Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 One of my biggest worries over Cai is how he will be treated when he gets older and goes to school etc, I know most people are good and nice but some other children and people can be cruel and I wonder how the older charge children and adults feel about the way society is treating them. IanW Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 ian its me ellen 21 year old chaerger let me tell u accross the water in aus is like uk they treat me like shit well no not everyone but if i didnt look they would lucky we look LOL because as i was saying to soemoen yesterday im blind deaf in a chair well that is how it is if i wanted to pesamistic about it all and depending on teh situation is can b worse i no that but it just depends on people and places i thin,k im lucky ive got soem great people doing stuff for me where ive had the probs was with tafe and stuff not leting me gety into stuff but basicly its ok you jus thave to hunt for stuff wich isnt that easy but i was also lucky that i was with a service doing rec stuff amd they refered me to the team for school leavers so there i am witht he help of people on the kids rec team and the adolesent family support team and some teachers i was put in with that part and then they r helping me now they r the best i love them and they no it lol > > One of my biggest worries over Cai is how he will be treated when he > gets older and goes to school etc, I know most people are good and nice > but some other children and people can be cruel and I wonder how the > older charge children and adults feel about the way society is treating > them. > > IanW > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Hi Ellen, I cannot imagine what it would be like to be blind and deaf and in a chair as you describe yourself, but for my wife and I as parents we also use the approach that there is always someone worse off than yourself. I have a problem understanding part of your email " where ive had the probs was with tafe and stuff " which seems an important part of the message. I hope you don't mind me asking as I am just trying to get a better understanding and more of a picture of what it must be like for Cai, but how do you manage to write the emails, am I right in thinking that you have either partial sight or hearing or both, I can imagine there is such a thing as a braille keyboard, but I am having trouble picturing a computer monitor screen with such lumps. Thanks Ian ellen howe wrote: > > > ian its me ellen 21 year old chaerger let me tell u accross the water in aus > is like uk they treat me like shit well no not everyone but if i didnt look > they would lucky we look LOL because as i was saying to soemoen yesterday im > blind deaf in a chair well that is how it is if i wanted to pesamistic about > it all and depending on teh situation is can b worse i no that but it just > depends on people and places i thin,k im lucky ive got soem great people > doing stuff for me where ive had the probs was with tafe and stuff not > leting me gety into stuff but basicly its ok you jus thave to hunt for stuff > wich isnt that easy but i was also lucky that i was with a service doing rec > stuff amd they refered me to the team for school leavers so there i am witht > he help of people on the kids rec team and the adolesent family support team > and some teachers i was put in with that part and then they r helping me now > they r the best i love them and they no it lol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Hello; When you look at how the world has evolved over the years, you see the changes of people's perception, reactions, and attitudes towards the disabled. 50 years ago, they were shut out from everyday life, as if they had the plague. 30 years ago, they were accepted into the world as a human being, but as a disabled person they were shut up instead of shut out. 10 years ago they were accepted by doctors, teachers, and some of their peers, but there were some people who would still give them a hard time. 10 years from now the world will embrace the disabled with open arms and a will to change how we see them. There are so many ways a person with a disability can be mistreated. There are no right ways or wrong ways to deal with situations in the home, with education, in the community, or in the world at large. You can't predict a child's future, can't prevent them from experiencing some type of emotional trama from how people treat them. The older ones like myself, Ellen, Chantelle, , Amy, and others have had a horrible time growing up cause we didn't know what we had until we were already in our late teens or adult years. And also the world has changed it's perceptions on treating the disabled by the time we knew what we had. The saying " What doesn't break us only makes us stronger " , is true cause we are stronger today then we were ten years ago, or even 5 years ago. We are more capable of dealing with life now then ever before cause we have the support of this group, and we have the ability to see ourselves as a disabled person instead of a person who was a nobody. Your son is very lucky, he will grow up with a whole new set of challenges that we never experienced, and we will learn from them what it was like to grow up with a disability in this generation. And your son will learn from us, role models teaching him what it was like to be disabled in the 70's, 80's, and even 90's. Sincerely yours; Krista. 28 year old CHARGEr. swisspace wrote: One of my biggest worries over Cai is how he will be treated when he gets older and goes to school etc, I know most people are good and nice but some other children and people can be cruel and I wonder how the older charge children and adults feel about the way society is treating them. IanW --------------------------------- Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Krista, Could you please email me off line? I am having trouble with your email address and I have a question for you. Thank you. Pam > > > > > Hello; > > When you look at how the world has evolved over the years, you see the > changes of people's perception, reactions, and attitudes towards the disabled. > 50 years ago, they were shut out from everyday life, as if they had the > plague. 30 years ago, they were accepted into the world as a human being, but > as a disabled person they were shut up instead of shut out. > 10 years ago they were accepted by doctors, teachers, and some of their > peers, but there were some people who would still give them a hard time. > 10 years from now the world will embrace the disabled with open arms and a > will to change how we see them. > > There are so many ways a person with a disability can be mistreated. There > are no right ways or wrong ways to deal with situations in the home, with > education, in the community, or in the world at large. You can't predict a > child's future, can't prevent them from experiencing some type of emotional > trama from how people treat them. > > The older ones like myself, Ellen, Chantelle, , Amy, and others have > had a horrible time growing up cause we didn't know what we had until we were > already in our late teens or adult years. And also the world has changed it's > perceptions on treating the disabled by the time we knew what we had. > > The saying " What doesn't break us only makes us stronger " , is true cause we > are stronger today then we were ten years ago, or even 5 years ago. We are > more capable of dealing with life now then ever before cause we have the > support of this group, and we have the ability to see ourselves as a disabled > person instead of a person who was a nobody. > > Your son is very lucky, he will grow up with a whole new set of challenges > that we never experienced, and we will learn from them what it was like to > grow up with a disability in this generation. And your son will learn from us, > role models teaching him what it was like to be disabled in the 70's, 80's, > and even 90's. > > Sincerely yours; Krista. 28 year old CHARGEr. > > swisspace <swisspace@... <mailto:swisspace%40yahoo.co.uk> > wrote: > One of my biggest worries over Cai is how he will be treated when he > gets older and goes to school etc, I know most people are good and nice > but some other children and people can be cruel and I wonder how the > older charge children and adults feel about the way society is treating > them. > > IanW > > > --------------------------------- > Be smarter than spam. See how smart SpamGuard is at giving junk email the boot > with the All-new Yahoo! Mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 I don't know about you, Ian, but reading that message from Krista and the other from Ellen sure gives me inspiration and hope for the future. Krista if you are reading this, would you email Pam ? She's trying to get in touch with you. Her email is pamela.ryan@... Thanks, www.chargesyndrome.info > > Hello; > > When you look at how the world has evolved over the years, you see the > changes of people's perception, reactions, and attitudes towards the > disabled. 50 years ago, they were shut out from everyday life, as if they > had the plague. 30 years ago, they were accepted into the world as a human > being, but as a disabled person they were shut up instead of shut out. > 10 years ago they were accepted by doctors, teachers, and some of their > peers, but there were some people who would still give them a hard time. > 10 years from now the world will embrace the disabled with open arms and a > will to change how we see them. > > There are so many ways a person with a disability can be mistreated. There > are no right ways or wrong ways to deal with situations in the home, with > education, in the community, or in the world at large. You can't predict a > child's future, can't prevent them from experiencing some type of emotional > trama from how people treat them. > > The older ones like myself, Ellen, Chantelle, , Amy, and others > have had a horrible time growing up cause we didn't know what we had until > we were already in our late teens or adult years. And also the world has > changed it's perceptions on treating the disabled by the time we knew what > we had. > > The saying " What doesn't break us only makes us stronger " , is true cause > we are stronger today then we were ten years ago, or even 5 years ago. We > are more capable of dealing with life now then ever before cause we have the > support of this group, and we have the ability to see ourselves as a > disabled person instead of a person who was a nobody. > > Your son is very lucky, he will grow up with a whole new set of challenges > that we never experienced, and we will learn from them what it was like to > grow up with a disability in this generation. And your son will learn from > us, role models teaching him what it was like to be disabled in the 70's, > 80's, and even 90's. > > Sincerely yours; Krista. 28 year old CHARGEr. > > swisspace <swisspace@... <swisspace%40yahoo.co.uk>> wrote: > One of my biggest worries over Cai is how he will be treated when he > gets older and goes to school etc, I know most people are good and nice > but some other children and people can be cruel and I wonder how the > older charge children and adults feel about the way society is treating > them. > > IanW > > > --------------------------------- > Be smarter than spam. See how smart SpamGuard is at giving junk email the > boot with the All-new Yahoo! Mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 If you can't reach me at stillannemurray@... try kbach@... Pamela wrote: Krista, Could you please email me off line? I am having trouble with your email address and I have a question for you. Thank you. Pam > > > > > Hello; > > When you look at how the world has evolved over the years, you see the > changes of people's perception, reactions, and attitudes towards the disabled. > 50 years ago, they were shut out from everyday life, as if they had the > plague. 30 years ago, they were accepted into the world as a human being, but > as a disabled person they were shut up instead of shut out. > 10 years ago they were accepted by doctors, teachers, and some of their > peers, but there were some people who would still give them a hard time. > 10 years from now the world will embrace the disabled with open arms and a > will to change how we see them. > > There are so many ways a person with a disability can be mistreated. There > are no right ways or wrong ways to deal with situations in the home, with > education, in the community, or in the world at large. You can't predict a > child's future, can't prevent them from experiencing some type of emotional > trama from how people treat them. > > The older ones like myself, Ellen, Chantelle, , Amy, and others have > had a horrible time growing up cause we didn't know what we had until we were > already in our late teens or adult years. And also the world has changed it's > perceptions on treating the disabled by the time we knew what we had. > > The saying " What doesn't break us only makes us stronger " , is true cause we > are stronger today then we were ten years ago, or even 5 years ago. We are > more capable of dealing with life now then ever before cause we have the > support of this group, and we have the ability to see ourselves as a disabled > person instead of a person who was a nobody. > > Your son is very lucky, he will grow up with a whole new set of challenges > that we never experienced, and we will learn from them what it was like to > grow up with a disability in this generation. And your son will learn from us, > role models teaching him what it was like to be disabled in the 70's, 80's, > and even 90's. > > Sincerely yours; Krista. 28 year old CHARGEr. > > swisspace <swisspace@... <mailto:swisspace%40yahoo.co.uk> > wrote: > One of my biggest worries over Cai is how he will be treated when he > gets older and goes to school etc, I know most people are good and nice > but some other children and people can be cruel and I wonder how the > older charge children and adults feel about the way society is treating > them. > > IanW > > > --------------------------------- > Be smarter than spam. See how smart SpamGuard is at giving junk email the boot > with the All-new Yahoo! Mail > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Krista- So much optimism!! I get a lot of strength when I look back and see how far we have come as a society. You're right; gains are being made every decade. The progress sometimes seems quite slow and we are far from the utopia I am hoping for. But there are good people out there and we are making progress. I have high hopes for sweeping changes in the next decade - before Aubrie becomes an adult. We talk occasionally on the list about the " ripple effect " . If we each make an impact in our little corners of the world, hopefully the ripples of each of the pebbles were throw into the sea of society will blend to make a huge change across the entire surface. We have to each maintain our optimism and our high expectations that others will behave appropriately. If we hang our heads low in despair and expect to be treated badly, that is what we will attract. To prove to others that we should be treated with dignity and respect, we must act with dignity and expect the same of them. Keep up your good attitude and positive outlook. It is contagious! Michele W Aubrie's mom 9 yrs _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hi I am now a high school senior at Santa Su, and like you all know I got accepted to CSUN. I am waiting for CLU though. My evperience with this... Throughout my life adults had been kind with me. Especially high school teachers, even though my condition greatly improved from Elementary. Even now. The kids are a different story. To me, little kids never and will probably never understand CHARGE. (Completely). IN elementary, I was treated like an alien. Kids wouldn't come up and talk to me. If they are interested, they talk to me through my health aid (now it is a kid trying to tell my translator to tell me something during class......I call it indirect conversation, lol). If a kid did come and talk directly to me, it might be harsh. DOn't like that. Uck. I was so guillible back in middle school kids took advantage of that. Now, it works ONLY if I am under tremendous amounts of stress and pressure. No one takes advantage of that too. In High School, kids FINALLY started caring about me. Not too much though, that's good. (although a freshman offering to carry my science book to class will be good...lol, sry to all those parents with CHARGErs who are high school freshmen) Teachers make sure I am okay in class, usually during the first few days of the year. Kids are comfortable with me. I think a girl randomly picked up interest with me, even though I didn't start chatting with her. SOme people say " Hi " to me, and I treat them in kind of course. I now have a best friend at school, with two good friends as well. Oh, a weird thing here. All of my guy friends don't go to my school. All of my gal friends go to my school. Weird, huh? Psychologically, I think that it was from having women as health aids with me all day at school. Personally, it seems easier for me to get along with the ladies than the guys. One guy does seem really fond of me though, he acts like I am the most popular when I am one of the most well known. I hope this proves hopeful. Hopefully Cai will have a great success like I do. Well, I have to finish checking my email and go back to my AP Government homework. Seeya! CHARGE 17 adults with charge One of my biggest worries over Cai is how he will be treated when he gets older and goes to school etc, I know most people are good and nice but some other children and people can be cruel and I wonder how the older charge children and adults feel about the way society is treating them. IanW ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.15.13/577 - Release Date: 12/6/06 4:39 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hi again, out of curiosity.....how old is Cai? adults with charge One of my biggest worries over Cai is how he will be treated when he gets older and goes to school etc, I know most people are good and nice but some other children and people can be cruel and I wonder how the older charge children and adults feel about the way society is treating them. IanW ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.15.13/577 - Release Date: 12/6/06 4:39 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Krista, this is one of the most sensitive and insightful things I have read. Your perceptions and ability to explain them is remarkable. Thank you for taking the time and thank you for sharing it for the entire group. pam Re: adults with charge Hello; When you look at how the world has evolved over the years, you see the changes of people's perception, reactions, and attitudes towards the disabled. 50 years ago, they were shut out from everyday life, as if they had the plague. 30 years ago, they were accepted into the world as a human being, but as a disabled person they were shut up instead of shut out. 10 years ago they were accepted by doctors, teachers, and some of their peers, but there were some people who would still give them a hard time. 10 years from now the world will embrace the disabled with open arms and a will to change how we see them. There are so many ways a person with a disability can be mistreated. There are no right ways or wrong ways to deal with situations in the home, with education, in the community, or in the world at large. You can't predict a child's future, can't prevent them from experiencing some type of emotional trama from how people treat them. The older ones like myself, Ellen, Chantelle, , Amy, and others have had a horrible time growing up cause we didn't know what we had until we were already in our late teens or adult years. And also the world has changed it's perceptions on treating the disabled by the time we knew what we had. The saying " What doesn't break us only makes us stronger " , is true cause we are stronger today then we were ten years ago, or even 5 years ago. We are more capable of dealing with life now then ever before cause we have the support of this group, and we have the ability to see ourselves as a disabled person instead of a person who was a nobody. Your son is very lucky, he will grow up with a whole new set of challenges that we never experienced, and we will learn from them what it was like to grow up with a disability in this generation. And your son will learn from us, role models teaching him what it was like to be disabled in the 70's, 80's, and even 90's. Sincerely yours; Krista. 28 year old CHARGEr. swisspace wrote: One of my biggest worries over Cai is how he will be treated when he gets older and goes to school etc, I know most people are good and nice but some other children and people can be cruel and I wonder how the older charge children and adults feel about the way society is treating them. IanW --------------------------------- Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 If you want to use any of my stuff in your presentation, you can. Just inform me that you are going to use some of my work, so I'm not surprised when I see it in the future. Sincerely yours; Krista. pamela.ryan@... wrote: Krista, this is one of the most sensitive and insightful things I have read. Your perceptions and ability to explain them is remarkable. Thank you for taking the time and thank you for sharing it for the entire group. pam Re: adults with charge Hello; When you look at how the world has evolved over the years, you see the changes of people's perception, reactions, and attitudes towards the disabled. 50 years ago, they were shut out from everyday life, as if they had the plague. 30 years ago, they were accepted into the world as a human being, but as a disabled person they were shut up instead of shut out. 10 years ago they were accepted by doctors, teachers, and some of their peers, but there were some people who would still give them a hard time. 10 years from now the world will embrace the disabled with open arms and a will to change how we see them. There are so many ways a person with a disability can be mistreated. There are no right ways or wrong ways to deal with situations in the home, with education, in the community, or in the world at large. You can't predict a child's future, can't prevent them from experiencing some type of emotional trama from how people treat them. The older ones like myself, Ellen, Chantelle, , Amy, and others have had a horrible time growing up cause we didn't know what we had until we were already in our late teens or adult years. And also the world has changed it's perceptions on treating the disabled by the time we knew what we had. The saying " What doesn't break us only makes us stronger " , is true cause we are stronger today then we were ten years ago, or even 5 years ago. We are more capable of dealing with life now then ever before cause we have the support of this group, and we have the ability to see ourselves as a disabled person instead of a person who was a nobody. Your son is very lucky, he will grow up with a whole new set of challenges that we never experienced, and we will learn from them what it was like to grow up with a disability in this generation. And your son will learn from us, role models teaching him what it was like to be disabled in the 70's, 80's, and even 90's. Sincerely yours; Krista. 28 year old CHARGEr. swisspace wrote: One of my biggest worries over Cai is how he will be treated when he gets older and goes to school etc, I know most people are good and nice but some other children and people can be cruel and I wonder how the older charge children and adults feel about the way society is treating them. IanW --------------------------------- Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 , I think everyone will appreciate reading your post. Thanks for sharing it on the list rather than privately with Cai's dad. I think your assessment of getting along more easily with " the ladies " because of your history of female health aides makes sense. How very bright and insightful you are. pam Re: adults with charge Hi I am now a high school senior at Santa Su, and like you all know I got accepted to CSUN. I am waiting for CLU though. My evperience with this... Throughout my life adults had been kind with me. Especially high school teachers, even though my condition greatly improved from Elementary. Even now. The kids are a different story. To me, little kids never and will probably never understand CHARGE. (Completely). IN elementary, I was treated like an alien. Kids wouldn't come up and talk to me. If they are interested, they talk to me through my health aid (now it is a kid trying to tell my translator to tell me something during class......I call it indirect conversation, lol). If a kid did come and talk directly to me, it might be harsh. DOn't like that. Uck. I was so guillible back in middle school kids took advantage of that. Now, it works ONLY if I am under tremendous amounts of stress and pressure. No one takes advantage of that too. In High School, kids FINALLY started caring about me. Not too much though, that's good. (although a freshman offering to carry my science book to class will be good...lol, sry to all those parents with CHARGErs who are high school freshmen) Teachers make sure I am okay in class, usually during the first few days of the year. Kids are comfortable with me. I think a girl randomly picked up interest with me, even though I didn't start chatting with her. SOme people say " Hi " to me, and I treat them in kind of course. I now have a best friend at school, with two good friends as well. Oh, a weird thing here. All of my guy friends don't go to my school. All of my gal friends go to my school. Weird, huh? Psychologically, I think that it was from having women as health aids with me all day at school. Personally, it seems easier for me to get along with the ladies than the guys. One guy does seem really fond of me though, he acts like I am the most popular when I am one of the most well known. I hope this proves hopeful. Hopefully Cai will have a great success like I do. Well, I have to finish checking my email and go back to my AP Government homework. Seeya! CHARGE 17 adults with charge One of my biggest worries over Cai is how he will be treated when he gets older and goes to school etc, I know most people are good and nice but some other children and people can be cruel and I wonder how the older charge children and adults feel about the way society is treating them. IanW ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.15.13/577 - Release Date: 12/6/06 4:39 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hi..Im Belinda a 23 year old CHARGE Adult Sometimes i think it is hard to compare how difficult it has been living with a disability because i dont know exactly how easy it is not to, if that makes any sense Physically it has been hard, but there has always been so much help around. I think some people are afraid to ask for help thought because they dont like being different. I had lots of help from aids through high school and primary shcool and that helped alot. I think like Krista said it is alot easier for us then it was many years ago. I think socially and emotionally it is probably the most hard in high shcool. Because kids are going through all sorts of changes themselves and trying to figure out where they fit in. Yeah i got teased and stuff, but i think many people do. I think its defiently true that people are learning to accept people with disabilities alot more then they used to.. When i went to college i started realising that no one really cares if you look a little different. People do start accepting you for who you are.. I think if you go through life with the mindset that youare different, like i did, then you will be treated differently. I didnt really have any friends in high school, but i think it was because i wouldnt let anyone be friends with me. I thought everyone just felt sorry for me and thats the only reason they talked to me. I was always told how diferent i was, i think this had a negative impact on me.. Since i left high school and went to college, ive noticed im not THAT different from anyone else. i had some other bad experiences in the past five years not related to my disability to, which i guess maybe my disability made it harder to deal with them bad experiences im not sure Like Krista said, what doesnt kill you only makes you stronger Belinda 23 year old ChARgEr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 ian i have sight and hearin but i do need hearing aids and i need aids to help me soemtimes like with the computer i need the screan close and i need bigger font soemtimes but i mostly ok i can touch type wich can help its distnace stuff i have probs with mostly > > Hi..Im Belinda a 23 year old CHARGE Adult > > Sometimes i think it is hard to compare how difficult it has been living > with a disability because i dont know exactly how easy it is not to, if > that > makes any sense > > Physically it has been hard, but there has always been so much help > around. > I think some people are afraid to ask for help thought because they dont > like being different. I had lots of help from aids through high school and > primary shcool and that helped alot. I think like Krista said it is alot > easier for us then it was many years ago. > > I think socially and emotionally it is probably the most hard in high > shcool. Because kids are going through all sorts of changes themselves and > trying to figure out where they fit in. Yeah i got teased and stuff, but i > think many people do. I think its defiently true that people are learning > to > accept people with disabilities alot more then they used to.. > > When i went to college i started realising that no one really cares if you > look a little different. People do start accepting you for who you are.. I > think if you go through life with the mindset that youare different, like > i > did, then you will be treated differently. I didnt really have any friends > in high school, but i think it was because i wouldnt let anyone be friends > with me. I thought everyone just felt sorry for me and thats the only > reason > they talked to me. I was always told how diferent i was, i think this had > a > negative impact on me.. > > Since i left high school and went to college, ive noticed im not THAT > different from anyone else. i had some other bad experiences in the past > five years not related to my disability to, which i guess maybe my > disability made it harder to deal with them bad experiences im not sure > > Like Krista said, what doesnt kill you only makes you stronger > > Belinda 23 year old ChARgEr > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 The way I see it, every single soul has it's own blue plan before being born. That soul maps out the life it's going to live either as a person with a disability, a parent who has a child with a disability, or someone who knows how to take care of the disabled, or even people who are in contact with a disabled person. There is a difference between the everyday people and the ones who are born with a disability. We are here to teach the world about us. We are here to give the world a glimpse into an enviroment that is both chaotic and peaceful, we are the only ones who can touch the world with a single step. No one else can make the world drop to their knees and thank god we are here. We are the only ones who can make the world listen, see, and act. The parents who raise a disabled child has an equally important job, because their job is to give their child a voice when they can't speak, ears when they can't hear, eyes when they can't see, legs when they can't walk, courage when they feel helpless, determination when they feel like failing, unconditional love when they feel no one loves them, inspiration when they feel stupid, parents give their child everything the world can't give them, so that they can teach the world everything. The ones who know someone who has a disability is wiser beyond their years, they are the ones who will never stare, never talk behind their backs, will always lend a hand whenever they are needed. They are the ones who will go the distance for that disabled person, and their families, because the disabled is worth more then anything else in the world. We can do more then anyone will ever realize. swisspace wrote: Hi all, thanks for the replies so far, it all helps me to get a better understanding of what it must be like. One of the questions I asked myself when Cai was born was why are we being rewarded with such a special boy. Like bringing any child I don't know yet where the road is going, but I do know it will be the scenic route over swiss alpine mountain passes rather than via the highway or motorway. It seems that on the way I have found another beautiful spot to visit and soak up the goodness life brings, thanks for the replies and accepting me into the list. Ian Cai's dad --------------------------------- All new Yahoo! Mail --------------------------------- Get news delivered. Enjoy RSS feeds right on your Mail page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Krista- Beautiful! I am thankful every day for the wise and loving soul that is Aubrie. I know we are soulmates and that our spirits were meant to live together. It's a connection that can't be described and is more than the typical mother-daughter bond. There is definitely something special going on. Michele W _____ From: CHARGE [mailto:CHARGE ] On Behalf Of Krista Bach Sent: Thursday, December 07, 2006 10:20 AM To: CHARGE Subject: Re: adults with charge The way I see it, every single soul has it's own blue plan before being born. That soul maps out the life it's going to live either as a person with a disability, a parent who has a child with a disability, or someone who knows how to take care of the disabled, or even people who are in contact with a disabled person. There is a difference between the everyday people and the ones who are born with a disability. We are here to teach the world about us. We are here to give the world a glimpse into an enviroment that is both chaotic and peaceful, we are the only ones who can touch the world with a single step. No one else can make the world drop to their knees and thank god we are here. We are the only ones who can make the world listen, see, and act. The parents who raise a disabled child has an equally important job, because their job is to give their child a voice when they can't speak, ears when they can't hear, eyes when they can't see, legs when they can't walk, courage when they feel helpless, determination when they feel like failing, unconditional love when they feel no one loves them, inspiration when they feel stupid, parents give their child everything the world can't give them, so that they can teach the world everything. The ones who know someone who has a disability is wiser beyond their years, they are the ones who will never stare, never talk behind their backs, will always lend a hand whenever they are needed. They are the ones who will go the distance for that disabled person, and their families, because the disabled is worth more then anything else in the world. We can do more then anyone will ever realize. swisspace <swisspace (AT) yahoo (DOT) <mailto:swisspace%40yahoo.co.uk> co.uk> wrote: Hi all, thanks for the replies so far, it all helps me to get a better understanding of what it must be like. One of the questions I asked myself when Cai was born was why are we being rewarded with such a special boy. Like bringing any child I don't know yet where the road is going, but I do know it will be the scenic route over swiss alpine mountain passes rather than via the highway or motorway. It seems that on the way I have found another beautiful spot to visit and soak up the goodness life brings, thanks for the replies and accepting me into the list. Ian Cai's dad --------------------------------- All new Yahoo! Mail --------------------------------- Get news delivered. Enjoy RSS feeds right on your Mail page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Krista, I am truly overwhelmed by the beauty and poetry, and the depth of your wisdom. You are a blessing to us all. in Ma. (, 21 yrs) > Hi all, > > thanks for the replies so far, it all helps me to get a better > understanding of what it must be like. > > One of the questions I asked myself when Cai was born was why are we > being rewarded with such a special boy. Like bringing any child I don't > know yet where the road is going, but I do know it will be the scenic > route over swiss alpine mountain passes rather than via the highway or > motorway. > > It seems that on the way I have found another beautiful spot to visit > and soak up the goodness life brings, thanks for the replies and > accepting me into the list. > > Ian > Cai's dad > > > > > > --------------------------------- > All new Yahoo! Mail > --------------------------------- > Get news delivered. Enjoy RSS feeds right on your Mail page. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Actually we use braille displays on computers to read what is on the screen. They are under the keyboard sticking out enough to feel all the braille cells. Then you just type and issue commands from the computer keyboard. Embossers that print braille on paper are used to print braille documents. Braille displays on the computer are used to use the computer and are refreshable so that the same 40 or 80 cell line is used over and over again. The only big difference with a braille display is that you can only see (feel) one line at a time. But you can scroll and find things very quickly, sometimes even faster than a person that is using a mouse. There are also braille note takers that have braille displays on them. They can act as PDAs, or in some cases phones. You can also use them to act as a braille display on a computer. To use a braille display on a computer you need to have special software on the computer called a screen reader. Beth Koenig bethko@... Director of Deaf Blind Services Orange County Deaf Advocacy Center www.deafadvocacy.org/dbs > > Doh! silly me, I was thinking though more about ones at home, when I > first started with computing (showing my age now) I was very very young > we just had a teletype, that is basically a printer with a keyboard, you > typed on the keyboard and waited for an answer from the main system > which was printed out on the printer. PC's and Mac's didn't exist then. > > IanW > > ellen howe wrote: > > > > > > prety sure they do exist coz hwo do the books get printed then > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 no bel is right one of my firends from school certanly doesnt and soem other person from this service im at definatly doesnt i mean wat parent wouild tell a person confined to a chair u can only stay here two weeks no good ones i no would LOL > > Also...Not everyone with a disability has good parents. It would be niec > if > they did but they dont. Not everyone has parents that look after them > > On 12/8/06, _Belinda _ <belindalouise@...<belindalouise%40gmail.com>> > wrote: > > > > I agree with in alot of what she said.. Ever since i went to > > college especially i have been treated so normally. I think its > imporatnt > > for parents to not treat their kids any more different then they need to > be > > treated > > > > In the past 6 years when ive been at College. I have had some problems > and > > had depression and been on anti depressants.. This had nothing to do > with my > > disability though. It was from some other totally different experiences > that > > had nothing to do with my disability... > > > > > > > > > > > > On 12/8/06, Nieder <christine-ann@...<christine-ann%40shaw.ca>> > wrote: > > > > > > Finally I can properly respond to this subject. My net has been down > > > all day. Thank you Krista for your wonderful response to this thread > however > > > I do have to correct something from my own experiences. For me, it was > not > > > difficult growing up with a disability. My parents very much treated > me like > > > any other kids, in fact they rather pushed me to exceed beyond > anyone's > > > expectations. I skied, swam, hiked, snow mobile (never mind that I > crashed > > > it! LOL), was in girl guides, had lots of friends in elementary > school, and > > > really had a very very active life style. Junior high & high school > was a > > > very different story. In the past I have been very quick to blame it > on my > > > disability however I have come to realize that although that did play > a role > > > the majority of that really was personal things going on in my > life--dealing > > > with the death of my mom and watching my dad battle with cancer and > > > eventually pass away as well. A lot was expected of me, alot more then > a > > > teenager should ever have to deal with. I certainly didn't have the > supports > > > in place for me while I was a teenager but at the same time I rarely > > > advocated for myself so many people didn't realize that I actually did > need > > > support. College has been much easier on me for many reasons. I have > an > > > incredible support system of friends who I cherish and are there for > me > > > always. They have really helped me become the person I am today and > have > > > taught me so much. I would have never made it to this point without > them. > > > And of course my parents treating me like anyone else made a huge > > > difference. I know I have a disability, and yes it does affect areas > of my > > > life, but as far as I'm concerned, it just makes me even more > determined to > > > succeed. The bottom line is, no its not easy being an adult with a > > > disability. But life is never easy, its how you handle it. Handle it > with > > > grace and dignity, make it something that only empowers rather then > hinders. > > > It will be a new set of challenges and problems that the CHARGE kids > will > > > face in adulthood, but as I said in Miami and I will say it again " The > only > > > limits we have are the ones we put on ourselves " . > > > > > > > > > CHARGE Adult > > > > > > > > > Re: adults with charge > > > > > > > > Hello; > > > > > > > > When you look at how the world has evolved over the years, you see > the > > > changes > > > > of people's perception, reactions, and attitudes towards the > disabled. > > > 50 > > > > years ago, they were shut out from everyday life, as if they had the > > > plague. > > > > 30 years ago, they were accepted into the world as a human being, > but > > > as a > > > > disabled person they were shut up instead of shut out. > > > > 10 years ago they were accepted by doctors, teachers, and some of > > > their peers, > > > > but there were some people who would still give them a hard time. > > > > 10 years from now the world will embrace the disabled with open arms > > > and a > > > > will to change how we see them. > > > > > > > > There are so many ways a person with a disability can be mistreated. > > > There are > > > > no right ways or wrong ways to deal with situations in the home, > with > > > > education, in the community, or in the world at large. You can't > > > predict a > > > > child's future, can't prevent them from experiencing some type of > > > emotional > > > > trama from how people treat them. > > > > > > > > The older ones like myself, Ellen, Chantelle, , Amy, and > > > others have > > > > had a horrible time growing up cause we didn't know what we had > until > > > we were > > > > already in our late teens or adult years. And also the world has > > > changed it's > > > > perceptions on treating the disabled by the time we knew what we > had. > > > > > > > > The saying " What doesn't break us only makes us stronger " , is true > > > cause we > > > > are stronger today then we were ten years ago, or even 5 years ago. > We > > > are > > > > more capable of dealing with life now then ever before cause we have > > > the > > > > support of this group, and we have the ability to see ourselves as a > > > disabled > > > > person instead of a person who was a nobody. > > > > > > > > Your son is very lucky, he will grow up with a whole new set of > > > challenges > > > > that we never experienced, and we will learn from them what it was > > > like to > > > > grow up with a disability in this generation. And your son will > learn > > > from us, > > > > role models teaching him what it was like to be disabled in the > 70's, > > > 80's, > > > > and even 90's. > > > > > > > > Sincerely yours; Krista. 28 year old CHARGEr. > > > > > > > > swisspace <swisspace@... <swisspace%40yahoo.co.uk><swisspace%40yahoo. > co.uk> <mailto:swisspace% <swisspace%25><swisspace%25> > > > 40yahoo.co.uk> > wrote: > > > > One of my biggest worries over Cai is how he will be treated when he > > > > gets older and goes to school etc, I know most people are good and > > > nice > > > > but some other children and people can be cruel and I wonder how the > > > > older charge children and adults feel about the way society is > > > treating > > > > them. > > > > > > > > IanW > > > > > > > > --------------------------------- > > > > Be smarter than spam. See how smart SpamGuard is at giving junk > email > > > the boot > > > > with the All-new Yahoo! Mail > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 - Fabulous. You are right that life will give us all challenges of one sort or another and our job is to handle them with all the grace and dignity we can muster. Sounds like your teen years were understandably difficult given the circumstances and the fact that they were, well, " the teen years " !! Of course, being given a set of disabilities to throw into the mix all along the path gives an unfair disadvantage compared to the folks born with no disabilities who get to face the challenges with no pre-existing obstacles. It sure seems obvious to me that you guys on here are the ones who have the positive mindset necessary to make the most of life - disability or not. There are lots of people out there with no disabilities who are stranded by their horrid attitudes. And, of course, there are people with disabilities who are stranded by their horrid attitudes. So perhaps it's safe to say that attitude is everything regardless of your obstacles, circumstances, or situation. Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
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