RE: CHERAB has been contacted by two celebrities offering help -looking for a team

[Guest guest]

That's awesome that they want to help us spread the word about apraxia

.Who is the singer? Is it someone that people flock to go see?

Any thing I can do let me know

rjskimom@...

Amy

kiddietalk <kiddietalk@...> wrote:

Hi everyone!

I was just contacted by an entertainer who is going on National tour

in the US who wants to raise awareness about apraxia. He has a

friend who has a child with apraxia and thus he wrote to me the

following:

" I would make the Cherab Foundation one of my official charities for

the extent of my career "

He is looking for:

" I would like to collect donations throughout the course of my tour

and at the end of the calendar year donate 100% of all collected

funds to the Cherab Foundation in the name of my friends son. I

would require being supplied with clearly labeled containers such as

the march of dimes and salvation army uses to collect donations from

people. I would require pamphlets that describe the disease and I

would need pamphlets describing the Cherab Foundation and what it

does for children. I would also request some extra large T-shirts

for me to wear during my appearances, possibly some wrist bracelets,

any promotional material you could supply me. "

If anyone works with any companies that can help provide this singer

with what he requests above -please email me at lisa@... lisa

at cherab.org CHERAB has been purely grass roots and thus up till

now has been offered but has not accepted donations -but this is an

opportunity that I believe we can't refuse!

Where am I thinking the promised monies raised can go?

Possibly not enough for research (but not sure so don't rule that

out) But I was thinking that it would be great to use the monies to

help produce a documentary film about another celebrity who grew up

with apraxia that I have not talked about yet with this group

because I have been waiting for the right opportunity. This second

celebrity was unable to speak until 6 -and still suffers from

apraxia today but has overcome it (most do not even know that this

actor is apraxic -but both the agent and manager of this actor have

agreed to let this story come forward) This actor confirms the power

of memorizing the scripts to help with motor memory in speech (a

theory we've shared in this group for years) As this actor said to

me " there are still some words that I can't say so I have to

practice them over and over -or change/work around them " This actor

wants the amazing behind the scenes story to come forward to help

all the children of today diagnosed with apraxia. Perhaps the

singer who also offered to help (above) will be willing to write and

sing for the soundtrack for the movie idea we will be pitching.

This will be a very exciting opportunity for all of us to work

together as a group with two very incredible celebrities who have

offered their talents or story to help all of our children -to help

raise awareness. I know a number of people in the film industry to

pitch this to -and am looking to get started ASAP and since I admire

the intelligence and passion of this group, am looking forward to

putting together a team that includes some of you to work with on

this.

As part of the team for this I will provide you with the details.

Please include your phone number and time zone when you email me (at

lisa at cherab.org) and in what capacity you would like to help -or

what you believe your qualifications are.

Thanks so much!

=========

[Guest guest]

That's awesome that they want to help us spread the word about apraxia

.Who is the singer? Is it someone that people flock to go see?

Any thing I can do let me know

rjskimom@...

Amy

kiddietalk <kiddietalk@...> wrote:

Hi everyone!

I was just contacted by an entertainer who is going on National tour

in the US who wants to raise awareness about apraxia. He has a

friend who has a child with apraxia and thus he wrote to me the

following:

" I would make the Cherab Foundation one of my official charities for

the extent of my career "

He is looking for:

" I would like to collect donations throughout the course of my tour

and at the end of the calendar year donate 100% of all collected

funds to the Cherab Foundation in the name of my friends son. I

would require being supplied with clearly labeled containers such as

the march of dimes and salvation army uses to collect donations from

people. I would require pamphlets that describe the disease and I

would need pamphlets describing the Cherab Foundation and what it

does for children. I would also request some extra large T-shirts

for me to wear during my appearances, possibly some wrist bracelets,

any promotional material you could supply me. "

If anyone works with any companies that can help provide this singer

with what he requests above -please email me at lisa@... lisa

at cherab.org CHERAB has been purely grass roots and thus up till

now has been offered but has not accepted donations -but this is an

opportunity that I believe we can't refuse!

Where am I thinking the promised monies raised can go?

Possibly not enough for research (but not sure so don't rule that

out) But I was thinking that it would be great to use the monies to

help produce a documentary film about another celebrity who grew up

with apraxia that I have not talked about yet with this group

because I have been waiting for the right opportunity. This second

celebrity was unable to speak until 6 -and still suffers from

apraxia today but has overcome it (most do not even know that this

actor is apraxic -but both the agent and manager of this actor have

agreed to let this story come forward) This actor confirms the power

of memorizing the scripts to help with motor memory in speech (a

theory we've shared in this group for years) As this actor said to

me " there are still some words that I can't say so I have to

practice them over and over -or change/work around them " This actor

wants the amazing behind the scenes story to come forward to help

all the children of today diagnosed with apraxia. Perhaps the

singer who also offered to help (above) will be willing to write and

sing for the soundtrack for the movie idea we will be pitching.

This will be a very exciting opportunity for all of us to work

together as a group with two very incredible celebrities who have

offered their talents or story to help all of our children -to help

raise awareness. I know a number of people in the film industry to

pitch this to -and am looking to get started ASAP and since I admire

the intelligence and passion of this group, am looking forward to

putting together a team that includes some of you to work with on

this.

As part of the team for this I will provide you with the details.

Please include your phone number and time zone when you email me (at

lisa at cherab.org) and in what capacity you would like to help -or

what you believe your qualifications are.

Thanks so much!

=========

[Guest guest]

http://www.apraxia-

kids.org/site/c.chKMI0PIIsE/b.700249/k.CC2C/Home/apps/lk/content3.asp

x

Hi

Apraxia Kids homepage has all this information you are looking for.

There are silcone bracelets, T-shirts, video, and probably someone

to print pamphlets. Maybe this is the time to work together with

them to help raise awareness especially if this singer is a well

known singer that is going to be on many talk shows. Why hasn't he

been on Oprah discussing this? I was once told if you want someone

to raise awareness, find a celebrity that has a child or knows

someone.

Tina

>

I would require being supplied with clearly labeled containers such

as

> the march of dimes and salvation army uses to collect donations

from

> people. I would require pamphlets that describe the disease and I

> would need pamphlets describing the Cherab Foundation and what it

> does for children. I would also request some extra large T-shirts

> for me to wear during my appearances, possibly some wrist

bracelets,

> any promotional material you could supply me. "

>

> If anyone works with any companies that can help provide this

singer

> with what he requests above

[Guest guest]

that is awesome!!!

chris

kiddietalk <kiddietalk@...> wrote:

Hi everyone!

I was just contacted by an entertainer who is going on National tour

in the US who wants to raise awareness about apraxia. He has a

friend who has a child with apraxia and thus he wrote to me the

following:

" I would make the Cherab Foundation one of my official charities for

the extent of my career "

He is looking for:

" I would like to collect donations throughout the course of my tour

and at the end of the calendar year donate 100% of all collected

funds to the Cherab Foundation in the name of my friends son. I

would require being supplied with clearly labeled containers such as

the march of dimes and salvation army uses to collect donations from

people. I would require pamphlets that describe the disease and I

would need pamphlets describing the Cherab Foundation and what it

does for children. I would also request some extra large T-shirts

for me to wear during my appearances, possibly some wrist bracelets,

any promotional material you could supply me. "

If anyone works with any companies that can help provide this singer

with what he requests above -please email me at lisa@... lisa

at cherab.org CHERAB has been purely grass roots and thus up till

now has been offered but has not accepted donations -but this is an

opportunity that I believe we can't refuse!

Where am I thinking the promised monies raised can go?

Possibly not enough for research (but not sure so don't rule that

out) But I was thinking that it would be great to use the monies to

help produce a documentary film about another celebrity who grew up

with apraxia that I have not talked about yet with this group

because I have been waiting for the right opportunity. This second

celebrity was unable to speak until 6 -and still suffers from

apraxia today but has overcome it (most do not even know that this

actor is apraxic -but both the agent and manager of this actor have

agreed to let this story come forward) This actor confirms the power

of memorizing the scripts to help with motor memory in speech (a

theory we've shared in this group for years) As this actor said to

me " there are still some words that I can't say so I have to

practice them over and over -or change/work around them " This actor

wants the amazing behind the scenes story to come forward to help

all the children of today diagnosed with apraxia. Perhaps the

singer who also offered to help (above) will be willing to write and

sing for the soundtrack for the movie idea we will be pitching.

This will be a very exciting opportunity for all of us to work

together as a group with two very incredible celebrities who have

offered their talents or story to help all of our children -to help

raise awareness. I know a number of people in the film industry to

pitch this to -and am looking to get started ASAP and since I admire

the intelligence and passion of this group, am looking forward to

putting together a team that includes some of you to work with on

this.

As part of the team for this I will provide you with the details.

Please include your phone number and time zone when you email me (at

lisa at cherab.org) and in what capacity you would like to help -or

what you believe your qualifications are.

Thanks so much!

=========

[Guest guest]

,

I am thrilled that a celebrity wants to come forward but why won't

they use their money?

Wouldn't any money be better spent providing grants for children who

can't afford speech therapy?

Is CHERAB now an official charitable organization that can use as a

tax deduction?

>

> Hi everyone!

>

> I was just contacted by an entertainer who is going on National

tour

> in the US who wants to raise awareness about apraxia. He has a

> friend who has a child with apraxia and thus he wrote to me the

> following:

>

> " I would make the Cherab Foundation one of my official charities

for

> the extent of my career "

>

> He is looking for:

>

> " I would like to collect donations throughout the course of my

tour

> and at the end of the calendar year donate 100% of all collected

> funds to the Cherab Foundation in the name of my friends son. I

> would require being supplied with clearly labeled containers such

as

> the march of dimes and salvation army uses to collect donations

from

> people. I would require pamphlets that describe the disease and I

> would need pamphlets describing the Cherab Foundation and what it

> does for children. I would also request some extra large T-shirts

> for me to wear during my appearances, possibly some wrist

bracelets,

> any promotional material you could supply me. "

>

> If anyone works with any companies that can help provide this

singer

> with what he requests above -please email me at lisa@... lisa

> at cherab.org CHERAB has been purely grass roots and thus up till

> now has been offered but has not accepted donations -but this is

an

> opportunity that I believe we can't refuse!

>

> Where am I thinking the promised monies raised can go?

>

> Possibly not enough for research (but not sure so don't rule that

> out) But I was thinking that it would be great to use the monies

to

> help produce a documentary film about another celebrity who grew

up

> with apraxia that I have not talked about yet with this group

> because I have been waiting for the right opportunity. This

second

> celebrity was unable to speak until 6 -and still suffers from

> apraxia today but has overcome it (most do not even know that this

> actor is apraxic -but both the agent and manager of this actor

have

> agreed to let this story come forward) This actor confirms the

power

> of memorizing the scripts to help with motor memory in speech (a

> theory we've shared in this group for years) As this actor said

to

> me " there are still some words that I can't say so I have to

> practice them over and over -or change/work around them " This

actor

> wants the amazing behind the scenes story to come forward to help

> all the children of today diagnosed with apraxia. Perhaps the

> singer who also offered to help (above) will be willing to write

and

> sing for the soundtrack for the movie idea we will be pitching.

>

> This will be a very exciting opportunity for all of us to work

> together as a group with two very incredible celebrities who have

> offered their talents or story to help all of our children -to

help

> raise awareness. I know a number of people in the film industry

to

> pitch this to -and am looking to get started ASAP and since I

admire

> the intelligence and passion of this group, am looking forward to

> putting together a team that includes some of you to work with on

> this.

>

> As part of the team for this I will provide you with the details.

> Please include your phone number and time zone when you email me

(at

> lisa at cherab.org) and in what capacity you would like to help -

or

> what you believe your qualifications are.

>

> Thanks so much!

>

> =====

>

[Guest guest]

This is good to hear!

Any chance you could tell us who the celebs are? That would help me

(personally) make this decision.

Thanks,

, IL

[Guest guest]

Yes - I see nothing on the site regarding your 501 3c - something

necessary for you to call yourself a non-profit which accepts

donations. In which state do you hold the status? What are the

bilaws of that state? You will likely need to have a Board of

Directors or Trustees, internal financial controls, etc..

There are tons of promotional companies out there. Some of the ones

I dealt with are in the Minneapolis area. These places would be

able to provide you with donation cups at a very minimal cost - as

well as the wrist bands. The Tshirts are usually cheaper if done by

a company that specializes in clothing. As for the person's request

for brochures, you could certainly combine the 2 (one on cherab and

one on apraxia) into 1 double sided, tri fold brochure. In these

instances, I believe less is more - not tons of photos, not alot of

gloss.

This was the very specific portion of marketing in which I worked -

promotions, events. To answer 's question about using his own

monies - this person likely believes we already have these things -

most non-profits have some promotional items, brochures, etc.. I

would caution you though to contractualize with him to be sure

that a) he doesn't ruin your brand you are certain of financial

controls regarding HIS accepting monies on your behalf and c) that

you have some degree of control over what is said on the

foundation's behalf.

Marina

[Guest guest]

Dear ,

It is great to hear from you. Emma is doing really well now. I credit it to

early intervention and to Dr. Agin's support and recommendations and to the

book Late Talker!! Thanks to you. You are amazing.

I am very interested in working with you on this but my time is terribly

stretched. I am still running the non profit that I founded

www.case-web.org

I am also Chairman and President of an Internet phone company in Shanghai

China.

The Council of Alumni for Social Enterprise (CASE)

I am wondering if we could get some graduate students at Harvard Medical or

Public Health to undertake research on Apraxia on an ongoing basis. The

cost is miniscule compared to a full blown research study but it could get

needed attention on the topic at the school and then into society at large.

Please send me the details. In the meantime I am going to follow up with my

contacts at Harvard to see if there are any faculty currently focusing on

speech either connected with Aspergers/Autism or independent of it.

I'll keep you posted.

Are you ever in NY? I'd love to meet you in person. Alternatively, when I

next get to Fl I will call.

Xx

Judy

[Guest guest]

This is an excellent idea! Really a graduate student would have the time,

energy and motivation (ie need for a good project with the potential to make

a difference) to take this on. The problem at the moment with a good

research study is the cost, lack of knowledge on apraxia even in the

developmental community...and money shortage at NIH to fund this sort of

thing even for the interested investigator. Support for a bigger clinical

investigation would likely have to come from outside charitable

organizations or foundations.

RE: [ ] CHERAB has been contacted by two

celebrities offering help -looking for a team

Dear ,

It is great to hear from you. Emma is doing really well now. I credit it to

early intervention and to Dr. Agin's support and recommendations and to the

book Late Talker!! Thanks to you. You are amazing.

I am very interested in working with you on this but my time is terribly

stretched. I am still running the non profit that I founded

www.case-web.org

I am also Chairman and President of an Internet phone company in Shanghai

China.

The Council of Alumni for Social Enterprise (CASE)

I am wondering if we could get some graduate students at Harvard Medical or

Public Health to undertake research on Apraxia on an ongoing basis. The

cost is miniscule compared to a full blown research study but it could get

needed attention on the topic at the school and then into society at large.

Please send me the details. In the meantime I am going to follow up with my

contacts at Harvard to see if there are any faculty currently focusing on

speech either connected with Aspergers/Autism or independent of it.

I'll keep you posted.

Are you ever in NY? I'd love to meet you in person. Alternatively, when I

next get to Fl I will call.

Xx

Judy

[Guest guest]

Yes, it is a great idea - but the cart before the horse. I can find

no where reference to a board of trustees or the 501 3c status for

cherab. The decision to accept donations and work with a celeb must

be made at the board level - not here online. didn't reference

it having passed through her board. Without having gone through the

proper avenues of 501 3c status, I'm afraid we couldn't accept

donations as a nonprofit at all - and I doubt a celeb would want to

pair up with an org that hasn't gone through the proper channels.

Is anyone here a trustee? - can you send me this info? I

would really be EXTREMELY happy to help - but we've got to have that

information first.

Marina

>

> This is an excellent idea! Really a graduate student would have

the time,

> energy and motivation (ie need for a good project with the

potential to make

> a difference) to take this on. The problem at the moment with a

good

> research study is the cost, lack of knowledge on apraxia even in

the

> developmental community...and money shortage at NIH to fund this

sort of

> thing even for the interested investigator. Support for a bigger

clinical

> investigation would likely have to come from outside charitable

> organizations or foundations.

>

>

> RE: [ ] CHERAB has been contacted by two

> celebrities offering help -looking for a team

>

>

> Dear ,

>

> It is great to hear from you. Emma is doing really well now. I

credit it to

> early intervention and to Dr. Agin's support and recommendations

and to the

> book Late Talker!! Thanks to you. You are amazing.

>

> I am very interested in working with you on this but my time is

terribly

> stretched. I am still running the non profit that I founded

> www.case-web.org

>

> I am also Chairman and President of an Internet phone company in

Shanghai

> China.

>

> The Council of Alumni for Social Enterprise (CASE)

>

> I am wondering if we could get some graduate students at Harvard

Medical or

> Public Health to undertake research on Apraxia on an ongoing

basis. The

> cost is miniscule compared to a full blown research study but it

could get

> needed attention on the topic at the school and then into society

at large.

>

> Please send me the details. In the meantime I am going to follow

up with my

> contacts at Harvard to see if there are any faculty currently

focusing on

> speech either connected with Aspergers/Autism or independent of it.

>

> I'll keep you posted.

>

> Are you ever in NY? I'd love to meet you in person.

Alternatively, when I

> next get to Fl I will call.

>

> Xx

> Judy

>

>

>

>

>

>