Re: help please.

[Guest guest]

What is in the Master Cleanse? Is magnesium in the solution. Maybe she

started to fast with it. I hope she feels better....

[Guest guest]

In a message dated 1/15/00 11:52:25 AM Eastern Standard Time,

abrs@... writes:

<< My wife is doing a " Master Cleanse " . She just drank the salt water about

an hour ago. She is experiancing severe upper abdominal cramping with

diarhea. What could be causing this and how can she releive it?? >>

If by " salt water, " you mean Epsom salts in water. These symptoms are

normal. The Epsom salts open the bile ducts wide. It is a common folk

remedy for constipation and it works almost immediately. She should be okay

by tomorrow...if she was in good health to begin with.

I have experienced this using Epsom salts, in the past. It is crampy, and

there is diarrhea, but it works--fast.

Marsha/FL

[Guest guest]

Thanks to everyone's response to my husbands plea. I took Cascara just before

Sea Salt in a quart of water. I believe I should not do that again. The

morning's salt water flush was much better. Mr. Clapp, I looked up your sight

and found the missing link's I needed to this cleanse, thank you. I have Arise

and Shine products as well as Bentonite. I began incorporating these today. My

only concern is if I am using adequate parsite cleansing herbs. I do have Black

Walnut, but they are not in the " green " . I think that paying 35.00 for walnut in

the green is a bit steep. Anyone suggestions from anyone on this???

[Guest guest]

In a message dated 1/15/0 21:10:55, abrs@... writes:

<< My only concern is if I am using adequate parsite cleansing herbs. I do

have Black Walnut, but they are not in the " green " . I think that paying 35.00

for walnut in the green is a bit steep. >>

No reason to pay so much for green black walnut. Nature's Way makes one in

capsule form, it's only about seven dollars or so, and you can get it in

almost any health food store. You can also order an inexpensive tincture on

the net through Emerson Ecologics.

Robin G.

[Guest guest]

I am on my third day of the Master Cleanse with Arise and Shine products

incorporated into the cleanse. I am taking the salt water purge instead of

colonics, for convenience sakes. The salt water purge is giving me DH for about

two hours inspite of 3 doses throughout the day of psyluim and bentonite. Is

this OK. I have lost 6 pounds in two days.

[Guest guest]

hi leslie- most psychologists would be happy to test your daughter- have you

contacted the autism society of america? There are different tests for autism

depending on your daughters age. charlotte henry

[Guest guest]

leslie- sorry i said your daughter- you might want to see if there is an

autism resource team at school- alot of people start there- charlotte henry

[Guest guest]

Hi

Have you approached his teacher to see whether she could have him assessed for

Autism.

I do not have any children with Autism even though I wonder with my son as he

like to rock in his bed and he makes roaring sounds which really scares my

little 2 year old daughter ( she has Global Developmental Delays and Dyspraxia)

and Jimmy has Mild Developmental Delays and Behavioural Issues and can be

aggressive) He is currently in a special school as he is not emotionally ready

for a normal highschool.

I do hope you will find answers for your sons dx

Have a lovely day and take care

Chrissy

<lesliedawn71@...> wrote:

I have an 8 yr old son who is severly global apraxic and has the

hypersensitivity and a few other things. Lately I have been thinking

that I need to have him evaluated for autism. He has a few signs of

autism. He is in a regular school but this year was put in a special

ed class for most of the subjects. I dont know where to start for the

evaluation for autism. If you have any suggestions I would appreciate

it. Thanks,

[Guest guest]

I would take him to a pediatric neuropsychologist. They do the most

thorough evals in my experience.

best of luck,

>

> I have an 8 yr old son who is severly global apraxic and has the

> hypersensitivity and a few other things. Lately I have been thinking

> that I need to have him evaluated for autism. He has a few signs of

> autism. He is in a regular school but this year was put in a special

> ed class for most of the subjects. I dont know where to start for the

> evaluation for autism. If you have any suggestions I would appreciate

> it. Thanks,

>

[Guest guest]

We took Benny to a pediatric neurologist last fall at a major teaching medical

center

nearby, who said, " I sincerely doubt that anything that is going on in his gut

could have

anything to do with his neurological and developmental problems. Sometimes we

just

don't know what the cause is when development goes wrong. " Duh!

He tested 's language by saying, " What do you do when you are very

thirsty? " and

quite sensibly, given what the doctor had previous said, responded,

" Baum. " [a

made-up word] Dr. Intelligent then said, " His language is obviously very

delayed. " Actually

feels insulted when people ask him stupid questions and sometimes says

things

like " candy cane, " in response.

We fired the doctor. In the future, I would ask other parents or an organization

like CARD

where to go for an evaluation.

Last month Ben amazed me because previously he had been unable to discuss things

that

weren't right in front of him, or at least a picture. I picked him up after

school and we had

the following conversation:

Grandma: " How was your day today, Ben? "

Ben: " I had a sad day. " [Grandma's jaw drops two inches, she got a response.]

Grandma: " Aww, what happened, Ben? "

Ben: " Ms. was trying to be mad with me [Grandma's jaw drops even

further, not

only did this kid recognize " mad " but also " trying to be mad " !]

Grandma: [Trying to keep a straight face] Why? What did you do?

Ben: " The Krabby Patty got broke and she wanted us to share. " LOL

I was, and still am, so amazed that he was able to tell me a whole narrative

like that. Keep

the faith, and keep on looking for solutions! stopped private ST almost

a year

ago and still gets a minimal amount in school. He stopped reversing pronouns

(like " you "

and " I " especially in questions, about two months ago.)

Peace,

Kathy E.

> >

> > I have an 8 yr old son who is severly global apraxic and has the

> > hypersensitivity and a few other things. Lately I have been thinking

> > that I need to have him evaluated for autism. He has a few signs of

> > autism. He is in a regular school but this year was put in a special

> > ed class for most of the subjects. I dont know where to start for the

> > evaluation for autism. If you have any suggestions I would appreciate

> > it. Thanks,

> >

>

[Guest guest]

Since your child also is globally apraxic I would highly recommend a TEAM

assessment. My son was originally diagnosed with autism and later

diagnosed with verbal dyspraxia. The schools recently are pushing to get

rid of the autism label which he still has so they can take away services

(mainly his out of district placement which is clearly appropriate

regardless of his diagnosis!) They want him to be evaluated by a

psychologist who planned to do a parent fill out survey and verbal and

non-verbal IQ testing. This is NOT appropriate, especially the IQ testing

as IQ has nothing to do with autism and it's pure discrimination to give a

child 3 yrs delayed in expressive language a verbal IQ test! First autism

is a /medical/ diagnosis. The individual who diagnoses or someone on the

team needs to have an MD or DO after their name period! I've heard of

psychiatrists diagnosing children, but usually these are children who are

very verbal on the aspergers-type part of the spectrum and 8-10 yrs of

age. For any child under 5, and any child with other disorders a team is

recommended. Most teams will include an SLP, OT, pediatrician or pediatric

psychiatrist (in other words an MD) as well as some kind of a cognitive

specialist such as a child psychologist or psychiatrist. When I contacted

THE place in my state about the appropriateness of a psychologist negating

a diagnosis huge flags went up! I'm on the waiting list with this clinic,

and everyone who works with my son agrees that he will be " un-diagnosed "

but I still want the most accurate team to assess him. They clearly told

me for a child with speech and language issues they would never recommend a

single professional. At the very least he should be evaluated by an MD and

an SLP.

So that's my $0.10 on the issue! Autism seems to be a big buzz word

these days and I have found that the local support groups are fairly well

organized and extremely helpful, even to people like our family who don't

think our child is autistic, but have been stuck with the label. I suggest

you find your local group through ASA and contact someone. They will be

able to give you local references on who and where to go for the most

accurate assessment possible.

Good luck!

Miche

At 09:20 AM 3/11/2006, you wrote:

> I have an 8 yr old son who is severly global apraxic and has the

>hypersensitivity and a few other things. Lately I have been thinking

>that I need to have him evaluated for autism. He has a few signs of

>autism. He is in a regular school but this year was put in a special

>ed class for most of the subjects. I dont know where to start for the

>evaluation for autism. If you have any suggestions I would appreciate

>it. Thanks,

[Guest guest]

what are the signs of autism that you are seeing in your

child and has any professionals seen them? Your child has gone from

the mainstream to special ed for all his classes. You may want to

know not just " is he autistic " but is that appropriate placement for

him?! I'm sure this is your main concern.

I agree with 's response to you that a multidisciplinary

evaluation that includes a knowledgeable neuroMD, ST, and OT

typically is the best way to go. As with anything however, the

quality of the exam including any diagnosis and recommended

treatment will also depend on the knowledge and expertise of the

professional that evaluates your child even if it's just one

professional that does the evaluation.

For a preschool child suspected of apraxia a psychological exam has

been found not to be as beneficial as a (good) neuromedical exam -

but as always that depends on the professional and the amount of

other children with similar conditions they have worked with. If

you have a local support group you can ask others for

recommendations and if you don't, ask here. What state/country are

you from? It's worth driving for hours or even (if possible and

affordable) flying outside of your area to knowledgeable

professionals to help secure an accurate diagnosis and treatment in my

opinion. Evaluations can help secure appropriate placement, therapy

and classification in school.

I also agree with 's response to you that for a school age child

a neuropsych exam if done with knowledgeable about appropriate ways

to evaluate and test communication impaired children may 'also' be

beneficial to help you advocate -especially given the situation your

child is currently in. They can help to document the psychological

damage that can occur to your child's self esteem if the placement

is inappropriate (again regardless of whether your child has been

under the radar for autism up till now and perhaps may be autistic)

It's wise to be aware that in our society including with some school

professionals who should know better a child's cognitive and/or

receptive abilities can be prejudged based on the way s/he speaks.

This statement has been backed up in research by Dr. Rice and others

as stated in The Late Talker book. The Late Talker book will be a

good resource for you as well (at least the advocacy chapter as well

as dealing with frustrations and what professionals to see and

letters to send out) even though your child's older. Did you read

it yet?

A neuropsych exam if needed may be beneficial together with a

multidisciplinary exam to help remove a child (your child?) from

inappropriate placement/classification and to secure appropriate

placement/classification. In quite a few instances from this group

however, evaluations from a neuroMD, SLP and OT either alone or

together as a multidisciplinary team have been sufficient to provide

just that -strong enough advocacy to get the child the appropriate

placement, therapies and classification.

Another reason for the outside the school box evaluations are the

unfounded in this group theory that communications impairments

are " learning disabilities " or that communication impaired children

are automatically to be classified as " learning disabled " . A

communication impaired child (just like any other) may be at risk

for learning challenges in school without appropriate education and

therapies, but if a verbal disabled child is learning disabled then

why are hearing and visual disabled children not viewed as " learning

disabled " ? Unfortunately there are a handful of speech

professionals from the past that created the " facts " of what apraxia

is and isn't that some (not this group) follow as if it is still

fact, and again apraxia just a few years ago was considered a rare

and debated for existence condition amongst speech professionals (!)

and unheard of in pediatrics by most medical professionals. So in

my opinion any " statistics " from years ago in regards to

percentages of communication impaired children with learning

disabilities are most likely based in the ignorance that surrounded

these conditions of communication even as recently as 6 years ago

(when my son Tanner was first diagnosed)and should be taken with a

grain of salt. (but being aware of them is wise)

In speaking with one of the CHERAB advisors Dr. a Tallal

http://www.cherab.org/information/speechlanguage/advisoryboard.html

there today is no receptive test for a severely communication

impaired individual that will provide a completely accurate

assessment. We need to advocate for the creation of more accurate

and appropriate tests and testing as a group based on anecdotal

results in this group alone. In this group for those children

without co existing cognitive and receptive challenges almost all of

them are mainstreamed and doing well in spite of standard and

inappropriate testing (warning at times used by professionals who

are not knowledgeable) that had decided in some cases that child

was " low average " or even " mentally retarded " . I can archive

stories about this that will knock anyone's socks off -and one that

comes to mind offhand is Pekula's story about her daughter.

(her daughter is not " severely mentally retarded " as found by the

school but instead this family moved out of state and the child is

mainstreamed and testing to be normal in abilities -scary but true.

are you there to fill everyone in? Just in case misses

this, find her child's story to read and it will give anyone

chills. Or let me know if you want me to repost.

One other note, if you are paying out of pocket/through private

insurance, I'd only share with the school professionals those

reports that best help you advocate for your child to provide him

with the best possible opportunities to succeed.

Here's my son Tanner's story. He is today 9 and the public school

in NJ had wanted to put him in special ed.

A's in 1st and 2nd. This year he has had A's B's and C's

http://www.cherab.org/information/familiesrelate/letter.html

If it's not appropriate fight it/learn how to advocate/ regardless

of whether your child is autistic.

Where would Tanner be today if I didn't? Where your child is.

Best to you and your child!

=====

[Guest guest]

In my experience, a neuropsychologist does not typically examine

psychological damage (she's not a clinical psychologist), but rather

has extensive experience in carrying out standardized testing for

speech, motor and developmental delays. She does however write a

detailed report about what would and would not be appropriate

educational placements, and makes extensive therapy recommendations.

Our neuropsychologist is very familiar with autism spectrum disorders,

ADHD, and other developmental disorders, and the variety of symptoms

that may be seen in children with these issues. Our neuropsych does

much more thorough testing than my children's neurologist, speech

therapist and OT combined. This is a professional that has more depth

and breadth than these other professionals when it comes to evaluation

and testing. For diagnosis, I think this is the best way to go.

Depending on the child's age, the neuropsych testing lasts for 1-2

mornings (3-8 hours), and tests for any potential areas of concern

(based on teacher and parent reports): language testing, motor skills

testing, auditory processing, ADHD testing, articulation, etc.

We considered having a team of a psychologist, speech therapist and

occupational therapist do the dx testing for our kids, but it was

prohibitively expensive (and our insurance would not cover it), and I

think we ended up with a very thorough eval with the neuropsychologist

instead.

>

> what are the signs of autism that you are seeing in your

> child and has any professionals seen them? Your child has gone from

> the mainstream to special ed for all his classes. You may want to

> know not just " is he autistic " but is that appropriate placement for

> him?! I'm sure this is your main concern.

>

> I agree with 's response to you that a multidisciplinary

> evaluation that includes a knowledgeable neuroMD, ST, and OT

> typically is the best way to go. As with anything however, the

> quality of the exam including any diagnosis and recommended

> treatment will also depend on the knowledge and expertise of the

> professional that evaluates your child even if it's just one

> professional that does the evaluation.

>

> For a preschool child suspected of apraxia a psychological exam has

> been found not to be as beneficial as a (good) neuromedical exam -

> but as always that depends on the professional and the amount of

> other children with similar conditions they have worked with. If

> you have a local support group you can ask others for

> recommendations and if you don't, ask here. What state/country are

> you from? It's worth driving for hours or even (if possible and

> affordable) flying outside of your area to knowledgeable

> professionals to help secure an accurate diagnosis and treatment in my

> opinion. Evaluations can help secure appropriate placement, therapy

> and classification in school.

>

> I also agree with 's response to you that for a school age child

> a neuropsych exam if done with knowledgeable about appropriate ways

> to evaluate and test communication impaired children may 'also' be

> beneficial to help you advocate -especially given the situation your

> child is currently in. They can help to document the psychological

> damage that can occur to your child's self esteem if the placement

> is inappropriate (again regardless of whether your child has been

> under the radar for autism up till now and perhaps may be autistic)

> It's wise to be aware that in our society including with some school

> professionals who should know better a child's cognitive and/or

> receptive abilities can be prejudged based on the way s/he speaks.

> This statement has been backed up in research by Dr. Rice and others

> as stated in The Late Talker book. The Late Talker book will be a

> good resource for you as well (at least the advocacy chapter as well

> as dealing with frustrations and what professionals to see and

> letters to send out) even though your child's older. Did you read

> it yet?

>

> A neuropsych exam if needed may be beneficial together with a

> multidisciplinary exam to help remove a child (your child?) from

> inappropriate placement/classification and to secure appropriate

> placement/classification. In quite a few instances from this group

> however, evaluations from a neuroMD, SLP and OT either alone or

> together as a multidisciplinary team have been sufficient to provide

> just that -strong enough advocacy to get the child the appropriate

> placement, therapies and classification.

>

> Another reason for the outside the school box evaluations are the

> unfounded in this group theory that communications impairments

> are " learning disabilities " or that communication impaired children

> are automatically to be classified as " learning disabled " . A

> communication impaired child (just like any other) may be at risk

> for learning challenges in school without appropriate education and

> therapies, but if a verbal disabled child is learning disabled then

> why are hearing and visual disabled children not viewed as " learning

> disabled " ? Unfortunately there are a handful of speech

> professionals from the past that created the " facts " of what apraxia

> is and isn't that some (not this group) follow as if it is still

> fact, and again apraxia just a few years ago was considered a rare

> and debated for existence condition amongst speech professionals (!)

> and unheard of in pediatrics by most medical professionals. So in

> my opinion any " statistics " from years ago in regards to

> percentages of communication impaired children with learning

> disabilities are most likely based in the ignorance that surrounded

> these conditions of communication even as recently as 6 years ago

> (when my son Tanner was first diagnosed)and should be taken with a

> grain of salt. (but being aware of them is wise)

>

> In speaking with one of the CHERAB advisors Dr. a Tallal

> http://www.cherab.org/information/speechlanguage/advisoryboard.html

> there today is no receptive test for a severely communication

> impaired individual that will provide a completely accurate

> assessment. We need to advocate for the creation of more accurate

> and appropriate tests and testing as a group based on anecdotal

> results in this group alone. In this group for those children

> without co existing cognitive and receptive challenges almost all of

> them are mainstreamed and doing well in spite of standard and

> inappropriate testing (warning at times used by professionals who

> are not knowledgeable) that had decided in some cases that child

> was " low average " or even " mentally retarded " . I can archive

> stories about this that will knock anyone's socks off -and one that

> comes to mind offhand is Pekula's story about her daughter.

> (her daughter is not " severely mentally retarded " as found by the

> school but instead this family moved out of state and the child is

> mainstreamed and testing to be normal in abilities -scary but true.

> are you there to fill everyone in? Just in case misses

> this, find her child's story to read and it will give anyone

> chills. Or let me know if you want me to repost.

>

> One other note, if you are paying out of pocket/through private

> insurance, I'd only share with the school professionals those

> reports that best help you advocate for your child to provide him

> with the best possible opportunities to succeed.

>

> Here's my son Tanner's story. He is today 9 and the public school

> in NJ had wanted to put him in special ed.

> A's in 1st and 2nd. This year he has had A's B's and C's

> http://www.cherab.org/information/familiesrelate/letter.html

> If it's not appropriate fight it/learn how to advocate/ regardless

> of whether your child is autistic.

>

> Where would Tanner be today if I didn't? Where your child is.

>

> Best to you and your child!

>

> =====

>

[Guest guest]

you wrote " We considered having a team of a psychologist,

speech therapist and occupational therapist do the dx testing for

our kids, but it was prohibitively expensive (and our insurance

would not cover it), and I think we ended up with a very thorough

eval with the neuropsychologist instead "

That makes things a bit more clear. Your children are not typical

of the late talkers in this group. I could probably count on my

fingers how many I know who didn't seek a speech evaluation for a

speech impaired child. What is your children's diagnosis from the

neuropsych as to their communication impairment? Did you ever

consider a neuroMD exam as well since? Are your children in speech

therapy?

Neither of my boys were taken to a neuropsychologist for evaluation,

and I know most with " late talker " preschool children in this group

don't always take their child to one. There are probably more who

take their child to one for school age related issues, but even then

not most. Isn't a neuropsychologist a clinical psychologist as

well? Guess I don't know then. I believed as a neuropsychologist

they would have an even greater insight and ability to help one

advocate for a child if needed because they can use the evaluations

from the neuroMD/SLP/OT (which I highly recommend since for this

group we are speaking about neurologically based multifaceted

communication impairments for the most part) together with their own

findings and combine them to include psychological aspects such as

damage to self esteem for say a child who is misclassified as

special ed... which is what I brought up.

As you can see from the following by Jerome Schultz PhD, a

neuropsychologist, he is at least one neuropsychologist who is

extremely capable of answering just these type of questions:

Q & A by Jerome Schultz, neuropsychologist

Q: My seventh-grade son has such low self-esteem that if something

isn't easy he gives up.

A: This is a real challenge faced by many parents. Here's what to

do.

Read the answer.

Q: How do I encourage my four-year-old with her schoolwork without

completely destroying the self-esteem of my eight-year-old, who is

in special education?

A: It's really hard for kids with learning disabilities when a

younger brother or sister starts to pass them by.

Read the answer.

Q: Our daughter is on an IEP for learning disabilities. She's

frustrated with the extra load of work, and the teacher is making

her feel worse. Do we switch her to another teacher or keep putting

her in this class that is tearing her up inside?

A: Even if the teacher is as sweet as an angel, it's your daughter's

perception that counts. Here's what you should do.

Read the answer.

http://life.familyeducation.com/self-esteem/self-image/36542.html

And here is one page on the difference between neurology (MD)

and neuropsychology (PhD)

" What's the difference between Neuropsychology and Neurology?

Neurology is a field encompassing the science and study of the human

brain and nervous system and its diseases. Clinical neurology is a

specialty field of medicine; a clinical neurologist is an M.D. who

is board certified in neurology. The function and practice of a

clinical neurologist differs substantially from that of a

neuropsychologist. Since there is great confusion between the two,

it is important to carefully note the differences:

The neurologist M.D. deals with the structural and physiological

consequences of brain injury and organic brain disease, while the

neuropsychologist Ph.D. investigates the cognitive and behavioral

impact of such conditions. For example, an individual suffers

serious brain damage in a car accident. The neurologist will run

tests and make determinations as to the physical impact of injuries:

Can the patient ambulate, move limbs and muscles, and maintain

hand/eye coordination?; Is an EEG needed? How severe is soft tissue

damage?; Is surgery in order?; etc. The neuropsychologist, on the

other hand, will examine and test the patient's powers of cognition:

Can the patient think and reason clearly?; Is long and short-term

memory impaired?; Have reading, learning, and comprehension been

compromised?; etc.

It should further be noted that in disability determinations and

related procedures, the neurologist is not " more important or

qualified " in medical or legal terms than the neuropsychologist. The

neurologist M.D. is qualified and licensed to make a clinical

assessment regarding a patient's physical disability status as a

result of brain damage; the neuropsychologist Ph.D. is qualified and

licensed to make a clinical assessment of the patient's cognitive

disability status. Both have important, but different, functions in

examining and treating individuals suffering from head injuries and

brain damage. "

http://www.fhipa.com/ipa-faqs.html

When I read " the neuropsychologist Ph.D. is qualified and licensed

to make a clinical assessment of the patient's cognitive disability

status " I want to add that no matter what professional you take your

child to for evaluation of " cognitive disability " be sure he or she is

knowledgeable about neurologically based multifacted communication

impairments and how to appropriately test both the receptive ability

and IQ of a verbal disabled child. Unfortunately many children's

IQs are not tested accurately when they are communication impaired -

we know that through this group.

A neuropsychological exam may not be appropriate for all according

to the following website:

" Neuropsychological evaluation is an important adjunct in the

evaluation of selected neurologic patients. It serves as an

extension of the mental status examination, and employs standardized

measures to evaluate performance relative to the entire population

or to specialized subpopulations (e.g., patients with less than a

high school education). Neuropsychological evaluation allows for a

qualitative interpretation of problem solving strategies in addition

to the quantitative results. However, neuropsychological evaluation

is not appropriate for all patients with cerebral disease or even

all patients with impaired cognitive functioning. "

For more on this you can reference The Late Talker book under " Meet

the Professionals "

=====

[Guest guest]

My son has been in speech therapy for 3 1/2 years, and my daughter was

in speech therapy for 1 1/2 years. Our speech therapists do regular

reassessments, of course. Both my kids are both in occupational

therapy still. Both have been seen by a ped neurologist also. We

however received the most thorough testing and evaluation from the ped

neuropsychologist. If you want to make sure that you get a thorough

eval along with an accurate diagnosis, I think this is the

professional to see. She did all the testing that our SLPs, OTs and

neurologist do/did, plus more. A ped neuropsychologist does not treat

psychological disorders; they specialize in developmental issues. I

would call them the ultimate " neuroMDs " except they are PhDs, not MDs.

Going to a separate psychologist, speech therapist and OT for a dx is

not the same as going to a team that operate together to do an eval

and dx. Why not use one professional who has lots of training and

experience in evaluating children in all these developmental areas?

>

> you wrote " We considered having a team of a psychologist,

> speech therapist and occupational therapist do the dx testing for

> our kids, but it was prohibitively expensive (and our insurance

> would not cover it), and I think we ended up with a very thorough

> eval with the neuropsychologist instead "

>

> That makes things a bit more clear. Your children are not typical

> of the late talkers in this group. I could probably count on my

> fingers how many I know who didn't seek a speech evaluation for a

> speech impaired child. What is your children's diagnosis from the

> neuropsych as to their communication impairment? Did you ever

> consider a neuroMD exam as well since? Are your children in speech

> therapy?

>

> Neither of my boys were taken to a neuropsychologist for evaluation,

> and I know most with " late talker " preschool children in this group

> don't always take their child to one. There are probably more who

> take their child to one for school age related issues, but even then

> not most. Isn't a neuropsychologist a clinical psychologist as

> well? Guess I don't know then. I believed as a neuropsychologist

> they would have an even greater insight and ability to help one

> advocate for a child if needed because they can use the evaluations

> from the neuroMD/SLP/OT (which I highly recommend since for this

> group we are speaking about neurologically based multifaceted

> communication impairments for the most part) together with their own

> findings and combine them to include psychological aspects such as

> damage to self esteem for say a child who is misclassified as

> special ed... which is what I brought up.

>

> As you can see from the following by Jerome Schultz PhD, a

> neuropsychologist, he is at least one neuropsychologist who is

> extremely capable of answering just these type of questions:

>

>

> Q & A by Jerome Schultz, neuropsychologist

>

> Q: My seventh-grade son has such low self-esteem that if something

> isn't easy he gives up.

> A: This is a real challenge faced by many parents. Here's what to

> do.

> Read the answer.

>

> Q: How do I encourage my four-year-old with her schoolwork without

> completely destroying the self-esteem of my eight-year-old, who is

> in special education?

> A: It's really hard for kids with learning disabilities when a

> younger brother or sister starts to pass them by.

> Read the answer.

>

> Q: Our daughter is on an IEP for learning disabilities. She's

> frustrated with the extra load of work, and the teacher is making

> her feel worse. Do we switch her to another teacher or keep putting

> her in this class that is tearing her up inside?

> A: Even if the teacher is as sweet as an angel, it's your daughter's

> perception that counts. Here's what you should do.

> Read the answer.

> http://life.familyeducation.com/self-esteem/self-image/36542.html

>

> And here is one page on the difference between neurology (MD)

> and neuropsychology (PhD)

>

> " What's the difference between Neuropsychology and Neurology?

> Neurology is a field encompassing the science and study of the human

> brain and nervous system and its diseases. Clinical neurology is a

> specialty field of medicine; a clinical neurologist is an M.D. who

> is board certified in neurology. The function and practice of a

> clinical neurologist differs substantially from that of a

> neuropsychologist. Since there is great confusion between the two,

> it is important to carefully note the differences:

>

> The neurologist M.D. deals with the structural and physiological

> consequences of brain injury and organic brain disease, while the

> neuropsychologist Ph.D. investigates the cognitive and behavioral

> impact of such conditions. For example, an individual suffers

> serious brain damage in a car accident. The neurologist will run

> tests and make determinations as to the physical impact of injuries:

> Can the patient ambulate, move limbs and muscles, and maintain

> hand/eye coordination?; Is an EEG needed? How severe is soft tissue

> damage?; Is surgery in order?; etc. The neuropsychologist, on the

> other hand, will examine and test the patient's powers of cognition:

> Can the patient think and reason clearly?; Is long and short-term

> memory impaired?; Have reading, learning, and comprehension been

> compromised?; etc.

>

>

> It should further be noted that in disability determinations and

> related procedures, the neurologist is not " more important or

> qualified " in medical or legal terms than the neuropsychologist. The

> neurologist M.D. is qualified and licensed to make a clinical

> assessment regarding a patient's physical disability status as a

> result of brain damage; the neuropsychologist Ph.D. is qualified and

> licensed to make a clinical assessment of the patient's cognitive

> disability status. Both have important, but different, functions in

> examining and treating individuals suffering from head injuries and

> brain damage. "

> http://www.fhipa.com/ipa-faqs.html

>

> When I read " the neuropsychologist Ph.D. is qualified and licensed

> to make a clinical assessment of the patient's cognitive disability

> status " I want to add that no matter what professional you take your

> child to for evaluation of " cognitive disability " be sure he or she is

> knowledgeable about neurologically based multifacted communication

> impairments and how to appropriately test both the receptive ability

> and IQ of a verbal disabled child. Unfortunately many children's

> IQs are not tested accurately when they are communication impaired -

> we know that through this group.

>

> A neuropsychological exam may not be appropriate for all according

> to the following website:

>

> " Neuropsychological evaluation is an important adjunct in the

> evaluation of selected neurologic patients. It serves as an

> extension of the mental status examination, and employs standardized

> measures to evaluate performance relative to the entire population

> or to specialized subpopulations (e.g., patients with less than a

> high school education). Neuropsychological evaluation allows for a

> qualitative interpretation of problem solving strategies in addition

> to the quantitative results. However, neuropsychological evaluation

> is not appropriate for all patients with cerebral disease or even

> all patients with impaired cognitive functioning. "

>

> For more on this you can reference The Late Talker book under " Meet

> the Professionals "

>

>

> =====

>

[Guest guest]

Bless you. This is how my hubby felt when we were forced to spend time in the same bed at night during times that we lived with his relatives for a duration of about 3 years out of the 15 years we have been together. When we lived in places of our own we went from my sleeping somewhere other than our mutual bed when I was having bad nights, eventually my bad nights ended up being more frequent than my good nights to the point that he has his bedroom and I have a separate bedroom and we spend my infrequent good nights with me in his bedroom for as long as my symptoms allow me to allow him to get a good night's sleep and I quietly leave if my symptoms start acting up again. I am not sure if you, lightishere (you did not give a first name or nickname to call you so I will call you what is in the "from" line until I am told to call you something else), and your partner have the ability to start doing the separate sleeping arrangements, but I think it could help out a lot like it did for and myself. I do not know if you have any pets - and I have 2 cats and I have a large number of stuffed animals and I snuggle up to one of the cats if they will let me or to some of the stuffed animals when I get chills and that helps out a lot. Another thing we have going for us is that we currently live in a mobile home which means the heating/air conditioning vents are on the floor which means that I can set the temperature to help out with my slender temperature range at which I am comfortable and covers the vent for his room and partially closes his bedroom door so that he does not get either overheated or overcooled depending on which I have running at the time.

As you are new here, I am not familiar with your situation, so I can only tell you things from my situation with my hubby, , as my health got progressively worse, he would tell me how he was feeling about things and, when we were in situations in which I could accommodate his needs, I did (such as by sleeping elsewhere which was impossible when living with his relatives due to many people in house and very few bedrooms in the house) and I accommodated his needs as much as possible when I could not fully accommodate his needs especially since he was working and I was not for the very large majority of our time together. I am in no way saying that my hubby's and my way of coping is the only way of coping, I am only giving it as an example of something that might work for others in a situation similar to ours. One of the biggest thing that has kept our situation very workable for us is that we have gotten into a rhythm of communication that works well for us and that I have a support system for himself and he has a support system for himself in the form of his very close family whom he can visit every day because we live within my walking distance of them - can walk much further than I can.

T. aka Pegasus

-- Help please.

My partner has sarcoidosis. We have been together for 4 years. Hewas diagnosed with it 3 1/2 years ago. For the last 2 months, he haseither had one long flare-up or a series of flare-ups or pneumoniacomplications from prednisone treatment. I got a double ear infectionabout a month ago and have not been feeling well myself. The problemis that he is making me crazy with how needy he is. Maybe he needs amuch better person than what I am because I have to bite my tonguemost of the time to keep from snapping at him. He seems to always begiving me these long-suffering looks and sighing deeply as if to letme know how crummy he feels. When he gets up at night to take histemperature or take tylenol, does he have to turn on the light so itshines in my eyes and startles me awake? He'll get chills, when hegets back into bed, he gets up close to me to warm up, but does hehave to breathe so fast in my ear? Its like sleeping with a pantingdog. I know he is sick, but I don't see him doing this stuff when Iam not in the room or close at hand. It's like an exaggeratedresponse when I am around to emphasize how miserable he is. And ofcourse he doesn't tell anyone else how sick he is. When others askhow he is doing, he says "great." So no one understands how bad itis. I am having a hard enough time keeping the house clean, cooking,washing clothes and bedding and getting to classes for school. Idon't have much time or energy left over to take care of him. Andhaving my ears hurting, neck sore and headaches from a double earinfection that I have had for a month makes it more difficult. I lostmy health care coverage and have had to go off my anti-depressionmedication too. I have gotten funding to see a doctor about it, butthat isn't for another 1 1/2 months. I have to fight off feelingweepy most of the time. He doesn't have the energy to help me. I cando anything for a short period of time, but this particular flare uphas been almost 3 months now. He is short and intolerant of me mostof the time and most conversations we have are about how miserable heis. Is it ok for me to ask him to try and not let his illnessinconvenience me so much? That sounds horrible to say, but that iswhat it comes down to. Please help.

[Guest guest]

Hello, my name is Jo Lynne.

Each person handles their illness and the cause and effect

of the illness. I can relate when he tells others he is great.

If he feels like me he knows they really do not want to

know. I had a Liver Transplant May 15th 1995 due to

and auto-immune disease. My mother was my care

giver for the 4 mos I was in Dallas. I am really shocked

that we both came out of the experience w/o killing each

other. I have been alone in my lifetime (56 yrs old - for

just another week) more years than with someone.

So it was very hard being dependent on someone.

The anti-rejection med Prograf if one is on

a higher dose that they do not need to be that high.

They like it to be the first few months 10-15 (that means

the level of Prograf in your blood and it is checked

11 or 11 1/2 hours after last dose. I had a headache

unlike any I have had before. They called me and

said are you bouncing off the walls and I said yes.

My count was 39. I complained out loud (which in

my family that is a BIG no no.) My mother said

"You are making a mountain out of a mole hill."

I said you try having a liver transplant and then let

me know it is a "Mountain". She gave me her

journal that she kept that year. She read a book

a day. The Jr League of Dallas had many planned

days for patients and caregivers. I sent her out

on her own. "Peace for Me."

I complain to the walls in my house since I live

alone and have since late 1995. She lives 420

miles away. That is a good thing. Sometimes

I do not even know I am complaining. That

maybe why you are hearing it. My family really

never understood "being sick". Sounds like

you are his sounding board. This is just

a suggestion. Let him know that you totally

understand his illness and what goes a long with it.

Sometimes we just want people to know/understand

what all we are going thru. Make separate plans.

Get out as often as you can.

As for your meds - that is not good and probably

making things look worse. Go to www.needymeds.com

Drug companies help with people that do not have

insurance.

Hope this helps.

Have a Wonderful Week!!!!

Jo Lynne

Help please.

[Guest guest]

Dear Galathea and Sheila

Many thanks for your replies.

I will stick with the Adrenal Max as recommended by Dr P.

No I haven't had a B12 test, the doctor just said that I was probably anaemic.

I will write a letter to the surgery as you suggested Sheila and ask for the

tests and will do so this afternoon.- might be easier than asking face to face

with the doctor.

With grateful thanks for your advice

Irene.

>

> It appears that you have gone back into being hypothyroid again Irene -

> which really, was to be expected after stopping your T3. Once hypothyroid,

> most are hypothyroid for the rest of their lives and must take thyroid

> hormone replacement on a daily basis, and without stopping it.

>

[Guest guest]

Irene, be sure to ask that your letter of requests be placed

into your medical notes and ask for the doctor to let you have confirmation

that this has been done in writing. It is these little things that count.

Luv - Sheila

Many thanks for your replies.

I will stick with the Adrenal Max as recommended by Dr P.

No I haven't had a B12 test, the doctor just said that I was probably anaemic.

I will write a letter to the surgery as you suggested Sheila and ask for the

tests and will do so this afternoon.- might be easier than asking face to face

with the doctor.

With grateful thanks for your advice

Irene.

>

.._,___

[Guest guest]

Dear Sheila.

I typed a letter and held it in to the surgery an hour ago and they have just

phoned me with an appointment for the 24th Oct for the blood tests. I was just

starting to read your email when the surgery phoned so I asked her to place the

letter in my notes. I did not say about the confirmation as I was reading your

email whilst talking to her. (awkward timimgs)

with grateful thanks once again.

Irene

>

> Irene, be sure to ask that your letter of requests be placed into your

> medical notes and ask for the doctor to let you have confirmation that this

> has been done in writing. It is these little things that count.

>

> Luv - Sheila

[Guest guest]

Well, tis good to know that some GP's are listening to us - this

can only help our members and help our doctors. They are likely to start to put

two and two together and make four when they find that helping their patients

get their nutrients where they should be is only helping them get better - and

realise that there IS a connection between low levels and their patients

complaints of symptoms of hypothyroidism . Well done Irene - let's hope this is

the start of something good.

Luv - Sheila

Dear Sheila.

I typed a letter and held it in to the surgery an hour ago and they have just

phoned me with an appointment for the 24th Oct for the blood tests. I was just

starting to read your email when the surgery phoned so I asked her to place the

letter in my notes. I did not say about the confirmation as I was reading your

email whilst talking to her. (awkward timimgs)

with grateful thanks once again.

Irene

.._,___

[Guest guest]

Dear Sheila or anyone who can advise.

Just had a call from the surgery, I can't have the tests until I explain to a

doctor (tomorrow)the reason for asking for them. I really would have thought

that they just look at my past thyroid results..

Any suggestions on on what I could say about asking for D3, magnesium iron ect.

Should I say at this stage about my previous Adrenal test,Dr P and the fact that

I have purchased T3 previously.

My stomachs starting to churn at the thought.

With grateful thanks

Irene.

>

> Well, tis good to know that some GP's are listening to us - this can only

> help our members and help our doctors. They are likely to start to > Luv -

Sheila

>

>

>

> Dear Sheila.

> I typed a letter and held it in to the surgery an hour ago and they have

> just phoned me with an appointment for the 24th Oct for the blood tests. I

> Irene

>

> ._,___

>

[Guest guest]

I would point out to them that the fact they are having to ask a

patient to give an explanation as to why they are requesting these specific

tests just shows how very little they really know about the workings of the

metabolism, and how this leave you very worried as to whether they are

knowledgeable enough to treat you or not. I have attached a copy of just some

of the citations to some of the research and studies to show the association

between these specific minerals/vitamins and low thyroid. Copy this out and

show them this Irene.

At this stage of the game, I would concentrate on their request

only, and leave the other stuff for another day. After all, we don't want to

cause their poor little brains to go into over-drive do we? Tell them that the

information came from Thyroid Patient Advocacy just so you can let them know

there is at least one organisation in the UK that knows what is needed in the

thyroid world.

Luv - Sheila

Dear Sheila or anyone who can advise.

Just had a call from the surgery, I can't have the tests until I explain to a

doctor (tomorrow)the reason for asking for them. I really would have thought

that they just look at my past thyroid results..

Any suggestions on on what I could say about asking for D3, magnesium iron ect.

Should I say at this stage about my previous Adrenal test,Dr P and the fact

that I have purchased T3 previously.

My stomachs starting to churn at the thought.

With grateful thanks

Irene.

>

> Well, tis good to know that some GP's are listening to us - this can only

> help our members and help our doctors. They are likely to start to >

Luv - Sheila

>

>

>

> Dear Sheila.

> I typed a letter and held it in to the surgery an hour ago and they have

> just phoned me with an appointment for the 24th Oct for the blood tests. I

> Irene

>

> ._,___

>

1 of 1 File(s)

LOW MINERALS AND VITAMINS AND THE THYROID CONNECTION.doc

[Guest guest]

Hi Jot, we always experience some problems when have done

an update. I think they are getting so big they are getting tangled up in

themselves. Problem with meditating, a new web site doesn't materialise. We put

in an application for a grant to create a brand new professional web site, but

it was turned down, but we will try again. All charity money these days appears

to be going to the Olympics.

Luv - Sheila

Hi Sheila:

Several things I posted never showed up either...perhaps one day :0(

Moderator Central says this on their site :

Several of you have reported issues on the following:

-Email Delivery

-Chat

-Bounce History

Just a quick note that we are aware and we are investigating. Thanks for your

patience.

Y! Groups Team

I suggest we all meditate together so we can manifest a brand new website all

our own.....OOOOhhhhMMMMM......

Cheers,

JOT