Re: GFCF/SF/ yeast/DAN/ for ADHD & Apraxia?-HELP!

March 1, 2006

-

I know that my response to your question will not be a popular one,

so take it with the appropriate grain of salt.

If I had tried everything that you had tried, saw my son falling

into depression and anxiety issues, I cannot for the life of me

imagine that I would not try meds. In my personal belief, there are

many kids who are medicated that don't need to be - either parents

or schools want to medicate the " boy " out of our boys. In other

instances, I firmly believe that NOT giving kids the meds is like

denying insulin to a diabetic. Determining which category your

child falls in is the challenge.

I find it interesting that you would consider the very costly and

burdomsome recommendations of the DAN person, which in and of

themselves sound like they are adding to your son's anxiety. But

clearly, I have a strong bias on this fact due to a good friend of

mine having received similar recommendations for her autistic son

after sending his blood work to Great Plains lab. Just to be sure

their recommendations were correct, and at the suggestion of her MD,

she sent a sample of her NT daughter's blood to the lab as well.....

and received ALL the SAME data and recommendations for her. She was

told that her daughter, based on her blood work " needed " all of the

same dietary interventions and supplements as her severely autistic

son.

Please, please, please, do not rule out the usefulness of

traditional medical interventions. Do not exclude a good

pediatrician from the decisions you are making. In some kids, meds

are nothing short of miraculous. The problem is that they are

overprescribed, not that they are not appropriate in some cases.

.. , " austinclan2002 "

<austinclan2002@...> wrote:

>

> Hello everyone,

> It has been quite awhile since I have posted, but I have

continued

> to follow this incredible group with interest. A quick update: My

> youngest, CJ (apraxia, hypotonia, SID-dx 19 mo's), is now 4yrs old

> and has been completely exited from speech and OT! That is not to

> say we won't still have work ahead of us-he still requires a

> tremendous amount of vestibular input, and has some minor sensory

> issues, but he is a chatterbox, and it is thanks in great part to

> me finding this site and working like crazy with him. Thank God

for

> EFa's and this group!

>

> Because the knowledge here never ceases to amaze me, I am turning

to

> you all for advice & help. I am so overwhelmed! My oldest son,

now

> 8 1/2, has ADHD and Dyslexia. He is not on any prescribed meds

> because we don't want to go that route. He has major trouble

> sleeping (up for the day between 4am-6am, crashes by 7pm), is a

> generally worrisome kid, and a glass half empty kind of kid too!

He

> is not defiant, but gets so frustrated with his inability to focus

> on his schoolwork that he cries. He is perpetually in motion. We

> did Feingold for about a year & it helped, but it was incredibly

> difficult outside of the home and I was the only one who wanted to

> continue it. It actually heightened his anxiety,becasue he was

> always afraid to eat ANYTHING anywhere and was very sad about it.

I

> still do not allow any food dies or artificial falvorings, but do

> allow organic fruits, veggies, whole grains, & dairy.

> He is a sweet,kind,sensitive kid, and I am watching him become

more

> unhappy as time goes on because of his inability to focus on

school

> work. I took him to a DAN doc, who said he has a yeast overgrowth

> in his intestine from antibiotics (he has been on only 2x in his

> entire life!), and I have to go GFCF, sugar free, and give him

TONS

> of supplements (over & $400.00 worth so far!) as well as treat him

> with Nyastatin once I have him GFCF and sugar free. He said he

had

> no Lithium in his hair analysis, which contributes to depression,

so

> I need to supplement, and also had extremely low sodium and

> potassium. He also said he has *toxic*

> levels of uranium,gadolinium, and antimony in his hair analysis

that

> he is going to want to *remove* down the road. My son sobbed

> during the visit when told he'd have to do gfcf and sf. I am so

> overwhelemed. I know we will not be able to stay on this

> perpetually, so should I even bother? Should I just do the

> supplements (efas, primrose oil, trytophan, p5p, digestive

enzymes,

> multi vitamin, zinc, lithium) and let him eat natural " healthy "

> foods? I am already over $2000.00 out of pocket. He also said

> that I should put my 4yr old, whom he has never seen, on GFCF &

> sugar free because he is

> apraxic! This Dan doc came highly recommended, but I am starting

> to wonder if they just prescribe GFCF for everyone no matter what

> the diagnosis. What do I do next? I am so overwhelmed by all of

> the research---enzymes, diet, supplements, meds, agghhh! I just

> want to do the right thing for my son.

>

> Thanks for any and all input, and for reading this long post!

>

> ~ in PA

>

March 1, 2006

Hi Everyone:

Its been a long time since I have posted too and I only check in

every now and then.

I will answer your question in depth by telling you the story of my

child. But first I would have to say - without giving the diet a

fair trial you will never know whether it will make a difference. I

would try the diet. Then I would try the diet with enzymes. Then

you will be in a position to make a real, honest informed decision.

If its important to the health of your child (and it might be - you

dont know yet) it isnt a decision the child should be allowed to

make. If he had diabetes would you let him choose to eat candy?!!

Probably not!!

When I first joined this board I had an almost 2 year old daughter

who didnt have any expressive intelligible speech (though her

receptive was always above age level). She also had a gross motor

delay and she had a very limited diet. She began to walk at 17.5

months

Today I have a 3 yr 9 month old daughter who speaks beautifully and

beyond her age. She reads independently (and comprehends what she

reads). She can write her name and most of her letters. She uses

scissors appropriately. She dresses herself. She potty trained at

a few months past 3. She eats a broad diet. She talks to everyone

she meets and has great eye contact. She is enrolled in toddler

yoga and toddler ballet class where she is definitely not the most

graceful child in the room but where she participates fully and

appropriately. She performed in a Christmas concert singing the

words and verses CLEARLY and loudly of 3 different songs before a

large audience

How did I get here? Not one dime on OT or a SLP

- I started with one ProEFA and some probiotics

- A GFCF trial

- Digestive enzymes that replaced GFCF for us (she has not had one

single morcel of food without enzyme for almost 2 years)

- A talented and state licensed nutritionist who helped with

supplements

- A good DAN doctor who ran appropriate tests and helped us to

supplement.

- A continued vigilant effort to treat and fight " gut bugs " and

monitor her stool health (yes an enormous amount of the immune

system is in the gut; gut health is immunme health)

The supplements were and are costly

The out of pockent costs (much reimbursable by insurance but some

not) were and are expensive. But then again I am saving a whole lot

of money on speech therapy and occupaitonal therapy I will never

need.

As for the testing and the supplements:

Our doctor ran an essential fatty acids test and a plasma amino

acids test (among many other tests) to see where deficits were. She

believed (and I now agree - though I didnt realize this when I

started) that it is really important to know where the fatty acid

levles stand before you supplement them. They need to be balanced

and too much of one (for example too much Omega 3 fish oil) without

an appropriate balance of omega 6 and good levels of anti-oxidants

can weaken the immune system. My daughter was low in EPA and DHA.

We supplemented based on tests. When it came to the amino acids -

amny of which are implicated in apraxic tednancies, muscle strength

and anything to do with gross motor control - my daughter had many

many deficiencies. She was prescribed a custom amino acid blend

based on HER specific test results. We continued to see more gains

and more gains.

About 6 weeks ago we revisited the doctor to assess where we were

after a year of very targeted supplementation (including the custom

amino acid blend). We retested EFAs and aminos. After a year of

EFA supplementation (which included 2 ProEFA per day and 1/2 tsp of

purified cod liver oil), the Omega 3s were no longer too low and in

fact looked good. However the omega 6s had become low, indicating a

deficiency. We were told to decrease the amount of Omega 3 (ProEFA)

we were giving and add Omega 6 (borage oil). When it came to the

aminos, the defecits had been fixed and we were told to downgrade

form a custom blend to a premixed amino acid supplement. We have

done that and she continues to thrive.

We envision a time when, someday, seh will no longer need all of the

supplements. In the meantime, even she knows she needs to take them

and that they make her strong. She takes them all via oral syringe

BY HERSELF without a fuss. When we started this journey we treated

ProEFA like a medicine and insisted she take it (squeezed into an

oral syringe). At that time she could not even say " Mama " let alone

blow out the candles on her 2nd bday cake.

Yes the process is worth it. Yes it is difficult. Yes it is

expensive.

But the proof is in the child.

>

> Hello everyone,

> It has been quite awhile since I have posted, but I have

continued

> to follow this incredible group with interest. A quick update: My

> youngest, CJ (apraxia, hypotonia, SID-dx 19 mo's), is now 4yrs old

> and has been completely exited from speech and OT! That is not to

> say we won't still have work ahead of us-he still requires a

> tremendous amount of vestibular input, and has some minor sensory

> issues, but he is a chatterbox, and it is thanks in great part to

> me finding this site and working like crazy with him. Thank God

for

> EFa's and this group!

>

> Because the knowledge here never ceases to amaze me, I am turning

to

> you all for advice & help. I am so overwhelmed! My oldest son,

now

> 8 1/2, has ADHD and Dyslexia. He is not on any prescribed meds

> because we don't want to go that route. He has major trouble

> sleeping (up for the day between 4am-6am, crashes by 7pm), is a

> generally worrisome kid, and a glass half empty kind of kid too!

He

> is not defiant, but gets so frustrated with his inability to focus

> on his schoolwork that he cries. He is perpetually in motion. We

> did Feingold for about a year & it helped, but it was incredibly

> difficult outside of the home and I was the only one who wanted to

> continue it. It actually heightened his anxiety,becasue he was

> always afraid to eat ANYTHING anywhere and was very sad about it.

I

> still do not allow any food dies or artificial falvorings, but do

> allow organic fruits, veggies, whole grains, & dairy.

> He is a sweet,kind,sensitive kid, and I am watching him become

more

> unhappy as time goes on because of his inability to focus on

school

> work. I took him to a DAN doc, who said he has a yeast overgrowth

> in his intestine from antibiotics (he has been on only 2x in his

> entire life!), and I have to go GFCF, sugar free, and give him

TONS

> of supplements (over & $400.00 worth so far!) as well as treat him

> with Nyastatin once I have him GFCF and sugar free. He said he

had

> no Lithium in his hair analysis, which contributes to depression,

so

> I need to supplement, and also had extremely low sodium and

> potassium. He also said he has *toxic*

> levels of uranium,gadolinium, and antimony in his hair analysis

that

> he is going to want to *remove* down the road. My son sobbed

> during the visit when told he'd have to do gfcf and sf. I am so

> overwhelemed. I know we will not be able to stay on this

> perpetually, so should I even bother? Should I just do the

> supplements (efas, primrose oil, trytophan, p5p, digestive

enzymes,

> multi vitamin, zinc, lithium) and let him eat natural " healthy "

> foods? I am already over $2000.00 out of pocket. He also said

> that I should put my 4yr old, whom he has never seen, on GFCF &

> sugar free because he is

> apraxic! This Dan doc came highly recommended, but I am starting

> to wonder if they just prescribe GFCF for everyone no matter what

> the diagnosis. What do I do next? I am so overwhelmed by all of

> the research---enzymes, diet, supplements, meds, agghhh! I just

> want to do the right thing for my son.

>

> Thanks for any and all input, and for reading this long post!

>

> ~ in PA

>

March 1, 2006

Running late for a meeting so I can post more later. We have had great

success with omega 3s treating my somewhat hyperactive 4 year old (ie all

impulsive behaviour went away). I would definitely try fish oil. My

daughter (dyslexic) - calls the fish oil her brain food and it helps her

focus. My 4 year old is probably also dyslexic (as is my husband and > 50%

of 1st cousins on dad's side). Your son needs a good program that targets

dyslexia - and then his world will open up for him. There have been many

posts on dylexia. Cut and paste some of my old posts below.

FYI - lithium is a pretty potent " supplement " . This is a typical

perscription drug intervention for bipolar disorder, and is not without side

effects - like many of the " natural " interventions. Really proceed with

caution. It sounds like your son need self esteem building in addition -

unfortunately it often gets crushed in the dylexic children. My husband went

away to Landmark - a special school for dyslexic children for 7 summers as a

child, once he was diagnosed. But his self esteem and confidence in

scholastic abilities was tainted for life do the the experience prior to the

diagnosis. (This MBA trained professional who graduated from business school

in the top of his class was marked as moderately retarded and never to get

through regular elementary school per the early grade teachers. Sad. THese

children's minds are wired differently, and they have many strengths in

areas other than reading. Teach them a different approach to reading, and

everything changes. Not sure all the other interventions can change that -

although there is accumulating data that fatty acids play a role in dyslexia

and ADHD. (Fairly benign intervention). Hope you find some helpful info

below. -

----------------------------------------------------------------------------

------------------------------------------

Orton-Gillingham-based methods, several of the mood-Bell systems are

helpful.

One is the " Barton method " taught by Barton. For those interested in

dyslexia methods that can be taught at home. We personally did not use

this - but I have friends who feel this made all the difference for their

struggling children.

My friends took the course, became instructors (got certified etc) and had

all the materials to use for their kids. Yet another option. Again, not sure

of the cost. Much of this can be reimbursed through " non-reimbursable

medical expenses " if you have that benefit at work - with a letter of

medical necessity and a dyslexia diagnosis (a letter from your pediatrician

should be fine) - so at least pre-taxed dollars.

----------------------------------------------------------------------------

-------------------------------------

We used " reading revolution " . You can google it and get information and

possibly find a center close to you.

We had been told to try writing letters in the sand, and getting letter

shaped toys so that she could " feel " the letter etc, songs with letters -

all kinds of games & worth incorporating...but really for us it was the

one-on-one tutoring that made the difference. They do have videos you can

buy (Fletchers place) - I'm sure they are expensive...and I can't attest to

how they work - since we went right to the twice a week tutoring.

Our neurodevelopmental pediatrician recommended this program for dyslexic

kids - but it also has been helpful for kids with other learning/reading

problems including autism according to their claims. All I can speak of is

how it benefited my daughter - and it was really great. My son is already

set up to start with them this summer. At least we don't have to do the

research as to what to do with him! Been there, done that. They teach them

a " sound movement " for every letter (it looks alittle like sign language),

and using this for each letter they can sound the word out. My daughter

became very self-conscious of using her finger movements for reading in 1st

grade, but without it she couldn't get through a simple word like dog - in

the beginning. She would hide her fingers in her pocket our under the desk

to figure it out. Her teacher was great at helping her get over this and

would encourage her to use her sound movements if she was struggling with a

word. But over the course of the year it became second nature and she no

longer needs to physically make the finger movements - she does it in her

head. But she is clearly reading " differently " than the other kids - but

reading beautifully. She recently got retested at the reading clinic and

scored the highest anyone has ever done there for figuring out " nonsense "

words - which tests the ability to figure out a word outside of " sight

words " . She will always have to work a little harder than the other kids -

but she will be fine. I'm only hoping my little apraxic man will have the

same outcome.

<claudiamorris@...> wrote:

You may find these articles and Dr. 's work of interest. From

what I've read - it is not unusual to see apraxia and dyslexia occurring

together. (And more hopeful.. I've heard that early intervention may help

ameliorate the risk of dyslexia developing in the apraxic child - no hard

evidence to support that from what I can find - but still a good goal to

strive for. We have lots of dyslexia experience in our family (since so

many on my husband's side have it) - our baby is the first with apraxia. His

2 sibs are dyslexic (Dad dx'd at age 7, our 7 year-old daughter with

confirmed dx, 4.5 son not officially dx'd but we're highly suspicious and

getting him into a special program before Kindergarden to avoid the K

failure). Only time will tell with the baby (nearly 2.5 years)...but now

dealing with apraxia - dyslexia seems like " no big deal " . Its all relative.

It seemed like a big deal when my daughter was struggling a few years back.

She's done great with special classes geared towards dyslexic kids and now

loves to read, and reads well. Getting the right help and getting it early

is key. There are some great programs out there - best to get your child

tested for dyslexia if you are concerned. It is very difficult for kids with

dyslexia to learn through conventional methods and a different approach can

make all the difference. We used " reading revolution " through the active

reading clinic (Northern California) - but there are many good programs out

there. -

---------------------------------------------------------------------------

1: Lipids. 2004 Dec;39(12):1215-22. Related Articles, Links

Long-chain polyunsaturated fatty acids in childhood developmental and

psychiatric disorders.

AJ.

University Lab of Physiology and Mansfield College, Oxford, United Kindgdom.

alex.richardson@...

Both omega-3 and omega-6 long-chain PUFA (LC-PUFA) are crucial to brain

development and function, but omega-3 LC-PUFA in particular are often

lacking in modern diets in developed countries. Increasing evidence,

reviewed here, indicates that LC-PUFA deficiencies or imbalances are

associated with childhood developmental and psychiatric disorders including

ADHD, dyslexia, dyspraxia, and autistic spectrum disorders. These conditions

show a high clinical overlap and run in the same families, as well as

showing associations with various adult psychiatric disorders in which FA

abnormalities are already implicated, such as depression, other mood

disorders, and schizophrenia. Preliminary evidence from controlled trials

also suggests that dietary supplementation with LC-PUFA might help in the

management of these kinds of childhood behavioral and learning difficulties.

Treatment with omega-3 FA appears most promising, but the few small studies

published to date have involved different populations, study designs,

treatments, and outcome measures. Large-scale studies are now needed to

confirm the benefits reported. Further research is also required to assess

the durability of such treatment effects, to determine optimal treatment

compositions and dosages, and to develop reliable ways of identifying those

individuals most likely to benefit from this kind of treatment. Childhood

developmental and psychiatric disorders clearly reflect multifactorial

influences, but the study of LC-PUFA and their metabolism could offer

important new approaches to their early identification and management.

Heterogeneity and comorbidity are such, however, that a focus on specific

traits or symptoms may prove more fruitful than an exclusive reliance on

current diagnostic categories.

Publication Types:

----------------------------------------------------------------------------

---------------------------

1: Prostaglandins Leukot Essent Fatty Acids. 2004 Apr;70(4):383-90. Related

Articles, Links

Clinical trials of fatty acid treatment in ADHD, dyslexia, dyspraxia and the

autistic spectrum.

AJ.

University Laboratory of Physiology, Parks Road, Oxford OX1 3PT, UK.

alex.richardson@...

Considerable clinical and experimental evidence now supports the idea that

deficiencies or imbalances in certain highly unsaturated fatty acids may

contribute to a range of common developmental disorders including ADHD,

dyslexia, dyspraxia and autistic spectrum disorders (ASD). Definitive

evidence of a causal contribution, however, can only come from intervention

studies in the form of randomised, double-blind, placebo-controlled trials.

Published studies of this kind are still fairly few in number, and mainly

involve the diagnostic categories of ADHD and dyslexia, although other

trials involving individuals with dyspraxia or ASD are in progress. The main

findings to date from such studies are reviewed and evaluated here with the

primary aim of guiding future research, although given that fatty acid

supplementation for these conditions is already being adopted in many

quarters, it is hoped that some of the information provided may also help to

inform clinical practice.

[ ] GFCF/SF/ yeast/DAN/ for ADHD &

Apraxia?-HELP!

Hello everyone,

It has been quite awhile since I have posted, but I have continued

to follow this incredible group with interest. A quick update: My

youngest, CJ (apraxia, hypotonia, SID-dx 19 mo's), is now 4yrs old

and has been completely exited from speech and OT! That is not to

say we won't still have work ahead of us-he still requires a

tremendous amount of vestibular input, and has some minor sensory

issues, but he is a chatterbox, and it is thanks in great part to

me finding this site and working like crazy with him. Thank God for

EFa's and this group!

Because the knowledge here never ceases to amaze me, I am turning to

you all for advice & help. I am so overwhelmed! My oldest son, now

8 1/2, has ADHD and Dyslexia. He is not on any prescribed meds

because we don't want to go that route. He has major trouble

sleeping (up for the day between 4am-6am, crashes by 7pm), is a

generally worrisome kid, and a glass half empty kind of kid too! He

is not defiant, but gets so frustrated with his inability to focus

on his schoolwork that he cries. He is perpetually in motion. We

did Feingold for about a year & it helped, but it was incredibly

difficult outside of the home and I was the only one who wanted to

continue it. It actually heightened his anxiety,becasue he was

always afraid to eat ANYTHING anywhere and was very sad about it. I

still do not allow any food dies or artificial falvorings, but do

allow organic fruits, veggies, whole grains, & dairy.

He is a sweet,kind,sensitive kid, and I am watching him become more

unhappy as time goes on because of his inability to focus on school

work. I took him to a DAN doc, who said he has a yeast overgrowth

in his intestine from antibiotics (he has been on only 2x in his

entire life!), and I have to go GFCF, sugar free, and give him TONS

of supplements (over & $400.00 worth so far!) as well as treat him

with Nyastatin once I have him GFCF and sugar free. He said he had

no Lithium in his hair analysis, which contributes to depression, so

I need to supplement, and also had extremely low sodium and

potassium. He also said he has *toxic*

levels of uranium,gadolinium, and antimony in his hair analysis that

he is going to want to *remove* down the road. My son sobbed

during the visit when told he'd have to do gfcf and sf. I am so

overwhelemed. I know we will not be able to stay on this

perpetually, so should I even bother? Should I just do the

supplements (efas, primrose oil, trytophan, p5p, digestive enzymes,

multi vitamin, zinc, lithium) and let him eat natural " healthy "

foods? I am already over $2000.00 out of pocket. He also said

that I should put my 4yr old, whom he has never seen, on GFCF &

sugar free because he is

apraxic! This Dan doc came highly recommended, but I am starting

to wonder if they just prescribe GFCF for everyone no matter what

the diagnosis. What do I do next? I am so overwhelmed by all of

the research---enzymes, diet, supplements, meds, agghhh! I just

want to do the right thing for my son.

Thanks for any and all input, and for reading this long post!

~ in PA

March 1, 2006

Thank you very much for your input, . That is why I have asked

for the advice, so I certainly do not take offense at all! I

actually do have a call in to another pediatrician. I consulted mine

originally, but she had never heard of DAN!. I too, am concerned

about blanket treatment plans, since this DAN doc prescribed the

same " diet " for my 4yr old with apraxia that he has never even

seen. I also spoke to a cardiologist friend today, who said there

is no such thing as a " baseline " for lithium. (The Dan doc wants me

supplementing with Lithium Orotate, which I am reading may be unsafe

for the kidneys!)

To answer your ques about meds, I feel more comfortable somehow with

more " natural " approaches. I see the side effects, (as well as the

unknown effects on the growing brain) of Ritalin & other ADHD drugs

and do not want to have to go that route. However, this was our

last stone to turn over before considering meds, if indeed his

frustration,anxiety/depressive tendencies did not improve. I wanted

to investigate if there was some *measurable* way of determining a

low

zinc level, etc., that would be causing some of the problem.

Thanks again for the input.

in PA

> >

> > Hello everyone,

> > It has been quite awhile since I have posted, but I have

> continued

> > to follow this incredible group with interest. A quick update:

My

> > youngest, CJ (apraxia, hypotonia, SID-dx 19 mo's), is now 4yrs

old

> > and has been completely exited from speech and OT! That is not

to

> > say we won't still have work ahead of us-he still requires a

> > tremendous amount of vestibular input, and has some minor

sensory

> > issues, but he is a chatterbox, and it is thanks in great part

to

> > me finding this site and working like crazy with him. Thank God

> for

> > EFa's and this group!

> >

> > Because the knowledge here never ceases to amaze me, I am

turning

> to

> > you all for advice & help. I am so overwhelmed! My oldest son,

> now

> > 8 1/2, has ADHD and Dyslexia. He is not on any prescribed meds

> > because we don't want to go that route. He has major trouble

> > sleeping (up for the day between 4am-6am, crashes by 7pm), is a

> > generally worrisome kid, and a glass half empty kind of kid

too!

> He

> > is not defiant, but gets so frustrated with his inability to

focus

> > on his schoolwork that he cries. He is perpetually in motion.

We

> > did Feingold for about a year & it helped, but it was incredibly

> > difficult outside of the home and I was the only one who wanted

to

> > continue it. It actually heightened his anxiety,becasue he was

> > always afraid to eat ANYTHING anywhere and was very sad about

it.

> I

> > still do not allow any food dies or artificial falvorings, but

do

> > allow organic fruits, veggies, whole grains, & dairy.

> > He is a sweet,kind,sensitive kid, and I am watching him become

> more

> > unhappy as time goes on because of his inability to focus on

> school

> > work. I took him to a DAN doc, who said he has a yeast

overgrowth

> > in his intestine from antibiotics (he has been on only 2x in his

> > entire life!), and I have to go GFCF, sugar free, and give him

> TONS

> > of supplements (over & $400.00 worth so far!) as well as treat

him

> > with Nyastatin once I have him GFCF and sugar free. He said he

> had

> > no Lithium in his hair analysis, which contributes to

depression,

> so

> > I need to supplement, and also had extremely low sodium and

> > potassium. He also said he has *toxic*

> > levels of uranium,gadolinium, and antimony in his hair analysis

> that

> > he is going to want to *remove* down the road. My son sobbed

> > during the visit when told he'd have to do gfcf and sf. I am so

> > overwhelemed. I know we will not be able to stay on this

> > perpetually, so should I even bother? Should I just do the

> > supplements (efas, primrose oil, trytophan, p5p, digestive

> enzymes,

> > multi vitamin, zinc, lithium) and let him eat natural " healthy "

> > foods? I am already over $2000.00 out of pocket. He also said

> > that I should put my 4yr old, whom he has never seen, on GFCF &

> > sugar free because he is

> > apraxic! This Dan doc came highly recommended, but I am

starting

> > to wonder if they just prescribe GFCF for everyone no matter

what

> > the diagnosis. What do I do next? I am so overwhelmed by all

of

> > the research---enzymes, diet, supplements, meds, agghhh! I just

> > want to do the right thing for my son.

> >

> > Thanks for any and all input, and for reading this long post!

> >

> > ~ in PA

> >

>

March 1, 2006

as one like you that is all for " all natural " if possible -I

have to agree with . If your going to be doing all that, and

all that, that is unproven, and all that, that is unproven,

expensive, complicated -and not working (!) then why not meds?

And if one DAN doctor prescribes the exact same things for a child

who is severe autistic to one who has no issues...why can't we know

who this is? I know it's probably not the same DAN doctor

but same story -and with the amount of stuff he's got your son on, off, doing,

taking and blood testing for...jeez! Just let me know this -is this

DAN doctor a medical doctor, not a medical doctor, a nutritionist?

One blood test fits all or what?

And this is not a DAN bashing -it's called a " bad doctor " bashing.

If someone talks like a duck as they say (quack) Any doctor who

sees a child going downhill with what they are doing should know

when it's time to refer to someone else. To me referral is a sign

of a good MD. And I'm sure some of of the good doctors are DAN

doctors.

We too would have gone the medication route for our ADHD son Dakota

if fish oils didn't work. In this group for years I was so

terrified to really let everyone know the dosages my kids were on

because we all started on the same " one capsule " a day. I can tell

you for a child your son's age however -one capsule of ProEFA -or

even two for that matter just isn't going to cut it to make the

difference. As you will see in the following messages we have

Dakota on 5 capsules of ProEFA and 5 capsules of ProEPA every day.

It's working amazing for him in that he's basically an A or high B

student -solid A when he tries, very social with tons of friends

and with a brilliant mind for architecture, imagination. He wants

to own Disney when he grows up and design all the roller coasters.

Dakota does not need any medications and I've told both my boys that

even if they don't " need " the EFAs as they get older they should

continue to take them for the rest of their lives because heart

disease runs in both their mom and dad's family.

If it were me I'd stop whatever you are able to stop without causing

harm and just try the fish oils. That's all we needed to do. In

fact Dakota's last neuroMD Dr. Sinha was so shocked by Dakota's

change she asked for the formula and if she could give some of her

other patients my number! But my favorite quote from her " There's

no reason for me to see Dakota again he is doing that amazing.

He'll probably make a great doctor. " (Dakota tests in the 99th

percentile -he really is brilliant -can you tell he's my baby?!! )

Here's the archives on this -let me know if you have other questions!

From: " kiddietalk " <kiddietalk@...>

Date: Sat May 28, 2005 11:49 pm

Subject: Re: [ ], what kind of EFA are your

kids taking? kiddietalk

My boys probably consume more EFAs than what I posted even because

we eat lots of seafood in our family. Dakota and Tanner both love

sushi, and Tanner's favorite sandwich to order when we go out to

dinner is a blackened dolphin (mahi mahi -the fish not the mammal-

the local fish where we live)

I find french fry, potato chip and doughnut oil scary -and because

they don't sell it in capsules people don't think much about how

much they consume a day. Tanner gets in reality less then a

tablespoon a day of fish oil.

If you check the archives -this may be the first time I've posted my

boy's dosage because what works for my boys at 8 and 10 years old

probably would be too high for those just starting. Highest amount

is what Tanner is taking now for him. Any higher and he starts to

regress in speech. He's taking what is the best dosage for him

right now. After a few years you get to know what works best.

Highest for humans? Read some of the stats below. I don't know if

anyone has the highest dosage. Then again -too much water you drown.

There's always such a thing as too much of a good thing.

Side effects that are positive other than what everyone knows

already -My children can be around someone with strept throat and

don't get sick -I do credit that to the EFAs too. They are doing

amazing in school and are very happy little boys. As I advise

here -all was discussed with my boy's neuroMDs. In the archives in

fact is the story of how pediatric neurologist Dr. Sinha asked me if

she can write down the formula and dosage we are using with Dakota

she was so amazed at the changes in him -she had thought he needed

medication that much. And side effects for adults? In addition to

what everyone knows like more focus, healthy, better recall and

memory etc. it makes you sharper at everything -like even when you

go to a casino party. (I won 15,000 dollars of play money tonight

and came in second place out of a ton of people and never played

craps before in my life -Glenn said now if I can just do that with

real gambling and not just a party!)

And about dosage...and as I said just yesterday. Dr. Stoll is the

one that opened my eyes to higher dosages of EFAs. So speaking of

Dr. Stoll -here are some quotes from his book that changed my

opinion about what a " high " dosage is!

15 pages with references to Eskimos in this book:

1. on Page 43:

" ... omega-6 to omega-3 ratios (approximately 1 to 1) are protected

from many of the scourges of the modern age. Greenland Eskimos

eating their traditional diet of fish, whale, and seal, for example,

have extremely low rates of heart disease. Their blood ... "

2. on Page 50:

" ... modern hunter- gatherer populations with diets closer to that

of our evolutionary past. It was the classic study of Greenland

Eskimos, conducted in the 1970s that drew attention to high

concentrations of omega-3 fatty acids in their diets, ultimately

linking the ... "

3. on Page 56:

" ... plenty of omega-3 fatty acids. Today, similar quantities of

omega-3 fatty acids are consumed by only a few groups, including

Eskimos and inhabitants of Japanese fishing villages (see Table 3-

1). ... "

4. on Page 79:

" ... great importance for public health, as diabetes is a huge cause

of death and disability. Piqued by finding the Inuit Eskimos have

surprisingly low rates of adult-onset diabetes, a team from

Australia's Garvan Institute of Medical Research fed laboratory rats

a ... "

5. on Page 83:

" ... chapter 6.) Researchers first connected essential fatty acid

imbalance to autoimmune disease in the 1970s, when they realized

that Greenland Eskimos consuming diets high in omega-3 fatty acids

rarely suffered from arthritis, asthma, or other disorders

associated with excess inflammation. Since ... "

6. on Page 97:

" ... the two urban populations, 0.68 percent for the rural region

and 0.44 percent for the pastoral region. Studies of Inuit Eskimos

as well as Malaysian, Dominican, and Nigerian women, all coastal

populations , have shown similar results. Compare this to the ... "

7. on Page 102:

" ... than 3.5 grains per day of EPA and DHA combined, have been

given to pregnant women in research studies. Nevertheless, Eskimo

women traditionally consume an average of 400 grams of seal and fish

per day (slightly less than a pound). This ... "

8. on Page 209:

" ... using EPA in dosages exceeding 8 grams per day, but higher

levels seem to be safe, since the traditional Greenland Eskimo diet

consisted of up to 14 grams per day. Anyone taking an anticlotting

agent such as warfarin (Coumadin), or high ... "

9. from Back Matter:

" ... Heart Trial, " The Lancet 1990;21;336:129-33. A. J. Parkinson et

al., " Elevated concentrations of plasma w-3 polyunsaturated fatty

acids among Alaskan Eskimos, " Am J Clin Nutr 1994;59:384-88. E. G.

Perkins and W J. Visek, eds., Dietary Fats and Health (Champaign ,

Ill.: ... "

10. from Back Matter:

" ... domestic meats, " Int y Biochem 1970;1:295-305. J. Dyerberg and

H. O. Bang, " Hemostatic function and platelet polyunsaturated fatty

acids in Eskimos, " The Lancet 1979;2:433-35. S. B. Eaton and M. J.

Konner, " Paleolithic nutrition revisited: a twelve- year

retrospective on its nature ... "

The Omega-3 Connection: The Groundbreaking Antidepression Diet and

Brain Program

by M.D., L. Stoll

~~~~~~~~~~~~~

Anyway -sounds like you are on the right track

Just keep going slow with increase and observe after each change.

=====

March 1, 2006

I am confused here, it looks like has not started anything

the DAN( what is a DAN doctor anyway?) doctor suggested, only asking

opinion on would it be worth trying.

So from what I read, these changes were just suggested that they try,

and she has not done any of it yet. Lets keep the information what

it was, not what it is perceived to be. As the poster, Josie stated,

the gut is the center of the immune system, so a child that has the

symptoms of neuro imbalances should be investigated. Fish oil perhaps

would help, but I too would be concerned if my child was in a

constant state of worry such as that. Puberty I am sure is going to

change the playing field for these children that have neurological

symptoms/imbalanced immune systems that are not addressed

appropriately before the hormonal surges occur. This is new territory

here. In our practice, " most " apraxic children do benefit

significantly from removal of casein and gluten, so I am assuming the

doctor was trying to be helpful in what he sees in his practice .

They do produce significant amounts of glutamates which are very

excitatory to neurons, which would increase inflammation. Obsessive

compulsive disorders have significantly lower NK cell activity, so

immune system does indeed interact significantly with psychiactric

manifestations. Build each other up, not tear each other down.

>

> as one like you that is all for " all natural " if possible -

I

> have to agree with . If your going to be doing all that, and

> all that, that is unproven, and all that, that is unproven,

> expensive, complicated -and not working (!) then why not meds?

>

> And if one DAN doctor prescribes the exact same things for a child

> who is severe autistic to one who has no issues...why can't we know

> who this is? I know it's probably not the same DAN doctor

> but same story -and with the amount of stuff he's got your son on,

off, doing,

> taking and blood testing for...jeez! Just let me know this -is

this

> DAN doctor a medical doctor, not a medical doctor, a nutritionist?

> One blood test fits all or what?

>

> And this is not a DAN bashing -it's called a " bad doctor " bashing.

> If someone talks like a duck as they say (quack) Any doctor who

> sees a child going downhill with what they are doing should know

> when it's time to refer to someone else. To me referral is a sign

> of a good MD. And I'm sure some of of the good doctors are DAN

> doctors.

>

> We too would have gone the medication route for our ADHD son Dakota

> if fish oils didn't work. In this group for years I was so

> terrified to really let everyone know the dosages my kids were on

> because we all started on the same " one capsule " a day. I can tell

> you for a child your son's age however -one capsule of ProEFA -or

> even two for that matter just isn't going to cut it to make the

> difference. As you will see in the following messages we have

> Dakota on 5 capsules of ProEFA and 5 capsules of ProEPA every day.

> It's working amazing for him in that he's basically an A or high B

> student -solid A when he tries, very social with tons of friends

> and with a brilliant mind for architecture, imagination. He wants

> to own Disney when he grows up and design all the roller coasters.

>

> Dakota does not need any medications and I've told both my boys

that

> even if they don't " need " the EFAs as they get older they should

> continue to take them for the rest of their lives because heart

> disease runs in both their mom and dad's family.

>

> If it were me I'd stop whatever you are able to stop without

causing

> harm and just try the fish oils. That's all we needed to do. In

> fact Dakota's last neuroMD Dr. Sinha was so shocked by Dakota's

> change she asked for the formula and if she could give some of her

> other patients my number! But my favorite quote from her " There's

> no reason for me to see Dakota again he is doing that amazing.

> He'll probably make a great doctor. " (Dakota tests in the 99th

> percentile -he really is brilliant -can you tell he's my baby?!! )

>

> Here's the archives on this -let me know if you have other

questions!

>

> From: " kiddietalk " <kiddietalk@...>

> Date: Sat May 28, 2005 11:49 pm

> Subject: Re: [ ], what kind of EFA are your

> kids taking? kiddietalk

>

> My boys probably consume more EFAs than what I posted even because

> we eat lots of seafood in our family. Dakota and Tanner both love

> sushi, and Tanner's favorite sandwich to order when we go out to

> dinner is a blackened dolphin (mahi mahi -the fish not the mammal-

> the local fish where we live)

>

> I find french fry, potato chip and doughnut oil scary -and because

> they don't sell it in capsules people don't think much about how

> much they consume a day. Tanner gets in reality less then a

> tablespoon a day of fish oil.

>

> If you check the archives -this may be the first time I've posted my

> boy's dosage because what works for my boys at 8 and 10 years old

> probably would be too high for those just starting. Highest amount

> is what Tanner is taking now for him. Any higher and he starts to

> regress in speech. He's taking what is the best dosage for him

> right now. After a few years you get to know what works best.

> Highest for humans? Read some of the stats below. I don't know if

> anyone has the highest dosage. Then again -too much water you

drown.

> There's always such a thing as too much of a good thing.

>

> Side effects that are positive other than what everyone knows

> already -My children can be around someone with strept throat and

> don't get sick -I do credit that to the EFAs too. They are doing

> amazing in school and are very happy little boys. As I advise

> here -all was discussed with my boy's neuroMDs. In the archives in

> fact is the story of how pediatric neurologist Dr. Sinha asked me if

> she can write down the formula and dosage we are using with Dakota

> she was so amazed at the changes in him -she had thought he needed

> medication that much. And side effects for adults? In addition to

> what everyone knows like more focus, healthy, better recall and

> memory etc. it makes you sharper at everything -like even when you

> go to a casino party. (I won 15,000 dollars of play money tonight

> and came in second place out of a ton of people and never played

> craps before in my life -Glenn said now if I can just do that with

> real gambling and not just a party!)

>

> And about dosage...and as I said just yesterday. Dr. Stoll is the

> one that opened my eyes to higher dosages of EFAs. So speaking of

> Dr. Stoll -here are some quotes from his book that changed my

> opinion about what a " high " dosage is!

>

> 15 pages with references to Eskimos in this book:

>

> 1. on Page 43:

> " ... omega-6 to omega-3 ratios (approximately 1 to 1) are protected

> from many of the scourges of the modern age. Greenland Eskimos

> eating their traditional diet of fish, whale, and seal, for example,

> have extremely low rates of heart disease. Their blood ... "

> 2. on Page 50:

> " ... modern hunter- gatherer populations with diets closer to that

> of our evolutionary past. It was the classic study of Greenland

> Eskimos, conducted in the 1970s that drew attention to high

> concentrations of omega-3 fatty acids in their diets, ultimately

> linking the ... "

> 3. on Page 56:

> " ... plenty of omega-3 fatty acids. Today, similar quantities of

> omega-3 fatty acids are consumed by only a few groups, including

> Eskimos and inhabitants of Japanese fishing villages (see Table 3-

> 1). ... "

> 4. on Page 79:

> " ... great importance for public health, as diabetes is a huge cause

> of death and disability. Piqued by finding the Inuit Eskimos have

> surprisingly low rates of adult-onset diabetes, a team from

> Australia's Garvan Institute of Medical Research fed laboratory rats

> a ... "

> 5. on Page 83:

> " ... chapter 6.) Researchers first connected essential fatty acid

> imbalance to autoimmune disease in the 1970s, when they realized

> that Greenland Eskimos consuming diets high in omega-3 fatty acids

> rarely suffered from arthritis, asthma, or other disorders

> associated with excess inflammation. Since ... "

> 6. on Page 97:

> " ... the two urban populations, 0.68 percent for the rural region

> and 0.44 percent for the pastoral region. Studies of Inuit Eskimos

> as well as Malaysian, Dominican, and Nigerian women, all coastal

> populations , have shown similar results. Compare this to the ... "

> 7. on Page 102:

> " ... than 3.5 grains per day of EPA and DHA combined, have been

> given to pregnant women in research studies. Nevertheless, Eskimo

> women traditionally consume an average of 400 grams of seal and fish

> per day (slightly less than a pound). This ... "

> 8. on Page 209:

> " ... using EPA in dosages exceeding 8 grams per day, but higher

> levels seem to be safe, since the traditional Greenland Eskimo diet

> consisted of up to 14 grams per day. Anyone taking an anticlotting

> agent such as warfarin (Coumadin), or high ... "

> 9. from Back Matter:

> " ... Heart Trial, " The Lancet 1990;21;336:129-33. A. J. Parkinson et

> al., " Elevated concentrations of plasma w-3 polyunsaturated fatty

> acids among Alaskan Eskimos, " Am J Clin Nutr 1994;59:384-88. E. G.

> Perkins and W J. Visek, eds., Dietary Fats and Health (Champaign ,

> Ill.: ... "

> 10. from Back Matter:

> " ... domestic meats, " Int y Biochem 1970;1:295-305. J. Dyerberg and

> H. O. Bang, " Hemostatic function and platelet polyunsaturated fatty

> acids in Eskimos, " The Lancet 1979;2:433-35. S. B. Eaton and M. J.

> Konner, " Paleolithic nutrition revisited: a twelve- year

> retrospective on its nature ... "

>

> The Omega-3 Connection: The Groundbreaking Antidepression Diet and

> Brain Program

> by M.D., L. Stoll

>

> ~~~~~~~~~~~~~

>

> Anyway -sounds like you are on the right track

> Just keep going slow with increase and observe after each change.

>

> =====

>

March 2, 2006

Hi-

May I ask, where does the information that " the gut is the center of

the immune system " come from? Can you point me to some medical

literature on this that I can research?

> >

> > as one like you that is all for " all natural " if

possible -

> I

> > have to agree with . If your going to be doing all that,

and

> > all that, that is unproven, and all that, that is unproven,

> > expensive, complicated -and not working (!) then why not meds?

> >

> > And if one DAN doctor prescribes the exact same things for a

child

> > who is severe autistic to one who has no issues...why can't we

know

> > who this is? I know it's probably not the same DAN

doctor

> > but same story -and with the amount of stuff he's got your son

on,

> off, doing,

> > taking and blood testing for...jeez! Just let me know this -is

> this

> > DAN doctor a medical doctor, not a medical doctor, a

nutritionist?

> > One blood test fits all or what?

> >

> > And this is not a DAN bashing -it's called a " bad doctor "

bashing.

> > If someone talks like a duck as they say (quack) Any doctor who

> > sees a child going downhill with what they are doing should know

> > when it's time to refer to someone else. To me referral is a

sign

> > of a good MD. And I'm sure some of of the good doctors are DAN

> > doctors.

> >

> > We too would have gone the medication route for our ADHD son

Dakota

> > if fish oils didn't work. In this group for years I was so

> > terrified to really let everyone know the dosages my kids were

on

> > because we all started on the same " one capsule " a day. I can

tell

> > you for a child your son's age however -one capsule of ProEFA -

or

> > even two for that matter just isn't going to cut it to make the

> > difference. As you will see in the following messages we have

> > Dakota on 5 capsules of ProEFA and 5 capsules of ProEPA every

day.

> > It's working amazing for him in that he's basically an A or high

B

> > student -solid A when he tries, very social with tons of friends

> > and with a brilliant mind for architecture, imagination. He

wants

> > to own Disney when he grows up and design all the roller

coasters.

> >

> > Dakota does not need any medications and I've told both my boys

> that

> > even if they don't " need " the EFAs as they get older they should

> > continue to take them for the rest of their lives because heart

> > disease runs in both their mom and dad's family.

> >

> > If it were me I'd stop whatever you are able to stop without

> causing

> > harm and just try the fish oils. That's all we needed to do.

In

> > fact Dakota's last neuroMD Dr. Sinha was so shocked by Dakota's

> > change she asked for the formula and if she could give some of

her

> > other patients my number! But my favorite quote from

her " There's

> > no reason for me to see Dakota again he is doing that amazing.

> > He'll probably make a great doctor. " (Dakota tests in the 99th

> > percentile -he really is brilliant -can you tell he's my

baby?!! )

> >

> > Here's the archives on this -let me know if you have other

> questions!

> >

> > From: " kiddietalk " <kiddietalk@>

> > Date: Sat May 28, 2005 11:49 pm

> > Subject: Re: [ ], what kind of EFA are

your

> > kids taking? kiddietalk

> >

> > My boys probably consume more EFAs than what I posted even

because

> > we eat lots of seafood in our family. Dakota and Tanner both

love

> > sushi, and Tanner's favorite sandwich to order when we go out to

> > dinner is a blackened dolphin (mahi mahi -the fish not the

mammal-

> > the local fish where we live)

> >

> > I find french fry, potato chip and doughnut oil scary -and

because

> > they don't sell it in capsules people don't think much about how

> > much they consume a day. Tanner gets in reality less then a

> > tablespoon a day of fish oil.

> >

> > If you check the archives -this may be the first time I've

posted my

> > boy's dosage because what works for my boys at 8 and 10 years old

> > probably would be too high for those just starting. Highest

amount

> > is what Tanner is taking now for him. Any higher and he starts

to

> > regress in speech. He's taking what is the best dosage for him

> > right now. After a few years you get to know what works best.

> > Highest for humans? Read some of the stats below. I don't know

if

> > anyone has the highest dosage. Then again -too much water you

> drown.

> > There's always such a thing as too much of a good thing.

> >

> > Side effects that are positive other than what everyone knows

> > already -My children can be around someone with strept throat and

> > don't get sick -I do credit that to the EFAs too. They are doing

> > amazing in school and are very happy little boys. As I advise

> > here -all was discussed with my boy's neuroMDs. In the

archives in

> > fact is the story of how pediatric neurologist Dr. Sinha asked

me if

> > she can write down the formula and dosage we are using with

Dakota

> > she was so amazed at the changes in him -she had thought he

needed

> > medication that much. And side effects for adults? In addition

to

> > what everyone knows like more focus, healthy, better recall and

> > memory etc. it makes you sharper at everything -like even when

you

> > go to a casino party. (I won 15,000 dollars of play money

tonight

> > and came in second place out of a ton of people and never played

> > craps before in my life -Glenn said now if I can just do that

with

> > real gambling and not just a party!)

> >

> > And about dosage...and as I said just yesterday. Dr. Stoll is

the

> > one that opened my eyes to higher dosages of EFAs. So speaking

of

> > Dr. Stoll -here are some quotes from his book that changed my

> > opinion about what a " high " dosage is!

> >

> > 15 pages with references to Eskimos in this book:

> >

> > 1. on Page 43:

> > " ... omega-6 to omega-3 ratios (approximately 1 to 1) are

protected

> > from many of the scourges of the modern age. Greenland Eskimos

> > eating their traditional diet of fish, whale, and seal, for

example,

> > have extremely low rates of heart disease. Their blood ... "

> > 2. on Page 50:

> > " ... modern hunter- gatherer populations with diets closer to

that

> > of our evolutionary past. It was the classic study of Greenland

> > Eskimos, conducted in the 1970s that drew attention to high

> > concentrations of omega-3 fatty acids in their diets, ultimately

> > linking the ... "

> > 3. on Page 56:

> > " ... plenty of omega-3 fatty acids. Today, similar quantities of

> > omega-3 fatty acids are consumed by only a few groups, including

> > Eskimos and inhabitants of Japanese fishing villages (see Table

3-

> > 1). ... "

> > 4. on Page 79:

> > " ... great importance for public health, as diabetes is a huge

cause

> > of death and disability. Piqued by finding the Inuit Eskimos have

> > surprisingly low rates of adult-onset diabetes, a team from

> > Australia's Garvan Institute of Medical Research fed laboratory

rats

> > a ... "

> > 5. on Page 83:

> > " ... chapter 6.) Researchers first connected essential fatty acid

> > imbalance to autoimmune disease in the 1970s, when they realized

> > that Greenland Eskimos consuming diets high in omega-3 fatty

acids

> > rarely suffered from arthritis, asthma, or other disorders

> > associated with excess inflammation. Since ... "

> > 6. on Page 97:

> > " ... the two urban populations, 0.68 percent for the rural region

> > and 0.44 percent for the pastoral region. Studies of Inuit

Eskimos

> > as well as Malaysian, Dominican, and Nigerian women, all coastal

> > populations , have shown similar results. Compare this to

the ... "

> > 7. on Page 102:

> > " ... than 3.5 grains per day of EPA and DHA combined, have been

> > given to pregnant women in research studies. Nevertheless, Eskimo

> > women traditionally consume an average of 400 grams of seal and

fish

> > per day (slightly less than a pound). This ... "

> > 8. on Page 209:

> > " ... using EPA in dosages exceeding 8 grams per day, but higher

> > levels seem to be safe, since the traditional Greenland Eskimo

diet

> > consisted of up to 14 grams per day. Anyone taking an

anticlotting

> > agent such as warfarin (Coumadin), or high ... "

> > 9. from Back Matter:

> > " ... Heart Trial, " The Lancet 1990;21;336:129-33. A. J.

Parkinson et

> > al., " Elevated concentrations of plasma w-3 polyunsaturated fatty

> > acids among Alaskan Eskimos, " Am J Clin Nutr 1994;59:384-88. E.

G.

> > Perkins and W J. Visek, eds., Dietary Fats and Health

(Champaign ,

> > Ill.: ... "

> > 10. from Back Matter:

> > " ... domestic meats, " Int y Biochem 1970;1:295-305. J. Dyerberg

and

> > H. O. Bang, " Hemostatic function and platelet polyunsaturated

fatty

> > acids in Eskimos, " The Lancet 1979;2:433-35. S. B. Eaton and M.

J.

> > Konner, " Paleolithic nutrition revisited: a twelve- year

> > retrospective on its nature ... "

> >

> > The Omega-3 Connection: The Groundbreaking Antidepression Diet

and

> > Brain Program

> > by M.D., L. Stoll

> >

> > ~~~~~~~~~~~~~

> >

> > Anyway -sounds like you are on the right track

> > Just keep going slow with increase and observe after each change.

> >

> > =====

> >

March 2, 2006

I'm sorry but I really feel like the DAN approach is being attacked

here and that is not necessary.

Just like there are not as knowledgeable MD's there are not as

knowledgeable DAN's. DAN stands for defeat autism now.

I also want to add not to disregard a DAN who is not an MD. My first

DAN was an MD and I was not that satisfied with her and my private

ST suggested another woman who is a clinical nutritionist. SHE IS

AMAZING. She took test results done by the previous DAN and REALLY

interpreteted the results. She has done amazing things for my son.

His yeast in his urine and his BM's was off the chart. He was not

sleeping. He was going from a fine calm child to screaming and

hitting me turning on a dime. This was from milk. MILK. I am not

sure I would have believed it had I not seen it myself in my own

child. We did not do the peptide test. My DAN said you can't always

tell what children will benefit from GF/CF even with the peptide

test.

GF/CF changed my son and the suppliments are making it even better.

We had a metabolic analysis profile done last year and just had

another and you can see that the suppliments are helping and have

made a difference. You can see the fog has lifted from my son. You

can tell that his cognitive abilities have just blossomed.

I searched out a DAN because of the research I did from reading the

stories on line and seeing my son in those stories. I also

read " Children with Starving Brains " by Jaqulyn Mc Candless "

and " Biological treatments for Autism and PDD " by Shaw.

If you are in northern NJ and want an amazing DAN dr you can email

me privately and I will give you her name. She has been doing this

for 15 years and the MD we work with (who is also helping my son and

an equally nice caring woman) admits the nutritionist knows more

about this than she does.

I will say the first thing our DAN suggested was GF/CF even before

the test results because it helps so many children. It gave time to

let the diet work before the test results came back and we started

other suppliments. She does not order unnecessary tests and we get a

full analysis of every line item on that test. She also does not

mind questions and will explain everthing to you. She does not have

that holier than thou attitude that many MD's have when you ask

questions.

Again, if you see your child in the stories you read you may want to

try GF/CF.

My neighbors nephew had a autism dx from a developmental ped, his

school system had him in an ABA program and all they tried so far

was CF not even GF. There was such a dramatic change in six months

that he is going to be out of the program by June. OUT OF THE

PROGRAM. Going milk free can be that dramatic for some children.

DS 4.10 yrs

>

> as one like you that is all for " all natural " if possible -

I

> have to agree with . If your going to be doing all that, and

> all that, that is unproven, and all that, that is unproven,

> expensive, complicated -and not working (!) then why not meds?

>

> And if one DAN doctor prescribes the exact same things for a child

> who is severe autistic to one who has no issues...why can't we

know

> who this is? I know it's probably not the same DAN

doctor

> but same story -and with the amount of stuff he's got your son on,

off, doing,

> taking and blood testing for...jeez! Just let me know this -is

this

> DAN doctor a medical doctor, not a medical doctor, a nutritionist?

> One blood test fits all or what?

>

> And this is not a DAN bashing -it's called a " bad doctor "

bashing.

> If someone talks like a duck as they say (quack) Any doctor who

> sees a child going downhill with what they are doing should know

> when it's time to refer to someone else. To me referral is a sign

> of a good MD. And I'm sure some of of the good doctors are DAN

> doctors.

>

> We too would have gone the medication route for our ADHD son

Dakota

> if fish oils didn't work. In this group for years I was so

> terrified to really let everyone know the dosages my kids were on

> because we all started on the same " one capsule " a day. I can

tell

> you for a child your son's age however -one capsule of ProEFA -or

> even two for that matter just isn't going to cut it to make the

> difference. As you will see in the following messages we have

> Dakota on 5 capsules of ProEFA and 5 capsules of ProEPA every

day.

> It's working amazing for him in that he's basically an A or high B

> student -solid A when he tries, very social with tons of friends

> and with a brilliant mind for architecture, imagination. He wants

> to own Disney when he grows up and design all the roller coasters.

>

> Dakota does not need any medications and I've told both my boys

that

> even if they don't " need " the EFAs as they get older they should

> continue to take them for the rest of their lives because heart

> disease runs in both their mom and dad's family.

>

> If it were me I'd stop whatever you are able to stop without

causing

> harm and just try the fish oils. That's all we needed to do. In

> fact Dakota's last neuroMD Dr. Sinha was so shocked by Dakota's

> change she asked for the formula and if she could give some of her

> other patients my number! But my favorite quote from her " There's

> no reason for me to see Dakota again he is doing that amazing.

> He'll probably make a great doctor. " (Dakota tests in the 99th

> percentile -he really is brilliant -can you tell he's my

baby?!! )

>

> Here's the archives on this -let me know if you have other

questions!

>

> From: " kiddietalk " <kiddietalk@...>

> Date: Sat May 28, 2005 11:49 pm

> Subject: Re: [ ], what kind of EFA are your

> kids taking? kiddietalk

>

> My boys probably consume more EFAs than what I posted even because

> we eat lots of seafood in our family. Dakota and Tanner both love

> sushi, and Tanner's favorite sandwich to order when we go out to

> dinner is a blackened dolphin (mahi mahi -the fish not the mammal-

> the local fish where we live)

>

> I find french fry, potato chip and doughnut oil scary -and because

> they don't sell it in capsules people don't think much about how

> much they consume a day. Tanner gets in reality less then a

> tablespoon a day of fish oil.

>

> If you check the archives -this may be the first time I've posted

my

> boy's dosage because what works for my boys at 8 and 10 years old

> probably would be too high for those just starting. Highest amount

> is what Tanner is taking now for him. Any higher and he starts to

> regress in speech. He's taking what is the best dosage for him

> right now. After a few years you get to know what works best.

> Highest for humans? Read some of the stats below. I don't know if

> anyone has the highest dosage. Then again -too much water you

drown.

> There's always such a thing as too much of a good thing.

>

> Side effects that are positive other than what everyone knows

> already -My children can be around someone with strept throat and

> don't get sick -I do credit that to the EFAs too. They are doing

> amazing in school and are very happy little boys. As I advise

> here -all was discussed with my boy's neuroMDs. In the archives

in

> fact is the story of how pediatric neurologist Dr. Sinha asked me