Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 My son, who is still functionally non-verbal ... never ceases to amaze me with the stuff he does. This afternoon, he is fussy & obviously frustrated with wanting something. I offer juice, say " Juice? " over and over, show him the cup, and then try to give it to him. He throws it to the ground in disgust and says, " I don' ... say sumpin' ..... 'bout .... jui' " Huh? Every so often he tosses something like this out at me and sometimes I wonder if I really heard it right. I'm still amazed, Debbie with twins - Jordan (ASD) 2.5yo - (NT) 2.5yo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 I am speechless. Great. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: weya Enviado el: Jueves, 27 de Febrero de 2003 05:09 p.m. Para: Parenting_Autism Asunto: A Six Word Sentence?? My son, who is still functionally non-verbal ... never ceases to amaze me with the stuff he does. This afternoon, he is fussy & obviously frustrated with wanting something. I offer juice, say " Juice? " over and over, show him the cup, and then try to give it to him. He throws it to the ground in disgust and says, " I don' ... say sumpin' ..... 'bout .... jui' " Huh? Every so often he tosses something like this out at me and sometimes I wonder if I really heard it right. I'm still amazed, Debbie with twins - Jordan (ASD) 2.5yo - (NT) 2.5yo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Woah! Look out mom! He is getting there! Jacquie H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Wow!! They do amaze us, don't they? Did you ever figure out what it was he did want? Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Oh, yes Sue. I moved on to foods, listing out the foods that Jordan likes (there aren't many). <Jordan fusses & throws himself about frustratedly> Mommy: " Want cracker? " <pause> <Jordan fusses & throws himself about frustratedly> Mommy: " Want Hotdog? Hotdog and mashed tato? " <Jordan fusses & throws himself about frustratedly> Mommy: " Want yogurt? " <Jordan stops and looks at me> Jordan: " Yogur' " So, we sat down and ate 2 containers of soy yogurt. And then 2 crackers. Then I tried the juice again. He threw it down, looked in my direction and said " Jui! " Apparently it was the wrong kind of juice, and orange juice was gratefully gulped down once I provided " JUI! " instead of white cranberry/apple. Debbie with twins - Jordan (ASD) 2.5yo - (NT) 2.5yo Re: A Six Word Sentence?? Wow!! They do amaze us, don't they? Did you ever figure out what it was he did want? Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Debbie, first let me say, I'm so happy you got this from him. At the same time, I'm sad. I noticed your son is the same age as mine, and yet, Zach is still so far from any type of two word sentence. I don't think he even comprehends a sentence sometimes. You said how far behind your son was, then I thought to myself, oh man, that must mean Zach is hugely behind. The reality of it all just slapped me in the face again. Isn't it funny how that happens...you know it, and yet, it still just gets to you sometimes. I realize all of the children function at different levels of the spectrum, and maybe there are parents with children worse than Zach even who think the same thing when I post something positive. Maybe I shouldn't even post this message. Kindof sounds like I'm raining on the parade. That's really not my intention. Just sharing feelings. Hopefully he's going thru a learning spurt and the upwards will continue! > Oh, yes Sue. > > I moved on to foods, listing out the foods that Jordan likes (there > aren't many). > > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want cracker? " <pause> > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want Hotdog? Hotdog and mashed tato? " > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want yogurt? " > <Jordan stops and looks at me> > Jordan: " Yogur' " > > So, we sat down and ate 2 containers of soy yogurt. And then 2 > crackers. > > Then I tried the juice again. He threw it down, looked in my direction > and said " Jui! " Apparently it was the wrong kind of juice, and orange > juice was gratefully gulped down once I provided " JUI! " instead of white > cranberry/apple. > > Debbie with twins > - Jordan (ASD) 2.5yo > - (NT) 2.5yo > > > Re: A Six Word Sentence?? > > Wow!! They do amaze us, don't they? > Did you ever figure out what it was he did want? > > Sue > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 YES Jacquie, your words are very comforting to me today. You said exactly how it feels, happy for them, but sad for your own. I'm also so very tired today, and Zach has been coo-coo ing me all day (cracker). He's been fussy. I had to take him to parenting class and he did the worst he's ever done there. Then right afterwards, his therapist (the one he really doesn't like) came. For some reason today, she kindof made me feel like I should be treating Zach more normally, like he understands all this stuff, that I shouldn't have the TV in his room, that I shouldn't let him throw stuff on the floor, that I should MAKE him attempt to sign or speak. I realize I give him more free reign, that I cater to him too much, but darn it, its not like I don't TRY to make him do these things. I'm just sick of fighting it. I DO work with him on language...probably way more than anyone would ever realize. I'm afraid they're going to think I'm making him like this on purpose or something. Just having a really emotional day > > > > Debbie, first let me say, I'm so happy you got this from him. > > > > At the same time, I'm sad. I noticed your son is the same age as > > mine, and yet, Zach is still so far from any type of two word > > sentence. > > , would it help to know that didn't say a word, not ONE word, > until he was 3 1/2? > > And, if I might say so myself, he's not too bad off today. :-) > > OTOH, I do want you to know that I understand how you feel. I've felt that > way in the past too -- really happy for someone and their kid, yet so very > sad for me and mine. Feels so strange. > > Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 > He throws it to the ground in disgust and says, " I don' ... > say sumpin' > .... 'bout .... jui' " Way to go! debbi --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.456 / Virus Database: 256 - Release Date: 2/18/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Debbie, I think you were the one who was asking how to start pecs with him? When you go through this with him over yogurt, after you find what he wants try saying " ohh, you want you yogurt " Then hand him the yorurt he wanted then the pec card for yogurt, saying and pointing to the picture saying yogurt. Maybe this will help him catch on. Also, keep the cards on the front of the refridgerator. Then when he wants something, you could show him the pictures and maybe point out a few to see if he will agree or show you what he wants. Just my thoughts. By the way, I think the exchange below is cool! He's really trying! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 , You are not raining on my parade. I have the same feelings all too often. Jordan's friend Eli is soooo much further ahead in socialization and asking for what he wants, and wanting to do self-help. I am happy for Eli but sad when I see Jordan beside him. Or people here who talk about their kid's achievements. It's a rough road , I know. Each of our children are so different and develop at such different rates. Like Jacquie said about not talking at all until 3 1/2 and now look at the leaps & bounds he's taking. All I can do is offer you a supportive shoulder and a sympathetic ear (eyes?). Debbie with twins - Jordan (ASD) 2.5yo - (NT) 2.5yo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 .. For some reason today, she kindof made me feel like I should > be treating Zach more normally, like he understands all this stuff, > that I shouldn't have the TV in his room, that I shouldn't let him > throw stuff on the floor, that I should MAKE him attempt to sign or > speak. Remember, she doesn't live with autism. She has no clue what your life is like 24 hours a day or what things set him off. I realize I give him more free reign, that I cater to him too > much, Most of us probably do to some extent just to have a peaceful home. but darn it, its not like I don't TRY to make him do these > things. I'm just sick of fighting it. I DO work with him on > language...probably way more than anyone would ever realize. Trust me, I know! I'm > afraid they're going to think I'm making him like this on purpose or > something. You're doing for him what you can. Try not to focus too much on what they might think. You are what's important to him. > Just having a really emotional day ((((())))) Hope you feel better soon. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 I love that you share this. What I found great about this list is how you can feel you are not alone. Even tho sometimes you find out your child is behind, so many times you also realized that there are others that are dealing with things you haven't ever imagined. I like both feelings sometimes you feel great about something amazing your child did and sometimes you see what other kid have achieved and that gives you hope. I thing I am rumbling here. I hope I explained my point clearly enough. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: shanley_n_teresa Enviado el: Jueves, 27 de Febrero de 2003 08:39 p.m. Para: parenting_autism Asunto: Re: A Six Word Sentence?? Debbie, first let me say, I'm so happy you got this from him. At the same time, I'm sad. I noticed your son is the same age as mine, and yet, Zach is still so far from any type of two word sentence. I don't think he even comprehends a sentence sometimes. You said how far behind your son was, then I thought to myself, oh man, that must mean Zach is hugely behind. The reality of it all just slapped me in the face again. Isn't it funny how that happens...you know it, and yet, it still just gets to you sometimes. I realize all of the children function at different levels of the spectrum, and maybe there are parents with children worse than Zach even who think the same thing when I post something positive. Maybe I shouldn't even post this message. Kindof sounds like I'm raining on the parade. That's really not my intention. Just sharing feelings. Hopefully he's going thru a learning spurt and the upwards will continue! > Oh, yes Sue. > > I moved on to foods, listing out the foods that Jordan likes (there > aren't many). > > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want cracker? " <pause> > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want Hotdog? Hotdog and mashed tato? " > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want yogurt? " > <Jordan stops and looks at me> > Jordan: " Yogur' " > > So, we sat down and ate 2 containers of soy yogurt. And then 2 > crackers. > > Then I tried the juice again. He threw it down, looked in my direction > and said " Jui! " Apparently it was the wrong kind of juice, and orange > juice was gratefully gulped down once I provided " JUI! " instead of white > cranberry/apple. > > Debbie with twins > - Jordan (ASD) 2.5yo > - (NT) 2.5yo > > > Re: A Six Word Sentence?? > > Wow!! They do amaze us, don't they? > Did you ever figure out what it was he did want? > > Sue > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 You said it beautifully. I just sent I mess up msg trying to say this exact thing. Cecilia from Perú, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: The Hunny Family Enviado el: Viernes, 28 de Febrero de 2003 09:41 p.m. Para: parenting_autism Asunto: Re: Re: A Six Word Sentence?? > Debbie, first let me say, I'm so happy you got this from him. > > At the same time, I'm sad. I noticed your son is the same age as > mine, and yet, Zach is still so far from any type of two word > sentence. , would it help to know that didn't say a word, not ONE word, until he was 3 1/2? And, if I might say so myself, he's not too bad off today. :-) OTOH, I do want you to know that I understand how you feel. I've felt that way in the past too -- really happy for someone and their kid, yet so very sad for me and mine. Feels so strange. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 A lot of stupid people like to play mister perfect and blame us for what happens to our kids. I get that a lot even from my family. It took a long time to understand that they are wrong. We are not the cause. It is true we can make a difference if we challenge our kids more, but to do that in a good way it's a really hard work and it's a learning curve. Nobody knows your child better and nobody would be better for him no matter what they say. I have to confess that kind of comments always get me at first, but then I think and explain to myself they are wrong. Cecilia from Peru, mom to Dessirée (05/07/99) Lovely husband -----Mensaje original----- De: shanley_n_teresa Enviado el: Jueves, 27 de Febrero de 2003 08:55 p.m. Para: parenting_autism Asunto: Re: A Six Word Sentence?? YES Jacquie, your words are very comforting to me today. You said exactly how it feels, happy for them, but sad for your own. I'm also so very tired today, and Zach has been coo-coo ing me all day (cracker). He's been fussy. I had to take him to parenting class and he did the worst he's ever done there. Then right afterwards, his therapist (the one he really doesn't like) came. For some reason today, she kindof made me feel like I should be treating Zach more normally, like he understands all this stuff, that I shouldn't have the TV in his room, that I shouldn't let him throw stuff on the floor, that I should MAKE him attempt to sign or speak. I realize I give him more free reign, that I cater to him too much, but darn it, its not like I don't TRY to make him do these things. I'm just sick of fighting it. I DO work with him on language...probably way more than anyone would ever realize. I'm afraid they're going to think I'm making him like this on purpose or something. Just having a really emotional day > > > > Debbie, first let me say, I'm so happy you got this from him. > > > > At the same time, I'm sad. I noticed your son is the same age as > > mine, and yet, Zach is still so far from any type of two word > > sentence. > > , would it help to know that didn't say a word, not ONE word, > until he was 3 1/2? > > And, if I might say so myself, he's not too bad off today. :-) > > OTOH, I do want you to know that I understand how you feel. I've felt that > way in the past too -- really happy for someone and their kid, yet so very > sad for me and mine. Feels so strange. > > Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 OK, what does having a T.V. in your child's room have to do with it???? I grew up with a T.V. in my room. Send her down here to take care of my two low functioning autistic children for the day. She will sing a different tune real quick. I'll even be nice and take the baby myself. We all know he is the tough one anyway , if you can end the day with hair on everyone's head, you have done a good job. If Zach doesn't like this therapist, can you switch to a new one? Leigh > Then right afterwards, his therapist (the one he really doesn't like) > came. For some reason today, she kindof made me feel like I should > be treating Zach more normally, like he understands all this stuff, > that I shouldn't have the TV in his room, that I shouldn't let him > throw stuff on the floor, that I should MAKE him attempt to sign or > speak. I realize I give him more free reign, that I cater to him too > much, but darn it, its not like I don't TRY to make him do these > things. I'm just sick of fighting it. I DO work with him on > language...probably way more than anyone would ever realize. I'm > afraid they're going to think I'm making him like this on purpose or > something. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 Awwww - More than one person here will tell you that YOU are his Mom and YOU are doing what you can for Zach! You have Zach 24/7/365. The therapist doesn't. They may be so-called " professionals " , but they don't LIVE with you and they don't know what you're life is like. You will do what's best for Zach, because YOU know him best. Don't ever let anyone make you feel like you are not trying, are not helping, or are not doing enough.... You ARE! Penny :-D Re: A Six Word Sentence?? YES Jacquie, your words are very comforting to me today. You said exactly how it feels, happy for them, but sad for your own. I'm also so very tired today, and Zach has been coo-coo ing me all day (cracker). He's been fussy. I had to take him to parenting class and he did the worst he's ever done there. Then right afterwards, his therapist (the one he really doesn't like) came. For some reason today, she kindof made me feel like I should be treating Zach more normally, like he understands all this stuff, that I shouldn't have the TV in his room, that I shouldn't let him throw stuff on the floor, that I should MAKE him attempt to sign or speak. I realize I give him more free reign, that I cater to him too much, but darn it, its not like I don't TRY to make him do these things. I'm just sick of fighting it. I DO work with him on language...probably way more than anyone would ever realize. I'm afraid they're going to think I'm making him like this on purpose or something. Just having a really emotional day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 This is exactly what I did with Greggory and do with Alec. Jacquie H Re: A Six Word Sentence?? > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want cracker? " <pause> > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want Hotdog? Hotdog and mashed tato? " > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want yogurt? " > <Jordan stops and looks at me> > Jordan: " Yogur' " I'm no expert, Debbie, but I have been where you are and I've got say that you are going about talking to him exactly right! You're doing good work, mom! Short, simple, and easy to understand and repeat. > > So, we sat down and ate 2 containers of soy yogurt. And then 2 > crackers. Do you think going casein-free has had any bearing on his language? I'd love to know your impression. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 Leigh, Can I borrow that--if you end the day with hair on everyone's head you're doing well? Very funny. I like this list. Y'all's sense of humor helps keep me going. Maggie ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 ugh...the TV thing. Bleech! I actually had a dr tell me that the boys dont sleep because I let them watch tv all night. Bleech! Thems is fightin' words! LOL You know your child best. Be careful to not forget they vare growing and changing everyday. Sometimes they really can do more than we make them and sometimes not. I know I forget alot with Alec. And even with Greggory. But overall you are the mom and you know best! Jacquie H Re: Re: A Six Word Sentence?? OK, what does having a T.V. in your child's room have to do with it???? I grew up with a T.V. in my room. Send her down here to take care of my two low functioning autistic children for the day. She will sing a different tune real quick. I'll even be nice and take the baby myself. We all know he is the tough one anyway , if you can end the day with hair on everyone's head, you have done a good job. If Zach doesn't like this therapist, can you switch to a new one? Leigh > Then right afterwards, his therapist (the one he really doesn't like) > came. For some reason today, she kindof made me feel like I should > be treating Zach more normally, like he understands all this stuff, > that I shouldn't have the TV in his room, that I shouldn't let him > throw stuff on the floor, that I should MAKE him attempt to sign or > speak. I realize I give him more free reign, that I cater to him too > much, but darn it, its not like I don't TRY to make him do these > things. I'm just sick of fighting it. I DO work with him on > language...probably way more than anyone would ever realize. I'm > afraid they're going to think I'm making him like this on purpose or > something. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 Be my guest Maggie :0) > Leigh, > > Can I borrow that--if you end the day with hair on everyone's head you're > doing well? Very funny. I like this list. Y'all's sense of humor helps > keep me going. > > Maggie > > ________________________________________________________________ > Sign Up for Juno Platinum Internet Access Today > Only $9.95 per month! > Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 > He throws it to the ground in disgust and says, " I don' ... say sumpin' > .... 'bout .... jui' " > Holy CRAP!!!!!!!!! That is just frigging INCREDIBLE!!!! WTG Jordan! He's really taking off with this language thing, isn't he? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want cracker? " <pause> > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want Hotdog? Hotdog and mashed tato? " > <Jordan fusses & throws himself about frustratedly> > Mommy: " Want yogurt? " > <Jordan stops and looks at me> > Jordan: " Yogur' " I'm no expert, Debbie, but I have been where you are and I've got say that you are going about talking to him exactly right! You're doing good work, mom! Short, simple, and easy to understand and repeat. > > So, we sat down and ate 2 containers of soy yogurt. And then 2 > crackers. Do you think going casein-free has had any bearing on his language? I'd love to know your impression. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2003 Report Share Posted February 28, 2003 > Debbie, first let me say, I'm so happy you got this from him. > > At the same time, I'm sad. I noticed your son is the same age as > mine, and yet, Zach is still so far from any type of two word > sentence. , would it help to know that didn't say a word, not ONE word, until he was 3 1/2? And, if I might say so myself, he's not too bad off today. :-) OTOH, I do want you to know that I understand how you feel. I've felt that way in the past too -- really happy for someone and their kid, yet so very sad for me and mine. Feels so strange. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 Salli Enrique, 14, AS, TS , 12, NT Sophia, 7, NT Xavier, aka PUTTER!, 5, autism o, 2, NT Re: Re: A Six Word Sentence?? > > > > Debbie, first let me say, I'm so happy you got this from him. > > > > At the same time, I'm sad. I noticed your son is the same age as > > mine, and yet, Zach is still so far from any type of two word > > sentence. > Putter is seven and he definitely does not speak six word sentences unless he is echoing them or reading them. LOL. But I do believe he will speak six word and more sentences one day. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 For some reason today, she kindof made me feel like I should > be treating Zach more normally, like he understands all this stuff, > that I shouldn't have the TV in his room, that I shouldn't let him > throw stuff on the floor, that I should MAKE him attempt to sign or > speak. I realize I give him more free reign, that I cater to him too > much, but darn it, its not like I don't TRY to make him do these > things. Stupid fool of a therapist needs to be supporting you, not dragging you down. She should try the full time care of Zach and see how it wears you down. Putter's OT told me that she makes no judgements about the way her clients manage their lives. She does not live with the difficulties that they do, and so she just offers suggestions, and helps them solve the problems that her knowledge can deal with. I would get rid of that therapist, especially if Zach doesn't even like her. Salli Quote Link to comment Share on other sites More sharing options...
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