Re: WOW!!! JACKIE IS DOING AWESOME!!!!

March 4, 2006

CONGRATULATIONS!! WAHOO!! WOW!!! YAY!!!

Trish you were just under the wire as the second on the rooftop today!

Just a quick word of advice to save you a few bucks. The " Jr. " fish

oils are great if you want to teach your child how to swallow the

capsules or provide a 1/2 dosage of what most of us as a group use

(the ProEFA -the regular sized)

There is no such thing as " children's fish oil " since..well fish oil

is fish oil. The Jr version has a cuter bottle -I'll give it that!

The ProEFA Jr. and the ProEFA bottles both have the same amount of

capsules and are around the same price -but you have to use 2 of the

Jr. to equal one of the regular. If you do the math you'll see what

I mean in price. (hint -twice as expensive)

And Trish you really didn't go as high as you may think in dosage.

Even though you " doubled " the dosage on the bottle (2 per day which

equals 1 of the ProEFA) by doubling to 4 you merely went to 2

capsules of the ProEFA a day which is considered by all the

researchers from The First Apraxia Conference to be " extremely

conservative " http://www.cherab.org/news/scientific.html -and 2 ProEAF a

day is pretty typical of what many use in this group before

has raised awareness of how higher dosages may work even better and

faster as they have for her child.

About dosage and following what is on the bottle -no disrespect to

anyone who believes that is to be followed since I too once thought

of course that they put actual dosages on the bottles. Until a

particular brand of EFA has clinical research behind it -they are

not allowed to put more than the one to two capsules a day dosage I

was told by Nordic Naturals. This is why brands like EyeQ and

Efalex have way way way higher dosages on the bottle -

because...that's what is typically used in research and those two

brands have been used in research. Because of this group and the

low dosages we've always have used the small amount of research done

with ProEFA was with the low dosage of one to two capsules a day.

When talks about the higher dosage that is more typical of

what a researcher would use. As a group we've always stuck to the

one or two a day to start as it says in this EFA 101 archive message

http://www.speech-express.com/boards/viewtopic.php?t=620 -but I'd

follow 's new lead on this and I applaud her as a brilliant

Mom who brings much insight and medical knowledge to this group to

help remove the dreaded " fear of fish oil " that most of the

population seems to suffer from. (I mean really as I always say if

you blot oil off a slice a pizza your kid would have consumed more

pizza oil then the amount of fish oil we give them!)

So Trish -take the " dosage " on the bottle with a grain of salt and

know that once there is clinical research on ProEFA that uses higher

dosages (ProEFA is the professional line of the Omega 3 6 9) that

the dosage on the bottle will change -but that the proof of what

works best for your child you are the best judge of right now.

And one more word of advice -instead of going to 3 capsules of the

ProEFA (which would be 6 of the Jr. brand you are using and at that

point you will be going through a bottle like every 2 weeks vs. 4

weeks for the almost same priced ProEFA) Add one ProEPA to the 2

ProEFA you are already currently using right now (again 4 of the Jr

= 2 of the ProEFA) I don't know what the ProEPA is called in the

commercial brand -perhaps someone else knows.

Again cheers YAY! to you and your little one! I know just how you

feel! (hope and happiness and the light at the end of the tunnel)

=====

March 5, 2006

Just wondering, what is pro-epa and at what point do you add that to Pro-efa.

What

results have been seen? Thanks.

March 6, 2006

Congrats!! I am happy to hear of her progress, we as parents appreciate little

things they do that other parents don't even realize comes natural. How long did

the cranky period last out of curiousity?

[ ] WOW!!! JACKIE IS DOING AWESOME!!!!

Hi everyone,

Just wanted to thank everyone and give a little update on Jackie.

Wow what an awesome week we have had. Jackie is 34 months old. She

has not been diagnosed, but is possibly appraxic. She has been in ST

since around 15 months. Very, very slow progress. I started her on

Omega 3,6, 9 Junior one month ago. In december she had approximately

50 word " APPROXIMATIONS " (not understood by many).

A month ago I started giving her 2 of the omegas. I saw a little

improvement. I posted and asked if I was giving enough. THANK YOU

CLAUDIA. I have to say, I was a little nervous about doubling the

dosage, but I went for it. OH MY! When I was putting her to bed

last night, without even realizing it I said " OK Jackie, night night

time, YOU HAVE TO STOP TALKING! " And then I cryed my eyes out.

NEVER, EVER, did I think I would say that to her. She likes to bring

a book to bed with her. She had one of the No books. She kept

saying, NO !!! No tus dat! (Dont touch that) Night essei

(night Jessie) her siser. Night night mama...Mornin (I always say

see you in the morining). This is just amazing. Also I see

improvements with her Physically. Is this possible? She is now

running and jumping much better than prior to the Omegas. I see

improvements in all areas. I did however see a fussy point. First

two she was crying alot at bed time. But it stopped. Anyway, I just

wanted to thank all, and thank

March 6, 2006

>

> CONGRATULATIONS!! WAHOO!! WOW!!! YAY!!!

>

> Trish you were just under the wire as the second on the rooftop

today!

>

> Just a quick word of advice to save you a few bucks. The " Jr. "

fish

> oils are great if you want to teach your child how to swallow the

> capsules or provide a 1/2 dosage of what most of us as a group use

> (the ProEFA -the regular sized)

>

> There is no such thing as " children's fish oil " since..well fish

oil

> is fish oil. The Jr version has a cuter bottle -I'll give it that!

>

> The ProEFA Jr. and the ProEFA bottles both have the same amount of

> capsules and are around the same price -but you have to use 2 of

the

> Jr. to equal one of the regular. If you do the math you'll see

what

> I mean in price. (hint -twice as expensive)

>

> And Trish you really didn't go as high as you may think in dosage.

> Even though you " doubled " the dosage on the bottle (2 per day which

> equals 1 of the ProEFA) by doubling to 4 you merely went to 2

> capsules of the ProEFA a day which is considered by all the

> researchers from The First Apraxia Conference to be " extremely

> conservative " http://www.cherab.org/news/scientific.html -and 2

ProEAF a

> day is pretty typical of what many use in this group before

> has raised awareness of how higher dosages may work even better and

> faster as they have for her child.

>

> About dosage and following what is on the bottle -no disrespect to

> anyone who believes that is to be followed since I too once thought

> of course that they put actual dosages on the bottles. Until a

> particular brand of EFA has clinical research behind it -they are

> not allowed to put more than the one to two capsules a day dosage I

> was told by Nordic Naturals. This is why brands like EyeQ and

> Efalex have way way way higher dosages on the bottle -

> because...that's what is typically used in research and those two

> brands have been used in research. Because of this group and the

> low dosages we've always have used the small amount of research

done

> with ProEFA was with the low dosage of one to two capsules a day.

>

> When talks about the higher dosage that is more typical of

> what a researcher would use. As a group we've always stuck to the

> one or two a day to start as it says in this EFA 101 archive

message

> http://www.speech-express.com/boards/viewtopic.php?t=620 -but I'd

> follow 's new lead on this and I applaud her as a brilliant

> Mom who brings much insight and medical knowledge to this group to

> help remove the dreaded " fear of fish oil " that most of the

> population seems to suffer from. (I mean really as I always say if

> you blot oil off a slice a pizza your kid would have consumed more

> pizza oil then the amount of fish oil we give them!)

>

> So Trish -take the " dosage " on the bottle with a grain of salt and

> know that once there is clinical research on ProEFA that uses

higher

> dosages (ProEFA is the professional line of the Omega 3 6 9) that

> the dosage on the bottle will change -but that the proof of what

> works best for your child you are the best judge of right now.

>

> And one more word of advice -instead of going to 3 capsules of the

> ProEFA (which would be 6 of the Jr. brand you are using and at that

> point you will be going through a bottle like every 2 weeks vs. 4

> weeks for the almost same priced ProEFA) Add one ProEPA to the 2

> ProEFA you are already currently using right now (again 4 of the Jr

> = 2 of the ProEFA) I don't know what the ProEPA is called in the

> commercial brand -perhaps someone else knows.

>

> Again cheers YAY! to you and your little one! I know just how you

> feel! (hope and happiness and the light at the end of the tunnel)

>

> =====

>

March 6, 2006

Hi there!

Jackies cranky stage, was only at night and only lasted about a

week. Not really sure if the fish oil had anything to do with it.

Could have been just her trying to get out of crib!!! Good Luck to

you!

Trish

>

> Congrats!! I am happy to hear of her progress, we as parents

appreciate little things they do that other parents don't even

realize comes natural. How long did the cranky period last out of

curiousity?

>

> [ ] WOW!!! JACKIE IS DOING AWESOME!!!!

>

> Hi everyone,

>

> Just wanted to thank everyone and give a little update on Jackie.

> Wow what an awesome week we have had. Jackie is 34 months old.

She

> has not been diagnosed, but is possibly appraxic. She has been in

ST

> since around 15 months. Very, very slow progress. I started her

on

> Omega 3,6, 9 Junior one month ago. In december she had

approximately

> 50 word " APPROXIMATIONS " (not understood by many).

> A month ago I started giving her 2 of the omegas. I saw a little

> improvement. I posted and asked if I was giving enough. THANK YOU

> CLAUDIA. I have to say, I was a little nervous about doubling the

> dosage, but I went for it. OH MY! When I was putting her to bed

> last night, without even realizing it I said " OK Jackie, night

night

> time, YOU HAVE TO STOP TALKING! " And then I cryed my eyes out.

> NEVER, EVER, did I think I would say that to her. She likes to

bring

> a book to bed with her. She had one of the No books. She

kept

> saying, NO !!! No tus dat! (Dont touch that) Night essei

> (night Jessie) her siser. Night night mama...Mornin (I always say

> see you in the morining). This is just amazing. Also I see

> improvements with her Physically. Is this possible? She is now

> running and jumping much better than prior to the Omegas. I see

> improvements in all areas. I did however see a fussy point. First

> two she was crying alot at bed time. But it stopped. Anyway, I

just

> wanted to thank all, and thank

March 7, 2006

I am so glad to hear this good news. I am sure that my son is not the only

one out there. There is something to this - and there has got to be a link

to the underlying mechanism of disease. But for now, all we have is the

information we are sharing among ourselves.

I will tell you, I went against my decision to not increase dosing any

further because I thought maybe we were about as high as we could go, but

then added a second capsule of EPA at night. (I was thinking of how many

teaspoons of " oil " go into french fries and friend food that we don't blink

about - even though its not good for us). Now we are giving 1/2 tsp (omega

3/6/9) 3 times a day plus a pro-EPA capsule in the am and pm. Yet another

surge. We are getting 5 WORD SENTENSES!!! Spontaneous new sentence

combinations (in addition to him trying to repeat everything we say). My SLP

is very impressed at how well he is doing in such a short time. Its amazing.

But you heard me mention before that the biggest change we saw initially was

improved balance and coordination. He still falls more than a child his age

should - but only a couple of times a day (at the most) as opposed to a

couple of times an hour. Its very promising. -