It's official! We're the Foundation for IgA Nephropathy.

[Guest guest]

Sophia,

Thank you, all prayers are welcomed with open arms, eyes and heart.

God Bless

Cathy..Jennell's Mom

_____

From: iga-nephropathy

[mailto:iga-nephropathy ] On Behalf Of yipee_ladybug

Sent: Thursday, July 28, 2005 9:12 AM

To: iga-nephropathy

Subject: Re: It's official! We're the Foundation for IgA Nephropathy.

Cathy,

I read your post and I'm so sorry that you have so many difficulties in

your life. Pls know that you are in my thoughts and prayers.

*hugs*

Sophia

>

>

>

>

> I just wanted to jump in and say congratulations and a great big thank

you

> also, to Pierre, Walt, , Cy, , Barton, Rita and Amy G for all

you

> have done for us that have had Igan invade our lives. Like so many

others

> here, you all have been such a blessing for my sanity with the

learning and

> everyday coping with the dreaded Igan. I have learned, and I am still

> learning so much from all of you that has tremendously helped me

through

> many days of confusion with my child's unexpected diagnosis.

>

> Words just can not express my personal gratitude.

>

> May God Bless you all for all your past hard work and continued

support.

>

>

>

> Sorry I have been quiet lately, lots going on here. I do read all the post

> daily, and for all of you that have had not so good news and all the

> newcomers here my prayers are with you, for all of you that have

received

> good news, congratulations and keep up the good work.

>

>

>

> Jennell is going through what I am guessing is denial on her Igan and

> although things have been happening with it, headaches, joint pain

and now a

> new breakout with her HSP and her dreadful nasty attitude she

refuses to let

> me call the doctor or go see him until her next appointment on

August 5th.

>

>

>

>

> I was also in a serious car accident where I was driving my pregnant

friend

> home from a doctors appointment when we got re-ended on the

highway, sadly

> she lost the baby from it and although it was not my fault I am just so

sick

> over it and trying to deal with that. Please know that although I have

been

> quiet my prayers are still with all of you.

>

>

>

> God Bless everyone here

>

> Cathy......Jennell's Mom

>

>

>

>

>

>

[Guest guest]

Hi Cathy,

I have been praying for both you and your friend, as well as for Jennell

too. I hope her boyfriend keeps her smiling!

God bless you!

In a message dated 7/29/2005 6:11:18 A.M. Pacific Daylight Time,

cwaelty@... writes:

Thank God her boyfriend is back from a 3 week vacation, he really is

wonderful with keeping her on track with her diet and at least she is

somewhat smiling again (but only around him). I pray that she will accept

what has been handed to her and make the best of it and accept all outside

help both medically and emotionally, this I have prayed for daily.

God Bless you also and everyone else in this group.

Cathy……Jennell’s Mom

[Guest guest]

, Thank you for the prayers, they are appreciated.

Cathy..Jennell's Mom

_____

From: iga-nephropathy

[mailto:iga-nephropathy ] On Behalf Of W4JC@...

Sent: Sunday, July 31, 2005 11:38 PM

To: iga-nephropathy

Subject: Re: It's official! We're the Foundation for IgA Nephropathy.

Hi Cathy,

I have been praying for both you and your friend, as well as for Jennell

too. I hope her boyfriend keeps her smiling!

God bless you!

In a message dated 7/29/2005 6:11:18 A.M. Pacific Daylight Time,

cwaelty@... writes:

Thank God her boyfriend is back from a 3 week vacation, he really is

wonderful with keeping her on track with her diet and at least she is

somewhat smiling again (but only around him). I pray that she will accept

what has been handed to her and make the best of it and accept all outside

help both medically and emotionally, this I have prayed for daily.

God Bless you also and everyone else in this group.

Cathy..Jennell's Mom

[Guest guest]

Pierre, , Cy and all

Congratulations for the fondation.

I add myself to become a volunteer. I suggest that we have a French

speaking section for non-English speaking people and to care it with

the help of Pierre, our bilingual owner

[Guest guest]

Hello there

Sorry if my question is unadequate, but what does CEO and CFO mean ?

(usher)

[Guest guest]

Thanks a lot for your answer Walter ! English isn't my mother tongue

and your help is really useful !!!

Thanks again !!

[Guest guest]

As usual, I'm way behind in reading the posts but just wanted to add my

congratulations to Pierre. I've been a member of this group for a long

time (although don’t post often), and want to thank all the moderators

for all their hard work. None of this could be possible without them.

Congratulations again Pierre on this wonderful accomplishment.

Curtis in Ontario, Canada

It's official! We're the Foundation for IgA Nephropathy.

This is a really momentus day in the life of our support group. I don't

know

if I can adequately express the excitement of it in an email like this.

Most of you don't know this, but very early on after I started the

support

group back in 2000, it was my intention to form some kind of non-profit

registered charity for the purpose of running the www.igan.ca website

and

possibly eventually contributing to research in the field of IgAN. After

some initial legwork, I never followed through with it, because of the

costs

involved in setting it up. I found it was simply prohibitive for me to

do

this alone. Donations I received personally only covered my operating

expenses for the website, and I don't have surplus income I can use for

these kinds of things.

But the idea was always there, and at some point, and Walt, two of

our

earliest moderators and friends, offered to pay the startup costs. By

that

point, it was the summer just before I started dialysis, and I decided

it

was too big of a hassle for me to do at that time. That was 2002. I

didn't

incorporate, but we did carry on with the website and the support group.

Fast forward to a couple of months ago. Cy and gave the idea new

impetus when they emailed me suggesting we could incorporate as a

non-profit

corporation. I still thought it was a great idea and definitely a future

goal, but, with Cy and offering to help realize this dream now, I

thought the time had come to go ahead and just do it. Now, you have to

realize, this meant no work for me at all, but a lot of work for Cy,

acting

as our legal advisor, and , acting as our treasurer.

Earlier this month, on Sunday, July 3, we held our initial board meeting

for

the purpose of adopting bylaws for " The Foundation for IgA Nephropathy "

and

electing a board of directors. It took the form of a conference call

meeting, since we all live in different parts of the U.S. and me in

Canada.

We elected a slate of directors that day, and the next step was to

receive

official notification from the State of California where we

incorporated.

I'm very proud to announce to the group that Cy received this in the

mail

today, and we are now officially The Foundation for IgA Nephropathy,

with

all the rights and responsibilities of a non-profit corporation.

This will change nothing as far as this group goes, as it will continue

to

be known as the IgA Nephropathy Support Group. However, rather than

being

associated with a companion website run by me personally, as an

individual,

www.igan.ca will from now on be operated by the Foundation for IgA

Nephropathy. As a subscriber to the support group, you all remain just

that,

a subscriber to the IgA Nephropathy Support Group on Yahoo Groups. The

support group will continue to be our main activity in the foreseeable

future. This is where we do what we do, that is, help people to

understand

and to deal with their diagnosis of IgAN, and provide a forum for others

to

do so as well.

A few weeks ago I closed the donations page on www.igan.ca pending our

reorganization as the Foundation. At some point in the near future, once

we

have completed the necessary banking arrangements, donations will

henceforth

be accepted by the Foundation for IgA Nephropathy.

We decided the board of directors would be comprised of our current

group of

active moderators, if they accepted to serve. The slate of directors is

then

as follows:

Pierre Lachaîne - President and CEO

Walt Crosby - VP Policy

Weber - Treasurer and CFO

Cy Webb - Secretary

Cohen - Parliamentarian

Barton K. Hawkins - at large

Rita Nucciarone - at large

Amy Griswold - at large

I want to thank all the moderators for accepting these volunteer

positions

and attending the initial board meeting, and I particularly and

especially

want to thank Cy for doing all the legal legwork, and for handling

the

banking arrangements. Now, at this point, I'm not sure what the total

cost

of doing this will have been exactly, but I do know it would have been

prohibitively-expensive without Cy offering to do this for us for free,

and

others paying for the direct costs. I don't know how I can ever thank

you

enough for this, Cy.

I would also like to say that we would never have gotten to this point

without all the hard work the moderators put into this group, and the

wonderful cooperation of all our members. Before we start accepting

donations to the Foundation, I also want to thank all of you who made it

possible for me to maintain the website until now. It simply would have

folded long ago without your help, and also without the other moderators

to

help me welcome new members and answer questions.

Initially, the main activity of the Foundation will be to operate the

website, but I hope we can take on greater tasks in the future.

Pierre

CEO

Foundation for IgA Nephropathy

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Pierre,

I also want to add my congrats to the creation of the Foundation. I've

been a member of the group for a while and use the site as a very

helpful knowledge base. Congrats again and to you and all the board

members

Dennis

Boston , MA

> As usual, I'm way behind in reading the posts but just wanted to add my

> congratulations to Pierre. I've been a member of this group for a long

> time (although don't post often), and want to thank all the moderators

> for all their hard work. None of this could be possible without them.

>

> Congratulations again Pierre on this wonderful accomplishment.

>

> Curtis in Ontario, Canada

>

>

> It's official! We're the Foundation for IgA Nephropathy.

>

> This is a really momentus day in the life of our support group. I don't

> know

> if I can adequately express the excitement of it in an email like this.

>

> Most of you don't know this, but very early on after I started the

> support

> group back in 2000, it was my intention to form some kind of non-profit

> registered charity for the purpose of running the www.igan.ca website

> and

> possibly eventually contributing to research in the field of IgAN. After

>

> some initial legwork, I never followed through with it, because of the

> costs

> involved in setting it up. I found it was simply prohibitive for me to

> do

> this alone. Donations I received personally only covered my operating

> expenses for the website, and I don't have surplus income I can use for

> these kinds of things.

>

> But the idea was always there, and at some point, and Walt, two of

> our

> earliest moderators and friends, offered to pay the startup costs. By

> that

> point, it was the summer just before I started dialysis, and I decided

> it

> was too big of a hassle for me to do at that time. That was 2002. I

> didn't

> incorporate, but we did carry on with the website and the support group.

>

> Fast forward to a couple of months ago. Cy and gave the idea new

> impetus when they emailed me suggesting we could incorporate as a

> non-profit

> corporation. I still thought it was a great idea and definitely a future

>

> goal, but, with Cy and offering to help realize this dream now, I

> thought the time had come to go ahead and just do it. Now, you have to

> realize, this meant no work for me at all, but a lot of work for Cy,

> acting

> as our legal advisor, and , acting as our treasurer.

>

> Earlier this month, on Sunday, July 3, we held our initial board meeting

> for

> the purpose of adopting bylaws for " The Foundation for IgA Nephropathy "

> and

> electing a board of directors. It took the form of a conference call

> meeting, since we all live in different parts of the U.S. and me in

> Canada.

> We elected a slate of directors that day, and the next step was to

> receive

> official notification from the State of California where we

> incorporated.

>

> I'm very proud to announce to the group that Cy received this in the

> mail

> today, and we are now officially The Foundation for IgA Nephropathy,

> with

> all the rights and responsibilities of a non-profit corporation.

>

> This will change nothing as far as this group goes, as it will continue

> to

> be known as the IgA Nephropathy Support Group. However, rather than

> being

> associated with a companion website run by me personally, as an

> individual,

> www.igan.ca will from now on be operated by the Foundation for IgA

> Nephropathy. As a subscriber to the support group, you all remain just

> that,

> a subscriber to the IgA Nephropathy Support Group on Yahoo Groups. The

> support group will continue to be our main activity in the foreseeable

> future. This is where we do what we do, that is, help people to

> understand

> and to deal with their diagnosis of IgAN, and provide a forum for others

> to

> do so as well.

>

> A few weeks ago I closed the donations page on www.igan.ca pending our

> reorganization as the Foundation. At some point in the near future, once

> we

> have completed the necessary banking arrangements, donations will

> henceforth

> be accepted by the Foundation for IgA Nephropathy.

>

> We decided the board of directors would be comprised of our current

> group of

> active moderators, if they accepted to serve. The slate of directors is

> then

> as follows:

>

> Pierre Lachaîne - President and CEO

> Walt Crosby - VP Policy

> Weber - Treasurer and CFO

> Cy Webb - Secretary

> Cohen - Parliamentarian

> Barton K. Hawkins - at large

> Rita Nucciarone - at large

> Amy Griswold - at large

>

> I want to thank all the moderators for accepting these volunteer

> positions

> and attending the initial board meeting, and I particularly and

> especially

> want to thank Cy for doing all the legal legwork, and for handling

> the

> banking arrangements. Now, at this point, I'm not sure what the total

> cost

> of doing this will have been exactly, but I do know it would have been

> prohibitively-expensive without Cy offering to do this for us for free,

> and

> others paying for the direct costs. I don't know how I can ever thank

> you

> enough for this, Cy.

>

> I would also like to say that we would never have gotten to this point

> without all the hard work the moderators put into this group, and the

> wonderful cooperation of all our members. Before we start accepting

> donations to the Foundation, I also want to thank all of you who made it

>

> possible for me to maintain the website until now. It simply would have

> folded long ago without your help, and also without the other moderators

> to

> help me welcome new members and answer questions.

>

> Initially, the main activity of the Foundation will be to operate the

> website, but I hope we can take on greater tasks in the future.

>

> Pierre

> CEO

> Foundation for IgA Nephropathy

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

> supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>