swelling all over.

> But

> alas that is better. I'm a tinged bummed though,

> as I

> just calculated my GFR from today's labs and I'm

> down

> another 10 points in GFR. Protein back up a little

> too, but not at the 3 gram stage. Hopefully things

> will perk up by next visit.

>

> Hope your husband is recovering well from his

> surgery.

> Have you had a chance to visit with your daughters

> recently?

>

> I'm so sorry your GFR seems to be declining as well

> as

> your significant fatigue. I hope you are able to

> get

> some rest this weekend. I'm still praying for a

> smooth

> process of transplant for you and your donor, but

> I'm

> also glad you have a choice of peritoneal dialysis,

> just in case.

>

> Thanks very much once again, for trying so hard to

> address everyone's posts. You are definitely an

> angel.

> Take good care, Bonnie

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

Bonnie,

Your comments about the " baby doc " leapt right out at me. We saw our new

baby doc last week. I tried to keep an open mind, but I confess Pierre's

old line to the effect that you're not paying for the five minutes of their

time, you're paying for the years of experience that preceeded it was

ringing in my ear. What if you're not getting the years of experience

either?. Granted, our old baby doc knew nothing about MPGN, but back then

neither did we! Moreover, she didn't make decisions without checking the

attending. Her strong suit was she wasn't a cowboy... and I worry about the

current dude. Let us know how the new doc goes. Scarry territory.

All the best,

Cy

Re: Popping out of Lurkdom for a few days:

> Hi ,

> Wow, 50th wedding anniversary! That must have been a

> great celebration!!! Maybe one day you and I, and

> others on site will be celebrating the same wonderful

> life event. I'm only a little over 1/2 way there, but

> fairly stable marriage. We don't hardly ever argue,

> cause we are too busy working! I am so glad you will

> be able to see your daughters in another 2 weeks.

> Hopefully that will pick up your spirits during this

> stressful 2 week period while you are anxiously hoping

> your GFR will improve.

> Wishing you the best.

> I certainly agree with you regarding hoping the

> decrease in my GFR was due to recent illness. Now I

> wonder if in fact, I should have called my local neph

> last week. (hind sight, of course). But I definitely

> didn't want to go into the hospital, (not ER or

> otherwise), and I thought by now my labs would have

> corrected themself. My curent GFR is 46, not to bad,

> but considering I was 85 about a 1 1/2 years ago or

> so, seems like is declining more rapidly than I would

> have expected. " The waiting game... Chin up... " the

> power of positive thinking. I will also have the

> " opportunity " to see a new PCP next week. She's what

> a call a " baby " doctor, just got out of school a

> couple of years ago. That part is a little

> challenging, but she has a good reputation, so

> hopefully will be O.K. I already REALLY miss, my

> previous PCP. I would have called him (last week) if

> his office had still been open. He was/IS TOPS in my

> book.

>

> Oh, yeah, Me rest? Hahaha. What about you, my

> dear!!!!!

>

> Great to hear from you again, I'll try to pop in and

> out more frequently than the last couple of months. I

> head back home tonight.

>

> I'll be praying for you (more than ever) over the next

> couple weeks. I really and truely hope your GFR

> improves and stabilizes until your transplant process

> is more complete. Take the very best of care !

> Bonnie

>

>

> --- W4JC@... wrote:

>

>>

>> Oh dear Bonnie,

>>

>> I am so disappointed to hear the GFR has declined.

>> I was so hoping the GFR

>> would have stabilized with the Cellcept. What is

>> your current GFR? I pray

>> it is due to your recent illness and that it might

>> rebound to your previous

>> level. At least the edema is under control. It got

>> really bad for you there

>> for a while.

>>

>> I did see my daughters two weekends ago when the

>> family all got together in

>> Pismo beach to celebrate my parent's 50th

>> anniversary. It was great being

>> together. They are coming up next weekend too so I

>> will get to see them again

>> :-) That always makes me so happy.

>>

>> Try to get some rest this weekend Bonnie.

>>

>>

>>

>> In a message dated 8/5/2005 8:06:56 P.M. Pacific

>> Daylight Time,

>> bd4679@... writes:

>>

>> Hi and Amy,

>> It's great to hear from you as well! It is very

>> hard

>> to believe it's been a year! How time goes

>> traveling

>> by. The edema is better thanks to Lasix 40mg/day

>> and

>> HCTZ 25mg/day. The only time I notice the swelling

>> up

>> into my thighs is when I'm ill, and can't take the

>> diuretics. I had a bout of GI flu over the past

>> week

>> or two, with vomiting and diarrhea. I was afraid

>> to

>> take the Lasix, for fear of dehydration, so held it

>> for 1 1/2 days, then " bingo " swelling all over.

>> But

>> alas that is better. I'm a tinged bummed though,

>> as I

>> just calculated my GFR from today's labs and I'm

>> down

>> another 10 points in GFR. Protein back up a little

>> too, but not at the 3 gram stage. Hopefully things

>> will perk up by next visit.

>>

>> Hope your husband is recovering well from his

>> surgery.

>> Have you had a chance to visit with your daughters

>> recently?

>>

>> I'm so sorry your GFR seems to be declining as well

>> as

>> your significant fatigue. I hope you are able to

>> get

>> some rest this weekend. I'm still praying for a

>> smooth

>> process of transplant for you and your donor, but

>> I'm

>> also glad you have a choice of peritoneal dialysis,

>> just in case.

>>

>> Thanks very much once again, for trying so hard to

>> address everyone's posts. You are definitely an

>> angel.

>> Take good care, Bonnie

>>

>>

>>

>>

>>

>> [Non-text portions of this message have been

>> removed]

>>

>>

>

>

>

>

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