It's official! We're the Foundation for IgA Nephropathy.

[Guest guest]

This is a really momentus day in the life of our support group. I don't know

if I can adequately express the excitement of it in an email like this.

Most of you don't know this, but very early on after I started the support

group back in 2000, it was my intention to form some kind of non-profit

registered charity for the purpose of running the www.igan.ca website and

possibly eventually contributing to research in the field of IgAN. After

some initial legwork, I never followed through with it, because of the costs

involved in setting it up. I found it was simply prohibitive for me to do

this alone. Donations I received personally only covered my operating

expenses for the website, and I don't have surplus income I can use for

these kinds of things.

But the idea was always there, and at some point, and Walt, two of our

earliest moderators and friends, offered to pay the startup costs. By that

point, it was the summer just before I started dialysis, and I decided it

was too big of a hassle for me to do at that time. That was 2002. I didn't

incorporate, but we did carry on with the website and the support group.

Fast forward to a couple of months ago. Cy and gave the idea new

impetus when they emailed me suggesting we could incorporate as a non-profit

corporation. I still thought it was a great idea and definitely a future

goal, but, with Cy and offering to help realize this dream now, I

thought the time had come to go ahead and just do it. Now, you have to

realize, this meant no work for me at all, but a lot of work for Cy, acting

as our legal advisor, and , acting as our treasurer.

Earlier this month, on Sunday, July 3, we held our initial board meeting for

the purpose of adopting bylaws for " The Foundation for IgA Nephropathy " and

electing a board of directors. It took the form of a conference call

meeting, since we all live in different parts of the U.S. and me in Canada.

We elected a slate of directors that day, and the next step was to receive

official notification from the State of California where we incorporated.

I'm very proud to announce to the group that Cy received this in the mail

today, and we are now officially The Foundation for IgA Nephropathy, with

all the rights and responsibilities of a non-profit corporation.

This will change nothing as far as this group goes, as it will continue to

be known as the IgA Nephropathy Support Group. However, rather than being

associated with a companion website run by me personally, as an individual,

www.igan.ca will from now on be operated by the Foundation for IgA

Nephropathy. As a subscriber to the support group, you all remain just that,

a subscriber to the IgA Nephropathy Support Group on Yahoo Groups. The

support group will continue to be our main activity in the foreseeable

future. This is where we do what we do, that is, help people to understand

and to deal with their diagnosis of IgAN, and provide a forum for others to

do so as well.

A few weeks ago I closed the donations page on www.igan.ca pending our

reorganization as the Foundation. At some point in the near future, once we

have completed the necessary banking arrangements, donations will henceforth

be accepted by the Foundation for IgA Nephropathy.

We decided the board of directors would be comprised of our current group of

active moderators, if they accepted to serve. The slate of directors is then

as follows:

Pierre Lachaîne - President and CEO

Walt Crosby - VP Policy

Weber - Treasurer and CFO

Cy Webb - Secretary

Cohen - Parliamentarian

Barton K. Hawkins - at large

Rita Nucciarone - at large

Amy Griswold - at large

I want to thank all the moderators for accepting these volunteer positions

and attending the initial board meeting, and I particularly and especially

want to thank Cy for doing all the legal legwork, and for handling the

banking arrangements. Now, at this point, I'm not sure what the total cost

of doing this will have been exactly, but I do know it would have been

prohibitively-expensive without Cy offering to do this for us for free, and

others paying for the direct costs. I don't know how I can ever thank you

enough for this, Cy.

I would also like to say that we would never have gotten to this point

without all the hard work the moderators put into this group, and the

wonderful cooperation of all our members. Before we start accepting

donations to the Foundation, I also want to thank all of you who made it

possible for me to maintain the website until now. It simply would have

folded long ago without your help, and also without the other moderators to

help me welcome new members and answer questions.

Initially, the main activity of the Foundation will be to operate the

website, but I hope we can take on greater tasks in the future.

Pierre

CEO

Foundation for IgA Nephropathy

[Guest guest]

To our CEO, Pierre -

Congratulations - what great and exciting news! I remember way back

when you and I were on the old IgAN listserv out of U. of Alberta and

then you started this group. It has grown so impressively and the

various moderators really make a difference with keeping things

moving along and making sure everyone gets replies. Let's hope it

continues to positively impact many lives.

Betsy

[Guest guest]

This is truly a BIG deal!! I have a non-profit born out of the 1994

Northridge Earthquake ( Community Assisting Recovery) and there is no quesiton

that it

takes lots of effort from a community to make a Non-Porfit work.

Personally I would like to thank all of you who participate on this Board. I

am only here to learn becasue my sister has IgaN and I hope to give her a

kidney one day if the Dr's say it's ok. What I learn here every day is

unbelievable, thank you one and all.

Christy

Sister of Cindy

[Guest guest]

Thank you so much Betsy. It means a lot coming from you, one of the very

early members of the group. I learned a lot from you as you went through the

kidney donor experience.

Pierre

Re: It's official! We're the Foundation for IgA Nephropathy.

> To our CEO, Pierre -

> Congratulations - what great and exciting news! I remember way back

> when you and I were on the old IgAN listserv out of U. of Alberta and

> then you started this group. It has grown so impressively and the

> various moderators really make a difference with keeping things

> moving along and making sure everyone gets replies. Let's hope it

> continues to positively impact many lives.

>

> Betsy

>

>

>

[Guest guest]

Well, that's pretty cool

[Guest guest]

Pierre, Cy, ,

Congratulations and a HUGE dose of gratitude for all the time and hard work

you put into this! Pierre, dreams do come true and sometimes it takes a

village!

Blessings, Rita

[Guest guest]

Pierre, , and Cy

Without you this group would not have grown to the level it is at

now. I am humbled to be a part of the early stages of the

Foundation for IgA Nephropathy...feels neat to type that. Thank you

for all you have done, and thanks to all the members who have kept

the IgAN group a supportive and wonderful place to be.

From very hot AZ.

Amy G.

> This is a really momentus day in the life of our support group. I

don't know

> if I can adequately express the excitement of it in an email like

this.

>

> Most of you don't know this, but very early on after I started the

support

> group back in 2000, it was my intention to form some kind of non-

profit

> registered charity for the purpose of running the www.igan.ca

website and

> possibly eventually contributing to research in the field of IgAN.

After

> some initial legwork, I never followed through with it, because of

the costs

> involved in setting it up. I found it was simply prohibitive for

me to do

> this alone. Donations I received personally only covered my

operating

> expenses for the website, and I don't have surplus income I can

use for

> these kinds of things.

>

> But the idea was always there, and at some point, and Walt,

two of our

> earliest moderators and friends, offered to pay the startup costs.

By that

> point, it was the summer just before I started dialysis, and I

decided it

> was too big of a hassle for me to do at that time. That was 2002.

I didn't

> incorporate, but we did carry on with the website and the support

group.

>

> Fast forward to a couple of months ago. Cy and gave the idea

new

> impetus when they emailed me suggesting we could incorporate as a

non-profit

> corporation. I still thought it was a great idea and definitely a

future

> goal, but, with Cy and offering to help realize this dream

now, I

> thought the time had come to go ahead and just do it. Now, you

have to

> realize, this meant no work for me at all, but a lot of work for

Cy, acting

> as our legal advisor, and , acting as our treasurer.

>

> Earlier this month, on Sunday, July 3, we held our initial board

meeting for

> the purpose of adopting bylaws for " The Foundation for IgA

Nephropathy " and

> electing a board of directors. It took the form of a conference

call

> meeting, since we all live in different parts of the U.S. and me

in Canada.

> We elected a slate of directors that day, and the next step was to

receive

> official notification from the State of California where we

incorporated.

>

> I'm very proud to announce to the group that Cy received this in

the mail

> today, and we are now officially The Foundation for IgA

Nephropathy, with

> all the rights and responsibilities of a non-profit corporation.

>

> This will change nothing as far as this group goes, as it will

continue to

> be known as the IgA Nephropathy Support Group. However, rather

than being

> associated with a companion website run by me personally, as an

individual,

> www.igan.ca will from now on be operated by the Foundation for IgA

> Nephropathy. As a subscriber to the support group, you all remain

just that,

> a subscriber to the IgA Nephropathy Support Group on Yahoo Groups.

The

> support group will continue to be our main activity in the

foreseeable

> future. This is where we do what we do, that is, help people to

understand

> and to deal with their diagnosis of IgAN, and provide a forum for

others to

> do so as well.

>

> A few weeks ago I closed the donations page on www.igan.ca pending

our

> reorganization as the Foundation. At some point in the near

future, once we

> have completed the necessary banking arrangements, donations will

henceforth

> be accepted by the Foundation for IgA Nephropathy.

>

> We decided the board of directors would be comprised of our

current group of

> active moderators, if they accepted to serve. The slate of

directors is then

> as follows:

>

> Pierre Lachaîne - President and CEO

> Walt Crosby - VP Policy

> Weber - Treasurer and CFO

> Cy Webb - Secretary

> Cohen - Parliamentarian

> Barton K. Hawkins - at large

> Rita Nucciarone - at large

> Amy Griswold - at large

>

> I want to thank all the moderators for accepting these volunteer

positions

> and attending the initial board meeting, and I particularly and

especially

> want to thank Cy for doing all the legal legwork, and for

handling the

> banking arrangements. Now, at this point, I'm not sure what the

total cost

> of doing this will have been exactly, but I do know it would have

been

> prohibitively-expensive without Cy offering to do this for us for

free, and

> others paying for the direct costs. I don't know how I can ever

thank you

> enough for this, Cy.

>

> I would also like to say that we would never have gotten to this

point

> without all the hard work the moderators put into this group, and

the

> wonderful cooperation of all our members. Before we start

accepting

> donations to the Foundation, I also want to thank all of you who

made it

> possible for me to maintain the website until now. It simply would

have

> folded long ago without your help, and also without the other

moderators to

> help me welcome new members and answer questions.

>

> Initially, the main activity of the Foundation will be to operate

the

> website, but I hope we can take on greater tasks in the future.

>

> Pierre

> CEO

> Foundation for IgA Nephropathy

[Guest guest]

Wonderful new! Congradulations! Thanks to you Pierre, and to all you have

work hard to make this happen. I glad to have found this place and meet all

of you here.

God Bless

Tammy - Blake's mom

It's official! We're the Foundation for IgA Nephropathy.

This is a really momentus day in the life of our support group. I don't know

if I can adequately express the excitement of it in an email like this.

Most of you don't know this, but very early on after I started the support

group back in 2000, it was my intention to form some kind of non-profit

registered charity for the purpose of running the www.igan.ca website and

possibly eventually contributing to research in the field of IgAN. After

some initial legwork, I never followed through with it, because of the costs

involved in setting it up. I found it was simply prohibitive for me to do

this alone. Donations I received personally only covered my operating

expenses for the website, and I don't have surplus income I can use for

these kinds of things.

But the idea was always there, and at some point, and Walt, two of our

earliest moderators and friends, offered to pay the startup costs. By that

point, it was the summer just before I started dialysis, and I decided it

was too big of a hassle for me to do at that time. That was 2002. I didn't

incorporate, but we did carry on with the website and the support group.

Fast forward to a couple of months ago. Cy and gave the idea new

impetus when they emailed me suggesting we could incorporate as a non-profit

corporation. I still thought it was a great idea and definitely a future

goal, but, with Cy and offering to help realize this dream now, I

thought the time had come to go ahead and just do it. Now, you have to

realize, this meant no work for me at all, but a lot of work for Cy, acting

as our legal advisor, and , acting as our treasurer.

Earlier this month, on Sunday, July 3, we held our initial board meeting for

the purpose of adopting bylaws for " The Foundation for IgA Nephropathy " and

electing a board of directors. It took the form of a conference call

meeting, since we all live in different parts of the U.S. and me in Canada.

We elected a slate of directors that day, and the next step was to receive

official notification from the State of California where we incorporated.

I'm very proud to announce to the group that Cy received this in the mail

today, and we are now officially The Foundation for IgA Nephropathy, with

all the rights and responsibilities of a non-profit corporation.

This will change nothing as far as this group goes, as it will continue to

be known as the IgA Nephropathy Support Group. However, rather than being

associated with a companion website run by me personally, as an individual,

www.igan.ca will from now on be operated by the Foundation for IgA

Nephropathy. As a subscriber to the support group, you all remain just that,

a subscriber to the IgA Nephropathy Support Group on Yahoo Groups. The

support group will continue to be our main activity in the foreseeable

future. This is where we do what we do, that is, help people to understand

and to deal with their diagnosis of IgAN, and provide a forum for others to

do so as well.

A few weeks ago I closed the donations page on www.igan.ca pending our

reorganization as the Foundation. At some point in the near future, once we

have completed the necessary banking arrangements, donations will henceforth

be accepted by the Foundation for IgA Nephropathy.

We decided the board of directors would be comprised of our current group of

active moderators, if they accepted to serve. The slate of directors is then

as follows:

Pierre Lachaîne - President and CEO

Walt Crosby - VP Policy

Weber - Treasurer and CFO

Cy Webb - Secretary

Cohen - Parliamentarian

Barton K. Hawkins - at large

Rita Nucciarone - at large

Amy Griswold - at large

I want to thank all the moderators for accepting these volunteer positions

and attending the initial board meeting, and I particularly and especially

want to thank Cy for doing all the legal legwork, and for handling the

banking arrangements. Now, at this point, I'm not sure what the total cost

of doing this will have been exactly, but I do know it would have been

prohibitively-expensive without Cy offering to do this for us for free, and

others paying for the direct costs. I don't know how I can ever thank you

enough for this, Cy.

I would also like to say that we would never have gotten to this point

without all the hard work the moderators put into this group, and the

wonderful cooperation of all our members. Before we start accepting

donations to the Foundation, I also want to thank all of you who made it

possible for me to maintain the website until now. It simply would have

folded long ago without your help, and also without the other moderators to

help me welcome new members and answer questions.

Initially, the main activity of the Foundation will be to operate the

website, but I hope we can take on greater tasks in the future.

Pierre

CEO

Foundation for IgA Nephropathy

To edit your settings for the group, go to our Yahoo Group home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Pierre,

Lately I have been lurking around in the group. But

this is the most wonderful news. I could not resist

replying to this one.I am very very happy and proud of

you guys.

Though everything remains the same , it is a new

beginning for all of us who are part of this family.

Thanks to you and all of you guys in the group. It is

really a huge support to all of us.

Aruna

>

> It's official! We're the Foundation

> for IgA Nephropathy.

>

> This is a really momentus day in the life of our

> support group. I don't know

> if I can adequately express the excitement of it in

> an email like this.

>

> Most of you don't know this, but very early on after

> I started the support

> group back in 2000, it was my intention to form some

> kind of non-profit

> registered charity for the purpose of running the

> www.igan.ca website and

> possibly eventually contributing to research in the

> field of IgAN. After

> some initial legwork, I never followed through with

> it, because of the costs

> involved in setting it up. I found it was simply

> prohibitive for me to do

> this alone. Donations I received personally only

> covered my operating

> expenses for the website, and I don't have surplus

> income I can use for

> these kinds of things.

>

> But the idea was always there, and at some point,

> and Walt, two of our

> earliest moderators and friends, offered to pay the

> startup costs. By that

> point, it was the summer just before I started

> dialysis, and I decided it

> was too big of a hassle for me to do at that time.

> That was 2002. I didn't

> incorporate, but we did carry on with the website

> and the support group.

>

> Fast forward to a couple of months ago. Cy and

> gave the idea new

> impetus when they emailed me suggesting we could

> incorporate as a non-profit

> corporation. I still thought it was a great idea and

> definitely a future

> goal, but, with Cy and offering to help

> realize this dream now, I

> thought the time had come to go ahead and just do

> it. Now, you have to

> realize, this meant no work for me at all, but a lot

> of work for Cy, acting

> as our legal advisor, and , acting as our

> treasurer.

>

> Earlier this month, on Sunday, July 3, we held our

> initial board meeting for

> the purpose of adopting bylaws for " The Foundation

> for IgA Nephropathy " and

> electing a board of directors. It took the form of a

> conference call

> meeting, since we all live in different parts of the

> U.S. and me in Canada.

> We elected a slate of directors that day, and the

> next step was to receive

> official notification from the State of California

> where we incorporated.

>

> I'm very proud to announce to the group that Cy

> received this in the mail

> today, and we are now officially The Foundation for

> IgA Nephropathy, with

> all the rights and responsibilities of a non-profit

> corporation.

>

> This will change nothing as far as this group goes,

> as it will continue to

> be known as the IgA Nephropathy Support Group.

> However, rather than being

> associated with a companion website run by me

> personally, as an individual,

> www.igan.ca will from now on be operated by the

> Foundation for IgA

> Nephropathy. As a subscriber to the support group,

> you all remain just that,

> a subscriber to the IgA Nephropathy Support Group on

> Yahoo Groups. The

> support group will continue to be our main activity

> in the foreseeable

> future. This is where we do what we do, that is,

> help people to understand

> and to deal with their diagnosis of IgAN, and

> provide a forum for others to

> do so as well.

>

> A few weeks ago I closed the donations page on

> www.igan.ca pending our

> reorganization as the Foundation. At some point in

> the near future, once we

> have completed the necessary banking arrangements,

> donations will henceforth

> be accepted by the Foundation for IgA Nephropathy.

>

> We decided the board of directors would be comprised

> of our current group of

> active moderators, if they accepted to serve. The

> slate of directors is then

> as follows:

>

> Pierre Lachaîne - President and CEO

> Walt Crosby - VP Policy

> Weber - Treasurer and CFO

> Cy Webb - Secretary

> Cohen - Parliamentarian

> Barton K. Hawkins - at large

> Rita Nucciarone - at large

> Amy Griswold - at large

>

> I want to thank all the moderators for accepting

> these volunteer positions

> and attending the initial board meeting, and I

> particularly and especially

> want to thank Cy for doing all the legal legwork,

> and for handling the

> banking arrangements. Now, at this point, I'm not

> sure what the total cost

> of doing this will have been exactly, but I do know

> it would have been

> prohibitively-expensive without Cy offering to do

> this for us for free, and

> others paying for the direct costs. I don't know how

> I can ever thank you

> enough for this, Cy.

>

> I would also like to say that we would never have

> gotten to this point

> without all the hard work the moderators put into

> this group, and the

> wonderful cooperation of all our members. Before we

> start accepting

> donations to the Foundation, I also want to thank

> all of you who made it

> possible for me to maintain the website until now.

> It simply would have

> folded long ago without your help, and also without

> the other moderators to

> help me welcome new members and answer questions.

>

> Initially, the main activity of the Foundation will

> be to operate the

> website, but I hope we can take on greater tasks in

> the future.

>

> Pierre

> CEO

> Foundation for IgA Nephropathy

>

>

>

> To edit your settings for the group, go to our Yahoo

> Group home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site

> is entirely supported

> by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

[Guest guest]

Congratulations and thank you to all of you!

Elaine Swiontak

mom to , 13

> This is a really momentus day in the life of our support group. I

don't know

> if I can adequately express the excitement of it in an email like

this.

>

> Most of you don't know this, but very early on after I started the

support

> group back in 2000, it was my intention to form some kind of non-

profit

> registered charity for the purpose of running the www.igan.ca

website and

> possibly eventually contributing to research in the field of IgAN.

After

> some initial legwork, I never followed through with it, because of

the costs

> involved in setting it up. I found it was simply prohibitive for me

to do

> this alone. Donations I received personally only covered my

operating

> expenses for the website, and I don't have surplus income I can use

for

> these kinds of things.

>

> But the idea was always there, and at some point, and Walt,

two of our

> earliest moderators and friends, offered to pay the startup costs.

By that

> point, it was the summer just before I started dialysis, and I

decided it

> was too big of a hassle for me to do at that time. That was 2002. I

didn't

> incorporate, but we did carry on with the website and the support

group.

>

> Fast forward to a couple of months ago. Cy and gave the idea

new

> impetus when they emailed me suggesting we could incorporate as a

non-profit

> corporation. I still thought it was a great idea and definitely a

future

> goal, but, with Cy and offering to help realize this dream

now, I

> thought the time had come to go ahead and just do it. Now, you have

to

> realize, this meant no work for me at all, but a lot of work for

Cy, acting

> as our legal advisor, and , acting as our treasurer.

>

> Earlier this month, on Sunday, July 3, we held our initial board

meeting for

> the purpose of adopting bylaws for " The Foundation for IgA

Nephropathy " and

> electing a board of directors. It took the form of a conference

call

> meeting, since we all live in different parts of the U.S. and me in

Canada.

> We elected a slate of directors that day, and the next step was to

receive

> official notification from the State of California where we

incorporated.

>

> I'm very proud to announce to the group that Cy received this in

the mail

> today, and we are now officially The Foundation for IgA

Nephropathy, with

> all the rights and responsibilities of a non-profit corporation.

>

> This will change nothing as far as this group goes, as it will

continue to

> be known as the IgA Nephropathy Support Group. However, rather than

being

> associated with a companion website run by me personally, as an

individual,

> www.igan.ca will from now on be operated by the Foundation for IgA

> Nephropathy. As a subscriber to the support group, you all remain

just that,

> a subscriber to the IgA Nephropathy Support Group on Yahoo Groups.

The

> support group will continue to be our main activity in the

foreseeable

> future. This is where we do what we do, that is, help people to

understand

> and to deal with their diagnosis of IgAN, and provide a forum for

others to

> do so as well.

>

> A few weeks ago I closed the donations page on www.igan.ca pending

our

> reorganization as the Foundation. At some point in the near future,

once we

> have completed the necessary banking arrangements, donations will

henceforth

> be accepted by the Foundation for IgA Nephropathy.

>

> We decided the board of directors would be comprised of our current

group of

> active moderators, if they accepted to serve. The slate of

directors is then

> as follows:

>

> Pierre Lachaîne - President and CEO

> Walt Crosby - VP Policy

> Weber - Treasurer and CFO

> Cy Webb - Secretary

> Cohen - Parliamentarian

> Barton K. Hawkins - at large

> Rita Nucciarone - at large

> Amy Griswold - at large

>

> I want to thank all the moderators for accepting these volunteer

positions

> and attending the initial board meeting, and I particularly and

especially

> want to thank Cy for doing all the legal legwork, and for

handling the

> banking arrangements. Now, at this point, I'm not sure what the

total cost

> of doing this will have been exactly, but I do know it would have

been

> prohibitively-expensive without Cy offering to do this for us for

free, and

> others paying for the direct costs. I don't know how I can ever

thank you

> enough for this, Cy.

>

> I would also like to say that we would never have gotten to this

point

> without all the hard work the moderators put into this group, and

the

> wonderful cooperation of all our members. Before we start accepting

> donations to the Foundation, I also want to thank all of you who

made it

> possible for me to maintain the website until now. It simply would

have

> folded long ago without your help, and also without the other

moderators to

> help me welcome new members and answer questions.

>

> Initially, the main activity of the Foundation will be to operate

the

> website, but I hope we can take on greater tasks in the future.

>

> Pierre

> CEO

> Foundation for IgA Nephropathy

[Guest guest]

Congratulations to you Pierre and the rest of the board members!! I

am so grateful for all of you. The support, information, and

inspiration each of you provide is invaluable. Thank you for all

the time and effort you have poured into this site and in answering

the many questions of newcomers like me. It's amazing how much it has

grown since 2000. Thanks for sharing your lives and experience with

the rest of us. So many benefit as a result.

With gratitude,

B., mom to Elisabet, 13

> This is a really momentus day in the life of our support group. I

> don't know if I can adequately express the excitement of it in an

> email like this.

>

[Guest guest]

Congratulations! This is really wonderful news.

If there is anything I can do to help at the new foundation, please do

let me know.

Thanks

-Satya

> This is a really momentus day in the life of our support group. I

don't know

> if I can adequately express the excitement of it in an email like

this.

>

> Most of you don't know this, but very early on after I started the

support

> group back in 2000, it was my intention to form some kind of non-

profit

> registered charity for the purpose of running the www.igan.ca

website and

> possibly eventually contributing to research in the field of IgAN.

After

> some initial legwork, I never followed through with it, because of

the costs

> involved in setting it up. I found it was simply prohibitive for me

to do

> this alone. Donations I received personally only covered my

operating

> expenses for the website, and I don't have surplus income I can use

for

> these kinds of things.

>

> But the idea was always there, and at some point, and Walt,

two of our

> earliest moderators and friends, offered to pay the startup costs.

By that

> point, it was the summer just before I started dialysis, and I

decided it

> was too big of a hassle for me to do at that time. That was 2002. I

didn't

> incorporate, but we did carry on with the website and the support

group.

>

> Fast forward to a couple of months ago. Cy and gave the idea

new

> impetus when they emailed me suggesting we could incorporate as a

non-profit

> corporation. I still thought it was a great idea and definitely a

future

> goal, but, with Cy and offering to help realize this dream

now, I

> thought the time had come to go ahead and just do it. Now, you have

to

> realize, this meant no work for me at all, but a lot of work for Cy,

acting

> as our legal advisor, and , acting as our treasurer.

>

> Earlier this month, on Sunday, July 3, we held our initial board

meeting for

> the purpose of adopting bylaws for " The Foundation for IgA

Nephropathy " and

> electing a board of directors. It took the form of a conference call

> meeting, since we all live in different parts of the U.S. and me in

Canada.

> We elected a slate of directors that day, and the next step was to

receive

> official notification from the State of California where we

incorporated.

>

> I'm very proud to announce to the group that Cy received this in the

mail

> today, and we are now officially The Foundation for IgA Nephropathy,

with

> all the rights and responsibilities of a non-profit corporation.

>

> This will change nothing as far as this group goes, as it will

continue to

> be known as the IgA Nephropathy Support Group. However, rather than

being

> associated with a companion website run by me personally, as an

individual,

> www.igan.ca will from now on be operated by the Foundation for IgA

> Nephropathy. As a subscriber to the support group, you all remain

just that,

> a subscriber to the IgA Nephropathy Support Group on Yahoo Groups.

The

> support group will continue to be our main activity in the

foreseeable

> future. This is where we do what we do, that is, help people to

understand

> and to deal with their diagnosis of IgAN, and provide a forum for

others to

> do so as well.

>

> A few weeks ago I closed the donations page on www.igan.ca pending

our

> reorganization as the Foundation. At some point in the near future,

once we

> have completed the necessary banking arrangements, donations will

henceforth

> be accepted by the Foundation for IgA Nephropathy.

>

> We decided the board of directors would be comprised of our current

group of

> active moderators, if they accepted to serve. The slate of directors

is then

> as follows:

>

> Pierre Lachaîne - President and CEO

> Walt Crosby - VP Policy

> Weber - Treasurer and CFO

> Cy Webb - Secretary

> Cohen - Parliamentarian

> Barton K. Hawkins - at large

> Rita Nucciarone - at large

> Amy Griswold - at large

>

> I want to thank all the moderators for accepting these volunteer

positions

> and attending the initial board meeting, and I particularly and

especially

> want to thank Cy for doing all the legal legwork, and for

handling the

> banking arrangements. Now, at this point, I'm not sure what the

total cost

> of doing this will have been exactly, but I do know it would have

been

> prohibitively-expensive without Cy offering to do this for us for

free, and

> others paying for the direct costs. I don't know how I can ever

thank you

> enough for this, Cy.

>

> I would also like to say that we would never have gotten to this

point

> without all the hard work the moderators put into this group, and

the

> wonderful cooperation of all our members. Before we start accepting

> donations to the Foundation, I also want to thank all of you who

made it

> possible for me to maintain the website until now. It simply would

have

> folded long ago without your help, and also without the other

moderators to

> help me welcome new members and answer questions.

>

> Initially, the main activity of the Foundation will be to operate

the

> website, but I hope we can take on greater tasks in the future.

>

> Pierre

> CEO

> Foundation for IgA Nephropathy

[Guest guest]

I just wanted to jump in and say congratulations and a great big thank you

also, to Pierre, Walt, , Cy, , Barton, Rita and Amy G for all you

have done for us that have had Igan invade our lives. Like so many others

here, you all have been such a blessing for my sanity with the learning and

everyday coping with the dreaded Igan. I have learned, and I am still

learning so much from all of you that has tremendously helped me through

many days of confusion with my child's unexpected diagnosis.

Words just can not express my personal gratitude.

May God Bless you all for all your past hard work and continued support.

Sorry I have been quiet lately, lots going on here. I do read all the post

daily, and for all of you that have had not so good news and all the

newcomers here my prayers are with you, for all of you that have received

good news, congratulations and keep up the good work.

Jennell is going through what I am guessing is denial on her Igan and

although things have been happening with it, headaches, joint pain and now a

new breakout with her HSP and her dreadful nasty attitude she refuses to let

me call the doctor or go see him until her next appointment on August 5th.

I was also in a serious car accident where I was driving my pregnant friend

home from a doctors appointment when we got re-ended on the highway, sadly

she lost the baby from it and although it was not my fault I am just so sick

over it and trying to deal with that. Please know that although I have been

quiet my prayers are still with all of you.

God Bless everyone here

Cathy......Jennell's Mom

[Guest guest]

Cathy:

My thoughts and prayers are with you too. Please know that denial is part of

this whole process and is totally normal. And as for the accident, you do need

to realize that it was not your fault, and I hope that you and your friend can

grieve the loss.

Cathy Waelty cwaelty@...> wrote:

I just wanted to jump in and say congratulations and a great big thank you

also, to Pierre, Walt, , Cy, , Barton, Rita and Amy G for all you

have done for us that have had Igan invade our lives. Like so many others

here, you all have been such a blessing for my sanity with the learning and

everyday coping with the dreaded Igan. I have learned, and I am still

learning so much from all of you that has tremendously helped me through

many days of confusion with my child's unexpected diagnosis.

Words just can not express my personal gratitude.

May God Bless you all for all your past hard work and continued support.

Sorry I have been quiet lately, lots going on here. I do read all the post

daily, and for all of you that have had not so good news and all the

newcomers here my prayers are with you, for all of you that have received

good news, congratulations and keep up the good work.

Jennell is going through what I am guessing is denial on her Igan and

although things have been happening with it, headaches, joint pain and now a

new breakout with her HSP and her dreadful nasty attitude she refuses to let

me call the doctor or go see him until her next appointment on August 5th.

I was also in a serious car accident where I was driving my pregnant friend

home from a doctors appointment when we got re-ended on the highway, sadly

she lost the baby from it and although it was not my fault I am just so sick

over it and trying to deal with that. Please know that although I have been

quiet my prayers are still with all of you.

God Bless everyone here

Cathy......Jennell's Mom

[Guest guest]

Thank you ,

I do realize that denial is part of the process, I guess I am having trouble

because she is only 16 yrs old and I am afraid that she may be hurting

herself and being her Mom I have a responsibility to get her the appropriate

health care but I know I can't force her to go to the doctors. I guess I

just need to wait until the 6th for her follow up appointment with her Neph

and speak to him about her stubbornness.

Thank you for your prayers

God Bless you

Cathy..Jennell's Mom

_____

From: iga-nephropathy

[mailto:iga-nephropathy ] On Behalf Of Cohen

Sent: Monday, July 25, 2005 3:47 PM

To: iga-nephropathy

Subject: RE: It's official! We're the Foundation for IgA Nephropathy.

Cathy:

My thoughts and prayers are with you too. Please know that denial is part of

this whole process and is totally normal. And as for the accident, you do

need to realize that it was not your fault, and I hope that you and your

friend can grieve the loss.

Cathy Waelty cwaelty@...> wrote:

I just wanted to jump in and say congratulations and a great big thank you

also, to Pierre, Walt, , Cy, , Barton, Rita and Amy G for all you

have done for us that have had Igan invade our lives. Like so many others

here, you all have been such a blessing for my sanity with the learning and

everyday coping with the dreaded Igan. I have learned, and I am still

learning so much from all of you that has tremendously helped me through

many days of confusion with my child's unexpected diagnosis.

Words just can not express my personal gratitude.

May God Bless you all for all your past hard work and continued support.

Sorry I have been quiet lately, lots going on here. I do read all the post

daily, and for all of you that have had not so good news and all the

newcomers here my prayers are with you, for all of you that have received

good news, congratulations and keep up the good work.

Jennell is going through what I am guessing is denial on her Igan and

although things have been happening with it, headaches, joint pain and now a

new breakout with her HSP and her dreadful nasty attitude she refuses to let

me call the doctor or go see him until her next appointment on August 5th.

I was also in a serious car accident where I was driving my pregnant friend

home from a doctors appointment when we got re-ended on the highway, sadly

she lost the baby from it and although it was not my fault I am just so sick

over it and trying to deal with that. Please know that although I have been

quiet my prayers are still with all of you.

God Bless everyone here

Cathy......Jennell's Mom

[Guest guest]

Pierre,

I have to really stop to thank you for being our founding father. None of

this would have happened without your original vision to start a site to

educate and support those of us whose lives are touched by IgAN.

We all owe a debt of gratitude to you for all the work you did building

these two sites, and secondly to Cy without whose generous gift of her legal

skills this also would not have happened!

This is an exciting chapter in our history.

Thank you both for all you have done to make it possible!

In a message dated 7/23/2005 4:29:07 P.M. Pacific Daylight Time,

pgl-groups@... writes:

This is a really momentus day in the life of our support group. I don't know

if I can adequately express the excitement of it in an email like this.

Most of you don't know this, but very early on after I started the support

group back in 2000, it was my intention to form some kind of non-profit

registered charity for the purpose of running the www.igan.ca website and

possibly eventually contributing to research in the field of IgAN. After

some initial legwork, I never followed through with it, because of the costs

involved in setting it up. I found it was simply prohibitive for me to do

this alone. Donations I received personally only covered my operating

expenses for the website, and I don't have surplus income I can use for

these kinds of things.

But the idea was always there, and at some point, and Walt, two of our

earliest moderators and friends, offered to pay the startup costs. By that

point, it was the summer just before I started dialysis, and I decided it

was too big of a hassle for me to do at that time. That was 2002. I didn't

incorporate, but we did carry on with the website and the support group.

Fast forward to a couple of months ago. Cy and gave the idea new

impetus when they emailed me suggesting we could incorporate as a non-profit

corporation. I still thought it was a great idea and definitely a future

goal, but, with Cy and offering to help realize this dream now, I

thought the time had come to go ahead and just do it. Now, you have to

realize, this meant no work for me at all, but a lot of work for Cy, acting

as our legal advisor, and , acting as our treasurer.

Earlier this month, on Sunday, July 3, we held our initial board meeting for

the purpose of adopting bylaws for " The Foundation for IgA Nephropathy " and

electing a board of directors. It took the form of a conference call

meeting, since we all live in different parts of the U.S. and me in Canada.

We elected a slate of directors that day, and the next step was to receive

official notification from the State of California where we incorporated.

I'm very proud to announce to the group that Cy received this in the mail

today, and we are now officially The Foundation for IgA Nephropathy, with

all the rights and responsibilities of a non-profit corporation.

This will change nothing as far as this group goes, as it will continue to

be known as the IgA Nephropathy Support Group. However, rather than being

associated with a companion website run by me personally, as an individual,

www.igan.ca will from now on be operated by the Foundation for IgA

Nephropathy. As a subscriber to the support group, you all remain just that,

a subscriber to the IgA Nephropathy Support Group on Yahoo Groups. The

support group will continue to be our main activity in the foreseeable

future. This is where we do what we do, that is, help people to understand

and to deal with their diagnosis of IgAN, and provide a forum for others to

do so as well.

A few weeks ago I closed the donations page on www.igan.ca pending our

reorganization as the Foundation. At some point in the near future, once we

have completed the necessary banking arrangements, donations will henceforth

be accepted by the Foundation for IgA Nephropathy.

We decided the board of directors would be comprised of our current group of

active moderators, if they accepted to serve. The slate of directors is then

as follows:

[Guest guest]

Hi Amy,

I am glad you checked in from AZ. I have been concerned about your

headaches. Are they any better with you being away and hopefully a little more

relaxed?

I hope you are enjoying your vacation.

In a message dated 7/24/2005 3:18:59 P.M. Pacific Daylight Time,

purrfect@... writes:

From very hot AZ.

Amy G.

[Guest guest]

Dear Cathy,

I am just so sorry both for the loss of your friend's baby and also that

Jennell is going through a flare up. I do pray both you and your friend will

feel the Lord's comfort as you grieve the loss of her baby. If you were

rear-ended, it cannot possibly be your fault. I hope you can feel our prayers

as

you work through this difficult time.

Please do call Jennell's Nephrologist. If she is in a state of denial, her

doctor still needs to know she is in the midst of a flare up.

God bless you!

In a message dated 7/25/2005 9:55:00 A.M. Pacific Daylight Time,

cwaelty@... writes:

Sorry I have been quiet lately, lots going on here. I do read all the post

daily, and for all of you that have had not so good news and all the

newcomers here my prayers are with you, for all of you that have received

good news, congratulations and keep up the good work.

Jennell is going through what I am guessing is denial on her Igan and

although things have been happening with it, headaches, joint pain and now a

new breakout with her HSP and her dreadful nasty attitude she refuses to let

me call the doctor or go see him until her next appointment on August 5th.

I was also in a serious car accident where I was driving my pregnant friend

home from a doctors appointment when we got re-ended on the highway, sadly

she lost the baby from it and although it was not my fault I am just so sick

over it and trying to deal with that. Please know that although I have been

quiet my prayers are still with all of you.

God Bless everyone here

Cathy......Jennell's Mom

[Guest guest]

Pierre, , Cy thank you so much for everything that you guys/gals do. I just

got to read some post and was so happy to see this email. This group has had a

huge impact on the way I deal with my disease and my life and you all are an

inspiration. This group has been like a second family for me and everyone means

the world to me. Thanks again for everyone that helps answer questions and

shares their story... It's nice Not feeling alone anymore when dealing with a

life with chronic diseases. Love to everyone. Jill H.

Pierre Lachaine pgl-groups@...> wrote:This is a really momentus day in

the life of our support group. I don't know

if I can adequately express the excitement of it in an email like this.

Most of you don't know this, but very early on after I started the support

group back in 2000, it was my intention to form some kind of non-profit

registered charity for the purpose of running the www.igan.ca website and

possibly eventually contributing to research in the field of IgAN. After

some initial legwork, I never followed through with it, because of the costs

involved in setting it up. I found it was simply prohibitive for me to do

this alone. Donations I received personally only covered my operating

expenses for the website, and I don't have surplus income I can use for

these kinds of things.

But the idea was always there, and at some point, and Walt, two of our

earliest moderators and friends, offered to pay the startup costs. By that

point, it was the summer just before I started dialysis, and I decided it

was too big of a hassle for me to do at that time. That was 2002. I didn't

incorporate, but we did carry on with the website and the support group.

Fast forward to a couple of months ago. Cy and gave the idea new

impetus when they emailed me suggesting we could incorporate as a non-profit

corporation. I still thought it was a great idea and definitely a future

goal, but, with Cy and offering to help realize this dream now, I

thought the time had come to go ahead and just do it. Now, you have to

realize, this meant no work for me at all, but a lot of work for Cy, acting

as our legal advisor, and , acting as our treasurer.

Earlier this month, on Sunday, July 3, we held our initial board meeting for

the purpose of adopting bylaws for " The Foundation for IgA Nephropathy " and

electing a board of directors. It took the form of a conference call

meeting, since we all live in different parts of the U.S. and me in Canada.

We elected a slate of directors that day, and the next step was to receive

official notification from the State of California where we incorporated.

I'm very proud to announce to the group that Cy received this in the mail

today, and we are now officially The Foundation for IgA Nephropathy, with

all the rights and responsibilities of a non-profit corporation.

This will change nothing as far as this group goes, as it will continue to

be known as the IgA Nephropathy Support Group. However, rather than being

associated with a companion website run by me personally, as an individual,

www.igan.ca will from now on be operated by the Foundation for IgA

Nephropathy. As a subscriber to the support group, you all remain just that,

a subscriber to the IgA Nephropathy Support Group on Yahoo Groups. The

support group will continue to be our main activity in the foreseeable

future. This is where we do what we do, that is, help people to understand

and to deal with their diagnosis of IgAN, and provide a forum for others to

do so as well.

A few weeks ago I closed the donations page on www.igan.ca pending our

reorganization as the Foundation. At some point in the near future, once we

have completed the necessary banking arrangements, donations will henceforth

be accepted by the Foundation for IgA Nephropathy.

We decided the board of directors would be comprised of our current group of

active moderators, if they accepted to serve. The slate of directors is then

as follows:

Pierre Lachaîne - President and CEO

Walt Crosby - VP Policy

Weber - Treasurer and CFO

Cy Webb - Secretary

Cohen - Parliamentarian

Barton K. Hawkins - at large

Rita Nucciarone - at large

Amy Griswold - at large

I want to thank all the moderators for accepting these volunteer positions

and attending the initial board meeting, and I particularly and especially

want to thank Cy for doing all the legal legwork, and for handling the

banking arrangements. Now, at this point, I'm not sure what the total cost

of doing this will have been exactly, but I do know it would have been

prohibitively-expensive without Cy offering to do this for us for free, and

others paying for the direct costs. I don't know how I can ever thank you

enough for this, Cy.

I would also like to say that we would never have gotten to this point

without all the hard work the moderators put into this group, and the

wonderful cooperation of all our members. Before we start accepting

donations to the Foundation, I also want to thank all of you who made it

possible for me to maintain the website until now. It simply would have

folded long ago without your help, and also without the other moderators to

help me welcome new members and answer questions.

Initially, the main activity of the Foundation will be to operate the

website, but I hope we can take on greater tasks in the future.

Pierre

CEO

Foundation for IgA Nephropathy

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi Pierre, I just wanted to say congratulations!!!! This must be so exciting

for you. I am so happy for you and all the others who helped to make this

possible to have such a wonderful support group for everyone who has to be here.

I am so gratefull to you all!

Pierre Lachaine pgl-groups@...> wrote:This is a really momentus day in

the life of our support group. I don't know

if I can adequately express the excitement of it in an email like this.

Most of you don't know this, but very early on after I started the support

group back in 2000, it was my intention to form some kind of non-profit

registered charity for the purpose of running the www.igan.ca website and

possibly eventually contributing to research in the field of IgAN. After

some initial legwork, I never followed through with it, because of the costs

involved in setting it up. I found it was simply prohibitive for me to do

this alone. Donations I received personally only covered my operating

expenses for the website, and I don't have surplus income I can use for

these kinds of things.

But the idea was always there, and at some point, and Walt, two of our

earliest moderators and friends, offered to pay the startup costs. By that

point, it was the summer just before I started dialysis, and I decided it

was too big of a hassle for me to do at that time. That was 2002. I didn't

incorporate, but we did carry on with the website and the support group.

Fast forward to a couple of months ago. Cy and gave the idea new

impetus when they emailed me suggesting we could incorporate as a non-profit

corporation. I still thought it was a great idea and definitely a future

goal, but, with Cy and offering to help realize this dream now, I

thought the time had come to go ahead and just do it. Now, you have to

realize, this meant no work for me at all, but a lot of work for Cy, acting

as our legal advisor, and , acting as our treasurer.

Earlier this month, on Sunday, July 3, we held our initial board meeting for

the purpose of adopting bylaws for " The Foundation for IgA Nephropathy " and

electing a board of directors. It took the form of a conference call

meeting, since we all live in different parts of the U.S. and me in Canada.

We elected a slate of directors that day, and the next step was to receive

official notification from the State of California where we incorporated.

I'm very proud to announce to the group that Cy received this in the mail

today, and we are now officially The Foundation for IgA Nephropathy, with

all the rights and responsibilities of a non-profit corporation.

This will change nothing as far as this group goes, as it will continue to

be known as the IgA Nephropathy Support Group. However, rather than being

associated with a companion website run by me personally, as an individual,

www.igan.ca will from now on be operated by the Foundation for IgA

Nephropathy. As a subscriber to the support group, you all remain just that,

a subscriber to the IgA Nephropathy Support Group on Yahoo Groups. The

support group will continue to be our main activity in the foreseeable

future. This is where we do what we do, that is, help people to understand

and to deal with their diagnosis of IgAN, and provide a forum for others to

do so as well.

A few weeks ago I closed the donations page on www.igan.ca pending our

reorganization as the Foundation. At some point in the near future, once we

have completed the necessary banking arrangements, donations will henceforth

be accepted by the Foundation for IgA Nephropathy.

We decided the board of directors would be comprised of our current group of

active moderators, if they accepted to serve. The slate of directors is then

as follows:

Pierre Lachaîne - President and CEO

Walt Crosby - VP Policy

Weber - Treasurer and CFO

Cy Webb - Secretary

Cohen - Parliamentarian

Barton K. Hawkins - at large

Rita Nucciarone - at large

Amy Griswold - at large

I want to thank all the moderators for accepting these volunteer positions

and attending the initial board meeting, and I particularly and especially

want to thank Cy for doing all the legal legwork, and for handling the

banking arrangements. Now, at this point, I'm not sure what the total cost

of doing this will have been exactly, but I do know it would have been

prohibitively-expensive without Cy offering to do this for us for free, and

others paying for the direct costs. I don't know how I can ever thank you

enough for this, Cy.

I would also like to say that we would never have gotten to this point

without all the hard work the moderators put into this group, and the

wonderful cooperation of all our members. Before we start accepting

donations to the Foundation, I also want to thank all of you who made it

possible for me to maintain the website until now. It simply would have

folded long ago without your help, and also without the other moderators to

help me welcome new members and answer questions.

Initially, the main activity of the Foundation will be to operate the

website, but I hope we can take on greater tasks in the future.

Pierre

CEO

Foundation for IgA Nephropathy

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Wonderful news!

Thanks for everything, Pierre!

It's official! We're the Foundation for IgA Nephropathy.

This is a really momentus day in the life of our support group. I don't know

if I can adequately express the excitement of it in an email like this.

Most of you don't know this, but very early on after I started the support

group back in 2000, it was my intention to form some kind of non-profit

registered charity for the purpose of running the www.igan.ca website and

possibly eventually contributing to research in the field of IgAN. After

some initial legwork, I never followed through with it, because of the costs

involved in setting it up. I found it was simply prohibitive for me to do

this alone. Donations I received personally only covered my operating

expenses for the website, and I don't have surplus income I can use for

these kinds of things.

But the idea was always there, and at some point, and Walt, two of our

earliest moderators and friends, offered to pay the startup costs. By that

point, it was the summer just before I started dialysis, and I decided it

was too big of a hassle for me to do at that time. That was 2002. I didn't

incorporate, but we did carry on with the website and the support group.

Fast forward to a couple of months ago. Cy and gave the idea new

impetus when they emailed me suggesting we could incorporate as a non-profit

corporation. I still thought it was a great idea and definitely a future

goal, but, with Cy and offering to help realize this dream now, I

thought the time had come to go ahead and just do it. Now, you have to

realize, this meant no work for me at all, but a lot of work for Cy, acting

as our legal advisor, and , acting as our treasurer.

Earlier this month, on Sunday, July 3, we held our initial board meeting for

the purpose of adopting bylaws for " The Foundation for IgA Nephropathy " and

electing a board of directors. It took the form of a conference call

meeting, since we all live in different parts of the U.S. and me in Canada.

We elected a slate of directors that day, and the next step was to receive

official notification from the State of California where we incorporated.

I'm very proud to announce to the group that Cy received this in the mail

today, and we are now officially The Foundation for IgA Nephropathy, with

all the rights and responsibilities of a non-profit corporation.

This will change nothing as far as this group goes, as it will continue to

be known as the IgA Nephropathy Support Group. However, rather than being

associated with a companion website run by me personally, as an individual,

www.igan.ca will from now on be operated by the Foundation for IgA

Nephropathy. As a subscriber to the support group, you all remain just that,

a subscriber to the IgA Nephropathy Support Group on Yahoo Groups. The

support group will continue to be our main activity in the foreseeable

future. This is where we do what we do, that is, help people to understand

and to deal with their diagnosis of IgAN, and provide a forum for others to

do so as well.

A few weeks ago I closed the donations page on www.igan.ca pending our

reorganization as the Foundation. At some point in the near future, once we

have completed the necessary banking arrangements, donations will henceforth

be accepted by the Foundation for IgA Nephropathy.

We decided the board of directors would be comprised of our current group of

active moderators, if they accepted to serve. The slate of directors is then

as follows:

Pierre Lachaîne - President and CEO

Walt Crosby - VP Policy

Weber - Treasurer and CFO

Cy Webb - Secretary

Cohen - Parliamentarian

Barton K. Hawkins - at large

Rita Nucciarone - at large

Amy Griswold - at large

I want to thank all the moderators for accepting these volunteer positions

and attending the initial board meeting, and I particularly and especially

want to thank Cy for doing all the legal legwork, and for handling the

banking arrangements. Now, at this point, I'm not sure what the total cost

of doing this will have been exactly, but I do know it would have been

prohibitively-expensive without Cy offering to do this for us for free, and

others paying for the direct costs. I don't know how I can ever thank you

enough for this, Cy.

I would also like to say that we would never have gotten to this point

without all the hard work the moderators put into this group, and the

wonderful cooperation of all our members. Before we start accepting

donations to the Foundation, I also want to thank all of you who made it

possible for me to maintain the website until now. It simply would have

folded long ago without your help, and also without the other moderators to

help me welcome new members and answer questions.

Initially, the main activity of the Foundation will be to operate the

website, but I hope we can take on greater tasks in the future.

Pierre

CEO

Foundation for IgA Nephropathy

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Thanks to everyone for your good wishes. I have read all of your messages of

thanks, and I appreciate each and every one.

The main advantage of being an incorporated non-profit foundation is that we

will be able to take donations and issue income tax receipts.

It's great to be associated with all of you via this support group. When I

started it 5 years ago, I couldn't even dream of the success we've had. I've

met so many wonderful friends and associates along the way. I have to thank

you all for that, because without it, there are days when I wouldn't have

much to do :-)

Pierre

[Guest guest]

Congratulations Pierre, I am really happy for you and really for

everyone here. This website is a wonderful place, and whenever I read

about research in kidney disease, I'm always sad that not much

importance appears to be attached to IgA Nephropathy (usually most

research about kidney disease seems connected with diabetes). I

think a foundation like this can help to bring more awareness of IgA

Nephropathy.

If there is any way that I can help or volunteer, pls let me know.

Sophia

> This is a really momentus day in the life of our support group. I don't

know

> if I can adequately express the excitement of it in an email like this.

>

> Most of you don't know this, but very early on after I started the

support

> group back in 2000, it was my intention to form some kind of non-

profit

> registered charity for the purpose of running the www.igan.ca website

and

> possibly eventually contributing to research in the field of IgAN. After

> some initial legwork, I never followed through with it, because of the

costs

> involved in setting it up. I found it was simply prohibitive for me to do

> this alone. Donations I received personally only covered my operating

> expenses for the website, and I don't have surplus income I can use

for

> these kinds of things.

>

> But the idea was always there, and at some point, and Walt,

two of our

> earliest moderators and friends, offered to pay the startup costs. By

that

> point, it was the summer just before I started dialysis, and I decided

it

> was too big of a hassle for me to do at that time. That was 2002. I

didn't

> incorporate, but we did carry on with the website and the support

group.

>

> Fast forward to a couple of months ago. Cy and gave the idea

new

> impetus when they emailed me suggesting we could incorporate as a

non-profit

> corporation. I still thought it was a great idea and definitely a future

> goal, but, with Cy and offering to help realize this dream now, I

> thought the time had come to go ahead and just do it. Now, you have

to

> realize, this meant no work for me at all, but a lot of work for Cy,

acting

> as our legal advisor, and , acting as our treasurer.

>

> Earlier this month, on Sunday, July 3, we held our initial board

meeting for

> the purpose of adopting bylaws for " The Foundation for IgA

Nephropathy " and

> electing a board of directors. It took the form of a conference call

> meeting, since we all live in different parts of the U.S. and me in

Canada.

> We elected a slate of directors that day, and the next step was to

receive

> official notification from the State of California where we incorporated.

>

> I'm very proud to announce to the group that Cy received this in the

mail

> today, and we are now officially The Foundation for IgA Nephropathy,

with

> all the rights and responsibilities of a non-profit corporation.

>

> This will change nothing as far as this group goes, as it will continue

to

> be known as the IgA Nephropathy Support Group. However, rather

than being

> associated with a companion website run by me personally, as an

individual,

> www.igan.ca will from now on be operated by the Foundation for IgA

> Nephropathy. As a subscriber to the support group, you all remain

just that,

> a subscriber to the IgA Nephropathy Support Group on Yahoo

Groups. The

> support group will continue to be our main activity in the foreseeable

> future. This is where we do what we do, that is, help people to

understand

> and to deal with their diagnosis of IgAN, and provide a forum for

others to

> do so as well.

>

> A few weeks ago I closed the donations page on www.igan.ca

pending our

> reorganization as the Foundation. At some point in the near future,

once we

> have completed the necessary banking arrangements, donations will

henceforth

> be accepted by the Foundation for IgA Nephropathy.

>

> We decided the board of directors would be comprised of our current

group of

> active moderators, if they accepted to serve. The slate of directors is

then

> as follows:

>

> Pierre Lachaîne - President and CEO

> Walt Crosby - VP Policy

> Weber - Treasurer and CFO

> Cy Webb - Secretary

> Cohen - Parliamentarian

> Barton K. Hawkins - at large

> Rita Nucciarone - at large

> Amy Griswold - at large

>

> I want to thank all the moderators for accepting these volunteer

positions

> and attending the initial board meeting, and I particularly and

especially

> want to thank Cy for doing all the legal legwork, and for

handling the

> banking arrangements. Now, at this point, I'm not sure what the total

cost

> of doing this will have been exactly, but I do know it would have been

> prohibitively-expensive without Cy offering to do this for us for free,

and

> others paying for the direct costs. I don't know how I can ever thank

you

> enough for this, Cy.

>

> I would also like to say that we would never have gotten to this point

> without all the hard work the moderators put into this group, and the

> wonderful cooperation of all our members. Before we start accepting

> donations to the Foundation, I also want to thank all of you who made

it

> possible for me to maintain the website until now. It simply would

have

> folded long ago without your help, and also without the other

moderators to

> help me welcome new members and answer questions.

>

> Initially, the main activity of the Foundation will be to operate the

> website, but I hope we can take on greater tasks in the future.

>

> Pierre

> CEO

> Foundation for IgA Nephropathy

[Guest guest]

Cathy,

I read your post and I'm so sorry that you have so many difficulties in

your life. Pls know that you are in my thoughts and prayers.

*hugs*

Sophia

>

>

>

>

> I just wanted to jump in and say congratulations and a great big thank

you

> also, to Pierre, Walt, , Cy, , Barton, Rita and Amy G for all

you

> have done for us that have had Igan invade our lives. Like so many

others

> here, you all have been such a blessing for my sanity with the

learning and

> everyday coping with the dreaded Igan. I have learned, and I am still

> learning so much from all of you that has tremendously helped me

through

> many days of confusion with my child's unexpected diagnosis.

>

> Words just can not express my personal gratitude.

>

> May God Bless you all for all your past hard work and continued

support.

>

>

>

> Sorry I have been quiet lately, lots going on here. I do read all the post

> daily, and for all of you that have had not so good news and all the

> newcomers here my prayers are with you, for all of you that have

received

> good news, congratulations and keep up the good work.

>

>

>

> Jennell is going through what I am guessing is denial on her Igan and

> although things have been happening with it, headaches, joint pain

and now a

> new breakout with her HSP and her dreadful nasty attitude she

refuses to let

> me call the doctor or go see him until her next appointment on

August 5th.

>

>

>

>

> I was also in a serious car accident where I was driving my pregnant

friend

> home from a doctors appointment when we got re-ended on the

highway, sadly

> she lost the baby from it and although it was not my fault I am just so

sick

> over it and trying to deal with that. Please know that although I have

been

> quiet my prayers are still with all of you.

>

>

>

> God Bless everyone here

>

> Cathy......Jennell's Mom

>

>

>

>

>

>

[Guest guest]

Thank you for your prayers they are very much welcomed and I ask that

you say a special prayer for my friend who lost the baby, she is just having

such a very hard hard time with it.

I know that it wasn’t my fault, it is her pain that is so terribly killing

me. I have turned it over to God but she just isn’t able to as of yet. We

had to do depositions yesterday with the other insurance company and that

was so hard reliving it all over again.

I have decided not to call Jennell’s neph, because we have an appointment

with him on August 5th and from what I am reading here is that the week of

waiting for the next appointment shouldn’t be too harmful for her time wise.

She is just so stubborn, she fears blood draws so badly. Plus, she is 16 ½

yrs old and if anyone here has daughters at that age you know that it is an

age where they just know everything and totally hate their Mom’s.

Thank God her boyfriend is back from a 3 week vacation, he really is

wonderful with keeping her on track with her diet and at least she is

somewhat smiling again (but only around him). I pray that she will accept

what has been handed to her and make the best of it and accept all outside

help both medically and emotionally, this I have prayed for daily.

God Bless you also and everyone else in this group.

Cathy……Jennell’s Mom

_____

From: iga-nephropathy

[mailto:iga-nephropathy ] On Behalf Of W4JC@...

Sent: Monday, July 25, 2005 10:59 PM

To: iga-nephropathy

Subject: Re: It's official! We're the Foundation for IgA Nephropathy.

Dear Cathy,

I am just so sorry both for the loss of your friend's baby and also that

Jennell is going through a flare up. I do pray both you and your friend

will

feel the Lord's comfort as you grieve the loss of her baby. If you were

rear-ended, it cannot possibly be your fault. I hope you can feel our

prayers as

you work through this difficult time.

Please do call Jennell's Nephrologist. If she is in a state of denial, her

doctor still needs to know she is in the midst of a flare up.

God bless you!

In a message dated 7/25/2005 9:55:00 A.M. Pacific Daylight Time,

cwaelty@... writes:

Sorry I have been quiet lately, lots going on here. I do read all the post

daily, and for all of you that have had not so good news and all the

newcomers here my prayers are with you, for all of you that have received

good news, congratulations and keep up the good work.

Jennell is going through what I am guessing is denial on her Igan and

although things have been happening with it, headaches, joint pain and now

a

new breakout with her HSP and her dreadful nasty attitude she refuses to

let

me call the doctor or go see him until her next appointment on August 5th.

I was also in a serious car accident where I was driving my pregnant friend

home from a doctors appointment when we got re-ended on the highway, sadly

she lost the baby from it and although it was not my fault I am just so

sick

over it and trying to deal with that. Please know that although I have

been

quiet my prayers are still with all of you.

God Bless everyone here

Cathy......Jennell's Mom