Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Hello, I am new to the group and was wondering if anyone else's child was deaf as well? My son, Rory, is now six and was diagnosed deaf at 9 months and received a cochlear implant at 2 years. His hearing with the implant is good but he is still not talking. Over the last 2 years we have had a diagnosis of Atypical Autism - (non specific PDD in the US), but I now realise that he has some sort of Apraxia. His receptive language is not good but is way ahead of his expressive which is limited to agh eee for Daddy, aaaaa for , his brother, and another two syllable sound for mummy. He can now count to ten and it does sound quite close. His 'babble' is pretty much syllable correct but he has no consonants. However he can produce a perfect p and b with prompting and help. It's like he can hear the word and find it in his brain, but if he has to find the word in his brain and speak it, he can't. Take 'spoon' - he know's what a spoon is and if i ask him if he wants a spoon he will say 'yeah' (I forgot - yeah and no are very clear now!). However if i ask him what he wants he will have to gesture and make a noise (nothing like spoon). So i show him the spoon and I ask what it is and he makes a noise. I say spoon and he manages 'ooo', watching my mouth pattern. Also it seems when he thinks' he can't find the way to say the word. So I'll ask him who this is and he will say Rory - really clearly. i ask him again (he thinks) and he can't do it! He's made loads of progress (tiny steps but progress!) in the last 18 months. I've just started him on the ProEFA and he gets 4 sessions of SLT a week at his wonderful school for the deaf. Despite not really knowing what is wrong the approach from the school is spot on. One thing that mystifies the school is that sometimes he can do something and get it right and we all think - yes it's gone in and he's got it, then a week later he can't do it. Is this common? It would fit with a sort of retrieval/memory issue with the brain. Anyway, thanks for the group. At my last meeting with the autism team i said i wanted to keep it on file and them on hand, even though 'not talking' was the only characteristic that Rory had... now it's finally ruled out autism in my mind. It will be very interesting to share all of this with them when i see them next. I have to confess i am really hoping the ProEFA will really help! Just in time for going back to school. Thanks UK mummy to deaf aged 8 with CI - started talking at 6 Rory deaf aged 6 with CI only just starting to talk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 my 7mo old is deaf. my 2 1/2 yr old has EE. the baby doesn't. -- Check out my website: http://www.answeredprayers.aboutmybaby.com <http://www.answeredprayers.aboutmybaby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 my 7mo old is deaf. my 2 1/2 yr old has EE. the baby doesn't. -- Check out my website: http://www.answeredprayers.aboutmybaby.com <http://www.answeredprayers.aboutmybaby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Hi Bettyann, It is nice to " see " you here too since we are living parallel lives. LOL :-)Tera " It is the mark of an educated mind to be able to entertain a thought without accepting it " . Re: [ ] new to group - deaf child my 7mo old is deaf. my 2 1/2 yr old has EE. the baby doesn't. -- Check out my website: http://www.answered prayers.aboutmyb aby.com <http://www.answered prayers.aboutmyb aby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 lol we just got back from speech therapy for BOTH boys. is definitely apraxic - he constantly driblbes all liquids out of his mouth (it's a pain to clean up all the time) and he won't/can't get his tongue off the roof of his mouth. BUT he says a bunch of words now - just not often - it's a teeny little whisper - and he'll only do/say words if it's an automatic response - like you hand him a cup of water - he'll say 'thank you' - but you have to REALLY listen for it. . .. so, what are you up to? is VERY badly allergic to peanuts, apricots and eggs. So I now walk around with an epi pen and fear everything. . . .. sigh. . .. they also quadrupled his steroid meds. . .. I swear, 's deafness is a non issue as far as I'm concerned. It's keeping alive that's going to do me in. . .. Love, BettyAnn off to see pediatrician about the weird rash on 's back. . . .. tera wrote: >Hi Bettyann, > >It is nice to " see " you here too since we are living parallel lives. LOL > >:-)Tera > > " It is the mark of an educated mind to be able to entertain a thought without accepting it " . > > > > Re: [ ] new to group - deaf child > >my 7mo old is deaf. my 2 1/2 yr old has EE. the baby doesn't. > > > -- Check out my website: http://www.answeredprayers.aboutmybaby.com <http://www.answeredprayers.aboutmybaby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 tera - you know how we had troubles with our babies eating? My speech therapist told me today MANY of the children they have had eating difficulties. . ... william's fussing gotta scoot to doc anyway -- Check out my website: http://www.answeredprayers.aboutmybaby.com <http://www.answeredprayers.aboutmybaby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Bettyann, Yep. I just got " The Out of Sync Child " and I'm reading it. There is another one called " Can't Eat, Won't Eat " that is on my list. Once you learn about sensory issues, it all makes much more sense. :-)Tera " It is the mark of an educated mind to be able to entertain a thought without accepting it " . Re: [ ] new to group - deaf child tera - you know how we had troubles with our babies eating? My speech therapist told me today MANY of the children they have had eating difficulties. . ... william's fussing gotta scoot to doc anyway -- Check out my website: http://www.answered prayers.aboutmyb aby.com <http://www.answered prayers.aboutmyb aby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Hi Bettyann, It is nice to " see " you here too since we are living parallel lives. LOL :-)Tera " It is the mark of an educated mind to be able to entertain a thought without accepting it " . Re: [ ] new to group - deaf child my 7mo old is deaf. my 2 1/2 yr old has EE. the baby doesn't. -- Check out my website: http://www.answered prayers.aboutmyb aby.com <http://www.answered prayers.aboutmyb aby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 lol we just got back from speech therapy for BOTH boys. is definitely apraxic - he constantly driblbes all liquids out of his mouth (it's a pain to clean up all the time) and he won't/can't get his tongue off the roof of his mouth. BUT he says a bunch of words now - just not often - it's a teeny little whisper - and he'll only do/say words if it's an automatic response - like you hand him a cup of water - he'll say 'thank you' - but you have to REALLY listen for it. . .. so, what are you up to? is VERY badly allergic to peanuts, apricots and eggs. So I now walk around with an epi pen and fear everything. . . .. sigh. . .. they also quadrupled his steroid meds. . .. I swear, 's deafness is a non issue as far as I'm concerned. It's keeping alive that's going to do me in. . .. Love, BettyAnn off to see pediatrician about the weird rash on 's back. . . .. tera wrote: >Hi Bettyann, > >It is nice to " see " you here too since we are living parallel lives. LOL > >:-)Tera > > " It is the mark of an educated mind to be able to entertain a thought without accepting it " . > > > > Re: [ ] new to group - deaf child > >my 7mo old is deaf. my 2 1/2 yr old has EE. the baby doesn't. > > > -- Check out my website: http://www.answeredprayers.aboutmybaby.com <http://www.answeredprayers.aboutmybaby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 tera - you know how we had troubles with our babies eating? My speech therapist told me today MANY of the children they have had eating difficulties. . ... william's fussing gotta scoot to doc anyway -- Check out my website: http://www.answeredprayers.aboutmybaby.com <http://www.answeredprayers.aboutmybaby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Bettyann, Yep. I just got " The Out of Sync Child " and I'm reading it. There is another one called " Can't Eat, Won't Eat " that is on my list. Once you learn about sensory issues, it all makes much more sense. :-)Tera " It is the mark of an educated mind to be able to entertain a thought without accepting it " . Re: [ ] new to group - deaf child tera - you know how we had troubles with our babies eating? My speech therapist told me today MANY of the children they have had eating difficulties. . ... william's fussing gotta scoot to doc anyway -- Check out my website: http://www.answered prayers.aboutmyb aby.com <http://www.answered prayers.aboutmyb aby.com/> Mark 11:24: Therefore, whatever you ask for in prayer, believe that you have received it, and it will be yours. 6:34: Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.